New Member

[Guest guest]

Dear Shari,

Welcome to the group and sorry for all that you have to go through.

You may need to join a subgroup of this site on surrogacy-

" surroashers " or so. I think you will be able to get some useful info

from some members already pursuing or looking into that option. I

hope you get a response regarding that from the moderator.

I wish you all the best in your pursuit for a sibling for your son. I

do not think the longing for a sibling ever stops even with adults. I

once heard a lady in her thirties lament of loneliness of being an

only child. Best wishes...

Gladys

[Guest guest]

,

Thanks for your reply. I was interested in Columbian adoption b/c I have heard

very good things about the health of these babies...unfortunately, the agency I

was referred to is based in Buffalo NY, and I in NYC, and it is very hard to

participate in their many social functions which are mandatory. The importance

of social fundraising is more predominant to this agency than the adoption

process, it seems. so I am 6 months later, with nothing. I apprecite your

wisdom and advice.

Shari

[Guest guest]

Shari welcome to our group. I noticed you are interested in joining the SurroAsher group which is a sub group of this one. An invite will be sent to you once you have completed the profile questionnaire. Thanks.

Poly

[Guest guest]

Therese,

Welcome to the group. I'm sorry that you have reason to be here and

also for all of the pain that you have gone through. If you click on

the files section you will see an A-list and a B-list of doctors who

have had success with treating Asherman's. There are members who

have had severe AS and are now pregnant or have already had a baby,

so there is hope. I can't stress enough the importance of having

treatment from someone who deals with Asherman's alot. It is a very

delicate surgery and if it is performed by the wrong doctor, more

damage can be done. Do you have any type of monthly spotting or do

you have no bleeding but a lot of pain when it is time for your

period? Both of those symptoms are signs that there is endometrium

left which is good. There's also a list of questions that a doctor

should be able to answer before you allow treatment and that is also

under the files section. Please ask any questions. You will find

that this group is filled with caring women who know just how you are

feeling.

Roxie

[Guest guest]

Therese,

I'm so sorry to hear of all that you have been through. I too

developed severe AS after I had a d & c for a missed miscarriage. I

would highly recommend seeing one of the doctors on the " A List. " I

have an appointment with Dr. March at the end of May and am hoping so

badly that he'll be able to help. So may women on here who have

experience dealing with AS highly recommend seeing an A List doctor.

Please know that you're not alone in your struggle. There are lots of

women out there who are dealing with similar problems, and we are

here to give you whatever support and strnegth you need.

Sending you lots of hugs,

Terry

> Hello,

>

> My name is Therese. My husband and I have been trying to have a

> child for several years. Here is my story about how I developed

> Asherman's Syndrome.

>

> In January of 2002, I had a D&C to get rid of retained products

from

> a miscarriage. The next day after surgery, I developed a high

fever,

> around 103. I ended up in the emergency room that night with

> endometritis and was in the hospital for five days on intravenous

> antibiotics. I also found out that I had e-coli in my blood

stream.

> Needless to say, I was very sick. I've been having female trouble

> since then and a chemical pregnancy.

>

> I have also in the past several months developed amenorrhea. I had

a

> doctor that began to treat me for this, actually a fertility

doctor.

> He has decided to close down his practice, and I'm in need of a

good

> doctor that can help me with all the problems I'm having. His last

> instructions to me were that I need to have a hysteroscopy to

confirm

> uterine synechia. He had put me on progesterone, premarin, etc. to

> help bring on a cycle, but this didn't work.

>

> All the doctors around here are tiptoeing around me. They act like

> they don't know why I have this problem. I live in Albuquerque,

New

> Mexico, and I'm wondering if anyone out there knows of a good

doctor

> that is an expert in Asherman's Syndrome. If not, a doctor close

by.

>

> I've been really sick since this happened to me, and I think my

> symptoms have just started to surface from this ordeal.

>

> I don't know what else to expect from this for the future. I don't

> think I'll be able to have any children due to my age and now this

> eliminates me from having an egg donor as well.

>

> I'm frustrated and the doctors don't seem to understand how bad I

> feel.

>

> HELP!!! I would appreciate any suggestions on a good doctor and

what

> other symptoms do I need to look out for, etc.

[Guest guest]

Therese,

Welcome to the group. I don't have a lot of time right now, but I

wanted to make sure you started looking around this site at all the

valuable information within. Please go to the home page and read the

files and database sections to get a list of A and B list doctors who

have experience in dealing with Ashermans. I think the closest to

you might be Dr Indman in California, but I'm not sure. He is one of

the best, so maybe it will work out for you to see him.

