Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 I am replying to all those who might like to add other habits to staying healthy with this disease. Since I am on a high dosage of Imuran (200mg) & have been for NINE years now, I have to be careful not to pick up anything! I will NOT shake hands with anyone - sorry about that Bruce - but when you end up getting sick from doing that habit, you may change your mind also. Dr. Milstone at Vanderbilt shook his finger at me & told me NOT to shake hands with people. I've followed that advice ever since. My Pastor at church started bumping elbows with me, & others have followed. It works! As for hugs, well that isn't the best thing to do either - too close of contact for me at this stage of my disease. I didn't get this far along - ten years now - from taking chances after I learned better. Also, , do NOT take anything like herbal medications. You do not know what is in those medications as they are not FDA approved. A pulmonogist at Univ of TN told me not to take anything like that - some things have been found in those medications that would literally kill you & have done so to others. So I am very careful about that too - afterall a Chiropractor is not a medical doctor. I certainly would've loved to have been along on that lunch Bruce, Elisa, & Gynne had in Arlington, TX. I lived in Colleyville, TX, from 1999 until 2003, so I know the area fairly well. Also, I think Gynne still goes to my former pulmonary dr, Dr. Rosenblatt, at UT Southwestern in Dallas. I still haven't met anyone up close & personal who has this disease. Perhaps now that I am being listed for a lung transplant at Vanderbilt, I will at sometime meet others with this disease Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2008 Report Share Posted November 17, 2008 Sherry, Thanks for the advice. My pulmonologist agreed with the chiropractor about the COQ10. They both thought it might keep me stronger heartwise. Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Sherry wrote: I am replying to all those who might like to add other habits to staying healthy with this disease. Since I am on a high dosage of Imuran (200mg) & have been for NINE years now, I have to be careful not to pick up anything! I will NOT shake hands with anyone - sorry about that Bruce - but when you end up getting sick from doing that habit, you may change your mind also. Dr. Milstone at Vanderbilt shook his finger at me & told me NOT to shake hands with people. I've followed that advice ever since. My Pastor at church started bumping elbows with me, & others have followed. It works! As for hugs, well that isn't the best thing to do either - too close of contact for me at this stage of my disease. I didn't get this far along - ten years now - from taking chances after I learned better. Also, , do NOT take anything like herbal medications. You do not know what is in those medications as they are not FDA approved. A pulmonogist at Univ of TN told me not to take anything like that - some things have been found in those medications that would literally kill you & have done so to others. So I am very careful about that too - afterall a Chiropractor is not a medical doctor. I certainly would've loved to have been along on that lunch Bruce, Elisa, & Gynne had in Arlington, TX. I lived in Colleyville, TX, from 1999 until 2003, so I know the area fairly well. Also, I think Gynne still goes to my former pulmonary dr, Dr. Rosenblatt, at UT Southwestern in Dallas. I still haven't met anyone up close & personal who has this disease. Perhaps now that I am being listed for a lung transplant at Vanderbilt, I will at sometime meet others with this disease. Hope these couple of suggestions help others to maintain their fragile health. It only takes one bad episode of an illness to take you down a notch to where you may need a transplant. That is what happened to me, so be very careful. You can't prevent all illness, but you certainly don't want to invite them! Sherry , Age 64 NSIP, PH, PBS, Bronchiectasis No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.175 / Virus Database: 270.9.4/1794 - Release Date: 11/17/2008 8:48 AM Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.