Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 Hi Everyone, My daughter is doing a sociology paper on PF for one of her college classes and needs to interview at least 3 people. If any of you have a few minutes and don't mind being part of a college paper, could you answer the following questions and get them back to me? The longer the answers the better, but anything would be great. Thanks- Interview Questions 1. How did you first hear that you were terminal? 2. What was your first reaction? 3. Who was the first person you told? 4. What was their response? 5. How did you inform the rest of your friends and family? 6. What were their reactions and did they surprise you? 7. Has knowledge of your diagnosis changed the way others treat you? 8. What treatments, if any, did you try? 9. Did you try any unconventional treatments? 10. What changes ( mentally, physically, emotionally) did you make in your life because of your diagnosis? 11. Has your terminal diagnosis made you look at life differently? 12. What advice would you give to others? R. (52) Sarcoid/PF 3/2006 Carlsbad, California Subject: Fwd: Hello Nice PersonTo: Breathe-Support Date: Wednesday, November 19, 2008, 7:50 PM Subject: Hello Nice Person Hello There Nice Person Did Anyone Ever Tell You, Just How Special You Are The Light that You Emit Might even Light a Star Did Anyone Ever Tell You How Important You Make Others Feel Somebody out here is Smiling About Love that is so Real Did Anyone Ever Tell You that Many Times When They were Sad Your E-mail made Them Smile a bit In Fact It made Them Glad For the Time You Spend Sending Things And Sharing whatever You Find There are No Words to Thank You But Somebody, Thinks You're Fine Did Anyone Ev er Tell You Just How Much They Like You Well, My Friend Today I am Telling You I believe that without a friend you are missing out on a lot!!! Have a nice day, and I'm glad we are friends!!! The Wave ----- keep it going Just wanted to say Hi, AND HOPE YOU HAVE A GREAT DAY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 1. I heard it was terminal the day diagnosed by the pulmonologist. 8/16/08. 2. My reaction will be unique I suspect. I'd been through some very rough periods with mental illness. I'd had possible cancer issues before and there were even some questions of lymphoma at that time. But the biggest thing was the mental illness and times when I had no will to live. So, honestly, I'd been through far worse than having a terminal disease. I went expecting COPD or something. Didn't realize there was something worse. So, and I'm sure this surprises no one, I just headed home to start researching. 3. First person I told was my ex-wife, , who is my closest family. 4. Her response was calm and listening as she wasn't familiar with it. I'm sure she hit the internet too. She'd seen me at my worse and had handled and supported me through major ear surgeries and a colon resection for tumor removal. 5. I informed as simple matter of fact. Yes, I have a terminal disease but I'm doing fine. I'm not scared of death, although don't like the path there. Especially I'm not fond of pain. I don't state it as some horrible thing that has happened to me nor do I indicate the world is falling down around me. Its part of life and not something I went out and asked for but many people have much worse to deal with than I do. 6.I think when they could hear me and see me and realize I really was ok, then they were able to be. We were able to do normal things, but never avoided the subject. I do find occasion to even joke about it and most of them can laugh with me. I did have one friend who just didn't want to believe the prognosis. I had to work with her so she could face the facts but also know I was ok with it and as long as I can will do the best I can. 7. No, it hasn't changed the way any friends or family treat me. Yes, wearing oxygen on my shoulder has improved the way those in public treat me significantly. My interaction with store clerks or hotel employees or others is much better than before. 8. I have tried no treatment. 9. I have tried no unconventional treatments. 10. Mentally and emotionally the disease hasn't affected me in any negative way. In fact, its given me focus and led me to do things I would have put off forever. I did think and plan and look at all the worst case scenarios so that i could be comfortable. I took care of all legal matters and death, so thats done, I'll just concentrate on living.Physically, I can't do the things I once did, but some I'd just as soon not do. Yes, its impacted me, but mental and emotional health are far more important to me than physical. 11. Yes, i look at life differently. I am living each year as if its the last year I'll have the health I currently have. When the decline gets steeper, I'll go to six month or three month planning periods. But I'm going to get more living into whatever time i have by far than I would have had I lived to a normal age and remained as I had been. 12.This isn't just to PF'ers, but everyone, especially those of you in college. Live every year as if its going to be your last. Think of those things you'd want to be sure you did. An old friend or family you'd visit. Then just do it. Live in the moment. Don't put off living. Don't say when I do this or after that. Make your priorities the right things. In this country we've destroyed our quality of living. We're working more hours per year than any other country. We're living with a level of stress thats entirely too much. We're focused on having things. Even the economic issues of today were largely made by our greed. We had to have houses we couldn't afford. We stay in jobs we don't like or careers when we wish we'd chosen differently. We buy 2800 square foot four bedroom homes when a two bedroom apartment at half the price would be more than enough. We've made our lives way too complicated. Mine is so simple today in spite of way too many doctors. Stuff isn't important. Time for living is. If you have family spend time with them. If mom and dad are coming home every night tired and working weekends or two tired to do anything and the only family time is occasional sitting in front of the tv, you're misguided in the focus of your life. If I had a child I'd only have one wish and one goal in life for them. Be Happy. I don't care what job or where or spouse or no spouse or anything else. Be Happy. Find what will make you happy. Make that your goal. When you're asked where you hope to be 5 or 10 years from now don't think of jobs or money or houses. Think of happy. Thats it. Do things that are healthy for you from a mental and emotional state. Choose your friends that way. If one isn't healthy for you, move on. Find those who help you be better and who you can help. Care about others but take care of yourself. Yes, I have a terminal disease. If I had a mirror I'd check my butt for the expiration date. Otherwise, I'm no different than anyone. I'm going to die. ly, I always knew that, as everyone will. Maybe sooner or later. I can't control that. But, I'm as happy and