Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 > I am delighted to know that this group exists! (where > have you been all my life:)?) Thanks Steve for letting > me know about it. Great to have you aboard!! > I have read with interest/alarm the correlation > between kidney (and heart?) defects that may go along > with atresia/microtia. This is the first time I have > heard this, although it does make sense from what I am > hearing. I guess I should be beating a path to the > doctor's door for an ultrasound. She has not shown any > signs of problems at all in these departments, but I > guess that isn't exactly definitive. I wonder why the > team at Children's Hospital hasn't mentioned this. Is > it so new? It was our Audiologist that originally told us of the correlation. was tested and all was/is OK. My suggestion is first, don't panic. Second get the tests done at some point, if for nothing else, peace of mind. Since Becky is 8 years old, and there have been no signs or problems, there likely isn't any. The tests are non-invasive, and quick. An ultrasound for the kidneys, and a ECG for the heart. Talk to your Dr. and see what he/she says. They may tell you is there was a problem it would be evident by now. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 > I am delighted to know that this group exists! (where > have you been all my life:)?) Thanks Steve for letting > me know about it. Great to have you aboard!! > I have read with interest/alarm the correlation > between kidney (and heart?) defects that may go along > with atresia/microtia. This is the first time I have > heard this, although it does make sense from what I am > hearing. I guess I should be beating a path to the > doctor's door for an ultrasound. She has not shown any > signs of problems at all in these departments, but I > guess that isn't exactly definitive. I wonder why the > team at Children's Hospital hasn't mentioned this. Is > it so new? It was our Audiologist that originally told us of the correlation. was tested and all was/is OK. My suggestion is first, don't panic. Second get the tests done at some point, if for nothing else, peace of mind. Since Becky is 8 years old, and there have been no signs or problems, there likely isn't any. The tests are non-invasive, and quick. An ultrasound for the kidneys, and a ECG for the heart. Talk to your Dr. and see what he/she says. They may tell you is there was a problem it would be evident by now. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 > I am delighted to know that this group exists! (where > have you been all my life:)?) Thanks Steve for letting > me know about it. Great to have you aboard!! > I have read with interest/alarm the correlation > between kidney (and heart?) defects that may go along > with atresia/microtia. This is the first time I have > heard this, although it does make sense from what I am > hearing. I guess I should be beating a path to the > doctor's door for an ultrasound. She has not shown any > signs of problems at all in these departments, but I > guess that isn't exactly definitive. I wonder why the > team at Children's Hospital hasn't mentioned this. Is > it so new? It was our Audiologist that originally told us of the correlation. was tested and all was/is OK. My suggestion is first, don't panic. Second get the tests done at some point, if for nothing else, peace of mind. Since Becky is 8 years old, and there have been no signs or problems, there likely isn't any. The tests are non-invasive, and quick. An ultrasound for the kidneys, and a ECG for the heart. Talk to your Dr. and see what he/she says. They may tell you is there was a problem it would be evident by now. Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Dear Jane, I'm not one to be giving you advice since my daughter was born just 6 weeks ago and I am still gathering information for myself, but I did want to share one thing with you...It's my understanding that if you are aware of the syndrome that is causing your daughter's microtia/atresia, you are a step ahead of some of us. The doctors and specialists that have seen Lena so far, have not found any signs of a particular sydrome and therefore want to be very thorough in examining her (although they didn't send us to have her kidneys checked as quickly as I would have liked). When we went to see the cardiologist, he informed us that if it was the type of atresia that is associated with heart problems, Lena would probably have no thumbs. Since her thumbs are present and functional, he did the tests just as a precautionary measure. Lena also had an ultrasound of her spine, but that was also just precautionary on the part of a pediatrician who has never before seen a case of atresia. I hope I could help at least a little bit. Good luck with everything. Traci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Dear Jane, I'm not one to be giving you advice since my daughter was born just 6 weeks ago and I am still gathering information for myself, but I did want to share one thing with you...It's my understanding that if you are aware of the syndrome that is causing your daughter's microtia/atresia, you are a step ahead of some of us. The doctors and specialists that have seen Lena so far, have not found any signs of a particular sydrome and therefore want to be very thorough in examining her (although they didn't send