I completely understand where you are coming from with trying to find

a doctor that understands what you are going through. With the help

of this group and the women who make it what it is, I have found

peace and treatment. Don't give up hope and my best advice is to get

the most experienced and skilled surgeon to help you through this.

nancy w

[Guest guest]

Welcome Verena

I'm so glad you found this site. (not so glad you had to find it)

These ladies are a wealth of information. I hope you can find an A

list doctor near you. I'm sure someone in your area can help better

with that. Good luck on your journey.

B.

[Guest guest]

Verena,

Welcome to our group. I'm sorry to learn that you have AS--but good

for you for being so persistent and figuring our what was wrong.

Since Asherman's is quite rare, doctors are often not very informed

about it. From what I've read, most people are put on some type of

hormone regimen after surgery to build up the uterine lining. Did

your doctor put you on hormones? There's a list of different

combinations of hormones that have been used in the database section

of this web site titled " Hormone Treatment for Asherman's. "

I hope that soon you will be able to conceive the baby that you want.

Terry M.

[Guest guest]

Hello Verena,

There is a good Asherman's doctor in Germany. He is Adolf Gallinat in

Hamburg. (0) 40-4328580 / (0) 40-43285858

www.tagesklinik-altonaer-strasse.de

You can find more information about him in our list of " A-list "

doctors. This is the list of doctors who are well known for treating

Asherman's and have been recommended by other doctors who also treat

a lot of Asherman's. To find the list, click the " Database " link at

the left side of the http://groups.yahoo.com/group/Ashermans

page.

I hope this helps.

Also, one of the most senior members of our group is a German member

named Corinna, maybe she can email you privately in German to help

you more, although your English seems very good. We can wait to see

if she answers your message, but if she doesn't see it, maybe we can

email her directly and ask her to talk to you, if you wish.

Best wishes,

G.

[Guest guest]

Liz -

Welcome to the website. I am sorry to hear about your losses, most of

us here understand the pain you are going through.

A couple of things struck me about your posting. The first thing was

that your symptoms are actually positive, despite your not having a

monthly flow. Monthly pain and a thick endometrium are very positive

signs (one thing many members here struggle with is a thin lining,

caused by previous scarring). Having said that, it sounds like your

cervix may be scarred shut. Three months of birth control pills will

do nothing to help that, so I would avoid going that route.

I agree with the ladies who previously replied to your post in that

you should seek a doctor experienced in treating AS. You need an HSG

(which will most likely be unsuccessful if your cervix is scarred

shut) or a hysteroscopy. Unfortunately, it sounds like you have a

battle on your hands with your current doctor.

The other thing that struck me is you have had 3 m/c's in a

relatively short period of time - are your doctors doing anything to

investigate the causes? I would push for that, as well. That's jsut

my two cents :-).

Best of luck to you, Liz, and please feel free to ask all the

questions you want!

Bethany

[Guest guest]

Welcome Liz. Here's my two cent:

Seems like an office hysteroscopy is in order. It's good that

endometrial lining is visible and that you have cyclical pain. It's

possible that only your cervix is scarred closed. That certainly

caused me some cyclical pain. I also want to mention ovarian cyst

related pain. The worst pain of my life has definitely been

attributed to cysts. Mine get up to 10cm and more. Placement seems

key with regard to how much pain they can cause. After a couple of

cyst related surgeries, I take them very seriously. I too have had

3 miscarriages. I'm terribly sorry to read that we have this in

common. I've done the birth control pill thing in hopes of

regulating or " causing " a period, but it was to no avail, however I

am now on b.c. to help control cysts. I might again ttc in another

year (as soon as we can complete our impending adoption) in which

case I'll clearly need to quit b.c. I don't have periods other than

1 day of light spotting, have little endometrium, and have a

chromosomal problem that makes miscarriage far more likely than

not. However, I sort of feel that if I could beat the odds to end

up with AS and an auto-immune condition (both things doctors were

initially " sure " I didn't have - same for the chromosomal imbalance)

I just might beat the odds to have a baby the biological route in

addition to the adoptive route. Time will tell. All my best to

you. Let's hope it's only minor blocking that can easily be taken

care of via hysteroscopy. I've been largely not dealing with AS for

several months now (last surgery in July) but I do highly recommend

Dr. Indman in Los Gatos. I know it's not in LA, but I traveled down

from Seattle and felt it was my first effect step toward getting

good answers - and peace of mind!

