Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Hiliary i have raynaud's and always have trouble with pulse ox. When they the 6 min walk they use the head one. This will the first time i get one also. let me know how you make out. patti > > Hi all, > > So, in an effort to get a better handle on when I should be using O2 (I very rarely use it now, > but have been having dizzy spells a lot, and feeling more tired), I went to REI (a > sports/climbing store) to buy an oximeter. I tried both the ones they had. The first one cost > 160 dollars and basically wouldn't register my pulse or oxygenation levels at all (I have > Raynaud's, so this is often a problem). The second (A Nolin Sport Stat) cost 325 dollars (!!!) > and it registered right away, but I'm concerned about accuracy. Standing at rest it fluctuated > a tone-- from 94 to 90. Normally at rest I register about 97, so I don't even know if the > numbers are correct, AND I don't think they should fluctuate by 4 points when I am at rest. > > My docs had told me that I could get a decent oximeter at a sporting goods store, but I'm > starting to think I might need one from a medical supplier. What oximeters do y'all use? > How accurate are they compared to the ones your docs use? how much variation do they > register? Any recommendations? And finally-- how much should I expect to pay for a good > one? Has anybody had any luck getting insurance to cover part of the cost? > > Many thanks, > > hillary > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Hi I have a fingertip oxymeter which I got from ebay. It cost about $60 and works fine. I take it with me when I have my pft's so that when they measure my blood gases I can check out how accurate the oxymeter is. Mine is accurate within 2%. >> Hi all,> > So, in an effort to get a better handle on when I should be using O2 (I very rarely use it now, > but have been having dizzy spells a lot, and feeling more tired), I went to REI (a > sports/climbing store) to buy an oximeter. I tried both the ones they had. The first one cost > 160 dollars and basically wouldn't register my pulse or oxygenation levels at all (I have > Raynaud's, so this is often a problem). The second (A Nolin Sport Stat) cost 325 dollars (!!!) > and it registered right away, but I'm concerned about accuracy. Standing at rest it fluctuated > a tone-- from 94 to 90. Normally at rest I register about 97, so I don't even know if the > numbers are correct, AND I don't think they should fluctuate by 4 points when I am at rest.> > My docs had told me that I could get a decent oximeter at a sporting goods store, but I'm > starting to think I might need one from a medical supplier. What oximeters do y'all use? > How accurate are they compared to the ones your docs use? how much variation do they > register? Any recommendations? And finally-- how much should I expect to pay for a good > one? Has anybody had any luck getting insurance to cover part of the cost?> > Many thanks,> > hillary> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Hi Hillary, Here is a link to one that alot of the members here have purchased and use. http://www.portablenebs.com/tripleoximeter.htm It's only around $65 and is FDA approved. That's something that you should definitely look for. The ones you see that are for sports or for pilots have a bigger error range and we want to know as accurately as possible what our sats are. Mine registers usually the same as the one in the doctors office and they should register within a point or so. Beth-Moderator Fibrotic NSIP 06/06 UCTD 06/08 "Take chances, make mistakes and get messy!" Miss Frizzle To: Breathe-Support Sent: Sunday, November 9, 2008 5:06:49 PMSubject: Oximeter Questions Hi all,So, in an effort to get a better handle on when I should be using O2 (I very rarely use it now, but have been having dizzy spells a lot, and feeling more tired), I went to REI (a sports/climbing store) to buy an oximeter. I tried both the ones they had. The first one cost 160 dollars and basically wouldn't register my pulse or oxygenation levels at all (I have Raynaud's, so this is often a problem). The second (A Nolin Sport Stat) cost 325 dollars (!!!) and it registered right away, but I'm concerned about accuracy. Standing at rest it fluctuated a tone-- from 94 to 90. Normally at rest I register about 97, so I don't even know if the numbers are correct, AND I don't think they should fluctuate by 4 points when I am at rest.My docs had told me that I could get a decent oximeter at a sporting goods store, but I'm starting to