Guest guest Posted July 12, 2007 Report Share Posted July 12, 2007 Hi Darcy,Welcome to the group. Ask your questions and someone will try to answer.Most here are taking Urso and many are on the high dose.25-30 mg/kg/body weight.A lot take fish oil and a couple of other supplements.You can learn a lot more by going to www.pscpartners.org and reading past copies of our free newsletters.Right now my son takes high dose urso, fish oil, Flora Q [ a probiotic] and cipro [ an antibiotic for his chronic pouchitis]He also needs to go every 6 months for blood work, has a yearly MRCP and Ultrasound.If there isn't a PSC expert in your area , you can learn here and take papers to your Dr. for backup.Then you will both learn.We went to the experts at the Mayo in Rochester for a second opinion and guidance and then just followed up with our GI back in our state.Where do you live? Someone might be able to recommend a good Dr. in your area.Take care, we are here for you. LeeHello All, I'm not sure that my doctor has any experience treating someone with PSC. I don't want to overreact and run off to every gastro dr. in my PPO but I'm not sure what to do. Does this sound like a "normal" treatment strategy for PSC? I would appreciate any suggestions or advice at this point most of what I know about PSC I read on internet.Thanks,Darcy Quote Link to comment Share on other sites More sharing options...
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