Guest guest Posted November 13, 2008 Report Share Posted November 13, 2008 Bob, Good morning and welcome to Breathe-Support! It sounds as though you've been working to cope with lung issues for quite a while already. We had a member, Joyce Dalton, who struggled mightily with bronchiectasis for many years. I know she used the vest and other methods like chest percussion to loosen secretions and mucous to get them up and out. With a diagnosis of pulmonary fibrosis and bronchiectasis you shouldn't have too much difficulty getting your insurance to pay for the vest. It's pretty standard therapy. Getting enough exercise is something that many of us struggle with. What helped me tremendously was attending a pulmonary rehabiliation program. I learned how to exercise safely and how much supplemental O2 I need to be able to do so. If you're coughing continuously when you attempt to be more active it's possible that you are not getting enough oxygen. Are you on supplemental O2? Have they done a 6 minute walk with you? Please don't start exercising without discussing it with your physician. You want to be certain you are doing it safely and in a way that will help and not harm you. As for some abbreviations, here are a few off the top of my head. But don't hesitate to ask for a specific one if there is something you don't understand in a future post. IPF Idiopathic pulmonary fibrosis NSIP Non specific interstitial pneumonitis UIP Usual interstitial pneumonia PFT pulmonary function test O2 oxygen sats short for oxygen saturations PH Pulmonary hypertension As I said, if you see something in a post that you don't understand, don't hesitate for an instant to ask for clarification. We're all learning from each other all the time. Again, welcome aboard and I hope you find the support and friendship here that I have! Beth-Moderator Fibrotic NSIP 06/06 UCTD 06/08 "Take chances, make mistakes and get messy!" Miss Frizzle To: Breathe-Support Sent: Wednesday, November 12, 2008 10:15:24 PMSubject: FW: Re: Mini-trip today Hi Beth, Sorry I had to find your group but so glad I did. Lots of great people with lung problems. I¢ve had bronchiectasis for several years and in Sept was given the word for fibrosis of the lung Do you have a short list you could send for all the abbreviations I see. Some I could pick, others who knows? I know I need to exercise but how do I stopping coughing long enough to walk more than a few yards. The Dr. wants me to try the vest to help clear my lungs. Has anyone had any luck with their insurance on that one. From: Breathe-Support@ yahoogroups. com [mailto:] On Behalf Of BethSent: Wednesday, November 12, 2008 7:54 AMTo: Breathe-Support@ yahoogroups. comSubject: Re: Re: Mini-trip today Bruce, So happy you had a good time today. It helps so much to get out and about doesn't it? So who'd you have dinner with? Come on we won't tell! Anyone we know? Beth-Moderator Fibrotic NSIP 06/06 UCTD 06/08 "Take chances, make mistakes and get messy!" Miss Frizzle From: Bruce Moreland <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Tuesday, November 11, 2008 9:50:22 PMSubject: Re: Mini-trip today Back home from my mini-vacation. Delightful time, great food, bettercompany and conversation. I know Leanne says its not travel without aplane but I disagree.... .doesn't even have to be far. Just drive alittle distance to spend time with friends.Oh my.....just realized. Someone took a picture. I could be in trouble.No, I was behaving fine.I sure hope the Pennsylvania / NE or whatever group of you get together.You'll be amazed how nice it will be.>>> Going in a little bit to Arlington , TX . It's not far but it's still a> trip. Not sure what I'll do but meeting two friends for dinnertonight.> After they leave will probably drive back home but could decide tostay> there or stop on the way. Just whatever the mood strikes me. Arlington> is sort of right in the middle of Dallas and Fort Worth . Now, I livein> Plano which is north of Dallas . These are all part of the DFWMetroplex.> Only about 40 miles which depending on time of day is 45 minutes to 2> hours. That makes it a good place for people to meet since in the> southern part of the metroplex, it's in the middle. In the northern> part, the airport and Grapevine are in the middle.>> Arlington doesn't have museums and galleries and such as those are> pretty much Dallas and Fort Worth . It's more recreational, such as Six> Flags and The Ballpark at Arlington (home of the Texas Rangers) andthe> stadium also that the Dallas Cowboys will move into next year, which> will be the most expensive stadium ever, costing over $1 billion.Note:> the Cowboys weren't in Dallas before either, they are in Irving now.