my life is as good as its ever been. If I could be cured of this disease but have to return to my mental and emotional state of 2 to 3 years ago, I'd say no. I've got support to help me when I need it. I have family, incredible friends on the forums and my counselor. I'm happy. You be happy. Thats all folks. > > From: Peggy pac1773@... > Subject: Fwd: Hello Nice Person > To: Breathe-Support > Date: Wednesday, November 19, 2008, 7:50 PM > > > > > > > > > > > > > > > Subject: Hello Nice Person > > > > > > > > > > > > > > > > > > > Hello There Nice Person > Did Anyone Ever Tell You, > Just How Special You Are > > The Light that You Emit > Might even Light a Star > > Did Anyone Ever Tell You > How Important You Make Others Feel > Somebody out here is Smiling > About Love that is so Real > > Did Anyone Ever Tell You that > Many Times When They were Sad > Your E-mail made Them Smile a bit > In Fact It made Them Glad > > > > For the Time You Spend Sending Things > And Sharing whatever You Find > There are No Words to Thank You > But Somebody, Thinks You're Fine > > Did Anyone Ev er Tell You > > Just How Much They Like You > Well, My Friend > Today I am Telling You > > I believe that without a > friend you are missing out on a lot!!! > > Have a nice day, and I'm glad we are friends!!! > > > > The > Wave ----- keep it going > > > Just > wanted to say Hi, > AND > HOPE YOU HAVE A GREAT DAY > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 Deinse, How soon does your daughter need these answers. My son is moving in and it is a little nuts but I would love to help..Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 Hi Peggy, She has till Sunday to gather her interviews. Hope all goes well with the move in. Love you- R. (52) Sarcoid/PF 3/2006 Carlsbad, California Subject: Re: Help with PaperTo: Breathe-Support Date: Friday, November 21, 2008, 2:30 PM Deinse, How soon does your daughter need these answers. My son is moving in and it is a little nuts but I would love to help.. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 , I'll work on my answers tonight and email them to you tomorrow! Happy to help. Beth in North Carolina Moderator Fibrotic NSIP 06/06 UCTD 06/08 "Take chances, make mistakes and get messy!" Miss Frizzle To: Breathe-Support Sent: Friday, November 21, 2008 6:27:42 PMSubject: Re: Help with Paper Hi Peggy, She has till Sunday to gather her interviews. Hope all goes well with the move in. Love you- R. (52) Sarcoid/PF 3/2006 Carlsbad, California Subject: Re: Help with PaperTo: Breathe-Support Date: Friday, November 21, 2008, 2:30 PM Deinse, How soon does your daughter need these answers. My son is moving in and it is a little nuts but I would love to help.. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 Thanks! R. (52) Sarcoid/PF 3/2006 Carlsbad, California Subject: Re: Help with PaperTo: Breathe-Support Date: Friday, November 21, 2008, 2:30 PM Deinse, How soon does your daughter need these answers. My son is moving in and it is a little nuts but I would love to help.. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 Bruce, Thanks so much for the great answers! If you lived closer I'd bring you dinner. Like you, this disease has made me so much more appreciative of everything and everyone around me. Instead of "living to die," I am "dying to live" and treat each day like a special gift not to be wasted. Now that "treat" might be giving myself permission to have a pajama day and watch a marathon of old movies- the difference being I do things I want to do and don't waste time on what I think I have to do. Take care Bruce and God bless you- R. (52) Sarcoid/PF 3/2006 Carlsbad, California Subject: Re: Help with PaperTo: Breathe-Support Date: Friday, November 21, 2008, 1:21 PM 1. I heard it was terminal the day diagnosed by the pulmonologist.8/16/08.2. My reaction will be unique I suspect. I'd been through some veryrough periods with mental illness. I'd had possible cancer issues beforeand there were even some questions of lymphoma at that time. But thebiggest thing was the mental illness and times when I had no will tolive. So, honestly, I'd been through far worse than having a terminaldisease.I went expecting COPD or something. Didn't realize there was somethingworse. So, and I'm sure this surprises no one, I just headed home tostart researching.3. First person I told was my ex-wife, , who is my closest family.4. Her response was calm and listening as she wasn't familiar with it.I'm sure she hit the internet too. She'd seen me at my worse and hadhandled and supported me through major ear surgeries and a colonresection for tumor removal.5. I informed as simple matter of fact. Yes, I have a terminal diseasebut I'm doing fine. I'm not scared of death, although don't like thepath there. Especially I'm not fond of pain. I don't state it as somehorrible thing that has happened to me nor do I indicate the world isfalling down around me. Its part of life and not something I went outand asked for but many people have much worse to deal with than I do.6.I think when they could hear me and see me and realize I really wasok, then they were able to be. We were able to do normal things, butnever avoided the subject. I do find occasion to even joke about it andmost of them can laugh with me. I did have one friend who just didn'twant to believe the prognosis. I had to work with her so she could facethe facts but also know I was ok with it and as long as I can will dothe best I can.7. No, it hasn't changed the way any friends or family treat me. Yes,wearing oxygen on my shoulder has improved the way those in public treatme significantly. My interaction with store clerks or hotel employees orothers is much better than before.8. I have tried no treatment.9. I have tried no unconventional treatments.10. Mentally and emotionally the disease hasn't affected me in anynegative way. In fact, its given me focus and led me to do things Iwould have put off forever. I did think and plan and look at all theworst case scenarios so that i could be comfortable. I took care of alllegal matters and death, so thats done, I'll just concentrate onliving.Physically, I can't do the things I once did, but some I'd justas soon not do. Yes, its impacted me, but mental and emotional healthare far more important to me than physical.11. Yes, i look at life differently. I am living each year as if its thelast year I'll have the health I currently have. When the decline getssteeper, I'll go to six month or three month planning periods. But I'mgoing to get more living into whatever time i have by far than I wouldhave had I lived to a normal age and remained as I had been.12.This isn't just to PF'ers, but everyone, especially those of you incollege. Live every year as if its going to be your last. Think of thosethings you'd want to be sure you did. An old friend or family you'dvisit. Then just do it. Live in the moment. Don't put off living. Don'tsay when I do this or after that. Make your priorities the right things.In this country we've destroyed our quality of living. We're workingmore hours per year than