Guest guest Posted November 8, 2008 Report Share Posted November 8, 2008 Hello all! I've been watching this forum for several weeks now - started just after I was diagnosed with IPF. I have to say that I love the warmth and the caring and the sharing of the group. You (we!) are a great bunch of people. Being in the just-recently-diagnosed stage, I'm not on oxygen, prednisone, or rehab. (I am blessed - I think!) I like my pulomonologist very much, but now I question how good he is. He's not talked about an oximeter, nor oxygen. I do not know my " sats " . He thinks that a biopsy is not going to reveal anything worth knowing. He believes that rehab would change nothing. He did talk about Prednisone but was not encouraging (which was okay with me, as it sounds as if the side effects are very un-nice). I wonder if I'm in a very early stage of this disease, and therefore don't need oxygen or rehab, or if he just feels that nothing will help. I feel pretty good - except for the coughing and tiredness and sob. Anyway - just venting. I think I need to go to Duke, as was suggested by Beth, for a thorough evaluation. I did call my family doctor about that, but he said to talk to the pulmonologist. Sigh. I guess I will. Quote Link to comment Share on other sites More sharing options...
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