Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 in my introductory posts, there were many details provided... as a result this particular question became obscured. The lung specialist has recommended that I take 1.5 grams daily of NAC. I found one source online where a month's supply would cost about $25 (plus S & H). The same supplier also offered a " time-release " capsule that cost $56 (plus S & H) However the monthly rate would work out to be $104. I have no information as to the improved efficiency (if any) of " time-release " NAC and don't automatically assume that it provides a benefit. I would welcome any input from forum readers on NAC -- I read a recent online report suggesting there was a link between NAC and pulmonary hypertension as a side-effect. My doctor simply refers to it as an " experimental therapy " that MAY do some good... johnH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 You can also purchase NAC through health food stores. On this site you can purchase 120 quantity 600 mg capsules for $6.97. Many online have used this supplier. http://www.puritansale.com/amino-acid-supplements-082/n-acetyl-cysteine-nac-600-mg-capsules-000214 As to NAC the most common side effect is gastro related, stomach, digestive, nausea. My initial pulmonologist said ok to try, probably wouldn't hurt anything. Some pulmonologist recommend it widely, very few say do not take it. Most take it however for mucus, not for just the general condition. The first clinical trial involving it for PF is underway now. Personally, if I needed help with mucus, I'd try it. I don't so I don't take it. I have so many other conditions I'm very careful about adding anything. Just because its natural or a supplement or sold over the counter or anything, doesn't mean it doesn't have side effects or risks. NAC has been touted to cure every problem known to mankind by one person or another and every side effect associated too. PH is not one I've heard from medical sources other than the one doctor who told his patient. As to time release versus taking it two to three times per day, probably some better but worth it? I doubt it. I'm finding time release is what many drugs add when their base is about to be generic. Now, for some it makes a difference. For instance, I have to take Ambien CR instead of generic Ambien because I don't stay asleep on Ambien regular. >> > > in my introductory posts, there were many details provided... as a result this> particular question became obscured.> > The lung specialist has recommended that I take 1.5 grams daily of NAC.> > I found one source online where a month's supply would cost about $25 (plus S & H).> The same supplier also offered a "time-release" capsule that cost $56 (plus S & H)> However the monthly rate would work out to be $104. > > I have no information as to the improved efficiency (if any) of "time-release" NAC > and don't automatically assume that it provides a benefit.> > I would welcome any input from forum readers on NAC -- > > I read a recent online report suggesting there was a link between NAC and pulmonary > hypertension as a side-effect.> > My doctor simply refers to it as an "experimental therapy" that MAY do some good...> > johnH> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 My NAC is a prescription that comes in liquid form, I mix it with diet coke to kill the taste. Health insurance covers part of the cost, but off hand I don't remember how much according to the doc, this form is FDA approved, over the counter tablets are not FDA approved -- someone else out there might disagree after 2 1/2 years on NAC, there is no pulmonary hypertension as far as i know, they are not sure what it does, but when I started the doc said that studies showed people who take a combination of prednisone, immuran and NAC do relatively well talk to your doc about it i just read an article in the Coalition for Pulmonary Fibrosis periodical that talked about this combination as a study in the united statesPink Joyce IPF 3/06 Pennsylvania Subject: NAC: appraisalsTo: Breathe-Support Date: Sunday, November 23, 2008, 2:01 PM in my introductory posts, there were many details provided... as a result thisparticular question became obscured.The lung specialist has recommended that I take 1.5 grams daily of NAC.I found one source online where a month's supply would cost about $25 (plus S & H).The same supplier also offered a "time-release" capsule that cost $56 (plus S & H)However the monthly rate would work out to be $104. I have no information as to the improved efficiency (if any) of "time-release" NAC and don't automatically assume that it provides a benefit.I would welcome any input from forum readers on NAC -- I read a recent online report suggesting there was a link between NAC and pulmonary hypertension as a side-effect.My doctor simply