any other country. We're living with a level ofstress thats entirely too much. We're focused on having things. Even theeconomic issues of today were largely made by our greed. We had to havehouses we couldn't afford. We stay in jobs we don't like or careers whenwe wish we'd chosen differently. We buy 2800 square foot four bedroomhomes when a two bedroom apartment at half the price would be more thanenough. We've made our lives way too complicated. Mine is so simpletoday in spite of way too many doctors. Stuff isn't important. Time forliving is. If you have family spend time with them. If mom and dad arecoming home every night tired and working weekends or two tired to doanything and the only family time is occasional sitting in front of thetv, you're misguided in the focus of your life.If I had a child I'd only have one wish and one goal in life for them.Be Happy. I don't care what job or where or spouse or no spouse oranything else. Be Happy. Find what will make you happy. Make that yourgoal. When you're asked where you hope to be 5 or 10 years from nowdon't think of jobs or money or houses. Think of happy. Thats it.Do things that are healthy for you from a mental and emotional state.Choose your friends that way. If one isn't healthy for you, move on.Find those who help you be better and who you can help. Care aboutothers but take care of yourself.Yes, I have a terminal disease. If I had a mirror I'd check my butt forthe expiration date. Otherwise, I'm no different than anyone. I'm goingto die. ly, I always knew that, as everyone will. Maybe sooner orlater. I can't control that. But, I'm as happy and my life is as good asits ever been. If I could be cured of this disease but have to return tomy mental and emotional state of 2 to 3 years ago, I'd say no. I've gotsupport to help me when I need it. I have family, incredible friends onthe forums and my counselor. I'm happy. You be happy. Thats all folks.>> Subject: Fwd: Hello Nice Person> To: Breathe-Support@ yahoogroups. com> Date: Wednesday, November 19, 2008, 7:50 PM>>>>>>>>>>>>>>> Subject: Hello Nice Person>>>>>>>>>>>>>>>>>>> Hello There Nice Person> Did Anyone Ever Tell You,> Just How Special You Are>> The Light that You Emit> Might even Light a Star>> Did Anyone Ever Tell You> How Important You Make Others Feel> Somebody out here is Smiling> About Love that is so Real>> Did Anyone Ever Tell You that> Many Times When They were Sad> Your E-mail made Them Smile a bit> In Fact It made Them Glad>>>> For the Time You Spend Sending Things> And Sharing whatever You Find> There are No Words to Thank You> But Somebody, Thinks You're Fine>> Did Anyone Ev er Tell You>> Just How Much They Like You> Well, My Friend> Today I am Telling You>> I believe that without a> friend you are missing out on a lot!!!>> Have a nice day, and I'm glad we are friends!!!>>>> The> Wave ----- keep it going>>> Just> wanted to say Hi,> AND> HOPE YOU HAVE A GREAT DAY>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 But now I bet you can do the Pajama days without feeling guilty. I sure hope so. It use to be that there was so much I needed to do and even relaxing couldn't be relaxing. Now, when I need a day to do nothing, I just enjoy it. > > > > From: Peggy pac1773@ > > Subject: Fwd: Hello Nice Person > > To: Breathe-Support@ yahoogroups. com > > Date: Wednesday, November 19, 2008, 7:50 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Subject: Hello Nice Person > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello There Nice Person > > Did Anyone Ever Tell You, > > Just How Special You Are > > > > The Light that You Emit > > Might even Light a Star > > > > Did Anyone Ever Tell You > > How Important You Make Others Feel > > Somebody out here is Smiling > > About Love that is so Real > > > > Did Anyone Ever Tell You that > > Many Times When They were Sad > > Your E-mail made Them Smile a bit > > In Fact It made Them Glad > > > > > > > > For the Time You Spend Sending Things > > And Sharing whatever You Find > > There are No Words to Thank You > > But Somebody, Thinks You're Fine > > > > Did Anyone Ev er Tell You > > > > Just How Much They Like You > > Well, My Friend > > Today I am Telling You > > > > I believe that without a > > friend you are missing out on a lot!!! > > > > Have a nice day, and I'm glad we are friends!!! > > > > > > > > The > > Wave ----- keep it going > > > > > > Just > > wanted to say Hi, > > AND > > HOPE YOU HAVE A GREAT DAY > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 Wow! Brother Bruce, You really got it right. I’ve really got a lot of catching up to do. No has said the words “terminal” Till today. You know COPD, Interstitial lung disease, lots of scar tissue. I guess that’s why I’m still looking for a second opinion. Bob PF 09/08 From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Bruce Moreland Sent: Friday, November 21, 2008 4:22 PM To: Breathe-Support Subject: Re: Help with Paper 1. I heard it was terminal the day diagnosed by the pulmonologist. 8/16/08. 2. My reaction will be unique I suspect. I'd been through some very rough periods with mental illness. I'd had possible cancer issues before and there were even some questions of lymphoma at that time. But the biggest thing was the mental illness and times when I had no will to live. So, honestly, I'd been through far worse than having a terminal disease. I went expecting COPD or something. Didn't realize there was something worse. So, and I'm sure this surprises no one, I just headed home to start researching. 3. First person I told was my ex-wife, , who is my closest family. 4. Her response was calm and listening as she wasn't familiar with it. I'm sure she hit the internet too. She'd seen me at my worse and had handled and supported me through major ear surgeries and a colon resection for tumor removal. 5. I informed as simple matter of fact. Yes, I have a terminal disease but I'm doing fine. I'm not scared of death, although don't like the path there. Especially I'm not fond of pain. I don't state it as some horrible thing that has happened to me nor do I indicate the world is falling down around me. Its part of life and not something I went out and asked for but many people have much worse to deal with than I do. 6.I think when they could hear me and see me and realize I really was ok, then they were able to be. We were able to do normal things, but never avoided the subject. I do find occasion to even joke about it and most of them can laugh with me. I did have one friend who just didn't want to believe the prognosis. I had to work with her so she could face the facts but also know I was ok with it and as long as I can will do the best I can. 7. No, it hasn't changed the way any friends or family treat me. Yes, wearing oxygen on my shoulder has improved the way those in public treat me significantly. My interaction with store clerks or hotel employees or others is much better than before. 8. I have tried no treatment. 9. I have tried no unconventional treatments. 