think I might need one from a medical supplier. What oximeters do y'all use? How accurate are they compared to the ones your docs use? how much variation do they register? Any recommendations? And finally-- how much should I expect to pay for a good one? Has anybody had any luck getting insurance to cover part of the cost?Many thanks,hillary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Hillary But only get the $65 one or another FDA approved one. Do not get the Ascent shown on that page. It is for sports only and is not FDA approved. > > Hi Hillary, > Here is a link to one that alot of the members here have purchased and use. http://www.portablenebs.com/tripleoximeter.htm It's only around $65 and is FDA approved. That's something that you should definitely look for. The ones you see that are for sports or for pilots have a bigger error range and we want to know as accurately as possible what our sats are. Mine registers usually the same as the one in the doctors office and they should register within a point or so. > > Beth-Moderator > Fibrotic NSIP 06/06 UCTD 06/08 > > " Take chances, make mistakes and get messy! " > Miss Frizzle > > > > > ________________________________ > From: hgravendyk hgravendyk@... > To: Breathe-Support > Sent: Sunday, November 9, 2008 5:06:49 PM > Subject: Oximeter Questions > > > Hi all, > > So, in an effort to get a better handle on when I should be using O2 (I very rarely use it now, > but have been having dizzy spells a lot, and feeling more tired), I went to REI (a > sports/climbing store) to buy an oximeter. I tried both the ones they had. The first one cost > 160 dollars and basically wouldn't register my pulse or oxygenation levels at all (I have > Raynaud's, so this is often a problem). The second (A Nolin Sport Stat) cost 325 dollars (!!!) > and it registered right away, but I'm concerned about accuracy. Standing at rest it fluctuated > a tone-- from 94 to 90. Normally at rest I register about 97, so I don't even know if the > numbers are correct, AND I don't think they should fluctuate by 4 points when I am at rest. > > My docs had told me that I could get a decent oximeter at a sporting goods store, but I'm > starting to think I might need one from a medical supplier. What oximeters do y'all use? > How accurate are they compared to the ones your docs use? how much variation do they > register? Any recommendations? And finally-- how much should I expect to pay for a good > one? Has anybody had any luck getting insurance to cover part of the cost? > > Many thanks, > > hillary > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Well MB How was the party?? I know you had a good time... Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Hillary, Get a good oximeter. Accuracy is paramount, it is upsetting to me that a diabetic can get a monitor for their ill and a person with heart problems can get a blood pressure cuff. But for some reason lost on me. A person with a terrible lung disease cannot to get their insurance company to pay for an oximeter. I think understanding the absolute need to keep our O2 sats and the optimum level is paramount. We can only do this with an oximeter that we can trust. I own a Datex Ohmedia TuffSat monitor. When compared to the equipment at my docs offices it has been right on. Good luck in you search for a monitor and in your battle with this disease. Just know that you are in company with some really great and caring people. Wally/NSIP/10/06 west Texas Subject: Re: Oximeter QuestionsTo: Breathe-Support Date: Sunday, November 9, 2008, 5:30 PM Hi Hillary, Here is a link to one that alot of the members here have purchased and use. http://www.portable nebs.com/ tripleoximeter. htm It's only around $65 and is FDA approved. That's something that you should definitely look for. The ones you see that are for sports or for pilots have a bigger error range and we want to know as accurately as possible what our sats are. Mine registers usually the same as the one in the doctors office and they should register within a point or so. Beth-Moderator Fibrotic NSIP 06/06 UCTD 06/08 "Take chances, make mistakes and get messy!" Miss Frizzle From: hgravendyk <hgravendyk (AT) hotmail (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Sunday, November 9, 2008 5:06:49 PMSubject: Oximeter Questions Hi all,So, in an effort to get a better handle on when I should be using O2 (I very rarely use it now, but have been having dizzy spells a lot, and feeling more tired), I went to REI (a sports/climbing store) to buy an oximeter. I tried both the