refers to it as an "experimental therapy" that MAY do some good...johnH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 ... in reading your post re: NAC... I have 4 bottles of NAC I will gladly send to you at no charge and you won't have to invest any $$ to give it a try. It is the "typical" dosage, 600 Mg to be taken 3x daily. These were purchased at Puritan Pride, where the majority of us here buy NAC. www.puritanpride.com if you want to take a look. NAC is a supplement and when I was first dx I had mucus and cough. Took the NAC and by golly it cleared up rather quickly. I stopped taking it for a quite awhile and then resumed when my IPF progressed. I began to have horrible stomach cramps and did not know the cause...long story short I stopped NAC and problem solved. Not all of us have the same side effect. These are date stamped 12/10 so they are good. If you are interested, give me your address at bofus@... and I'll get them out to you. I'd like someone to get the use of them. Good luck! MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! NAC: appraisals in my introductory posts, there were many details provided... as a result thisparticular question became obscured.The lung specialist has recommended that I take 1.5 grams daily of NAC.I found one source online where a month's supply would cost about $25 (plus S & H).The same supplier also offered a "time-release" capsule that cost $56 (plus S & H)However the monthly rate would work out to be $104. I have no information as to the improved efficiency (if any) of "time-release" NAC and don't automatically assume that it provides a benefit.I would welcome any input from forum readers on NAC -- I read a recent online report suggesting there was a link between NAC and pulmonary hypertension as a side-effect.My doctor simply refers to it as an "experimental therapy" that MAY do some good...johnH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Pink You are correct that over the counter has not been through FDA oversight. Some doctors find that ok and some don't. Many recommend it because of the horrible taste of the liquid. Because the individual was quoting prices I was thinking they were not covered by insurance. Yes, most insurances will pay for or toward the liquid prescription. You can also get it at a compounding pharmacy, but that can be costly. The study in the US is planned but not underway. It is planned to start in December and they intend to get 390 participants. It will run for three years. They are going to compare three groups. Group 1 will take Imuran, Prednisone and NAC. Group 2 will take NAC only. Group 3 will take a Placebo. There are currently 104 clinical trials for NAC in a tremendous range of conditions. Basically doctors are going on anecdotal evidence that some patients say it has helped them. Except for those who have gastro problems from it, it seems of minimum risk to most. > > From: voo99doo99 undergroundm@... > Subject: NAC: appraisals > To: Breathe-Support > Date: Sunday, November 23, 2008, 2:01 PM > > > > > > > > > in my introductory posts, there were many details provided... as a result this > particular question became obscured. > > The lung specialist has recommended that I take 1.5 grams daily of NAC. > > I found one source online where a month's supply would cost about $25 (plus S & H). > The same supplier also offered a " time-release " capsule that cost $56 (plus S & H) > However the monthly rate would work out to be $104. > > I have no information as to the improved efficiency (if any) of " time-release " NAC > and don't automatically assume that it provides a benefit. > > I would welcome any input from forum readers on NAC -- > > I read a recent online report suggesting there was a link between NAC and pulmonary > hypertension as a side-effect. > > My doctor simply refers to it as an " experimental therapy " that MAY do some good... > > johnH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 MamaSher, If doesn’t want them, please let me know, Bob fastprop@comcast,net if he still does great. Bob York,PA DX 9/12/08 PF, ILD From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Sher Bauman Sent: Sunday, November 23, 2008 3:22 PM To: Breathe-Support Subject: Re: NAC: appraisals ... in reading your post re: NAC... I have 4 bottles of NAC I will gladly send to you at no charge and you won't have to invest any $$ to give it a try. It is the " typical " dosage, 600 Mg to be taken 3x daily. These were purchased at Puritan Pride, where the majority of us here buy NAC. www.puritanpride.com if you want to take a look. NAC is a supplement and when I was first dx I had mucus and cough. Took the NAC and by golly it cleared up rather quickly. I stopped taking it for a quite awhile and then resumed when my IPF progressed. I began to have horrible stomach cramps and did not know