Re: [Breathe-SupportJoyce and Patti-Suggestions for work options?

[Guest guest]

For the Northeast get together. Could be interested. Depends on day

and place. Just let me know what ya'll decide as to when and where.

Several upcoming doc appts. Have been working, again, since Aug 20

(with time off for a 3 day visit to the Big House for URI) and an ER

visit for cellulitis in my leg. Luckily not MRSA. Anyway, I am

totally out of time off days. In fact, at this point I owe the

company days and as I accrue more need to bank some for the holidays

and potential bad days. Am meeting with my boss and HR on Monday to

discuss, what we can do to to make working easier. Of course the

American's with Disabilities Act requires them to work with me, but

my boss and my HR person genuinely are interested in my well being.

I covered for my boss several years ago when she was on short term

disability for colon cancer. So she knows what it is like. Besides,

I have been with the company for 32 years so I know where all the

bodies are buried (lol).

Any thoughts or suggestions on things that the company could and

should do so I can continue to work, be productive and yet not open

me to more negatives with my PF? I do have the option of working

from home using a VPN link to the office. However, I do need and

prefer face time in the office regularly. I am not on O2, yet

(should I even say that or is it considered bad karma?) and pretty

mobile, except for when my joints are acting up from the arthritis.

I do have a PD Tag so I get to park in close by parking at the front

door. (mostly for a fast getaway in the afternoon.

Of course, if there are meetings and folks are coughing and sneezing

I should not be around them. But, on the other hand, viruses usually

start to shed and get released in high numbers before people even

know they are sick.

Any suggestions will be welcome.

tom from PA

ps A co-worker (who used to report to me) has Sarcoidosis with PF.

So, we compare notes on a regular basis. He has significant pain

from the sarcoid and has an implanted morphine pump. He has left the

building by ambulance about 3 times, but is holding his own right

now. He sees a pulmonolgist at Drexel.

> > > >

> > > > going to transplant doc today, gp next monday, pulmonary

next

> > > wednesday

> > > >

> > > > Pink Joyce IPF 3/06 Pennsylvania

> > > >

> > >

> > >

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - http://www.avg. <http://www.avg./> com

> > > Version: 8.0.175 / Virus Database: 270.8.6/1765 - Release

Date:

> > 11/3/2008 4:59 PM

> > >

> >

> >

> >

> >

> >-------------------------------------------------------------------

-----

> >

> >

> >No virus found in this incoming message.

> >Checked by AVG - http://www.avg.com

> >Version: 8.0.175 / Virus Database: 270.9.0/1775 - Release Date:

11/8/2008 9:56 AM

> >

> >

> >

>

[Guest guest]

Joyce/Tom/all

need to get my reading glasses out.. saturday is okay also.. see

that sunday WAS NOT good... so let me know... patti

> > > > >

> > > > > going to transplant doc today, gp next monday,

pulmonary

> next

> > > > wednesday

> > > > >

> > > > > Pink Joyce IPF 3/06 Pennsylvania

> > > > >

> > > >

> > > >

> > > >

> > > > No virus found in this incoming message.

> > > > Checked by AVG - http://www.avg. <http://www.avg./> com

> > > > Version: 8.0.175 / Virus Database: 270.8.6/1765 -

Release

> Date:

> > > 11/3/2008 4:59 PM

> > > >

> > >

> > >

> > >

> > >

> > >----------------------------------------------------------------

---

> -----

> > >

> > >

> > >No virus found in this incoming message.

> > >Checked by AVG - http://www.avg.com

> > >Version: 8.0.175 / Virus Database: 270.9.0/1775 - Release Date:

> 11/8/2008 9:56 AM

> > >

> > >

> > >

> >

>