Take care,

J.

[Guest guest]

Liz,

I joined this group a couple of months ago and my introduction

sounded almost exactly like yours. I too had learned to chart

from " Taking Charge of your Fertility " and my ovulations were " by the

book " , but the day my temp would drop (15 days post ovulation) I

would have intense cramps but no period. I couldn't convince anyone

that I knew what I was talking about. Unfortunately your gut

feeling is probably right and you might have Ashermans. For me it

turned out that I had retained placenta (which wasn't detected by

ultrasound) from D&C which had caused my cervix to scar shut. I also

had scarring in my upper right side of my uterus.

Dr. Palter (A-list in NY) did an ultrasound which showed a thick

endometrial lining and gave me the provera challenge - nothing. Then

he did an SHG where he was able to poke through the cervix scarring,

but couldn't see much except the large piece of retained placenta

(which he thought was a polyp at the time.) One week later he did a

hysteroscopy/laparoscopy and I've since had a period. He did find

that my periods had backflowed through my tubes which caused them to

scar over and has potentially caused blockage (I'll find out

thursday). Apparently there isn't a lot of research and therefore

consensus about this, but Dr. Palter says it seems to be more of a

problem then they once thought. My cervix was only blocked for 2-3

cycles (I wasn't charting at first) and now my tubes might be

blocked - so I don't mean to instill any panic because the waiting is

hard enough already, but my advice to you would be to go straight to

an A-lister without wasting time with doctors who aren't experts in

treating AS.

I wish you the best of luck and would be happy to answer any

questions you have!

Jen Czap

[Guest guest]

Dear Chanon,

First of all I am so sorry that you have had so many problems. The good news is

that now you have a diagnosis and can move forward towards getting the right

medical treatment of your Asherman's. Look at the A-list and see if there is

anyone on it that is near you. It is very important to have the corrective

hysteroscopy and lysis of adhesions done properly. A D&C is not the proper way

to treat Asherman's. Many of us with Asherman's have benn treated properly and

been able to get pregnant again, so do not lose hope. Be very grateful that your

son arrived before your Asherman's. With the proper treatment you will hopefully

have another baby. I wish you the best luck in treating your Asherman's, and the

women in this group are the best at offering moral support and excellent

clinical suggestions.

Good Luck and Welcome,

D.

^'^ Angel Elijah 4/9/2003

[Guest guest]

Chanon,

I'm so sorry to hear that you have AS. Does your insurance require a

referral or could you just go to see an A-list doctor without a

referral? However you do it, I think it's best to see an A-lister.

Since you're in Philly, the doctors in New York--there are a few A-

listers there--would probably be the best place to start.

Having a doctor who is very experienced in treating AS can make a

huge difference in your results. IMO, it's worth it to see the best

doctor possible right from the start.

I'm glad you found this board--it's a great source of information and

support.

Take care,

Terry M.

[Guest guest]

Welcome to this group, Helle.

I am from Finland, 34 years old, have one son (born '00) and I'm

struggling with ashermans, still hoping to have one or two more

children. I've had one operative hysteroscopy in Helsinki and I'm

having a hysteroscopy + laparoscopy with Dr. Gallinat in Hamburg on

June 23rd. He is an excellent surgeon and one of the few ashermans

experts worldwide. Is there any way you could consider going to him

for help?

I am Swedish speaking and understand Danish very well, so if you feel

like contacting me privately you are very welcome to e-mail me at

maria.fremer@... - there is also another Danish member,

nne, but I think she is not reading the posts currently because

ashermans is not her primary fertility problem. I could ask her if

she wants to contact you, if you are interested.

I know you will find all the information and support you need in this

group, because I did too.

F

[Guest guest]

Helle,

Welcome to our group! I am sorry to hear of all that you've been

through, but hopefully, your doctor will be able to successfully

treat your AS.

Take care,

Terry M.

[Guest guest]

Hope,

Welcome to our group. I am so sorry to hear that you might have AS. I

remember all too well how agonizing it was to wait for my test

results and I too felt convinced I had AS (and unfortunately, I was

right).

Have you had an HSG or SHG? These are two tests commonly used to

diagnose AS and are less invasive/less involved than a hysteroscopy.

It was an HSG that confirmed I had AS. I think most doctors do one of

these tests before doing a hysteroscopy.

If you do have AS, I highly recommend that you see one of the A-list

doctor for treatment. The experience of your doctor can make a huge

difference and there are only a few doctors who are truly experienced

in dealing with AS.

