Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 MB Hopefully its just some strange allergy or rash or who knows what. I sort of share with you that if I have a connective tissue disease that hasn't manifested itself for diagnosis, I'm just as happy that it doesn't. It can just stay hidden. I also know whatever it is, you're not letting it slow you down. If it is a connective tissue disease you know you are able to handle the treatment ok when or if any is required. Odds are though that its something else with the number of other things it could be. I find after the whole undifferentiated connective tissue disease stuff that anything that happens to me or my body, I immediately think may be another sign of one. We may or may not ever know. I'm rooting for you remaining stable and this just disappearing on its on and the confusion remaining. > > Just in case I was bored, I woke up this morning with something entirely new. A dark red discoloration on my eyelids... My vision is normal, my eyelids are kind of burny and sore but mostly just discolored. Very very attractive. > > I was just browsing around the internet and this can be a symptom of dermatomyositis among other things so I suppose this just lends support to the undifferentiated connective tissue disease diagnosis. I'm wondering though if I'm moving closer to a diagnosis of something specific like dermatomyositis. > > Before you all ask I did call the doctor this morning, and since I'm going to be seen in less than two weeks we're going to wait for that unless I perceive my condition to be worsening in any way. He was happy to be alerted to this new symptom however and is ordering more bloodwork to be done when I have my appointment. > > So that's my excitement for the day. Hope everyone else is waking up to looking more normal than I do! > > Beth-Moderator > Fibrotic NSIP 06/06 UCTD 06/08 > > " Take chances, make mistakes and get messy! " > Miss Frizzle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 MB ... no MORE excitement if you please. Mama says so! BTW, you forgot to tell Bob the biggie.... LOL! hahah MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Oh my this is fun Just in case I was bored, I woke up this morning with something entirely new. A dark red discoloration on my eyelids... My vision is normal, my eyelids are kind of burny and sore but mostly just discolored. Very very attractive. I was just browsing around the internet and this can be a symptom of dermatomyositis among other things so I suppose this just lends support to the undifferentiated connective tissue disease diagnosis. I'm wondering though if I'm moving closer to a diagnosis of something specific like dermatomyositis. Before you all ask I did call the doctor this morning, and since I'm going to be seen in less than two weeks we're going to wait for that unless I perceive my condition to be worsening in any way. He was happy to be alerted to this new symptom however and is ordering more bloodwork to be done when I have my appointment. So that's my excitement for the day. Hope everyone else is waking up to looking more normal than I do! Beth-Moderator Fibrotic NSIP 06/06 UCTD 06/08 "Take chances, make mistakes and get messy!" Miss Frizzle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 Beth, So sorry to hear of your new symptom. I have a friend in Dalton that has de> >> > Just in case I was bored, I woke up this morning with something> entirely new. A dark red discoloration on my eyelids... My vision is> normal, my eyelids are kind of burny and sore but mostly just> discolored. Very very attractive.> >> > I was just browsing around the internet and this can be a symptom of> dermatomyositis among other things so I suppose this just lends support> to the undifferentiated connective tissue disease diagnosis. I'm> wondering though if I'm moving closer to a diagnosis of something> specific like dermatomyositis.> >> > Before you all ask I did call the doctor this morning, and since I'm> going to be seen in less than two weeks we're going to wait for that> unless I perceive my condition to be worsening in any way. He was happy> to be alerted to this new symptom however and is ordering more bloodwork> to be done when I have my appointment.> >> > So that's my excitement for the day. Hope everyone else is waking up> to looking more normal than I do!> >> > Beth-Moderator> > Fibrotic NSIP 06/06 UCTD 06/08> >> > "Take chances, make mistakes and get messy!"> > Miss Frizzle> >> Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.