Re: Good Morning , Chat was good last night

[Guest guest]

Hi Lou,

Yes, chat was great last Thursday evening. Sorry I've missed so

many, but time flies by so fast.

Lou, let me know what you find out about the " head piece " you

can use with the Companion T from Marathon. Also, if you need any

advice on using this portable oxygen unit, just e-mail me. I've used

it for a few months now & had to work out some " bugs. " Like not

filling it too fast - filling it with a count to 25, letting it rest

for 25, filling again to 25, resting for 25 counts, etc. First, if

it had any frost on the outside, I put it in front of a little fan to

melt it. It fills better that way. I love the fact that I can just

use the dial on the front to adjust its liter usage. I put it on a

rolling cart with a telescoping handle, & use 7 ft cord tied on the

handle to eliminate it getting caught on things, so I can roll it

around & use it while in the kitchen, walking through the house, etc.

Later,

Sherry , age 64

NSIP '98, PH, Bronchiectasis, PBC

Oh, one other thing. I now have my " intake " appt with a new

pulmonary dr at the transplant office at Vanderbilt on Jan 6th.

He'll then order the evaluation physical testing necessary to be

listed for a lung transplant. I have been approved pending these

tests/dr appt by the board & my insurance company - Blue Cross/Blue

Shield.

My former dr, Dr. Milstone, at Vanderbilt is leaving effective Jan 1,

2009! What a shock to me as he was my dr for 5 1/2 years.

>

> Beth, I hope you are home safe and that Matt is going to be ok.

>

> Hey Bruce, I called oxy. co. to refill supplies for Monday and I

> asked them about the " Marathon T " that goes up to 15L, and so they

> are sending out their respitory therapist next week to go over

things

> with me and as you said, I don't have to wear that oximizer with

it,

> I can use a regular cannula, thank goodness. They also told me

there

> is a little head piece that they will show me if I chose to wear

that

> to keep the tubing from moving around. I can't wait to see that

> beautiful piece of 'jewelry'. hahahahaha We'll see.

>

> With Jane, Peggy, and Sherry and I last night, (we missed all you

who

> weren't on) we had a great chat and boy, does that hour go fast.

> Seems we just get started and we have to go.

>

> Have a wonderful day to all " on board " , and have a great ride.

> haha

>

> I LOVE YOU THIS DAY

> MARY LOU - RICHMOND VA (74)

> IPF = 02

>

[Guest guest]

Sherry

I see you learned the secret they never tell you. They always tell you

about drying the connectors and how to position it but most of them

don't know the value of releasing the valve and stopping with it still

on the connector a couple of times in the process. I think thats the

biggest key to avoid freezes during fills.

Interested in knowing one thing. Why do you use the Portable instead of

just hooking directly to your reservoir when you're in the house?

> >

> > Beth, I hope you are home safe and that Matt is going to be ok.

> >

> > Hey Bruce, I called oxy. co. to refill supplies for Monday and I

> > asked them about the " Marathon T " that goes up to 15L, and so they

> > are sending out their respitory therapist next week to go over

> things

> > with me and as you said, I don't have to wear that oximizer with

> it,

> > I can use a regular cannula, thank goodness. They also told me

> there

> > is a little head piece that they will show me if I chose to wear

> that

> > to keep the tubing from moving around. I can't wait to see that

> > beautiful piece of 'jewelry'. hahahahaha We'll see.

> >

> > With Jane, Peggy, and Sherry and I last night, (we missed all you

> who

> > weren't on) we had a great chat and boy, does that hour go fast.

> > Seems we just get started and we have to go.

> >

> > Have a wonderful day to all " on board " , and have a great ride.

> > haha

> >

> > I LOVE YOU THIS DAY

> > MARY LOU - RICHMOND VA (74)

> > IPF = 02

> >

>

[Guest guest]

> > >

> > > Beth, I hope you are home safe and that Matt is going to

be ok.

> > >

> > > Hey Bruce, I called oxy. co. to refill supplies for Monday and I

> > > asked them about the " Marathon T " that goes up to 15L, and so

they

> > > are sending out their respitory therapist next week to go over

> > things

> > > with me and as you said, I don't have to wear that oximizer with

> > it,

> > > I can use a regular cannula, thank goodness. They also told me

> > there

> > > is a little head piece that they will show me if I chose to wear

> > that

> > > to keep the tubing from moving around. I can't wait to see that

> > > beautiful piece of 'jewelry'. hahahahaha We'll see.

> > >

> > > With Jane, Peggy, and Sherry and I last night, (we missed all

you

> > who

> > > weren't on) we had a great chat and boy, does that hour go fast.

> > > Seems we just get started and we have to go.

> > >

> > > Have a wonderful day to all " on board " , and have a great ride.

> > > haha

> > >

> > > I LOVE YOU THIS DAY

> > > MARY LOU - RICHMOND VA (74)

> > > IPF = 02

> > >

> >

>

[Guest guest]

Sherry

Makes perfect sense. I want a remote control flow adjustment for my

reservoir.

There is actually a cannula that you can wear and adjust your flow

downward from the setting on the reservoir or concentrator. I found it

once, had doubts about it, but now going to have to find one and

actually try it. I sure waste a lot of oxygen having mine turned up and

then sit on the sofa and take it off sometimes. But, I cannot walk from

here to the reservoir without oxygen and lots of times need it on the

sofa. But when adjusting between other levels, I see exactly why you do

it.

> > > >

> > > > Beth, I hope you are home safe and that Matt is going to

> be ok.

> > > >

> > > > Hey Bruce, I called oxy. co. to refill supplies for Monday and I

> > > > asked them about the " Marathon T " that goes up to 15L, and so

> they

> > > > are sending out their respitory therapist next week to go over

> > > things

> > > > with me and as you said, I don't have to wear that oximizer with

> > > it,

> > > > I can use a regular cannula, thank goodness. They also told me

> > > there

> > > > is a little head piece that they will show me if I chose to wear

> > > that

> > > > to keep the tubing from moving around. I can't wait to see that

> > > > beautiful piece of 'jewelry'. hahahahaha We'll see.

> > > >

> > > > With Jane, Peggy, and Sherry and I last night, (we missed all

> you

> > > who

> > > > weren't on) we had a great chat and boy, does that hour go fast.

> > > > Seems we just get started and we have to go.

> > > >

> > > > Have a wonderful day to all " on board " , and have a great ride.

> > > > haha

> > > >

> > > > I LOVE YOU THIS DAY

> > > > MARY LOU - RICHMOND VA (74)

> > > > IPF = 02

> > > >

> > >

> >

>