Re: 6 min walk & transplant

[Guest guest]

Pink Joyce,

Thanks for the info, especially about the height and blood type. I am 5 feet tall and I am also O+.

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl>> I forget who asked about the details of the 6 min walk, it may have been Jane> in answer to your response, the docs are also looking at the pft's, and my height and blood type> the transplant doc told me about the issues with my height and blood type in May, he suggested that I list at that time> > height 4' 11"> blood type O+> > a short donor is needed so the lung will fit my chest cavity> although O+ is a universal blood donor, it is not a universal organ recipient> > other issues:> people tend to heal better when the rest of the body is in good health;> to avoid damage to other organs while waiting for the transplant> > i did order "Taking Flight" by Joann Schum--waiting for it to come--someone on the board recommended it> > has anyone read "the Lung Transplantation Book" by Couture> or "I Call My New Lung Tina" by Shirley Jewett?> > Has anyone done fundraising prior to the transplant or while on the list?> > Pink Joyce IPF 3/06 Pennsylvania>

[Guest guest]

george

thanks for your response

I just found out that I probably do not have to do fundraising--phew!!! What a relief!!!

i just went to a meeting with Blue Cross

With medicare and Blue Cross Security 65 [formerly 65 Special], everything is covered except for prescriptions

no deductibles, no copays

blue cross also has a prescription plan

the GAP or "donut hole" is about $1600 per year

i really don't have the energy or peace of mind to focus on fundraising that would be worthwhile

i do have a tendency to panic when i am overwhelmed

i have been driving my kids crazy with the fundraising issue and now i find out that it probably isn't necessary

thanks for listeningPink Joyce IPF 3/06 Pennsylvania

Subject: Re: 6 min walk & transplantTo: Breathe-Support Date: Friday, November 14, 2008, 8:58 AM

Joyce we did annd liittle response from various business or faternal groups. george ks t-9-24-08

From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>To: breathe-support@ yahoogroups. comSent: Friday, November 14, 2008 7:41:47 AMSubject: 6 min walk & transplant

I forget who asked about the details of the 6 min walk, it may have been Jane

in answer to your response, the docs are also looking at the pft's, and my height and blood type

the transplant doc told me about the issues with my height and blood type in May, he suggested that I list at that time

height 4' 11"

blood type O+

a short donor is needed so the lung will fit my chest cavity

although O+ is a universal blood donor, it is not a universal organ recipient

other issues:

people tend to heal better when the rest of the body is in good health;

to avoid damage to other organs while waiting for the transplant

i did order "Taking Flight" by Joann Schum--waiting for it to come--someone on the board recommended it

has anyone read "the Lung Transplantation Book" by Couture

or "I Call My New Lung Tina" by Shirley Jewett?

Has anyone done fundraising prior to the transplant or while on the list?

Pink Joyce IPF 3/06 Pennsylvania

[Guest guest]

hi joyce just spoke with my MSW and found out there is a group that

does fundraising for you no fees or anything.. you dont need to do

anything. when i find out more i'll let you know.. i know my biggest

worry being able to afford this. She told me that wasn't my worry it

was hers and my financial guy... GOD BLESS and speed patti

>

>

> Subject: Re: 6 min walk & transplant

> To: Breathe-Support

> Date: Friday, November 14, 2008, 8:58 AM

>

>

>

>

>

>

>

>

> Joyce we did annd liittle response from various business or

faternal groups. george ks t-9-24-08

>

>

>

>

>

> From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>

> To: breathe-support@ yahoogroups. com

> Sent: Friday, November 14, 2008 7:41:47 AM

> Subject: 6 min walk & transplant

>

>

>

>

>

>

>

>

> I forget who asked about the details of the 6 min walk, it may

have been Jane

> in answer to your response, the docs are also looking at the

pft's, and my height and blood type

> the transplant doc told me about the issues with my height and

blood type in May, he suggested that I list at that time

>

> height 4' 11 "

> blood type O+

>

> a short donor is needed so the lung will fit my chest cavity

> although O+ is a universal blood donor, it is not a universal

organ recipient

>

> other issues:

> people tend to heal better when the rest of the body is in good

health;

> to avoid damage to other organs while waiting for the transplant

>

> i did order " Taking Flight " by Joann Schum--waiting for it to come-

-someone on the board recommended it

>

> has anyone read " the Lung Transplantation Book " by Couture

> or " I Call My New Lung Tina " by Shirley Jewett?

