Re: Plagio Helmet kids in Public?**carol (crrn05)**

[Guest guest]

In a message dated 7/26/06 12:16:21 PM, spurpledaisy@... writes:

that she has a 4 yr. old brother

and we wanted her to make it to her first birthday! Haha - what

would they say then?

NO JOKE! Some people have actually asked me if we have it to protect her from her 2 older brothers!!!

Jen

Mommy to 4...and 1 more!!!!

"Luli"

www.babiesonline.com/babies/j/jens5th/

[Guest guest]

I've joked with my husband about carrying aroudn a flier that explains everything and handing it out to everyone that looks at us funny! Imagine the looks you get with twins in helmets!

From: "Jen" <ronandjenvelez@...>Reply-Plagiocephaly To: Plagiocephaly Subject: Re: Plagio Helmet kids in Public?**carol (crrn05)**Date: Wed, 26 Jul 2006 16:45:45 -0000

Good for you! I would have done the same. People NEED to be educated about it. When was banded, we also had a few people think that it was because she banged her head and/or that it was to protect her in case she fell.... jeez, that would certainly be an overprotective parent! LOL!Jen (23.5 mo), tort resolved, Hanger Band Grad (4.5 years)>> Hi> I was > > wondering if anyone on this site lives in New york in the 5 boros >> area. I live in Queens > > about 5 mins from the Nassau border. > The reason I am asking and I> think alot of other > > moms wonder about too > is if there are so many kids out there that> are getting plagio > > and > being fitted for helmets then how come I have never seen a> child with > a cranial > > helmet/band in public or are parents taking the helmets off > of> their children when they > > go out????> > Any comments would be greatly appreciated.> > Thanks> again!> > > > > > > > > > > __________________________________________________________> > > Express yourself: design your homepage the way you want it with> Live.com. > > > http://www.live.com/getstarted> > >> >>

[Guest guest]

My guess is that some people think it is a helmet for a child who has epilepsy. Not sure if some kids still wear them, but that used to be common practice for kids who were prone to frequent seizures to have to wear a helmet all the time.

Carol

-------------- Original message -------------- From: " Worster" <valerie_worster@...>

I've joked with my husband about carrying aroudn a flier that explains everything and handing it out to everyone that looks at us funny! Imagine the looks you get with twins in helmets!

From: "Jen" <ronandjenvelez@...>Reply-Plagiocephaly To: Plagiocephaly Subject: Re: Plagio Helmet kids in Public?**carol (crrn05)**Date: Wed, 26 Jul 2006 16:45:45 -0000

Good for you! I would have done the same. People NEED to be educated about it. When was banded, we also had a few people think that it was because she banged her head and/or that it was to protect her in case she fell.... jeez, that would certainly be an overprotective parent! LOL!Jen (23.5 mo), tort resolved, Hanger Band Grad (4.5 years)>> Hi> I was > > wondering if anyone on this site lives in New york in the 5 boros >> area. I live in Queens > > about 5 mins from the Nassau border. > The reason I am asking and I> think alot of other > > moms wonder about too > is if there are so many kids out there that> are getting plagio > > and > being fitted for helmets then how come I have never seen a> child with > a cranial > > helmet/band in public or are parents taking the helmets off > of> their children when they > > go out????> > Any comments would be greatly appreciated.> > Thanks> again!> > > > > > > > > > > __________________________________________________________> > > Express yourself: design your homepage the way you want it with> Live.com. > > > http://www.live.com/getstarted> > >> >>

[Guest guest]

Actually, someone here did have a small flier printed explaining

plagio and they kept copies of in their diaper bag to hand out when

they went out in public.

We didn't go out a lot with the band, but we never took it off

either. Mostly people would come up and say that they knew someone

whose baby had a band too. The fact that we decorated it made it

look less medical, and it had her name on it so people would call

her by name. I mostly ignored the stares, and honestly didn't mind

explaining when people asked.

Actually I belong to another online group of moms and my daughter's

pic with the helmet was in my signature, and I got a LOT of moms who

emailed me with questions about plagio - I didn't mind being able to

help direct them (mostly to tell them about the boards and how

wonderful the DOC Band has been) because I remember how upset I was

when we first got the diagnosis, so it was nice to be able to help

educate others.

Good luck!

Cris in Houston

Mom to - 8 months

DOC BAND Graduate - 7/25/06

>> Hi> I was

> > > > wondering if anyone on this site lives in New york in the 5

> > boros >

> > > area. I live in Queens

> > > > about 5 mins from the Nassau border. > The reason I am

asking

> > and I

> > > think alot of other

> > > > moms wonder about too > is if there are so many kids out

there

> > that

> > > are getting plagio

> > > > and > being fitted for helmets then how come I have never

seen

> a

> > > child with > a cranial

> > > > helmet/band in public or are parents taking the helmets off

>

> of

> > > their children when they

> > > > go out????> > Any comments would be greatly appreciated.> >

> > Thanks

> > > again!> >

> > > > >

> > > > >

> > > > >

> > __________________________________________________________

> > > > > Express yourself: design your homepage the way you want it

> with

> > > Live.com.