ones they had. The first one cost 160 dollars and basically wouldn't register my pulse or oxygenation levels at all (I have Raynaud's, so this is often a problem). The second (A Nolin Sport Stat) cost 325 dollars (!!!) and it registered right away, but I'm concerned about accuracy. Standing at rest it fluctuated a tone-- from 94 to 90. Normally at rest I register about 97, so I don't even know if the numbers are correct, AND I don't think they should fluctuate by 4 points when I am at rest.My docs had told me that I could get a decent oximeter at a sporting goods store, but I'm starting to think I might need one from a medical supplier. What oximeters do y'all use? How accurate are they compared to the ones your docs use? how much variation do they register? Any recommendations? And finally-- how much should I expect to pay for a good one? Has anybody had any luck getting insurance to cover part of the cost?Many thanks,hillary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2008 Report Share Posted November 9, 2008 Wally, You've got a WHAT??????? I can't even say that..  lol Love & Prayers, PeggyFlorida,  IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 interesting yesterday i asked my pulmonary if medicare would pay for an oximeter and she said noPink Joyce IPF 3/06 Pennsylvania Subject: Re: Oximeter QuestionsTo: Breathe-Support Date: Wednesday, November 12, 2008, 9:06 PM Hillary, (and Wally)My pulmonologist wrote a prescription for an oximeter which was sent to my oxygen provider. They in turn got the oximeter and delivered it to me. It WAS paid for by my insurance, no questions asked! So, I would suggest checking with your insurance provider first...it certainly can't hurt to try.Steve aka...Knip Dx 9/07 confirmed via VATS 12/0756 NH> > From: Beth <mbmurtha@.. .>> Subject: Re: Oximeter Questions> To: Breathe-Support@ yahoogroups. com> Date: Sunday, November 9, 2008, 5:30 PM> > > > > > > > > > Hi Hillary,> Here is a link to one that alot of the members here have purchased and use. http://www.portable nebs.com/ tripleoximeter. htm It's only around $65 and is FDA approved. That's something that you should definitely look for. The ones you see that are for sports or for pilots have a bigger error range and we want to know as accurately as possible what our sats are. Mine registers usually the same as the one in the doctors office and they should register within a point or so. > > Beth-Moderator> Fibrotic NSIP 06/06 UCTD 06/08 > > "Take chances, make mistakes and get messy!"> Miss Frizzle> > > > > > > From: hgravendyk <hgravendyk@ hotmail. com>> To: Breathe-Support@ yahoogroups. com> Sent: Sunday, November 9, 2008 5:06:49 PM> Subject: Oximeter Questions> > > > Hi all,> > So, in an effort to get a better handle on when I should be using O2 (I very rarely use it now, > but have been having dizzy spells a lot, and feeling more tired), I went to REI (a > sports/climbing store) to buy an oximeter. I tried both the ones they had. The first one cost > 160 dollars and basically wouldn't register my pulse or oxygenation levels at all (I have > Raynaud's, so this is often a problem). The second (A Nolin Sport Stat) cost 325 dollars (!!!) > and it registered right away, but I'm concerned about accuracy. Standing at rest it fluctuated > a tone-- from 94 to 90. Normally at rest I register about 97, so I don't even know if the > numbers are correct, AND I don't think they should fluctuate by 4 points when I am at rest.> > My docs had told me that I could get a decent oximeter at a sporting goods store, but I'm > starting to think I might need one from a medical supplier. What oximeters do y'all use? > How accurate are they compared to the ones your docs use? how much variation do they > register? Any recommendations? And finally-- how much should I expect to pay for a good > one? Has anybody had any luck getting insurance to cover part of the cost?> > Many thanks,> > hillary> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 > > > > From: Beth mbmurtha@ .