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Bruce

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Excuse me. Please except my sincere apologies. I " thought " we all were becoming

friends since we all share the same thing. I'll politely leave the list. I

certainly don't need friends like you at a time like this in my life.

Sherry and The Snow Angels

Biscuit, Peppy, Piper, Abby and Sugar

http://www.picturetrail.com/gabluebird

Re: Re: Lady Storny

Hi,

I only got that reaction from a couple of " online " friends. I suppose

people like that aren't my " real " friends after all. I've not worked in years,

so I really don't have any friends except online. I live on 10 acres and our

neighbors are far apart. I only met one of them in court a few times, when their

big dogs came over and killed on of my little dogs right in the front yard

several years ago. I met the other neighbors son the week of Thanksgiving, when

his large dog came over and attacked my husband. Can you imagine seeing your

husband laying on the ground kicking while this big dog is trying to eat him

alive?! So, I do not know my neighbors and I don't want to know them either.

It's just me and my husband.

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  • 2 years later...

No my pulmonist never told me what kind of interstitial disease i had.

I am so confused but from reading posts here and just for my own

satisfaction I have started a list of questions to ask dr when i see

him next friday.

Mayo clinic in Rochester is closer for me than chicago is.

Cathy

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Cathy

Then Mayo would be great. Also get copies of all your records including

CT's and Biopsy results. I can see why you would be confused because

your history just doesn't all fit right. From reading your posts at the

best you have not been communicated to effectively and at the worst the

diagnosis and treatment leaves something to be desired. ly, in

providing you advice it is to start by finding a clear diagnosis.

Otherwise, reading what we're saying may not be right for you. For

instance, do you have COPD in addition to PF or instead of it? Well, its

a much different disease if so. Now, you can get a handle on this and

then live decently with it.

>

> No my pulmonist never told me what kind of interstitial disease i had.

> I am so confused but from reading posts here and just for my own

> satisfaction I have started a list of questions to ask dr when i see

> him next friday.

>

> Mayo clinic in Rochester is closer for me than chicago is.

>

> Cathy

>

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Cathy ... a list for Dr is a great idea and one most of us do! And don't let him get away without answering all your concerns.

Become your own best advocate.

MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Bruce

No my pulmonist never told me what kind of interstitial disease i had. I am so confused but from reading posts here and just for my own satisfaction I have started a list of questions to ask dr when i see him next friday.Mayo clinic in Rochester is closer for me than chicago is.Cathy

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cathy

glad you have a list of questions for the docPink Joyce IPF 3/06 Pennsylvania

Subject: BruceTo: Breathe-Support Date: Friday, November 28, 2008, 3:33 PM

No my pulmonist never told me what kind of interstitial disease i had. I am so confused but from reading posts here and just for my own satisfaction I have started a list of questions to ask dr when i see him next friday.Mayo clinic in Rochester is closer for me than chicago is.Cathy

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