> > > > > http://www.live.com/getstarted

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I had a lady today in Sams ask me where she could get one. I"m not sure what she thought it was. I told her it was by perscription only. Wouldn't you love to be in her head!

Val

From: "" <abartilet2002@...>Reply-Plagiocephaly To: Plagiocephaly Subject: Re: Plagio Helmet kids in Public?**carol (crrn05)**Date: Wed, 26 Jul 2006 20:36:29 -0000

I met somebody who said...oh that's a good idea your baby has a crash helmet for when he's running around and falling. My baby at the time was 5 months! She obviously has not been around many babies and I guess doesn't realize they don't "run around" at 5 months. >> Hi> I was > > > wondering if anyone on this site lives in New york in the 5 > boros >> > area. I live in Queens > > > about 5 mins from the Nassau border. > The reason I am asking > and I> > think alot of other > > > moms wonder about too > is if there are so many kids out there > that> > are getting plagio > > > and > being fitted for helmets then how come I have never seen a> > child with > a cranial > > > helmet/band in public or are parents taking the helmets off > of> > their children when they > > > go out????> > Any comments would be greatly appreciated.> > > Thanks> > again!> > > > > > > > > > > > > > > __________________________________________________________> > > > Express yourself: design your homepage the way you want it with> > Live.com. > > > > http://www.live.com/getstarted> > > >> > >> >>

[Guest guest]

I believe that in the Files section there are some sample flyers if you do want to make one. Our ortho gave us some business cards that Orthomerica makes that explains what the STARband is and what it is doing for our son. It even includes a before and after picture of a child.

Molly

California

Nicolas, 9 months, tort & plagio, STARband 4/25/06

, 3

, 6.5

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of WorsterSent: 26 July 2006 10:05 AMPlagiocephaly Subject: RE: Re: Plagio Helmet kids in Public?**carol (crrn05)**

I've joked with my husband about carrying aroudn a flier that explains everything and handing it out to everyone that looks at us funny! Imagine the looks you get with twins in helmets!

From: "Jen" <ronandjenvelez@...>Reply-Plagiocephaly To: Plagiocephaly Subject: Re: Plagio Helmet kids in Public?**carol (crrn05)**Date: Wed, 26 Jul 2006 16:45:45 -0000

Good for you! I would have done the same. People NEED to be educated about it. When was banded, we also had a few people think that it was because she banged her head and/or that it was to protect her in case she fell.... jeez, that would certainly be an overprotective parent! LOL!Jen (23.5 mo), tort resolved, Hanger Band Grad (4.5 years)>> Hi> I was > > wondering if anyone on this site lives in New york in the 5 boros >> area. I live in Queens > > about 5 mins from the Nassau border. > The reason I am asking and I> think alot of other > > moms wonder about too > is if there are so many kids out there that> are getting plagio > > and > being fitted for helmets then how come I have never seen a> child with > a cranial > > helmet/band in public or are parents taking the helmets off > of> their children when they > > go out????> > Any comments would be greatly appreciated.> > Thanks> again!> > > > > > > > > > > __________________________________________________________> > > Express yourself: design your homepage the way you want it with> Live.com. > > > http://www.live.com/getstarted> > >> >>

[Guest guest]

I too have not seen any other babies in bands, but have had a handful

of moms come up to me to tell me that their baby had worn one before.

I love hearing that, it's very nice!

We go out every single day, and we go out to eat twice a week, I am

not hiding my baby from anyone! We get looks, comments (they think

he's a wrestler? Umm ok!lol) And I don't care. I will be honest, I

thought I would hate it, and it made me feel sick before he got it.

But, now, at 2.5 months into it, I don't even think about it anymore

when we are out. It's become his little accessory for the time being

and we have it painted blue and decorated with Chicago Cubs stuff. AND

the best part is that his head is rounding out beautifully!

>> Hi> I was

> > > > > wondering if anyone on this site lives in New york in the 5

> > > boros >

> > > > area. I live in Queens

> > > > > about 5 mins from the Nassau border. > The reason I am

> asking

> > > and I

> > > > think alot of other

> > > > > moms wonder about too > is if there are so many kids out

> there

> > > that

> > > > are getting plagio

> > > > > and > being fitted for helmets then how come I have never

> seen

> > a

> > > > child with > a cranial

> > > > > helmet/band in public or are parents taking the helmets off

> >

> > of

> > > > their children when they

> > > > > go out????> > Any comments would be greatly appreciated.> >

> > > Thanks

> > > > again!> >

> > > > > >

> > > > > >

> > > > > >

> > > __________________________________________________________

> > > > > > Express yourself: design your homepage the way you want it

> > with

> > > > Live.com.

> > > > > > http://www.live.com/getstarted

> > > > > >

> > > > >

> > > >

> > >

> >

>