> People get sort of carried away around here with Arenas and Stadiumsas> American Airlines Center which houses the Dallas Mavericks and Dallas> Stars was the most expensive arena ever when it was built. Now, while> there is a lot of public money going into the Cowboys stadium and that> expenditure is certainly one that can be questioned, over 70% of the> money is coming from the Cowboys themselves.>> Well, it will be a nice mini-vacation.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2008 Report Share Posted November 14, 2008 Hi ! ... wow, what a list. I saved this myself for reference. Thanks. Hope you are good today. MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Re:Bob Hi Bob, Read your post and thought this would help you as much as it does me. Again--sorry you found us, but glad you are here. G. UIP/IPF 5/07 Az. Many more acronyms and abbreviations pertaining to interstitial lung disease (pulmonary fibrosis) can be found at http://noairtogo.tripod.com/gloss.htm A1AD = Alpha1 Antitrypsin Deficiency Emphysema ABG = Arterial Blood Gas ARDS = Acute Respiratory Distress Syndrome ATRA = All Trans-Retinoic Acid BAL = Bronchoalveolar Lavage BiPAP = Bi-level Positive Airway Pressure BMD = Bone Mineral Density BOOP = Bronchiolitis Obliterans Organizing Pneumonia BP = Blood Pressure BX = Biopsy CF = Cystic Fibrosis CHF = Congestive Heart Failure CLD = Chronic Lung Disease CT = CAT scan or Computerized Axial Tomography CO = Carbon Monoxide Co2 = Carbon Dioxide COAD = Chronic Obstructive Airway Disease COLD = Chronic Obstructive Lung Disease CPAP = Continuous Positive Airway Pressure CPR = Cardiopulmonary Resuscitation CRT = Certified Respiratory Therapist CXR = Chest X-ray DAD = Diffuse Alveolar Damage DLCO = Diffusing Capacity of Carbon Monoxide DNR = Do Not Resuscitate DOE = Dyspnea on Exertion DPAP = Demand Positive Airway Pressure DX = Diagnosis ECG or EKG = Electrocardiogram ECHO = Echocardiogram ENT = Ears, Nose, Throat ERV = Expiratory Reserve Volume ET = Endotracheal Tube FEF = Forced Expiratory Flow FEFMAX = Forced Expiratory Flow at Maximum Effort FEV = Forced Expiratory Volume FEV1 = Forced Expiratory Volume in One Second FPF = Familial Pulmonary Fibrosis FRC = Functional Residual Capacity FVC = Forced Vital Capacity GERD = Gastroesophageal Reflux Disease GI = Gastrointestinal GP = General Practitioner HEENT = Head, Eyes, Ears, Nose, Throat HEPA = High Efficiency Particulate Air HR = Heart Rate HRCT = High Resolution CT Scan IC = Inspiratory Capacity ICU = Intensive Care Unit ILD = Interstitial Lung Disease IPF = Idiopathic Pulmonary Fibrosis IRV = Inspiratory Reserve Volume LOX = Liquid Oxygen LPM = Liters per Minute Oxygen or o2 flow rate LVRS = Lung Volume Reduction Surgery MCS = Multiple Chemical Sensitivities MDI = Metered Dose Inhaler MRI = Magnetic Resonance Imaging MVV = Maximal Voluntary Ventilation NETT = National Emphysema Treatment Trial NIV = Non Invasive Ventilator NSIP = Non Specific Interstitial Pneumonitis o2 = Oxygen OA = Occupational Asthma OAD = Obstructive Airway Disease OLD = Occupational Lung Disease OSA = Obstructive Sleep Apnea OTC = Over the Counter PAP = Positive Airway Pressure PCP = Primary Care Physician Pco2 = Partial Pressure of Carbon Dioxide in Blood PDI = Powdered Dose Inhaler PE = Physical Exam PE = Pulmonary Edema PE = Pulmonary Embolism PEP = Positive Expiratory Pressure PEEP = Positive End Expiratory Pressure PEFR = Peak Expiratory Flow Rate PF = Pulmonary Fibrosis PFT = Pulmonary Function Test PH = Pulmonary Hypertension Secondary PI = Pulmonary Insufficiency PLB = Pursed Lip Breathing PND = Paroxysmal Nocturnal Dyspnea/Post Nasal Drip Po2 = Oxygen Tension in Arterial Blood PPH = Primary Pulmonary Hypertension PPV = Positive Pressure Ventilation PT = Physical Therapist/Pulmonary Therapy PTX = Pneumothorax PULM or PULMO = Pulmonary QOL = Quality OF Life R/O = Rule Out RAD = Reactive Airway Disease RDS = Respiratory Distress Syndrome RLD = Restrictive Lung Disease RLS = Restless Leg Syndrome RRT = Registered Respiratory Therapist RT = Respiratory Therapist/Respiratory Therapy RV = Residual Volume RX = Treatment/Therapy/Prescription Sao2 = % Arterial Blood Saturation SATS = Referring to o2 Saturation Level by Oximetry SOB = Short Of Breath Svo2 = % Venous Blood Oxygen Saturation TLC = Total Lung Capacity TTo2 = Transtracheal Oxygen TV = Tidal Volume TX = Transplant UIP = Usual Interstitial Pneumonitis URI = Upper Respiratory Infection UTI = Urinary Tract Infection VATS = Video Assisted Thoracic Surgery VC = Vital Capacity VQ = Ventilation Perfusion Scan XP = Transplant Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 Bob, It was so good to meet you on chat last night. Stick with the board you will learn more from here that anywhere else. Doctors do not understand what we live. But trust me we all will be here to help you.You can go to the database and get my phone number or anyone there and just tell whomever you have questions about PF or need to talk.. We're here. Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.