the cause...long story short I stopped NAC and problem solved. Not all of us have the same side effect. These are date stamped 12/10 so they are good. If you are interested, give me your address at bofus (AT) wbcable (DOT) net and I'll get them out to you. I'd like someone to get the use of them. Good luck! MamaSher, age 70. IPF 3-06, OR. Nasturtiums Don't fret about tomorrow, God is already there! NAC: appraisals in my introductory posts, there were many details provided... as a result this particular question became obscured. The lung specialist has recommended that I take 1.5 grams daily of NAC. I found one source online where a month's supply would cost about $25 (plus S & H). The same supplier also offered a " time-release " capsule that cost $56 (plus S & H) However the monthly rate would work out to be $104. I have no information as to the improved efficiency (if any) of " time-release " NAC and don't automatically assume that it provides a benefit. I would welcome any input from forum readers on NAC -- I read a recent online report suggesting there was a link between NAC and pulmonary hypertension as a side-effect. My doctor simply refers to it as an " experimental therapy " that MAY do some good... johnH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 My doc told me that NAC was trialed on patients with UIP and was proved to be beneficial. However the trial was only for UIP patients, so if you have other forms of PF it hasn't yet had a full trial. As I apparently have both UIP and NSIP my doc is willing to prescribe it for a year to see if it helps. (She uses it extensively for her CF patients) What I get is a soluable tablet, which tastes sort of, almost, but not quite, entirely unlike lemon! So I dissolve it with an orange flavoured effervescant vitC tablet. However I have trouble with the full dose. I'm supposed to have it 3 times a day, but can only manage twice or I have an upset stomach. It is considered generally benign if not beneficial. Tbh, my doc is a bit dismissive of the NAC as far as benifits for ME are concerned. When I said that I have noticed a difference she said that there's a lot to be said for the placebo effect! I said that I don't care if it's placebo or not, if it works, it works. I did notice that when I developed a cold a couple of months ago, ( usually with me the cold would end up on my chest and I'd end up feeling worse with the resulting chest infection) I didn't end up with the chest infection. > >> > From: voo99doo99 undergroundm@> > Subject: NAC: appraisals> > To: Breathe-Support > > Date: Sunday, November 23, 2008, 2:01 PM> >> >> >> >> >> >> >> >> > in my introductory posts, there were many details provided... as a> result this> > particular question became obscured.> >> > The lung specialist has recommended that I take 1.5 grams daily of> NAC.> >> > I found one source online where a month's supply would cost about $25> (plus S & H).> > The same supplier also offered a "time-release" capsule that cost $56> (plus S & H)> > However the monthly rate would work out to be $104.> >> > I have no information as to the improved efficiency (if any) of> "time-release" NAC> > and don't automatically assume that it provides a benefit.> >> > I would welcome any input from forum readers on NAC --> >> > I read a recent online report suggesting there was a link between NAC> and pulmonary> > hypertension as a side-effect.> >> > My doctor simply refers to it as an "experimental therapy" that MAY do> some good...> >> > johnH> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Bob ... absolutely! Let's see if responds...glad you can use them if he decides against. MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! NAC: appraisals in my introductory posts, there were many details provided... as a result thisparticular question became obscured.The lung specialist has recommended that I take 1.5 grams daily of NAC.I found one source online where a month's supply would cost about $25 (plus S & H).The same supplier also offered a "time-release" capsule that cost $56 (plus S & H)However the monthly rate would work out to be $104. I have no information as to the improved efficiency (if any) of "time-release" NAC and don't automatically assume that it provides a benefit.I would welcome any input from forum readers on NAC -- I read a recent online report suggesting there was a link between NAC and pulmonary hypertension as a side-effect.My doctor simply refers to it as an "experimental therapy" that MAY do some good...johnH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 i wonder if that is why i get less colds of course i can't always tell the difference between the pf and a cold Pink Joyce IPF 3/06 Pennsylvania Subject: Re: NAC: appraisalsTo: Breathe-Support Date: Sunday, November 23, 2008, 5:05 PM My doc told me that NAC was trialed