10. Mentally and emotionally the disease hasn't affected me in any negative way. In fact, its given me focus and led me to do things I would have put off forever. I did think and plan and look at all the worst case scenarios so that i could be comfortable. I took care of all legal matters and death, so thats done, I'll just concentrate on living.Physically, I can't do the things I once did, but some I'd just as soon not do. Yes, its impacted me, but mental and emotional health are far more important to me than physical. 11. Yes, i look at life differently. I am living each year as if its the last year I'll have the health I currently have. When the decline gets steeper, I'll go to six month or three month planning periods. But I'm going to get more living into whatever time i have by far than I would have had I lived to a normal age and remained as I had been. 12.This isn't just to PF'ers, but everyone, especially those of you in college. Live every year as if its going to be your last. Think of those things you'd want to be sure you did. An old friend or family you'd visit. Then just do it. Live in the moment. Don't put off living. Don't say when I do this or after that. Make your priorities the right things. In this country we've destroyed our quality of living. We're working more hours per year than any other country. We're living with a level of stress thats entirely too much. We're focused on having things. Even the economic issues of today were largely made by our greed. We had to have houses we couldn't afford. We stay in jobs we don't like or careers when we wish we'd chosen differently. We buy 2800 square foot four bedroom homes when a two bedroom apartment at half the price would be more than enough. We've made our lives way too complicated. Mine is so simple today in spite of way too many doctors. Stuff isn't important. Time for living is. If you have family spend time with them. If mom and dad are coming home every night tired and working weekends or two tired to do anything and the only family time is occasional sitting in front of the tv, you're misguided in the focus of your life. If I had a child I'd only have one wish and one goal in life for them. Be Happy. I don't care what job or where or spouse or no spouse or anything else. Be Happy. Find what will make you happy. Make that your goal. When you're asked where you hope to be 5 or 10 years from now don't think of jobs or money or houses. Think of happy. Thats it. Do things that are healthy for you from a mental and emotional state. Choose your friends that way. If one isn't healthy for you, move on. Find those who help you be better and who you can help. Care about others but take care of yourself. Yes, I have a terminal disease. If I had a mirror I'd check my butt for the expiration date. Otherwise, I'm no different than anyone. I'm going to die. ly, I always knew that, as everyone will. Maybe sooner or later. I can't control that. But, I'm as happy and my life is as good as its ever been. If I could be cured of this disease but have to return to my mental and emotional state of 2 to 3 years ago, I'd say no. I've got support to help me when I need it. I have family, incredible friends on the forums and my counselor. I'm happy. You be happy. Thats all folks. > > From: Peggy pac1773@... > Subject: Fwd: Hello Nice Person > To: Breathe-Support > Date: Wednesday, November 19, 2008, 7:50 PM > > > > > > > > > > > > > > > Subject: Hello Nice Person > > > > > > > > > > > > > > > > > > > Hello There Nice Person > Did Anyone Ever Tell You, > Just How Special You Are > > The Light that You Emit > Might even Light a Star > > Did Anyone Ever Tell You > How Important You Make Others Feel > Somebody out here is Smiling > About Love that is so Real > > Did Anyone Ever Tell You that > Many Times When They were Sad > Your E-mail made Them Smile a bit > In Fact It made Them Glad > > > > For the Time You Spend Sending Things > And Sharing whatever You Find > There are No Words to Thank You > But Somebody, Thinks You're Fine > > Did Anyone Ev er Tell You > > Just How Much They Like You > Well, My Friend > Today I am Telling You > > I believe that without a > friend you are missing out on a lot!!! > > Have a nice day, and I'm glad we are friends!!! > > > > The > Wave ----- keep it going > > > Just > wanted to say Hi, > AND > HOPE YOU HAVE A GREAT DAY > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 > > > Subject: Fwd: Hello Nice Person > To: Breathe-Support > Date: Wednesday, November 19, 2008, 7:50 PM > > I love to help people who go after ed. My 3 girls are all college grads. So hope this helps > > 1. I found out on Oct.4,2004,after a lung biopsy > > 2. I felt relief because the dx. answered alot of questions about how I was feeling. > 3. I was in ICU for 3 days so I don't really know who found out first. > 4. Since my father died from PF in 1991, we kind of knew what was going to happen. 5. It went through the family grape vine. > 6. Because of my dx my older sister who had been dx. with copd had a biopsy and she has it too. > 7. yes, I have some family who try to baby me, others are in denial, and I have lost friends and had trouble finding others. I get tired of being stared at every where I go, but I have adjusted to that. 8.prednisone & immuran is the only treatments I have been on 9.No I discussed trying some with my neice who is a P.A. and she advised me against it. 10.The first major change I was put on disability from the start & since I am single It was scary, I lost my apt.car & moved to another state because I had no place to go. 11.Most definitly, I have plenty of time to stop and smell the roses,sometimes I feel it is a gift to be able to see the world diferently and not sweat the small stuff. 12. NEVER GIVE UP THE FIGHT AND ENJOY LIFE. I HAVE GOTTEN TO TAKE MY FIRST TRAIN RIDE, AND STAYED THROUGH MY FIRST HURRICANE WITH Ike. My brother yelled about that one but when I asked him if he hadn't wanted to before and he couldn't. SO Itake my O2 and keep on trucken. > > > > > Subject: Hello Nice Person > > > > > > > > > > > > > > > > > > > Hello There Nice Person > Did Anyone Ever Tell You, > Just How Special You Are > > The Light that You Emit > Might even Light a Star > > Did Anyone Ever Tell You > How Important You Make Others Feel > Somebody out here is Smiling > About Love that is so Real > > Did Anyone Ever Tell You that > Many Times When They were Sad > Your E-mail made Them Smile a bit > In Fact It made Them Glad > > > > For the Time You Spend Sending Things > And Sharing whatever You Find > There are No Words to Thank You > But Somebody, Thinks You're Fine > > Did Anyone Ev er Tell You > > Just How Much They Like You > Well, My Friend > Today I am Telling You > > I believe that without a > friend you are missing out on a lot!!! > > Have a nice day, and I'm glad we are friends!!! > > > > The > Wave ----- keep it going > > > Just > wanted to say Hi, > AND > HOPE YOU HAVE A GREAT DAY > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2008 Report Share Posted November 21, 2008 , I hope that these answers help your daughter with her paper. Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower denise randel wrote: Hi Everyone, My daughter is doing a sociology paper on PF for one of her college classes and needs to interview at least 3 people. If any of you have a few minutes and don't mind being part of a college paper, could you answer the following questions and get them back to me? The longer the answers the better, but anything would be great. Thanks- Interview Questions 1. How did you first hear that you were terminal? We were not told that my form of Pf was terminal. In fact we didn't know that what I have (NSIP) was a form of PF. I was told I had an Interstitial Lung disease called NSIP and was shown the Cat scan and informed about the PFT's.The word terminal never came up in the first visit. We found out on- line that most people with NSIP have about 5-8 years after DX. The pulmonologist eventually told me after I questioned him without my husband being in the room that many people with my form of NSIP so well for many years. He has never used the word "terminal" he says "chronic" 2. What was your first reaction? We both cried the entire week-end and then called the kids. 3. Who was the first person you told? Our kids were told first ,I still think that 3 years later they haven't all absorbed it. 4. What was their response? Shock, tears, disbelief. My sons are still having trouble with me being sick. My daughter gets it. 5. How did you inform the rest of your friends and family? We called my mom on the phone and asked her to come over and my brother and his wife brought her over. She still hasn't grasped the entire idea. 6. What were their reactions and did they surprise you? My brother has distanced himself from me and that hurts. My mom is still waiting for me to " get better" Yes, the varied reactions from so called friends have surprised me. Many have disappeared..many that I hadn't previously counted -on have been great. It seems that serios illness acts like a filter...the good ones come through and the not true friends ( and relatives too) stay away. 7. Has knowledge of your diagnosis changed the way others treat you? I answered that above...many are still surprised that I'm "out and about" to quote one of them. What am I supposed to do...just sit here? 8. What treatments, if any, did you try? Prednisone, Imuran, Oxygen 24/7, and many others to mitigate the side effects of these drugs. I have been fortunate that my form of PF is responsive to these drugs and I have been Stable since DX. 9. Did you try any unconventional treatments? None as of yet 10. What changes ( mentally, physically, emotionally) did you make in your life because of your diagnosis? I had to stop working. I had to realize that I had to come first. I have to really be careful about over doing. I can now say "no". I have many more " down" days. I have difficulty with everyday things like making the bed, showering, shopping. I now use the electric carts in the stores to savemy energy for more enjoyable activity. I do not spend time or energy with negative people or negative activity. We've moved to a ranch house from a two story colonial, and I love it. 11. Has your terminal diagnosis made you look at life differently? Every day counts and I try to do something positive each day. I don't think about "terminal" as much as I used to. I know that at 65 my time may be less than I'd assumed I'd have but I plan to be here to see my grand daughters graduate ( that's at least 15 years) I take care of myself. I try to stay away from people with colds, etc. 12. What advice would you give to others? PF stinks..;you may think you can deal with the situation on your own. Don't even try...get help from professionals. I've gone to psychologist for years prior to DX and have continued to seek her help. My husband is great, but he worries so much that I worry about him. So, I talk to the psychologist if i need to " dump" and I also have found a life-line in Breathe-Support. R. (52) Sarcoid/PF 3/2006 Carlsbad, California From: Peggy Subject: Fwd: Hello Nice Person To: Breathe-Support Date: Wednesday, November 19, 2008, 7:50 PM Subject: Hello Nice Person Hello There Nice Person Did Anyone Ever Tell You, Just How Special You Are The Light that You Emit Might even Light a Star Did Anyone Ever Tell You How Important You Make Others Feel Somebody out here is Smiling About Love that is so Real Did Anyone Ever Tell You that Many Times When They were Sad Your E-mail made Them Smile a bit In Fact It made Them Glad For the Time You Spend Sending Things And Sharing whatever You Find There are No Words to Thank You But Somebody, Thinks You're Fine Did Anyone Ev er Tell You Just How Much They Like You Well, My Friend Today I am Telling You I believe that without a friend you are missing out on a lot!!! Have a nice day, and I'm glad we are friends!!! The Wave ----- keep it going Just wanted to say Hi, AND HOPE YOU HAVE A GREAT DAY No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.175 / Virus Database: 270.9.7/1799 - Release Date: 11/19/2008 8:58 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 You said you didn't know that NSIP was a form of PF and didn't hear the word terminal associated. Technically, NSIP is not a form of PF. PF often isn't typically used in a technical context but is used in a much broader manner. The correct term is Interstitial Lung Disease of which UIP, IPF, NSIP, UIP, DIP, LIP are forms. There would also be very reasonable argument to say that only UIP is terminal among those as many would consider prednisone a treatment for the others and, if they others are caused by an identifiable underlying condition such as a connective tissue disease their progression can be slowed or even halted indefinitely. Terms have been used in so many different ways that the confusion is not surprising. However, it can be an issue when very different forms of ILD's are grouped and it leads people to believe their prognosis is the same as others. This can lead someone to have unreasonably optimistic or pessimistic beliefs. Cleveland Clinic actually has a table on the most common ILD's. UIP (which clinically is IPF if the cause isn't identified) is the one with the worse prognosis. According to them the five year survival from diagnosis is 30% and it doesn't respond to steroids. Others would argue with that. By their same table NSIP has 89% five year survival, does respond to steroids, and can have complete recovery (yes, I know most of us haven't ever heard that opinion). All the other forms they list have from 70% to 100% five year survival, do sometimes or all the time respond to steroids, and sometimes have complete recovery. Complicate it further by the fact there are two distinct forms of NSIP with different outlooks. Now one other problem is that many don't even know which ILD they have. So, what we all ultimately share is an ILD, we're not pleased by it, and we don't know how long we'll live. > > > > From: Peggy pac1773@... > > Subject: Fwd: Hello Nice Person > > To: Breathe-Support > > Date: Wednesday, November 19, 2008, 7:50 PM > > > > > > ------------------------------------------------------------------------ > > > > > > *Subject:* Hello Nice Person > > > > > > > > > > Hello There Nice Person > > Did Anyone Ever Tell You, > > Just How Special You Are > > > > The Light that You Emit > > Might even Light a Star > > > > Did Anyone Ever Tell You > > How Important You Make Others Feel > > Somebody out here is Smiling > > About Love that is so Real > > > > Did Anyone Ever Tell You that > > Many Times When They were Sad > > Your E-mail made Them Smile a bit > > In Fact It made Them Glad > > > > > > > > For the Time You Spend Sending Things > > And Sharing whatever You Find > > There are No Words to Thank You > > But Somebody, Thinks You're Fine > > > > Did Anyone Ev er Tell You > > > > Just How Much They Like You > > Well, My Friend > > Today I am Telling You > > > > I believe that without a > > friend you are missing out on a lot!!! > > > > Have a nice day, and I'm glad we are friends!!! > > * > > > > > > The > > Wave ----- keep it going * > > > > * > > Just > > wanted to say Hi, > > AND > > HOPE YOU HAVE A GREAT DAY * > > > > > > > > > > > > > > > >-----------------------------------------------------------------------\ - > > > > > >No virus found in this incoming message. > >Checked by AVG - http://www.avg.com > >Version: 8.0.175 / Virus Database: 270.9.7/1799 - Release Date: 11/19/2008 8:58 AM > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 Bob don't feel so all alone. After I was told that it was Interstitial Lung Disease I went home and checked it out online. They kept saying it is terminal. I knep saying not me or the doctor would have said something about that. It took my primary care doctor that I have now to connect me with the fact that this is a chronic and terminal illness and I have to accept it as such. I think that since the really is not much known about it and therefore no hope that can be offered to patients given the diagnosis, it is very hard for many doctors to be strait to point with reality. Doctors are programed to say this is bad but here is what we can offer to try and change the situation. It is hard for them to face the fact that they have to say this is bad and we have nothing to offer. It goes against all their years of education and practice. They are as helpless as we are in being able to " fix " the problem. Since my doctor finally opened the strait talk, I am in a better place mentally and I have faced reality myself and finally given in to making adaptations. My first big change is that I am no longer fighting my limitations figuring that I'll get over it. I purchased a mobility scooter which I pick up this week. The first thing I am doing is taking it to a mall and entering the mall, driving it around the entire place and leaving by the same door. Sounds crazy but I have not made it around the entire mall in years so I see it as the greatest thing especially with it decorated for Christmas. Jean > > > > From: Peggy pac1773@ > > Subject: Fwd: Hello Nice Person > > To: Breathe-Support@ <mailto:Breathe-Support%40yahoogroups.com> > yahoogroups.com > > Date: Wednesday, November 19, 2008, 7:50 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Subject: Hello Nice Person > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello There Nice Person > > Did Anyone Ever Tell You, > > Just How Special You Are > > > > The Light that You Emit > > Might even Light a Star > > > > Did Anyone Ever Tell You > > How Important You Make Others Feel > > Somebody out here is Smiling > > About Love that is so Real > > > > Did Anyone Ever Tell You that > > Many Times When They were Sad > > Your E-mail made Them Smile a bit > > In Fact It made Them Glad > > > > > > > > For the Time You Spend Sending Things > > And Sharing whatever You Find > > There are No Words to Thank You > > But Somebody, Thinks You're Fine > > > > Did Anyone Ev er Tell You > > > > Just How Much They Like You > > Well, My Friend > > Today I am Telling You > > > > I believe that without a > > friend you are missing out on a lot!!! > > > > Have a nice day, and I'm glad we are friends!!! > > > > > > > > The > > Wave ----- keep it going > > > > > > Just > > wanted to say Hi, > > AND > > HOPE YOU HAVE A GREAT DAY > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 Bruce, I'm confused by your post. Pulmonary Fibrosis is according to the Mayo Clinic website the 'end stage of interstitial lung disease'. That means the lungs have scarred due to whatever ILD I happen to have. So those of us with NSIP do indeed have pf. I guess I just don't understand the purpose of splitting hairs about who has pf and who doesn't. Vicky has IPH Idiopathic Pulmonary Hemosiderosis which causes bleeding in the lungs which in turn causes scarring or ta da pulmonary fibrosis. If we have any of the ILD's most of the time we end up with pf, lung scarring. Did you mean perhaps that NSIP is not IPF? That obviously is correct but I'm not sure that's what you meant. If one Google's any of the typical ILD diagnosis, pulmonary fibrosis is associated with all of them. They all cause lung scarring and that's what pulmonary fibrosis means. I just don't want anyone to feel as though they don't belong here because of slightly different wording or technical terminology. We're all in need of support and informations regardless of what form of pulmonary fibrosis we have. Beth in North Carolina Moderator Fibrotic NSIP 06/06 UCTD 06/08 "Take chances, make mistakes and get messy!" Miss Frizzle To: Breathe-Support Sent: Saturday, November 22, 2008 3:43:27 AMSubject: Re: Help with Paper You said you didn't know that NSIP was a form of PF and didn't hear theword terminal associated. Technically, NSIP is not a form of PF. PFoften isn't typically used in a technical context but is used in a muchbroader manner. The correct term is Interstitial Lung Disease of whichUIP, IPF, NSIP, UIP, DIP, LIP are forms.There would also be very reasonable argument to say that only UIP isterminal among those as many would consider prednisone a treatment forthe others and, if they others are caused by an identifiable underlyingcondition such as a connective tissue disease their progression can beslowed or even halted indefinitely.Terms have been used in so many different ways that the confusion is notsurprising. However, it can be an issue when very different forms ofILD's are grouped and it leads people to believe their prognosis is thesame as others. This can lead someone to have unreasonably optimistic orpessimistic beliefs.Cleveland Clinic actually has a table on the most common ILD's. UIP (which clinically is IPF if the cause isn't identified) is the one withthe worse prognosis. According to them the five year survival fromdiagnosis is 30% and it doesn't respond to steroids. Others would arguewith that. By their same table NSIP has 89% five year survival, doesrespond to steroids, and can have complete recovery (yes, I know most ofus haven't ever heard that opinion). All the other forms they list havefrom 70% to 100% five year survival, do sometimes or all the timerespond to steroids, and sometimes have complete recovery. Complicate itfurther by the fact there are two distinct forms of NSIP with differentoutlooks.Now one other problem is that many don't even know which ILD they have.So, what we all ultimately share is an ILD, we're not pleased by it, andwe don't know how long we'll live.