to Taniesha & friends from Gwynne

November 10, 2008

Hi Taniesha,

I had a single-lung transplant on 4-3-08, but I do

have GERD. I rarely ever have any symptoms, so I

didn't know I had it until my transplant evaluation, which

is a curse and a blessing. Apparently, there is a poor

correlation between GERD and successful transplantation,

particularly when there's aspiration. Many of us on

the board have reflux issues, and the fact that mine was

untreated for perhaps many years has made me wonder

if perhaps it caused my IPF in conjunction with other

unknown factors.

Interestingly, many pediatric studies have now shown

that many children with asthma also have GERD.

They tried to control my reflux with a daily dose of

80 mg. of Nexium alone, but tests showed that didn't

do the trick. So I take a med called Reglan (Metoclopromide)

before meals and at bedtime, which seems to work. If

they hadn't been able to get things under control, I

probably would not have been listed for transplant, so

it's obviously nothing to fool around with whether

transplant is being considered or not. Reglan isn't a

medication that they really want to keep you on long

term, but I don't have a choice at this time.

Sher,

No more of this going to the hospital, okay? I hate it

that you've had so much pain, and I hope it doesn't

have anything to do with coming off the pain meds.

I hope you get some relief immediately if not sooner.

Healing wishes and hugs are headed your way.

Peggy,

I'm glad you're about done with the Levaquin. I'm delighted

that you had such a fun outing with your friend and your

daughter - another happy memory. Get well hugs to you.

,

Kick that CMV's butt! You're doing a great job of doing

what you need to do. Keep up the good work and the good

attitude. I'm rooting for you all the way!

Hugs and blessings,

Gwynne Single-lung Transplant for IPF on 4-3-08

at UTHSC- San Fort Worth, TX

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