>

> Has anyone done fundraising prior to the transplant or while on

the list?

>

> Pink Joyce IPF 3/06 Pennsylvania

>

[Guest guest]

hey george

it's patti; you take care Glad you continue to be positive; i

believe half the battle is the positive attitude. Dont really know

you but i think and know you will do great.. Plus i am already using

you as my example.. ha ha.. patti

>

>

> Subject: Re: 6 min walk & transplant

> To: Breathe-Support

> Date: Friday, November 14, 2008, 8:58 AM

>

>

>

>

>

>

>

>

> Joyce we did annd liittle response from various business or

faternal groups. george ks t-9-24-08

>

>

>

>

>

> From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>

> To: breathe-support@ yahoogroups. com

> Sent: Friday, November 14, 2008 7:41:47 AM

> Subject: 6 min walk & transplant

>

>

>

>

>

>

>

>

> I forget who asked about the details of the 6 min walk, it may

have been Jane

> in answer to your response, the docs are also looking at the

pft's, and my height and blood type

> the transplant doc told me about the issues with my height and

blood type in May, he suggested that I list at that time

>

> height 4' 11 "

> blood type O+

>

> a short donor is needed so the lung will fit my chest cavity

> although O+ is a universal blood donor, it is not a universal

organ recipient

>

> other issues:

> people tend to heal better when the rest of the body is in good

health;

> to avoid damage to other organs while waiting for the transplant

>

> i did order " Taking Flight " by Joann Schum--waiting for it to come-

-someone on the board recommended it

>

> has anyone read " the Lung Transplantation Book " by Couture

> or " I Call My New Lung Tina " by Shirley Jewett?

>

> Has anyone done fundraising prior to the transplant or while on

the list?

>

> Pink Joyce IPF 3/06 Pennsylvania

>

[Guest guest]

Patti

Look forward to receiveing the information

on Friday, i spoke with a lady who had a transplant in 2006

she said that she did not fundraise

she was on "Security 65" and "Blue Rx" [both are part of the Blue Cross system]

so i am less uptight on the fundraising

went to a meeting with Blue Cross reps on Friday afternoon

they recommended "security 65 and blue Rx"

need to contact financial coordinator at Penn before i enroll in those plansPink Joyce IPF 3/06 Pennsylvania

Subject: Re: 6 min walk & transplantTo: Breathe-Support Date: Friday, November 14, 2008, 9:36 PM

hi joyce just spoke with my MSW and found out there is a group that does fundraising for you no fees or anything.. you dont need to do anything. when i find out more i'll let you know.. i know my biggest worry being able to afford this. She told me that wasn't my worry it was hers and my financial guy... GOD BLESS and speed patti> > From: george mathews <georgemathews76@ ...>> Subject: Re: 6 min walk & transplant> To: Breathe-Support@ yahoogroups. com> Date: Friday, November 14, 2008, 8:58 AM> >

> > > > > > > Joyce we did annd liittle response from various business or faternal groups. george ks t-9-24-08> > > > > > From: Joyce T Rosenberg <pinkrockybeach@ yahoo.com>> To: breathe-support@ yahoogroups. com> Sent: Friday, November 14, 2008 7:41:47 AM> Subject: 6 min walk & transplant> > > > > > > > > I forget who asked about the details of the 6 min walk, it may have been Jane> in answer to your response, the docs are also looking at the pft's, and my height and blood type> the transplant doc told me about the issues with my height and blood type in May, he suggested that I list at that time> > height 4' 11"> blood type O+> > a short donor is needed so the lung

will fit my chest cavity> although O+ is a universal blood donor, it is not a universal organ recipient> > other issues:> people tend to heal better when the rest of the body is in good health;> to avoid damage to other organs while waiting for the transplant> > i did order "Taking Flight" by Joann Schum--waiting for it to come--someone on the board recommended it> > has anyone read "the Lung Transplantation Book" by Couture> or "I Call My New Lung Tina" by Shirley Jewett?> > Has anyone done fundraising prior to the transplant or while on the list?> > Pink Joyce IPF 3/06 Pennsylvania>