> >> > > Subject: Fwd: Hello Nice Person> > To: Breathe-Support@ yahoogroups. com> > Date: Wednesday, November 19, 2008, 7:50 PM> >> >> >------------ --------- --------- --------- --------- --------- -> >> >> > *Subject:* Hello Nice Person> >> >> >> >> > Hello There Nice Person> > Did Anyone Ever Tell You,> > Just How Special You Are> >> > The Light that You Emit> > Might even Light a Star> >> > Did Anyone Ever Tell You> > How Important You Make Others Feel> > Somebody out here is Smiling> > About Love that is so Real> >> > Did Anyone Ever Tell You that> > Many Times When They were Sad> > Your E-mail made Them Smile a bit> > In Fact It made Them Glad> >> >> >> > For the Time You Spend Sending Things> > And Sharing whatever You Find> > There are No Words to Thank You> > But Somebody, Thinks You're Fine> >> > Did Anyone Ev er Tell You> >> > Just How Much They Like You> > Well, My Friend> > Today I am Telling You> >> > I believe that without a> > friend you are missing out on a lot!!!> >> > Have a nice day, and I'm glad we are friends!!!> > *> >> >> > The> > Wave ----- keep it going *> >> > *> > Just> > wanted to say Hi,> > AND> > HOPE YOU HAVE A GREAT DAY *> >> >> >> >> >> >> >>>----------- --------- --------- --------- --------- --------- --\-> >> >> >No virus found in this incoming message.> >Checked by AVG - http://www.avg. com> >Version: 8.0.175 / Virus Database: 270.9.7/1799 - Release Date:11/19/2008 8:58 AM> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 Jeane The scooter sounds like a great idea. Enjoy your trip to the mall. I am still able to walk, but carrying the o2 tank tires me out. So I use a baby stroller and wheel the o2 tank in the stoller around the mall. An added advantage is the basket for putting packages in. Less stuff to carry.Pink Joyce IPF 3/06 Pennsylvania Subject: Re: Help with PaperTo: Breathe-Support Date: Saturday, November 22, 2008, 7:18 AM Bob don't feel so all alone. After I was told that it was Interstitial Lung Disease I went home and checked it out online. They kept saying it is terminal. I knep saying not me or the doctor would have said something about that. It took my primary care doctor that I have now to connect me with the fact that this is a chronic and terminal illness and I have to accept it as such.I think that since the really is not much known about it and therefore no hope that can be offered to patients given the diagnosis, it is very hard for many doctors to be strait to point with reality. Doctors are programed to say this is bad but here is what we can offer to try and change the situation. It is hard for them to face the fact that they have to say this is bad and we have nothing to offer. It goes against all their years of education and practice. They are as helpless as we are in being able to "fix" the problem.Since my doctor finally opened the strait talk, I am in a better place mentally and I have faced reality myself and finally given in to making adaptations. My first big change is that I am no longer fighting my limitations figuring that I'll get over it. I purchased a mobility scooter which I pick up this week. The first thing I am doing is taking it to a mall and entering the mall, driving it around the entire place and leaving by the same door. Sounds crazy but I have not made it around the entire mall in years so I see it as the greatest thing especially with it decorated for Christmas. Jean> >> > From: Peggy pac1773@> > Subject: Fwd: Hello Nice Person> > To: Breathe-Support@ <mailto:Breathe- Support%40yahoog roups.com>> yahoogroups. com> > Date: Wednesday, November 19, 2008, 7:50 PM> >> >> >> >> >> >> >> >> >> >> >> >> >> >> > Subject: Hello Nice Person> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> > Hello There Nice Person> > Did Anyone Ever Tell You,> > Just How Special You Are> >> > The Light that You Emit> > Might even Light a Star> >> > Did Anyone Ever Tell You> > How Important You Make Others Feel> > Somebody out here is Smiling> > About Love that is so Real> >> > Did Anyone Ever Tell You that> > Many Times When They were Sad> > Your E-mail made Them Smile a bit> > In Fact It made Them Glad> >> >> >> > For the Time You Spend Sending Things> > And Sharing whatever You Find> > There are No Words to Thank You> > But Somebody, Thinks You're Fine> >> > Did Anyone Ev er Tell You> >> > Just How Much They Like You> > Well, My Friend> > Today I am Telling You> >> > I believe that without a> > friend you are missing out on a lot!!!> >> > Have a nice day, and I'm glad we are friends!!!> >> >> >> > The> > Wave ----- keep it going> >> >> > Just> > wanted to say Hi,> > AND> > HOPE YOU HAVE A GREAT DAY> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 your answers are beautifully saidPink Joyce IPF 3/06 Pennsylvania Subject: Fwd: Hello Nice PersonTo: Breathe-Support Date: Wednesday, November 19, 2008, 7:50 PM Subject: Hello Nice Person Hello There Nice Person Did Anyone Ever Tell You, Just How Special You Are The Light that You Emit Might even Light a Star Did Anyone Ever Tell You How Important You Make Others Feel Somebody out here is Smiling About Love that is so Real Did Anyone Ever Tell You that Many Times When They were Sad Your E-mail made Them Smile a bit In Fact It made Them Glad For the Time You Spend Sending Things And Sharing whatever You Find There are No Words to Thank You But Somebody, Thinks You're Fine Did Anyone Ev er Tell You Just How Much They Like You Well, My Friend Today I am Telling You I believe that without a friend you are missing out on a lot!!! Have a nice day, and I'm glad we are friends!!! The Wave ----- keep it going Just wanted to say Hi, AND HOPE YOU HAVE A GREAT DAY No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.175 / Virus Database: 270.9.7/1799 - Release Date: 11/19/2008 8:58 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 Joyce, I do like the baby stroller idea alot! Beth in North Carolina Moderator Fibrotic NSIP 06/06 UCTD 06/08 "Take chances, make mistakes and get messy!" Miss Frizzle To: Breathe-Support Sent: Saturday, November 22, 2008 8:23:09 AMSubject: Re: Re: Help with Paper Jeane The scooter sounds like a great idea. Enjoy your trip to the mall. I am still able to walk, but carrying the o2 tank tires me out. So I use a baby stroller and wheel the o2 tank in the stoller around the mall. An added advantage is the basket for putting packages in. Less stuff to carry.Pink Joyce IPF 3/06 Pennsylvania From: jeane7160 <jeane7160 (AT) yahoo (DOT) com>Subject: Re: Help with PaperTo: Breathe-Support@ yahoogroups. comDate: Saturday, November 22, 2008, 7:18 AM Bob don't feel so all alone. After I was told that it was Interstitial Lung Disease I went home and checked it out online. They kept saying it is terminal. I knep saying not me or the doctor would have said something about that. It took my primary care doctor that I have now to