us to have her kidneys checked as quickly as I would have liked). When we went to see the cardiologist, he informed us that if it was the type of atresia that is associated with heart problems, Lena would probably have no thumbs. Since her thumbs are present and functional, he did the tests just as a precautionary measure. Lena also had an ultrasound of her spine, but that was also just precautionary on the part of a pediatrician who has never before seen a case of atresia. I hope I could help at least a little bit. Good luck with everything. Traci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 Dear Jane, I'm not one to be giving you advice since my daughter was born just 6 weeks ago and I am still gathering information for myself, but I did want to share one thing with you...It's my understanding that if you are aware of the syndrome that is causing your daughter's microtia/atresia, you are a step ahead of some of us. The doctors and specialists that have seen Lena so far, have not found any signs of a particular sydrome and therefore want to be very thorough in examining her (although they didn't send us to have her kidneys checked as quickly as I would have liked). When we went to see the cardiologist, he informed us that if it was the type of atresia that is associated with heart problems, Lena would probably have no thumbs. Since her thumbs are present and functional, he did the tests just as a precautionary measure. Lena also had an ultrasound of her spine, but that was also just precautionary on the part of a pediatrician who has never before seen a case of atresia. I hope I could help at least a little bit. Good luck with everything. Traci Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Welcome and Chudar. Congratulations on your baby boy!! You can go to www.earsurgery.com for some good information. My suggestion is to see a Craniofacial team at a Children's Hospital. They can usually put you in the right direction for test and what needs to be done for your newborn. You have found a great group here. There are many parents here that have been where you are and even adults who have microtia/atresia. If you have any specific questions ask away. Someone here will be able to help. My son Brayden is 2 yrs old (with right side microtia/atresia). I joined this group when he was 3 weeks old (time flys) They have been a wealth of information and support. Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Welcome and Chudar. Congratulations on your baby boy!! You can go to www.earsurgery.com for some good information. My suggestion is to see a Craniofacial team at a Children's Hospital. They can usually put you in the right direction for test and what needs to be done for your newborn. You have found a great group here. There are many parents here that have been where you are and even adults who have microtia/atresia. If you have any specific questions ask away. Someone here will be able to help. My son Brayden is 2 yrs old (with right side microtia/atresia). I joined this group when he was 3 weeks old (time flys) They have been a wealth of information and support. Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Welcome and Chudar. Congratulations on your baby boy!! You can go to www.earsurgery.com for some good information. My suggestion is to see a Craniofacial team at a Children's Hospital. They can usually put you in the right direction for test and what needs to be done for your newborn. You have found a great group here. There are many parents here that have been where you are and even adults who have microtia/atresia. If you have any specific questions ask away. Someone here will be able to help. My son Brayden is 2 yrs old (with right side microtia/atresia). I joined this group when he was 3 weeks old (time flys) They have been a wealth of information and support. Autumn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Hello and congratulations on the birth of your son! The reason for the additional tests on kidneys and the heart is to rule out any problems in these areas as they develop at the same time as the ear. It's great news to hear that your son is hearing in his right ear! You may want to seek out a cranio-facial team at a children's hospital so that your son can be evaluated and followed from birth. This has been really beneficial to us, as they have been able to treat our son, Josh, since he was an infant. As far as what to do right now, simply love and care for your little man. The best thing I think is to prepare yourself with the most information available so that when the time comes for a procedure, you will be ready. I hope this helps! Peace to you all, beth ( Mom to Josh, 10, right microtia/atresia and HFM) > >Reply-To: AtresiaMicrotia >To: AtresiaMicrotia >Subject: New Member >Date: Fri, 10 Jan 2003 14:51:03 -0800 (PST) > > >My wife Chudar gave birth to a beautiful baby boy named Ajay on January >3rd. He has microtia/atresia of the left ear. I was so excited to find >out about this group and the valuable resource it offfers. > >Ajay's first hearing test on the right ear came back positive and he >appears to have normal hearing in that ear. Likewsise, Ajay is a very >alert and happy little boy that checked out extremely well on his first >doctor vistit. > >After looking at many of the web sites referenced by this group, it appears >that not much can be