on patients with UIP and was proved to be beneficial. However the trial was only for UIP patients, so if you have other forms of PF it hasn't yet had a full trial. As I apparently have both UIP and NSIP my doc is willing to prescribe it for a year to see if it helps. (She uses it extensively for her CF patients) What I get is a soluable tablet, which tastes sort of, almost, but not quite, entirely unlike lemon! So I dissolve it with an orange flavoured effervescant vitC tablet. However I have trouble with the full dose. I'm supposed to have it 3 times a day, but can only manage twice or I have an upset stomach. It is considered generally benign if not beneficial. Tbh, my doc is a bit dismissive of the NAC as far as benifits for ME are concerned. When I said that I have noticed a difference she said that there's a lot to be said for the placebo effect! I said that I don't care if it's placebo or not, if it works, it works. I did notice that when I developed a cold a couple of months ago, ( usually with me the cold would end up on my chest and I'd end up feeling worse with the resulting chest infection) I didn't end up with the chest infection. > >> > From: voo99doo99 undergroundm@> > Subject: NAC: appraisals> > To: Breathe-Support@ yahoogroups. com> > Date: Sunday, November 23, 2008, 2:01 PM> >> >> >> >> >> >> >> >> > in my introductory posts, there were many details provided... as a> result this> > particular question became obscured.> >> > The lung specialist has recommended that I take 1.5 grams daily of> NAC.> >> > I found one source online where a month's supply would cost about $25> (plus S & H).> > The same supplier also offered a "time-release" capsule that cost $56> (plus S & H)> > However the monthly rate would work out to be $104.> >> > I have no information as to the improved efficiency (if any) of> "time-release" NAC> > and don't automatically assume that it provides a benefit.> >> > I would welcome any input from forum readers on NAC --> >> > I read a recent online report suggesting there was a link between NAC> and pulmonary> > hypertension as a side-effect.> >> > My doctor simply refers to it as an "experimental therapy" that MAY do> some good...> >> > johnH> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Sher, If doesn't want your NAC I would like to try one. Jack79/IPF - UIP/dx06/05 Maine To: Breathe-Support Sent: Sunday, November 23, 2008 3:21:37 PMSubject: Re: NAC: appraisals ... in reading your post re: NAC... I have 4 bottles of NAC I will gladly send to you at no charge and you won't have to invest any $$ to give it a try. It is the "typical" dosage, 600 Mg to be taken 3x daily. These were purchased at Puritan Pride, where the majority of us here buy NAC. www.puritanpride. com if you want to take a look. NAC is a supplement and when I was first dx I had mucus and cough. Took the NAC and by golly it cleared up rather quickly. I stopped taking it for a quite awhile and then resumed when my IPF progressed. I began to have horrible stomach cramps and did not know the cause...long story short I stopped NAC and problem solved. Not all of us have the same side effect. These are date stamped 12/10 so they are good. If you are interested, give me your address at bofus (AT) wbcable (DOT) net and I'll get them out to you. I'd like someone to get the use of them. Good luck! MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! NAC: appraisals in my introductory posts, there were many details provided... as a result thisparticular question became obscured.The lung specialist has recommended that I take 1.5 grams daily of NAC.I found one source online where a month's supply would cost about $25 (plus S & H).The same supplier also offered a "time-release" capsule that cost $56 (plus S & H)However the monthly rate would work out to be $104. I have no information as to the improved efficiency (if any) of "time-release" NAC and don't automatically assume that it provides a benefit.I would welcome any input from forum readers on NAC -- I read a recent online report suggesting there was a link between NAC and pulmonary hypertension as a side-effect.My doctor simply refers to it as an "experimental therapy" that MAY do some good...johnH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Zena It was on a trial in Europe actually in 2003 or so. We're about 6 years behind on this side of the pond. The trial here is only IPF so not all UIP patients. If there is an underlying autoimmune suspected for instance not eligible. Also must have FVC over 50%. > > > > > > From: voo99doo99 undergroundm@ > > > Subject: NAC: appraisals > > > To: Breathe-Support > > > Date: Sunday, November 23, 2008, 2:01 PM > > > > > > > > > > > > > > > > > > > > > > > > > > > in my introductory posts, there were many details provided... as a > > result this > > > particular question became