Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 Support Groups There isn't one in my area and I didn't know enough patients in the area to even attempt such, nor did I feel I could do it. But, isn't that such a glaring shortness in PF compared to other diseases. I go to my neurologist and see literature for many support groups and my rheumatologist and see more. Such a very small percentage of PF'ers are being reached by any form of support group, including online. > > > > > > > > > > From: Sher Bauman bofus@ > > > > > Subject: Re: a thought > > > > > To: Breathe-Support > > > <mailto:Breathe-Support%40yahoogroups.com> > > > > > Date: Saturday, November 29, 2008, 1:49 PM > > > > > > > > > > Yes, Kathy, it will succeed. You are already getting response. > > > > > I'm with you emotionally. I'm tired too of ONLY a " pink " color > to > > > > > be recognized. > > > > > I'm behind you in support however. > > > > > MamaSher, age 70. IPF 3-06, OR. > > > > > Nasturtiums > > > > > Don't fret about tomorrow, God is already there! > > > > > > > > > > * a thought > > > > > > > > > > No it won't be me running and I don't know a thing about > > > > > organizing a run so I figured it would take a year or 6 mos. > > > > > to plan.But my daughter is training for her 3rd Houston > > > > > Marathon in January,so she is where I got the fun run idea > > > > > from. I guess I sit in this apartment all dayand yesterday I > > > > > wanted to scream to the world about us.Not to take away from > > > > > anyone else's pain, but I am real tired of seeing pink > > > > > everywhere I go. I would really like more feed back guys and > > > > > after the holidays we could possibly get the ball rolling.I > > > > > guess I visualized, maybe someone has a connection some where > > > > > for this, and some one else has a connection for that some > > > > > where else, it may materialize. If it is to be, it will > > > > > succeed!!!!! !!!!!!!!! !. > > > > > KathyS.TX. dx/10/04 > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------------------------------- > > > > > > > > > > > > > > > No virus found in this incoming message. > > > > > Checked by AVG - http://www.avg.com <http://www.avg.com> > > > > > Version: 8.0.176 / Virus Database: 270.9.11/1819 - Release Date: > > > 11/29/2008 10:37 AM > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------------------------------------------ > > > > > > > > > No virus found in this incoming message. > > > Checked by AVG - http://www.avg.com > > > Version: 8.0.176 / Virus Database: 270.9.11/1819 - Release Date: > 11/29/2008 10:37 AM > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2008 Report Share Posted November 29, 2008 That's why you've got folk from over the Pond & Downunder as well as India on Board! Oh as well as your immediate neighbours in the North! Canadians I think they're known as!!! lol! GIO> > > > > >> > > > > > From: Sher Bauman bofus@> > > > > > Subject: Re: a thought> > > > > > To: Breathe-Support > > > > <mailto:Breathe-Support%40yahoogroups.com>> > > > > > Date: Saturday, November 29, 2008, 1:49 PM> > > > > >> > > > > > Yes, Kathy, it will succeed. You are already getting response.> > > > > > I'm with you emotionally. I'm tired too of ONLY a "pink" color> > to> > > > > > be recognized.> > > > > > I'm behind you in support however.> > > > > > MamaSher, age 70. IPF 3-06, OR.> > > > > > Nasturtiums> > > > > > Don't fret about tomorrow, God is already there!> > > > > >> > > > > > * a thought> > > > > >> > > > > > No it won't be me running and I don't know a thing about> > > > > > organizing a run so I figured it would take a year or 6 mos.> > > > > > to plan.But my daughter is training for her 3rd Houston> > > > > > Marathon in January,so she is where I got the fun run idea> > > > > > from. I guess I sit in this apartment all dayand yesterday I> > > > > > wanted to scream to the world about us.Not to take away from> > > > > > anyone else's pain, but I am real tired of seeing pink> > > > > > everywhere I go. I would really like more feed back guys and> > > > > > after the holidays we could possibly get the ball rolling.I> > > > > > guess I visualized, maybe someone has a connection some where> > > > > > for this, and some one else has a connection for that some> > > > > > where else, it may materialize. If it is to be, it will> > > > > > succeed!!!!! !!!!!!!!! !.> > > > > > KathyS.TX. dx/10/04> > > > > >> > > > > >> > > > > >> > > > > >> > > > ----------------------------------------------------------> > > > > >> > > > > >> > > > > > No virus found in this incoming message.> > > > > > Checked by AVG - http://www.avg.com <http://www.avg.com>> > > > > > Version: 8.0.176 / Virus Database: 270.9.11/1819 - Release> Date:> > > > 11/29/2008 10:37 AM> > > > > >> > > > > >> > > > >> > > >> > > >> > > >> >> ------------------------------------------------------------------------> > > >> > > >> > > > No virus found in this incoming message.> > > > Checked by AVG - http://www.avg.com> > > > Version: 8.0.176 / Virus Database: 270.9.11/1819 - Release Date:> > 11/29/2008 10:37 AM> > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
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