I have Blue Shield PPO and my surgery will be covered. Thankfully,

Dr. March (an A-list doctor) is on my plan and he does not code AS as

infertility, which allows it to be covered.

I do blame the doctor that performed my d & c for my AS.

I'll be thinking of you.

Take care,

Terry M.

[Guest guest]

Terry, Thanks for your reply! In your opinion should I go to

another doctor for the HSG or SHG? How long does it take to get

results back from these tests? I was wondering where to find your

story, because I am interested in where you are and what your

journey has been like. Thanks for your feedback. Hope

> Hope,

>

> Welcome to our group. I am so sorry to hear that you might have

AS. I

> remember all too well how agonizing it was to wait for my test

> results and I too felt convinced I had AS (and unfortunately, I

was

> right).

>

> Have you had an HSG or SHG? These are two tests commonly used to

> diagnose AS and are less invasive/less involved than a

hysteroscopy.

> It was an HSG that confirmed I had AS. I think most doctors do one

of

> these tests before doing a hysteroscopy.

>

> If you do have AS, I highly recommend that you see one of the A-

list

> doctor for treatment. The experience of your doctor can make a

huge

> difference and there are only a few doctors who are truly

experienced

> in dealing with AS.

>

> I have Blue Shield PPO and my surgery will be covered. Thankfully,

> Dr. March (an A-list doctor) is on my plan and he does not code AS

as

> infertility, which allows it to be covered.

>

> I do blame the doctor that performed my d & c for my AS.

>

> I'll be thinking of you.

>

> Take care,

>

> Terry M.

[Guest guest]

Hi Hope,

I don't think it's absolutely necessary to see an A-lister for an HSg

since it's a relatively low-risk procedure. I scheduled mine through

my regular ob-gyn and the HSG itself was conducted by a radiologist.

It took my results over a week to come in, but I know some women have

got the results much sooner.

Here's my story:

I got married in June 2002. We have no children. I'm thirty years old

(will be 31 in October). I went off birth control pills in July,

conceived in August, but miscarried around my 5th week, which went

naturally. We waited one cycle to TTC, and then got pregnant again on

our next try. Unfortunately, I discovered in my 11th week that the

fetus had died in its 6th week, and I required a d & c, which I had

in my 12th week. I had the fetal tissue tested, and the tests

revealed trisomy 16--a random chromosomal problem that in no way

affected our future chances of a successful pregnancy.

After my d & c, I switched doctors since I was upset that my old

doctor wasn't interested in running further tests on me to check that

everything was ok and his office staff was rude and incompetent. My

new doctor ran tests and discovered I have Graves' Disease--an

autoimmune disease that causes my thyroid to go nuts. Graves' can

also cause miscarriages, so it may have played a role in my first

loss.

After my d & c, my period didn't show, so my new doctor gave me

provera to bring it on. That didn't work, so she had me get an HSG,

which revealed scarring. My doctor was shocked that I had scarring

from just one d & c. She admitted she was not experienced enough to

treat AS and so referred me to a local RE. However, I soon found this

web site and decided to see an A-list doctor instead of the RE, and

I'm so glad I did.

Since my HSG, I have had two periods, so my cycle is back on track.

However, my most recent period was lighter than normal.

I saw Dr. March a couple of weeks ago. He has treated

hundreds of patients with AS and is very capable. We need to wait

until my Graves' Disease is under control to do a hysteroscopy since

there's a very slight risk that I could die while undergoing surgery,

and that's not a risk either of us wanted to take. I hope to treat my

Graves' with radiation sometime in the next few weeks. If the

radiation treatment is successful (there's a 90% chance that it will

be), then I should be able to have surgery in about three months or

so.

Dr. March will do my surgery--either a hysteroscopy or a combined

laparoscopy/hysteroscopy if the scarring extends to the higher

portion of my uterus. It was unclear from the HSG how deep the

scarring extended. I am praying that one surgery will do the trick.

After the surgery, I'll do a couple months of hormone treatments to

help my lining. The earliest I will be able to TTC is January 2004,

since I need to wait 6 months after the radiation treatment to

conceive.

That's about it. Right now for me it's just a waiting game since I've

got at least three months before I can do anything about my AS. So,

I'm just trying to focus as much as I can on eating healthy, working

out, and trying to recover mentally emotionally from all that has

happened this past year.

I know how scary the possibility of having AS is, but there are lots

of success stories, so keep the faith!

Take care,

Terry M.