done for the ear cosmetically until the age of 6. >However, my concern is what are the most important things to do in the >first few years to ensure that Ajay continues to be healthy and prepare for >the cosmetic surgery if he elects to do it. > >Should we be looking into heart, kidney, genetics tests? Are there any >specific hearing tests to avoid or seek out? > >What if any special concerns have other parents benefited from doing in the >first few years? > >Thanks again for creating this group and offering it as a resource. > >, Chudar, and Ajay _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Hello and congratulations on the birth of your son! The reason for the additional tests on kidneys and the heart is to rule out any problems in these areas as they develop at the same time as the ear. It's great news to hear that your son is hearing in his right ear! You may want to seek out a cranio-facial team at a children's hospital so that your son can be evaluated and followed from birth. This has been really beneficial to us, as they have been able to treat our son, Josh, since he was an infant. As far as what to do right now, simply love and care for your little man. The best thing I think is to prepare yourself with the most information available so that when the time comes for a procedure, you will be ready. I hope this helps! Peace to you all, beth ( Mom to Josh, 10, right microtia/atresia and HFM) > >Reply-To: AtresiaMicrotia >To: AtresiaMicrotia >Subject: New Member >Date: Fri, 10 Jan 2003 14:51:03 -0800 (PST) > > >My wife Chudar gave birth to a beautiful baby boy named Ajay on January >3rd. He has microtia/atresia of the left ear. I was so excited to find >out about this group and the valuable resource it offfers. > >Ajay's first hearing test on the right ear came back positive and he >appears to have normal hearing in that ear. Likewsise, Ajay is a very >alert and happy little boy that checked out extremely well on his first >doctor vistit. > >After looking at many of the web sites referenced by this group, it appears >that not much can be done for the ear cosmetically until the age of 6. >However, my concern is what are the most important things to do in the >first few years to ensure that Ajay continues to be healthy and prepare for >the cosmetic surgery if he elects to do it. > >Should we be looking into heart, kidney, genetics tests? Are there any >specific hearing tests to avoid or seek out? > >What if any special concerns have other parents benefited from doing in the >first few years? > >Thanks again for creating this group and offering it as a resource. > >, Chudar, and Ajay _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 Hello and congratulations on the birth of your son! The reason for the additional tests on kidneys and the heart is to rule out any problems in these areas as they develop at the same time as the ear. It's great news to hear that your son is hearing in his right ear! You may want to seek out a cranio-facial team at a children's hospital so that your son can be evaluated and followed from birth. This has been really beneficial to us, as they have been able to treat our son, Josh, since he was an infant. As far as what to do right now, simply love and care for your little man. The best thing I think is to prepare yourself with the most information available so that when the time comes for a procedure, you will be ready. I hope this helps! Peace to you all, beth ( Mom to Josh, 10, right microtia/atresia and HFM) > >Reply-To: AtresiaMicrotia >To: AtresiaMicrotia >Subject: New Member >Date: Fri, 10 Jan 2003 14:51:03 -0800 (PST) > > >My wife Chudar gave birth to a beautiful baby boy named Ajay on January >3rd. He has microtia/atresia of the left ear. I was so excited to find >out about this group and the valuable resource it offfers. > >Ajay's first hearing test on the right ear came back positive and he >appears to have normal hearing in that ear. Likewsise, Ajay is a very >alert and happy little boy that checked out extremely well on his first >doctor vistit. > >After looking at many of the web sites referenced by this group, it appears >that not much can be done for the ear cosmetically until the age of 6. >However, my concern is what are the most important things to do in the >first few years to ensure that Ajay continues to be healthy and prepare for >the cosmetic surgery if he elects to do it. > >Should we be looking into heart, kidney, genetics tests? Are there any >specific hearing tests to avoid or seek out? > >What if any special concerns have other parents benefited from doing in the >first few years? > >Thanks again for creating this group and offering it as a resource. > >, Chudar, and Ajay _________________________________________________________________ STOP MORE SPAM with the new MSN 8 and get 2 months FREE* http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2003 Report Share Posted January 13, 2003 , Congratulations to you and Chudar on your new baby. I am also new to this group, but it has been a tremendous help to me. My son is 3 month's old now, and it took me this long to get brave enough to do research on the Internet. Other than the CT Scan done on him at birth and the hearing test on his "good" ear when he was 2 weeks old, we have had nothing. We have seen no one, have no answers to our questions, or anything. I have learned so much