Guest guest Posted November 10, 2008 Report Share Posted November 10, 2008 I value all your opinions on everything even though I cannot sit to reply much due to my muscle disease. I used to be very active and since diagnosed had my ups and downs since april 06. I don't know how you all keep positive attitudes and push forward each day. I have so much pain the doctors don't know why but yet my labs don't show anything too bad. I now have PH as well and am fatigued very easily and cannot concentrate. I had a few IVIG treatments and they say because of my stroke in April 07 due to the IVIG my brain doesn't want to concentrate sometimes. I just had breast surgery because they found spots possibly due to the Cytoxan I was taking for a year. Now the pulmonologist wants to put me back on the same drug............there has to be a better way.......any ideas out there??? Prednisone is out of the ques as I have bad reactions. Should I push myself (in your thoughts) to exercise more and will it help oxygenate my muscles and my lungs? The doctors around here just don't offer any hope for much. Email me at DRice2@... if you want or I'll try to catch the board. Hope you all have a great rest of the week! Diane (also a newbie) Quote Link to comment Share on other sites More sharing options...
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