Re: to Taniesha & friends from Gwynne

[Guest guest]

Gwynne

Congratulations!!!! Pray all is well. And you are weathering this

new journey well..

this is patti, newbie is on list but yet tooo healthy per docs. they

are fearful of transplant and want to wait till................

Me i want yesterday.. Can you tell me some of your past journey with

the transplant.. thanks patti

>

> Hi Taniesha,

> I had a single-lung transplant on 4-3-08, but I do

> have GERD. I rarely ever have any symptoms, so I

> didn't know I had it until my transplant evaluation, which

> is a curse and a blessing. Apparently, there is a poor

> correlation between GERD and successful transplantation,

> particularly when there's aspiration. Many of us on

> the board have reflux issues, and the fact that mine was

> untreated for perhaps many years has made me wonder

> if perhaps it caused my IPF in conjunction with other

> unknown factors.

>

> Interestingly, many pediatric studies have now shown

> that many children with asthma also have GERD.

>

> They tried to control my reflux with a daily dose of

> 80 mg. of Nexium alone, but tests showed that didn't

> do the trick. So I take a med called Reglan (Metoclopromide)

> before meals and at bedtime, which seems to work. If

> they hadn't been able to get things under control, I

> probably would not have been listed for transplant, so

> it's obviously nothing to fool around with whether

> transplant is being considered or not. Reglan isn't a

> medication that they really want to keep you on long

> term, but I don't have a choice at this time.

>

> Sher,

> No more of this going to the hospital, okay? I hate it

> that you've had so much pain, and I hope it doesn't

> have anything to do with coming off the pain meds.

> I hope you get some relief immediately if not sooner.

> Healing wishes and hugs are headed your way.

>

> Peggy,

> I'm glad you're about done with the Levaquin. I'm delighted

> that you had such a fun outing with your friend and your

> daughter - another happy memory. Get well hugs to you.

>

> ,

> Kick that CMV's butt! You're doing a great job of doing

> what you need to do. Keep up the good work and the good

> attitude. I'm rooting for you all the way!

>

> Hugs and blessings,

> Gwynne Single-lung Transplant for IPF on 4-3-08

> at UTHSC- San Fort Worth, TX

>