obscured. > > > > > > The lung specialist has recommended that I take 1.5 grams daily of > > NAC. > > > > > > I found one source online where a month's supply would cost about > $25 > > (plus S & H). > > > The same supplier also offered a " time-release " capsule that cost > $56 > > (plus S & H) > > > However the monthly rate would work out to be $104. > > > > > > I have no information as to the improved efficiency (if any) of > > " time-release " NAC > > > and don't automatically assume that it provides a benefit. > > > > > > I would welcome any input from forum readers on NAC -- > > > > > > I read a recent online report suggesting there was a link between > NAC > > and pulmonary > > > hypertension as a side-effect. > > > > > > My doctor simply refers to it as an " experimental therapy " that MAY > do > > some good... > > > > > > johnH > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Bob from York, I have two unopened bottles of NAC from Puritan Pride. They are yours! Send me your address on my email..ljz741@.... I'll mail them out . Consider them a gift to the newbie from PA! Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Bob wrote: MamaSher, If doesn’t want them, please let me know, Bob fastprop@comcast,net if he still does great. Bob York,PA DX 9/12/08 PF, ILD From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Sher Bauman Sent: Sunday, November 23, 2008 3:22 PM To: Breathe-Support Subject: Re: NAC: appraisals ... in reading your post re: NAC... I have 4 bottles of NAC I will gladly send to you at no charge and you won't have to invest any $$ to give it a try. It is the "typical" dosage, 600 Mg to be taken 3x daily. These were purchased at Puritan Pride, where the majority of us here buy NAC. www.puritanpride.com if you want to take a look. NAC is a supplement and when I was first dx I had mucus and cough. Took the NAC and by golly it cleared up rather quickly. I stopped taking it for a quite awhile and then resumed when my IPF progressed. I began to have horrible stomach cramps and did not know the cause...long story short I stopped NAC and problem solved. Not all of us have the same side effect. These are date stamped 12/10 so they are good. If you are interested, give me your address at bofus (AT) wbcable (DOT) net and I'll get them out to you. I'd like someone to get the use of them. Good luck! MamaSher, age 70. IPF 3-06, OR. Nasturtiums Don't fret about tomorrow, God is already there! NAC: appraisals in my introductory posts, there were many details provided... as a result this particular question became obscured. The lung specialist has recommended that I take 1.5 grams daily of NAC. I found one source online where a month's supply would cost about $25 (plus S & H). The same supplier also offered a "time-release" capsule that cost $56 (plus S & H) However the monthly rate would work out to be $104. I have no information as to the improved efficiency (if any) of "time-release" NAC and don't automatically assume that it provides a benefit. I would welcome any input from forum readers on NAC -- I read a recent online report suggesting there was a link between NAC and pulmonary hypertension as a side-effect. My doctor simply refers to it as an "experimental therapy" that MAY do some good... johnH No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.175 / Virus Database: 270.9.9/1807 - Release Date: 11/23/2008 10:59 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 Jack ... lol. first I couldn't find a taker now I have more than NAC will stretch. is going to take them. MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! NAC: appraisals in my introductory posts, there were many details provided... as a result thisparticular question became obscured.The lung specialist has recommended that I take 1.5 grams daily of NAC.I found one source online where a month's supply would cost about $25 (plus S & H).The same supplier also offered a "time-release" capsule that cost $56 (plus S & H)However the monthly rate would work out to be $104. I have no information as to the improved efficiency (if any) of "time-release" NAC and don't automatically assume that it provides a benefit.I would welcome any input from forum readers on NAC -- I read a recent online report suggesting there was a link between NAC and pulmonary hypertension as a side-effect.My doctor simply refers to it as an "experimental therapy" that MAY do some good...johnH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 ... I'm so glad we can share occasionally with others.... MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! NAC: appraisals in my introductory posts, there were many details provided... as a result thisparticular question became obscured.The lung specialist has recommended that I take 1.5 grams daily of NAC.I found one source online where a month's supply would