[Guest guest]

Hope,

I think Tery M did a great job at answering your questions. I just

wanted to ask if the doctor you are going to now is the same doctor

who did the D&C. If the answer is yes, I would find another doctor.

If not, I had my HSG done in radiology by an OB/GYN. I had my results

immediately because the OB was right there doing the procedure. After

finding out that I did have AS, I then contacted an A list doctor and

have had 2 surgeries so far and am awaiting my 3rd one. Another thing

I want to add is that the doctor who does the HSG should also

prescribe antibiotics to prevent infection which can make the scarring

worse. I know all of this can be really scary and the pressure to go

to another doctor is hard. When I was first diagnosed all I wanted to

do was get it fixed ASAP. I'm so happy that I found this group and

the list of doctors who will be able to give the most hope. Some

people do have a tendency to scar easier than others but I think a lot

of the cases are caused by overly aggressive D&C's especially when

done on a recently pregnant uterus. Infection can also cause AS.

That is my own opinion and in the USA, it is very hard to prove from a

legal standpoint. You mentioned taking estrogen. Did your doctor

prescribe that right after the D&C or is this because of not getting

your period? Hang in there and I'm sure you will get other responses.

You have found the right place and there are many members who have

gone on to have a baby or are pregnant right now after having their AS

treated. Also I have an HMO and I was able to get out of network

coverage for all of my surgeries so far.

Roxie

[Guest guest]

Hi Hope,

Welcome to the group! I really hope that you do have a bleed after

your course of estrogen but if not, you've find the right place for

support and information. I had a similar experience after a D&C

except that my periods were just incredibly light.

I wonder why your doctor wouldn't just schedule an SHG or HSG right

off the bat to check for scarring? It is possible to have AS

diagnosed and treated all in one procedure, but I don't think too

many women have gone that route--mainly because you don't want your

regular doctor to do the surgery. I think it's OK to let your OB do

the hysteroscopy as long as you make absolutely certain that he/she

is not going to do anything else (surgery). In this case, you might

want to get a video of the hysteroscopy to send to an A-list doctor.

Or of course you could go directly to an A-list for diagnosis and

treatment. It will probably depend on your location and your

insurance.

To answer your other questions...My insurance (HMO) did cover my

surgery, but it was with an in-network doctor and it had to be

precertified. I think a lot of it depends on how it is billed i.e.

amenorrhea vs. infertility. Yes, I do blame the OB who did my D&C.

I came out of that procedure with no endometrium on the majority of

the walls. I asked her not to scrape, but she did anyway.

Please don't feel devastated--it's much too early for that! There

are countless members in this group who thought at one time or

another that it was hopeless, only to go on to a healthy pregnancy.

My husband always says that until someone tells us otherwise, we just

have to assume the best! Still, I know how hard it is to stay

positive all the time. Try to just take baby steps for now and not

think too much about the " what ifs " . Focus on getting a proper

diagnosis for now.

Best wishes to you Hope!

Haley

[Guest guest]

> Hi Hope,

>

> I don't think it's absolutely necessary to see an A-lister for an

HSg

> since it's a relatively low-risk procedure. I scheduled mine

through

> my regular ob-gyn and the HSG itself was conducted by a

radiologist.

> It took my results over a week to come in, but I know some women

have

> got the results much sooner.

>

>

> Here's my story:

>

> I got married in June 2002. We have no children. I'm thirty years

old

> (will be 31 in October). I went off birth control pills in July,

> conceived in August, but miscarried around my 5th week, which went

> naturally. We waited one cycle to TTC, and then got pregnant again

on

> our next try. Unfortunately, I discovered in my 11th week that the

> fetus had died in its 6th week, and I required a d & c, which I

had

> in my 12th week. I had the fetal tissue tested, and the tests

> revealed trisomy 16--a random chromosomal problem that in no way

> affected our future chances of a successful pregnancy.

>

> After my d & c, I switched doctors since I was upset that my old

> doctor wasn't interested in running further tests on me to check

that

> everything was ok and his office staff was rude and incompetent.

My

> new doctor ran tests and discovered I have Graves' Disease--an

> autoimmune disease that causes my thyroid to go nuts. Graves' can

> also cause miscarriages, so it may have played a role in my first

> loss.

>

> After my d & c, my period didn't show, so my new doctor gave me

> provera to bring it on. That didn't work, so she had me get an

HSG,

> which revealed scarring. My doctor was shocked that I had scarring

> from just one d & c. She admitted she was not experienced enough

to

> treat AS and so referred me to a local RE. However, I soon found

this

> web site and decided to see an A-list doctor instead of the RE,

and

> I'm so glad I did.

