Re: Plastic surgeon eval in St. Louis

[Guest guest]

Hello Eryn

Welcome to the group. I think that a lot of facial and ear

asymmetry gets corrected with the band, but it is the hardest to

correct and the last to correct. My daughter had facial asymmetry

and it got much much better. Her ears however are still way off. One

is higher than the other so if she ever needs glasses we will have

to custom order them. I'm not really sure what to tell you about

the jaw. That is something that you might have to wait out. I know

that is not the answer you want, but maybe someone that has been

there can give you a better answer.

Me, personally I have not heard from the companies you have

described. When you talk to them on the phone ask them how many

bands they have done so far. Experience is the key. Also you can go

to cranial tech online and see where the next location is nearest

you. They do bands only so they have much more experience than

others. Let us know who you will go to.

Sandy Willow's Mom

Torticollis resolved 02/04

Cranio Germany Grad 02/04

>

> Well we visited Dr. Carstens at Cardinal Glennon today. I thought

for

> sure he would tell us the PT and the repo was working, to keep

doing

> it and not worry about a helmet. I thought Gia's head looked so

much

> better and then then man told me she had severe plagiocephaly,

bossing

> in the right forehead and the right occipital area and jaw

involvment

> that " may " require surgery. I left and called Presision

Prothsetics

> and found that they were not and Exclusive Choice (my insurance)

> provider. So I called around and found Orthotics and Prothsetics

Lab

> INC. They provide the StarBand and also one of their own

helmets.

> They also are a provider for my insurance. Has anyone heard of

this

> company or had any experiance with them? Also anyone know

anything

> about the jaw involvement and what surgery there would be? The

Doc

> said her jaw bone was shorter on the right than the left. For all

the

> band grads is there any improvement with the ear asymmetry in

using

> the helmet?

>

> Thanks in advance,

> Eryn

> Donovan,8 and Giavanna 6.5 months tort and plagio

>

[Guest guest]

I haven't had any experience with O & P, but I do know that they

started offering the Starband about 2 years ago, right about the time

Connor got his helmet from PPO. Their helmet is a passive helmet,

while the Starband is active. I think there has been one person on

here that has used O & P, but I don't know if she still checks the

board.

As for the jaw, Dr. Carstens told us the same thing. Is he having a CT

scan done? If not, he may be waiting until she's a little older.

Connor had his at 1 year. In our case, Connor's jaw turned out to be

mild enough not to require surgery. I hope it turns out that way for

you too!

I believe the jaw surgery involves cutting the lower jaw bone and

separating it slightly so the the bone fills in and lengthens the jaw

bone.

Connor (PPO helmet grad 8/04, tort resolved, mild craniofacial microsomia)

>

> Well we visited Dr. Carstens at Cardinal Glennon today. I thought for

> sure he would tell us the PT and the repo was working, to keep doing

> it and not worry about a helmet. I thought Gia's head looked so much

> better and then then man told me she had severe plagiocephaly, bossing

> in the right forehead and the right occipital area and jaw involvment

> that " may " require surgery. I left and called Presision Prothsetics

> and found that they were not and Exclusive Choice (my insurance)

> provider. So I called around and found Orthotics and Prothsetics Lab

> INC. They provide the StarBand and also one of their own helmets.

> They also are a provider for my insurance. Has anyone heard of this

> company or had any experiance with them? Also anyone know anything

> about the jaw involvement and what surgery there would be? The Doc

> said her jaw bone was shorter on the right than the left. For all the

> band grads is there any improvement with the ear asymmetry in using

> the helmet?

>

> Thanks in advance,

> Eryn

> Donovan,8 and Giavanna 6.5 months tort and plagio

>

[Guest guest]

Eryn - My son wears the StarBand from Orthotics and Prostethics Lab,

INc in Children's Hsptl. He has been in it almost 2 months and after

the first month we saw tremendous correction, now it seems to have

slowed since that visit. We go in againin a week. Anyway, I have had

a good exp with them thus far. They have always returned phone calls

i a timely manner, etc.

What else can I tell you?

Cara

Thad 8.5 mths (Banded at 7 months)

> > > >

> > > > Well we visited Dr. Carstens at Cardinal Glennon today. I

> > thought for

> > > > sure he would tell us the PT and the repo was working, to

keep

> > doing

> > > > it and not worry about a helmet. I thought Gia's head

looked

> so

> > much

> > > > better and then then man told me she had severe

plagiocephaly,

> > bossing

> > > > in the right forehead and the right occipital area and jaw

> > involvment

> > > > that " may " require surgery. I left and called Presision

> > Prothsetics

> > > > and found that they were not and Exclusive Choice (my

> insurance)

> > > > provider. So I called around and found Orthotics and

> > Prothsetics Lab

> > > > INC. They provide the StarBand and also one of their own

> > helmets.

> > > > They also are a provider for my insurance. Has anyone heard

of

> > this

> > > > company or had any experiance with them? Also anyone know

> > anything

> > > > about the jaw involvement and what surgery there would be?

The

> > Doc

> > > > said her jaw bone was shorter on the right than the left.

For

> > all the

> > > > band grads is there any improvement with the ear asymmetry

in

> > using

> > > > the helmet?

> > > >

> > > > Thanks in advance,

> > > > Eryn

> > > > Donovan,8 and Giavanna 6.5 months tort and plagio

> > > >

> > >

> >

>