from this group and the web sites mentioned, that I'm starting to "relax" a little. We have our first Dr's visit set up with The Hearing Institute in Los Angeles on January 24th. It's with a Dr. De La Cruz. I'll let you know how that goes for me. a Mother of , 3 months, Unilateral Microtia/Atresia On Fri, 10 Jan 2003 14:51:03 -0800 (PST) Schlehuber writes: My wife Chudar gave birth to a beautiful baby boy named Ajay on January 3rd. He has microtia/atresia of the left ear. I was so excited to find out about this group and the valuable resource it offfers. Ajay's first hearing test on the right ear came back positive and he appears to have normal hearing in that ear. Likewsise, Ajay is a very alert and happy little boy that checked out extremely well on his first doctor vistit. After looking at many of the web sites referenced by this group, it appears that not much can be done for the ear cosmetically until the age of 6. However, my concern is what are the most important things to do in the first few years to ensure that Ajay continues to be healthy and prepare for the cosmetic surgery if he elects to do it. Should we be looking into heart, kidney, genetics tests? Are there any specific hearing tests to avoid or seek out? What if any special concerns have other parents benefited from doing in the first few years? Thanks again for creating this group and offering it as a resource. , Chudar, and Ajay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2003 Report Share Posted January 14, 2003 , Congratulations on the birth of your son from another new parent. My daughter Lena was born on Nov. 22 with right stage III atresia. You've found this group very quickly and that is a very good thing. It may help your wife to log on as well when she's feeling up to it. I know I needed the emotional support even more than the knowledge at first. It's good to know that you're not alone in this and there are tons of people willing to offer advice and their personal experiences. Here are my personal experiences, the pediatrician on call at the hospital when Lena was born right away called in the ENT and Cardiologist. She had her heart tested at one day old and again at two weeks, but she had a typical newborn heart. The doctor who tested her at two weeks told us that with some of the syndroms that cause atresia, a heart defect can be present, but without any other signs (absent thumbs, elbows that won't bend), it is very unlikely that she'd have any heart trouble at all. Still, he will check her again when she is three months old (which is approaching quickly). Lena didn't have her kidneys checked, but when I joined this group and talked to the other parents, I learned that the ears and kidneys develop at the same time in utero, so as a precautionary measure, I had my pediatrician set up an ultrasound. We'll be having that done on Friday. Lena passed her hearing test on her good ear, but the audiologist wants to do an ABR in a few weeks to be sure. The ABR is "more reliable and exact" is what the audiologist explained to me. That one is going to be difficult because Lena must be sound asleep or the test won't work. I'll let you know how that goes. I'm hopeful! The only other thing I've done was set up a consult with a local plastic surgeon. By no means will he be doing her surgeries when it's time, but he shoud be able to answer some of the questions I have (my pediatrician claims he knows a little about all of this). Also, Lena has skin tags on her cheek and ear that I may opt to have removed earlier than her surgeries if there is not a lot involved. All of the appointments are keeping us very busy. Between research and scheduling, I'm using up all of Lena's nap time. If you and your wife can get through these first few weeks, you can get through anything. Just remember that no matter what either of you is feeling, you're not alone. we've all been there (not so long ago for me). Forgive me if you don't need the comfort I'm offering, but I was a complete mess for weeks before I found this group. I hope that you guys are different for your sake, but in case you're not...it gets better. I hope we'll be able to go along the time line of all of this together with only 6 weeks between Lena and Ajay. Traci (Lena's mom--Orlando, FL) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Congratulations on the birth of your son from another new parent. My daughter Lena was born on Nov. 22 with right stage III atresia. Not to be too picky...but Atresia refers to the closing of the ear canal. Microtia refers to the underdevelopment of the outer ear, and can be stage I, II, or III. Usually a person is born with both Microtia AND Atresia in the effected ear, but this is not always the case. So in your case, Lena has unilateral Right Side Atresia, and unilateral Right Side Stage III Microtia. Sorry to be picky, but the definitions often help clear the terminology for the newcomers. Steve (Father to , bilateral Atresia/Microtia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Congratulations on the birth of your son from another new parent. My daughter Lena was born on Nov. 22 with right stage III atresia. Not to be too picky...but Atresia refers to the closing of the ear canal. Microtia refers to the underdevelopment of the outer ear, and can be stage I, II, or III. Usually a person is born with both Microtia AND Atresia in