connect me with the fact that this is a chronic and terminal illness and I have to accept it as such.I think that since the really is not much known about it and therefore no hope that can be offered to patients given the diagnosis, it is very hard for many doctors to be strait to point with reality. Doctors are programed to say this is bad but here is what we can offer to try and change the situation. It is hard for them to face the fact that they have to say this is bad and we have nothing to offer. It goes against all their years of education and practice. They are as helpless as we are in being able to "fix" the problem.Since my doctor finally opened the strait talk, I am in a better place mentally and I have faced reality myself and finally given in to making adaptations. My first big change is that I am no longer fighting my limitations figuring that I'll get over it. I purchased a mobility scooter which I pick up this week. The first thing I am doing is taking it to a mall and entering the mall, driving it around the entire place and leaving by the same door. Sounds crazy but I have not made it around the entire mall in years so I see it as the greatest thing especially with it decorated for Christmas. Jean> >> > From: Peggy pac1773@> > Subject: Fwd: Hello Nice Person> > To: Breathe-Support@ <mailto:Breathe- Support%40yahoog roups.com>> yahoogroups. com> > Date: Wednesday, November 19, 2008, 7:50 PM> >> >> >> >> >> >> >> >> >> >> >> >> >> >> > Subject: Hello Nice Person> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> > Hello There Nice Person> > Did Anyone Ever Tell You,> > Just How Special You Are> >> > The Light that You Emit> > Might even Light a Star> >> > Did Anyone Ever Tell You> > How Important You Make Others Feel> > Somebody out here is Smiling> > About Love that is so Real> >> > Did Anyone Ever Tell You that> > Many Times When They were Sad> > Your E-mail made Them Smile a bit> > In Fact It made Them Glad> >> >> >> > For the Time You Spend Sending Things> > And Sharing whatever You Find> > There are No Words to Thank You> > But Somebody, Thinks You're Fine> >> > Did Anyone Ev er Tell You> >> > Just How Much They Like You> > Well, My Friend> > Today I am Telling You> >> > I believe that without a> > friend you are missing out on a lot!!!> >> > Have a nice day, and I'm glad we are friends!!!> >> >> >> > The> > Wave ----- keep it going> >> >> > Just> > wanted to say Hi,> > AND> > HOPE YOU HAVE A GREAT DAY> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 Good Mornin, How are you this pretty COLD day?? Bill & Sandy are outside setting up a yard sale.It's 39... NUTS Love & Prayers, PeggyFlorida, IPF/UIP 2004"I believe that friends are quiet angels who lift us to our feet, when our wings have trouble remembering how to fly." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 ThanksPink Joyce IPF 3/06 Pennsylvania From: jeane7160 <jeane7160 (AT) yahoo (DOT) com>Subject: Re: Help with PaperTo: Breathe-Support@ yahoogroups. comDate: Saturday, November 22, 2008, 7:18 AM Bob don't feel so all alone. After I was told that it was Interstitial Lung Disease I went home and checked it out online. They kept saying it is terminal. I knep saying not me or the doctor would have said something about that. It took my primary care doctor that I have now to connect me with the fact that this is a chronic and terminal illness and I have to accept it as such.I think that since the really is not much known about it and therefore no hope that can be offered to patients given the diagnosis, it is very hard for many doctors to be strait to point with reality. Doctors are programed to say this is bad but here is what we can offer to try and change the situation. It is hard for them to face the fact that they have to say this is bad and we have nothing to offer. It goes against all their years of education and practice. They are as helpless as we are in being able to "fix" the problem.Since my doctor finally opened the strait talk, I am in a better place mentally and I have faced reality myself and finally given in to making adaptations. My first big change is that I am no longer fighting my limitations figuring that I'll get over it. I purchased a mobility scooter which I pick up this week. The first thing I am doing is taking it to a mall and entering the mall, driving it around the entire place and leaving by the same door. Sounds crazy but I have not made it around the entire mall in years so I see it as the greatest thing especially with it decorated for Christmas. Jean> >> > From: Peggy pac1773@> > Subject: Fwd: Hello Nice Person> > To: Breathe-Support@ <mailto:Breathe- Support%40yahoog roups.com>> yahoogroups. com> > Date: Wednesday, November 19, 2008, 7:50 PM> >> >> >> >> >> >> >> >> >> >> >> >> >> >> > Subject: Hello Nice Person> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> >> > Hello There Nice Person> > Did Anyone Ever Tell You,> > Just How Special You Are> >> > The Light that You Emit> > Might even Light a Star> >> > Did Anyone Ever Tell You> > How Important You Make Others Feel> > Somebody out here is Smiling> > About Love that is so Real> >> > Did Anyone Ever Tell You that> > Many Times When They were Sad> > Your E-mail made Them Smile a bit> > In Fact It made Them Glad> >> >> >> > For the Time You Spend Sending Things> > And Sharing whatever You Find> > There are No Words to Thank You> > But Somebody, Thinks You're Fine> >> > Did Anyone Ev er Tell You> >> > Just How Much They Like You> > Well, My Friend> > Today I am Telling You> >> > I believe that without a> > friend you are missing out on a lot!!!> >> > Have a nice day, and I'm glad we are friends!!!> >> >> >> > The> > Wave ----- keep it going> >> >> > Just> > wanted to say Hi,> > AND> > HOPE YOU HAVE A GREAT DAY> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2008 Report Share Posted November 22, 2008 Wonderful answers ! Thank you- R. (52) Sarcoid/PF 3/2006 Carlsbad, California Subject: Fwd: Hello Nice PersonTo: Breathe-Support Date: Wednesday, November 19, 2008, 7:50 PM Subject: Hello Nice Person Hello There Nice Person Did Anyone Ever Tell You, Just How Special You Are The Light that You Emit Might even Light a Star Did Anyone Ever Tell You How Important You Make Others Feel Somebody out here is Smiling About Love that is so Real Did Anyone Ever Tell You that Many Times When They were Sad Your E-mail made Them Smile a bit In Fact It made Them Glad For the Time You Spend Sending Things And Sharing whatever You Find There are No Words to Thank You But Somebody, Thinks You're Fine Did Anyone Ev er Tell You Just How Much They Like You Well, My Friend Today I am Telling You I believe that without a friend you are missing out on a lot!!! Have a nice day, and I'm glad we are friends!!! The Wave ----- keep it going Just wanted to say Hi, AND HOPE YOU HAVE A GREAT DAY No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.175 / Virus Database: 270.9.7/1799 - Release Date: 11/19/2008 8:58 AM Quote Link to comment Share on other sites More sharing options...
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