> > > Subject: Re: Oximeter Questions > > To: Breathe-Support@ yahoogroups. com > > Date: Sunday, November 9, 2008, 5:30 PM > > > > > > > > > > > > > > > > > > > > Hi Hillary, > > Here is a link to one that alot of the members here have purchased > and use. http://www.portable nebs.com/ tripleoximeter. htm It's only > around $65 and is FDA approved. That's something that you should > definitely look for. The ones you see that are for sports or for > pilots have a bigger error range and we want to know as accurately as > possible what our sats are. Mine registers usually the same as the > one in the doctors office and they should register within a point or > so. > > > > Beth-Moderator > > Fibrotic NSIP 06/06 UCTD 06/08 > > > > " Take chances, make mistakes and get messy! " > > Miss Frizzle > > > > > > > > > > > > > > From: hgravendyk <hgravendyk@ hotmail. com> > > To: Breathe-Support@ yahoogroups. com > > Sent: Sunday, November 9, 2008 5:06:49 PM > > Subject: Oximeter Questions > > > > > > > > Hi all, > > > > So, in an effort to get a better handle on when I should be using > O2 (I very rarely use it now, > > but have been having dizzy spells a lot, and feeling more tired), I > went to REI (a > > sports/climbing store) to buy an oximeter. I tried both the ones > they had. The first one cost > > 160 dollars and basically wouldn't register my pulse or oxygenation > levels at all (I have > > Raynaud's, so this is often a problem). The second (A Nolin Sport > Stat) cost 325 dollars (!!!) > > and it registered right away, but I'm concerned about accuracy. > Standing at rest it fluctuated > > a tone-- from 94 to 90. Normally at rest I register about 97, so I > don't even know if the > > numbers are correct, AND I don't think they should fluctuate by 4 > points when I am at rest. > > > > My docs had told me that I could get a decent oximeter at a > sporting goods store, but I'm > > starting to think I might need one from a medical supplier. What > oximeters do y'all use? > > How accurate are they compared to the ones your docs use? how much > variation do they > > register? Any recommendations? And finally-- how much should I > expect to pay for a good > > one? Has anybody had any luck getting insurance to cover part of > the cost? > > > > Many thanks, > > > > hillary > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 Pink That is true. Medicare does not pay for oximeters. While a few insurances do, many will not. With the price now down to $65, I encourage people not to delay. > > > > > > From: Beth mbmurtha@ .> > > > Subject: Re: Oximeter Questions > > > To: Breathe-Support@ yahoogroups. com > > > Date: Sunday, November 9, 2008, 5:30 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hi Hillary, > > > Here is a link to one that alot of the members here have > purchased > > and use. http://www.portable nebs.com/ tripleoximeter. htm It's > only > > around $65 and is FDA approved. That's something that you should > > definitely look for. The ones you see that are for sports or for > > pilots have a bigger error range and we want to know as accurately as > > possible what our sats are. Mine registers usually the same as the > > one in the doctors office and they should register within a point or > > so. > > > > > > Beth-Moderator > > > Fibrotic NSIP 06/06 UCTD 06/08 > > > > > > " Take chances, make mistakes and get messy! " > > > Miss Frizzle > > > > > > > > > > > > > > > > > > > > > From: hgravendyk <hgravendyk@ hotmail. com> > > > To: Breathe-Support@ yahoogroups. com > > > Sent: Sunday, November 9, 2008 5:06:49 PM > > > Subject: Oximeter Questions > > > > > > > > > > > > Hi all, > > > > > > So, in an effort to get a better handle on when I should be using > > O2 (I very rarely use it now, > > > but have been having dizzy spells a lot, and feeling more tired), I > > went to REI (a > > > sports/climbing store) to buy an oximeter. I tried both the ones > > they had. The first one cost > > > 160 dollars and basically wouldn't register my pulse or oxygenation > > levels at all (I have > > > Raynaud's, so this is often a problem). The second (A Nolin Sport > > Stat) cost 325 dollars (!!!) > > > and it registered right away, but I'm concerned about accuracy. > > Standing at rest it fluctuated > > > a tone-- from 94 to 90. Normally at rest I register about 97, so I > > don't even know if the > > > numbers are correct, AND I don't think they should fluctuate by 4 > > points when I am at rest. > > > > > > My docs had told me that I could get a decent oximeter at a > > sporting goods store, but I'm > > > starting to think I might need one from a medical supplier. What > > oximeters do y'all use? > > > How accurate are they compared to the ones your docs use? how much > > variation do they > > > register? Any recommendations? And finally-- how much should I > > expect to pay for a good > > > one? Has anybody had any luck getting insurance to cover part of > > the cost? > > > > > > Many thanks, > > > > > > hillary > > > > > > Quote Link to comment Share on other sites More sharing options...
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