Subject: DENISE, I HOPE I HAVE HELPED YOU SOME (MARY LOU HERE)

November 21, 2008

Hi Everyone,

My daughter is doing a sociology paper on PF for one of her

college classes and needs to interview at least 3 people. If any of

you have a few minutes and don't mind being part of a college paper,

could you answer the following questions and get them back to me?

The longer the answers the better, but anything would be great.

Thanks-

Interview Questions

1. How did you first hear that you were terminal? SAME DAY I

TOOK PFT TEST AND CT SCAN

2. What was your first reaction? SCARED- COULDN'T BELIEVE IT

3. Who was the first person you told? HUSBAND, HE WAS THERE

WITH ME IN THE ROOM

4. What was their response? SAME AS MINE, NOT HAPPY ABOUT IT AT

ALL

5. How did you inform the rest of your friends and family? SAME

WAY DR. TOLD US. (SAME)

6. What were their reactions and did they surprise you? THEY

WERE SCARED AND FRIGHTENED TOO LIKE US.

7. Has knowledge of your diagnosis changed the way others treat

you? YES, KINDER, AND MUCH MORE THOUGHTFUL AND CARING

8. What treatments, if any, did you try? JUST PREDNISONE AND

24/7 OXYGEN RIGHT AWAY

9. Did you try any unconventional treatments? NO

10. What changes ( mentally, physically, emotionally) did you make

in your life because of your diagnosis? SOMETIMES I FEEL SO HELPLESS

AND LOST. I HAVE COME TO GRIPES WITH IT NOW AND JUST DO THE BEST I

CAN EVERY DAY TO SURVIVE AND TRY TO BE HAPPY.

11. Has your terminal diagnosis made you look at life differently?

NO, NOT REALLY, BECAUSE THE CANCER I HAD IN 1981 SCARED THE CRAP OUT

OF ME AND I DEALT WITH THAT FOR YEARS AND STILL AM CONSCIOUS OF IT

ALL THE TIME.

12. What advice would you give to others? SEE THE BEST

PULMONOLOGIST YOU CAN FIND AND STICK WITH HIM.

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