cost about $25 (plus S & H).The same supplier also offered a "time-release" capsule that cost $56 (plus S & H)However the monthly rate would work out to be $104. I have no information as to the improved efficiency (if any) of "time-release" NAC and don't automatically assume that it provides a benefit.I would welcome any input from forum readers on NAC -- I read a recent online report suggesting there was a link between NAC and pulmonary hypertension as a side-effect.My doctor simply refers to it as an "experimental therapy" that MAY do some good...johnH No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.175 / Virus Database: 270.9.9/1807 - Release Date: 11/23/2008 10:59 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2008 Report Share Posted November 23, 2008 I can only tell you i was diagnosed with IPF july 06, at that time i was placed on NAC liquid 600 mg three times a day, (told it did not come in Pill form) , imuran 125 mg and prednisone 20 mg. NAC was to keep my secretions thin.. Later developed pulmonary hypertension, last year and successfully treated with Revatio 20 mg three times a day.. Very very mild at this time. They have been questioning scleroderma as my etiology for IPF since my raynauds is so severe and have symptoms of what is called CREST. After conversation with Joyce i know i need to talk with my pulmo and see if it matters if liquid or pill. patti > > Sher, If doesn't want your NAC I would like to try one. > Jack > 79/IPF - UIP/dx06/05 Maine > > > > > ________________________________ > > To: Breathe-Support > Sent: Sunday, November 23, 2008 3:21:37 PM > Subject: Re: NAC: appraisals > > > ... in reading your post re: NAC... > I have 4 bottles of NAC I will gladly send to you at no charge and you won't have to invest any $$ to give it a try. It is the " typical " dosage, 600 Mg to be taken 3x daily. > These were purchased at Puritan Pride, where the majority of us here buy NAC. > www.puritanpride. com if you want to take a look. > NAC is a supplement and when I was first dx I had mucus and cough. Took the NAC and by golly it cleared up rather quickly. I stopped taking it for a quite awhile and then resumed when my IPF progressed. I began to have horrible stomach cramps and did not know the cause...long story short I stopped NAC and problem solved. Not all of us have the same side effect. > These are date stamped 12/10 so they are good. > If you are interested, give me your address at bofus (AT) wbcable (DOT) net and I'll get them out to you. I'd like someone to get the use of them. > Good luck! > > MamaSher, age 70. IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > > NAC: appraisals > > > > in my introductory posts, there were many details provided... as a result this > particular question became obscured. > > The lung specialist has recommended that I take 1.5 grams daily of NAC. > > I found one source online where a month's supply would cost about $25 (plus S & H). > The same supplier also offered a " time-release " capsule that cost $56 (plus S & H) > However the monthly rate would work out to be $104. > > I have no information as to the improved efficiency (if any) of " time-release " NAC > and don't automatically assume that it provides a benefit. > > I would welcome any input from forum readers on NAC -- > > I read a recent online report suggesting there was a link between NAC and pulmonary > hypertension as a side-effect. > > My doctor simply refers to it as an " experimental therapy " that MAY do some good... > > johnH > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Hey, group... I'm newly diagnosed with IPF, so obviously new to the group and I am soaking up as much information and willing to try about anything I can at this point to try to make sure it progresses as slowly as possible. So I just ordered some 600 mg tablets of NAC from Pilgrim's Pride. It looks like they're saying one tablet per day, yet I thought I saw on the list earlier someone said one tablet, three times a day. Can someone help me out on the dosage? I'm leaving Tuesday to visit my daughter for Thanksgiving and if I don't see the messages prior to then, will when I get back. Thanks so much. Bill C. Slatington, PAOne site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 If you take the NAC with vitC, that might explain why you get less colds. I found I didn't suffer with colds quite so much once I went on full time O2. I don't know if it has given my body a bit more of a boost when it comes to fighting it off, or if I'm getting cleaner air or something Love Ze xx > > >> > > From: voo99doo99 undergroundm@> > > Subject: NAC: appraisals> > > To: Breathe-Support@ yahoogroups. com> > > Date: Sunday, November 23, 2008, 2:01 PM> > >> > >> > >> > >> > >> > >> > >> > >> > > in my introductory posts, there were many details provided... as a> > result this> > > particular question became obscured.