the effected ear, but this is not always the case. So in your case, Lena has unilateral Right Side Atresia, and unilateral Right Side Stage III Microtia. Sorry to be picky, but the definitions often help clear the terminology for the newcomers. Steve (Father to , bilateral Atresia/Microtia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2003 Report Share Posted March 26, 2003 Bernadette, Welcome to the group and I am sorry that you have reason to be here. You have been through so much and your feelings of devastation and isolation are feelings that most of us have felt at one time or another so you will find this group to be very informative but also very supportive. Have you looked at the Database and under that is an A-list of doctors who treat Asherman's. There is one in Australia but I'm not sure if he is there right now or when he will be back. Maybe someone who knows can fill you in on where he is at and when he will be back. Hopefully if you do have AS, it is a mild case and may just be that your cervix is scarred shut. Over 9mm of lining is good. Please ask lots of questions and know that you are not alone. There are many women here who have had babies after their AS was treated and there are quite a few who are pregnant now. I wish you the best and hope that you get some comfort from knowing that you are not alone. Take care! Roxie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2003 Report Share Posted March 30, 2003 Hi Jodi, Sounds like your scarring is on the top of your uterus, and blocking one tube. The fundus is the top. If the pain and pressure does not subside, I would call your radiologist or OB. It could be some sort of infection. Or, call and see if Copperman's people can slide you in sooner because of this. I know Mondays, he is in surgery all day (he is only in his office from 6:45 to 9). The balance of the week he is usually not spending the day in surgery. Maybe they can fit you in for a shorter appt? Feel better, jodi814 wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 The earlier the scar tissue is removed the easier it is to remove. Once it has been there for a while it will calcify and become dense. Then it is not as easily removed. There may be other issues, as well, but this is all I'm sure about. Stacie > Is there any advantage to getting an early diagosis as far as > progression of the scarring? > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 Thanks Christie for your kind words! Peace - beth > >Reply-To: AtresiaMicrotia >To: AtresiaMicrotia > >Subject: RE: New Member >Date: Sat, 29 Mar 2003 12:41:12 -0500 > >beth, > >Thank you for sharing that email with all. While intended for , I >think we can all benefit from this wonderfully written letter. > >Hugs, > >Christie and , 13 mos. (bilateral microtia/left atresia/right >stenois) with a BCHA > > New Member > >Date: Fri, 28 Mar 2003 09:19:48 -0500 > > > >Hello, > > > >My name is . I am 25 years old. And I have Microtia on my right >ear. > >I came across this group, after searching and searching for help. > > > >A little history about myself: I was born in an African country. I came >to > >the US (Michigan) when I was 19. I have since graduated from college with >a > >bachelor’s degree, and currently pursuing an MBA degree. > > > >I had a surgery performed on the ear when I was 21 (in the US), but the > >surgery was unsuccessful. Not only has this compounded my sorrow and > >anguish, it also consolidated my despair about this ordeal. I am >suffering > >from an on-going acute low self-esteem. > > > >I have contacted some surgeons, by mail and in person, and they expressed > >worries about the scared tissue. Some said they could improve, > >considerably, on the ear. I try to shy away from accepting prosthesis, > >because I am not comfortable with its disadvantages – suffices to > >say that I am not looking for a perfect ear (just something not too > >conspicuous). > > > >I consider myself helpless right now. I need help from anyone. I need > >advice. Please help! > > > >Regards > >D > >_________________________________________________________________ >Tired of spam? Get advanced junk mail protection with MSN 8. >http://join.msn.com/?page=features/junkmail > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 Thanks Christie for your kind words! Peace - beth > >Reply-To: AtresiaMicrotia >To: AtresiaMicrotia > >Subject: RE: New Member >Date: Sat, 29 Mar 2003 12:41:12 -0500 > >beth, > >Thank you for sharing that email with all. While intended for , I >think we can all benefit from this wonderfully written letter. > >Hugs, > >Christie and , 13 mos. (bilateral microtia/left atresia/right >stenois) with a BCHA > > New Member > >Date: Fri, 28 Mar 2003 09:19:48 -0500 > > > >Hello, > > > >My name is . I am 25 years old. And I have Microtia on my right >ear. > >I came across this group, after searching and searching for help. > > > >A little history about myself: I was born in an African country. I came >to > >the US (Michigan) when I was 19. I have since graduated from college with >a > >bachelor’s degree, and currently pursuing an MBA degree. > > > >I had a surgery performed on the ear when I was 21 (in the US), but the > >surgery was unsuccessful. Not only has this compounded my sorrow and > >anguish, it also consolidated my despair about this ordeal. I am >suffering > >from an on-going acute low