Re: [Breathe-SupportJoyce and Patti

[Guest guest]

Joyce, I'm glad that you feel up to our

planned meeting.

Besides you and me, there is Tom from Gilbertsville if he's interested.

Patti, Where in Philly?

I grew up in West Oak Lane, went to Girls' High and Temple.

We lived in Cherry Hill for 8 years before moving to Blue Bell.

The World is really small!!

Z fibriotic NSIP/05

Z 64,

fibriotic NSIP/o5/PA

And “mild”

PH/10/07 and Reynaud’s too!!

No, NSIP was not

self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to

Darah

and Sara

“I’m gonna

be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Joyce T Rosenberg wrote:

Patti

some of us from this neck of the USA are trying to plan a

meeting

I think you joined the group after we discussed it

I was waiting for the world series to end since jerry

works at the ballpark and i need him to drive me if it is far

Zion is the other person from the philly area going

to the meeting

sorry, but i forget who the others are--one is from near

washington DC

We figured out a place along I-95 to meet

depending on where you are in Jersey, maybe we could me at

a closer spot

i am from Langhorne at this time

where in philly are you from?

I grew up in the Northeast

the only weekend day i can't meet is next sunday

weekday meetings would depend on doctor appointments, etc

Pink Joyce IPF 3/06 Pennsylvania

From:

friend.patti <friend.patti (AT) yahoo (DOT) com>

Subject: Re: docs

To: Breathe-Support

Date: Saturday, November 8, 2008, 11:03 AM

Pink Joyce

i met with Dr. Ahya and he helped pull me through a tough time. I

live in Jersey. But born and raised in philly so always a philly

person lol. I go to temple, this week going for my annual testing

to stay on the list. id 1 day last week and this week its 3 days in

a row.. They generally wipe me out. But i am very lucky. Just tired.

I am 56; started with raynaud's around 89 and had extensive blocks

done,through the years constant battle with sinuses, brochitis and

pneumonia. In 99 an xray showed PF, but was just dropped there.

Started having problems breathing and finally when couldn't do that

much with grandchildren i told my doc wanted to see pulmonologist.

Well, after the cat scan i was admitted immediately for a biopsy,

where my surgeon also took a large amount of the base of my right

lung off. I was sent to Temple then and evaluated for transplant

and continue to be watched but too healthy.. Have developed PMH

(controlled with revatio) and they believe that it all stems from my

immune system and that i have scleroderma. that brings me to here. i

have dealing with this on my own and i wish we didn't need the group

but i am so glad for the support.patti

> >

> > going to transplant doc today, gp next monday, pulmonary next

> wednesday

> >

> > Pink Joyce IPF 3/06 Pennsylvania

> >

>

>

>

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