> > >> > > The lung specialist has recommended that I take 1.5 grams daily of> > NAC.> > >> > > I found one source online where a month's supply would cost about $25> > (plus S & H).> > > The same supplier also offered a "time-release" capsule that cost $56> > (plus S & H)> > > However the monthly rate would work out to be $104.> > >> > > I have no information as to the improved efficiency (if any) of> > "time-release" NAC> > > and don't automatically assume that it provides a benefit.> > >> > > I would welcome any input from forum readers on NAC --> > >> > > I read a recent online report suggesting there was a link between NAC> > and pulmonary> > > hypertension as a side-effect.> > >> > > My doctor simply refers to it as an "experimental therapy" that MAY do> > some good...> > >> > > johnH> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 You need to talk to your doctor. But, the normal dosage of PF'ers is 3 per day. Now, many can't tolerate that much because of stomach problems. > > Hey, group... I'm newly diagnosed with IPF, so obviously new to the group > and I am soaking up as much information and willing to try about anything I can > at this point to try to make sure it progresses as slowly as possible. So > I just ordered some 600 mg tablets of NAC from Pilgrim's Pride. It looks > like they're saying one tablet per day, yet I thought I saw on the list earlier > someone said one tablet, three times a day. Can someone help me out on the > dosage? I'm leaving Tuesday to visit my daughter for Thanksgiving and if I > don't see the messages prior to then, will when I get back. Thanks so much. > Bill C. Slatington, PA > **************One site has it all. Your email accounts, your social networks, > and the things you love. Try the new AOL.com > today!(http://pr.atwola.com/promoclk/100000075x1212962939x1200825291/aol\ ?redir=http://www.aol.com/?optin=new-dp > %26icid=aolcom40vanity%26ncid=emlcntaolcom00000001) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Hi Bill, welcome to the group, Yes the normal dose is 600mg 3 times a day and it helps to take it with vitC, so either in a glass of orange juice or like I do, with some effervescent vitC. Take it with food, not on an empty stomach. I'm one of those who can't tolerate it too well, I only take 2 a day otherwise I'm in the loo for ever!> >> > Hey, group... I'm newly diagnosed with IPF, so obviously new to the> group> > and I am soaking up as much information and willing to try about> anything I can> > at this point to try to make sure it progresses as slowly as possible.> So> > I just ordered some 600 mg tablets of NAC from Pilgrim's Pride. It> looks> > like they're saying one tablet per day, yet I thought I saw on the> list earlier> > someone said one tablet, three times a day. Can someone help me out on> the> > dosage? I'm leaving Tuesday to visit my daughter for Thanksgiving and> if I> > don't see the messages prior to then, will when I get back. Thanks so> much.> > Bill C. Slatington, PA> > **************One site has it all. Your email accounts, your social> networks,> > and the things you love. Try the new AOL.com> >> today!(http://pr.atwola.com/promoclk/100000075x1212962939x1200825291/aol\> ?redir=http://www.aol.com/?optin=new-dp> > %26icid=aolcom40vanity%26ncid=emlcntaolcom00000001)> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2008 Report Share Posted November 24, 2008 Bill C., Welcome to the "air family" fellow Pennsylvanian...where is Slatington? I live in a suburb of Philadelphia...we have several members in this area. Three of us and one wonderful husband met this week-end...our picture is on the new photo page that has a link at the bottom of the post. Welcome again...you're in the right place! Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower Paradis3@... wrote: Hey, group... I'm newly diagnosed with IPF, so obviously new to the group and I am soaking up as much information and willing to try about anything I can at this point to try to make sure it progresses as slowly as possible. So I just ordered some 600 mg tablets of NAC from Pilgrim's Pride. It looks like they're saying one tablet per day, yet I thought I saw on the list earlier someone said one tablet, three times a day. Can someone help me out on the dosage? I'm leaving Tuesday to visit my daughter for Thanksgiving and if I don't see the messages prior to then, will when I get back. Thanks so much. Bill C. Slatington, PA One site has it all. Your email accounts, your social networks, and the things you love. Try the new AOL.com today! No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.175 / Virus Database: 270.9.9/1809 - Release Date: 11/24/2008 9:03 AM Quote Link to comment Share on other sites More sharing options...
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