self-esteem. > > > >I have contacted some surgeons, by mail and in person, and they expressed > >worries about the scared tissue. Some said they could improve, > >considerably, on the ear. I try to shy away from accepting prosthesis, > >because I am not comfortable with its disadvantages – suffices to > >say that I am not looking for a perfect ear (just something not too > >conspicuous). > > > >I consider myself helpless right now. I need help from anyone. I need > >advice. Please help! > > > >Regards > >D > >_________________________________________________________________ >Tired of spam? Get advanced junk mail protection with MSN 8. >http://join.msn.com/?page=features/junkmail > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 Hi ! What a small world, I grew up in Dearborn Heights, which is just a stones throw from Inkster! In regard to the doctors, I know that Ian (Providence Hospital, Southfield) does ear reconstruction, but I never got to see pictures of the ears he reconstructed. I will find the name of the other doctor in Marquette and include it when I find it. Take care and again, welcome to the group friend! Peace, beth >From: DadaApeluwa@... >Reply-To: AtresiaMicrotia >To: AtresiaMicrotia >Subject: Re: New Member >Date: Sat, 29 Mar 2003 19:57:18 EST > >beth, I am very delighted at your response. I am beginning to see the >light on the horizon from joining this group. I spent about 4 years in >Detroit. I am now in Inkster, Michigan. Please provide the names of those >doctors that could perform Microtia repairs. > >I will recite those excerpts regularly. I simply need them. > >I will continue to ask questions, and follow through in prospects of hope >as >I live and learn from this wonderful group. > > _________________________________________________________________ Tired of spam? Get advanced junk mail protection with MSN 8. http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2003 Report Share Posted April 1, 2003 Hi ! What a small world, I grew up in Dearborn Heights, which is just a stones throw from Inkster! In regard to the doctors, I know that Ian (Providence Hospital, Southfield) does ear reconstruction, but I never got to see pictures of the ears he reconstructed. I will find the name of the other doctor in Marquette and include it when I find it. Take care and again, welcome to the group friend! Peace, beth >From: DadaApeluwa@... >Reply-To: AtresiaMicrotia >To: AtresiaMicrotia >Subject: Re: New Member >Date: Sat, 29 Mar 2003 19:57:18 EST > >beth, I am very delighted at your response. I am beginning to see the >light on the horizon from joining this group. I spent about 4 years in >Detroit. I am now in Inkster, Michigan. Please provide the names of those >doctors that could perform Microtia repairs. > >I will recite those excerpts regularly. I simply need them. > >I will continue to ask questions, and follow through in prospects of hope >as >I live and learn from this wonderful group. > > _________________________________________________________________ Tired of spam? Get advanced junk mail protection with MSN 8. http://join.msn.com/?page=features/junkmail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2003 Report Share Posted April 15, 2003 Dawn, Sorry for your loss in needing to join this group. You asked if the scarring gets harder to remove: I think the answer is yes based on the experience of some people in this group (Sara O), but your case is still very " young " having only been 5 months since your D&C. You can check under the database on the site for doctors near you. I am impressed that your doctor gave you the balloon and estrogen after your second D&C. I recently had a D&C for retained placenta and despite my OB knowing I had just had AS, didn't do anything to try to prevent it after my D&C. Is there a doctor you can get there who will do an in-office diagnostic hysteroscopy? That way they can see for sure what it is that's in your uterus. Ask any questions you have, this is a great group!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Hi Shari- Welcome to the group- though I'm sorry you had to find your way here. I know exactly how you feel about wanting that sibling for your son- and believe me it's all worth it!!- My dd was almost 5 when we finally added her 2 siblings- adn I have to say it's been wonderful for her to have been that old- she's really enjoyed them- so an odd blessing I guess! I'd be more than happy to talk to you about foreign adoption- I have a lot of info about where things were when we started 2 years ago- it's a most AMAZING journey- and the most special gift imaginable!! As far as costs- in the US there's a $10,000 adoption tax CREDIT (means you get back 10,000 of what you spend- making foreign adoptions more reasonable in cost) and there are plenty of countries out there to suit all needs- and PLENTY of kids. Have to go make breakfast- let me know if you want more info , Mike, Brenna Jordan Ross-born 9/26/97(VSD, PS- open heart surgery 1/29/98), and Jaden Kalyan Ross-born in Cambodia July 15, 2001 home with us forever May 3, 2002, Colin Spencer Ross- born July 27, 2002, Baby Angel born still 11/7/00, and Riley and Snoozer the dogs Join us again next year in remembering the millions of people affected by CHD on 2/14/2003:Â "A Day for Hearts: Congenital Heart Defects Awareness Day!" Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.