>

> Since my HSG, I have had two periods, so my cycle is back on

track.

> However, my most recent period was lighter than normal.

>

> I saw Dr. March a couple of weeks ago. He has treated

> hundreds of patients with AS and is very capable. We need to wait

> until my Graves' Disease is under control to do a hysteroscopy

since

> there's a very slight risk that I could die while undergoing

surgery,

> and that's not a risk either of us wanted to take. I hope to treat

my

> Graves' with radiation sometime in the next few weeks. If the

> radiation treatment is successful (there's a 90% chance that it

will

> be), then I should be able to have surgery in about three months

or

> so.

>

> Dr. March will do my surgery--either a hysteroscopy or a combined

> laparoscopy/hysteroscopy if the scarring extends to the higher

> portion of my uterus. It was unclear from the HSG how deep the

> scarring extended. I am praying that one surgery will do the

trick.

> After the surgery, I'll do a couple months of hormone treatments

to

> help my lining. The earliest I will be able to TTC is January

2004,

> since I need to wait 6 months after the radiation treatment to

> conceive.

>

> That's about it. Right now for me it's just a waiting game since

I've

> got at least three months before I can do anything about my AS.

So,

> I'm just trying to focus as much as I can on eating healthy,

working

> out, and trying to recover mentally emotionally from all that has

> happened this past year.

>

> I know how scary the possibility of having AS is, but there are

lots

> of success stories, so keep the faith!

>

> Take care,

>

> Terry M.

Terry,

Thanks again for your reply. My heart hurts for what you have been

going through over the past year. It appears that you have been

keeping the faith and you inspire me to hold on! I believe that

with God nothing is impossible and He hears our crys. I pray your

upcoming radiation treatments will go well. I am going to call my

doc. and see if I can get the HSG. Thanks and take care of you.

Hope

[Guest guest]

> Hi Hope,

> Welcome to the group! I really hope that you do have a bleed

after

> your course of estrogen but if not, you've find the right place

for

> support and information. I had a similar experience after a D&C

> except that my periods were just incredibly light.

>

> I wonder why your doctor wouldn't just schedule an SHG or HSG

right

> off the bat to check for scarring? It is possible to have AS

> diagnosed and treated all in one procedure, but I don't think too

> many women have gone that route--mainly because you don't want

your

> regular doctor to do the surgery. I think it's OK to let your OB

do

> the hysteroscopy as long as you make absolutely certain that

he/she

> is not going to do anything else (surgery). In this case, you

might

> want to get a video of the hysteroscopy to send to an A-list

doctor.

> Or of course you could go directly to an A-list for diagnosis and

> treatment. It will probably depend on your location and your

> insurance.

>

> To answer your other questions...My insurance (HMO) did cover my

> surgery, but it was with an in-network doctor and it had to be

> precertified. I think a lot of it depends on how it is billed

i.e.

> amenorrhea vs. infertility. Yes, I do blame the OB who did my

D&C.

> I came out of that procedure with no endometrium on the majority

of

> the walls. I asked her not to scrape, but she did anyway.

>

> Please don't feel devastated--it's much too early for that! There

> are countless members in this group who thought at one time or

> another that it was hopeless, only to go on to a healthy

pregnancy.

> My husband always says that until someone tells us otherwise, we

just

> have to assume the best! Still, I know how hard it is to stay

> positive all the time. Try to just take baby steps for now and

not

> think too much about the " what ifs " . Focus on getting a proper

> diagnosis for now.

>

> Best wishes to you Hope!

> Haley

Haley,

Thank you for your reply. I am going to ask my doc. to see if he

will go ahead and do SHG or HSG before I finish the estrogen. Great

advice about getting a video tape of test! Thanks for your words of

encouragement and advice. I have been tearful for the past couple of

days and it helps to know I am not alone. Thank you, Hope

[Guest guest]

> Hope,

> I think Tery M did a great job at answering your questions. I

just

> wanted to ask if the doctor you are going to now is the same

doctor

> who did the D&C. If the answer is yes, I would find another

doctor.

> If not, I had my HSG done in radiology by an OB/GYN. I had my

results

> immediately because the OB was right there doing the procedure.

After

> finding out that I did have AS, I then contacted an A list doctor

and

> have had 2 surgeries so far and am awaiting my 3rd one. Another

thing

> I want to add is that the doctor who does the HSG should also

> prescribe antibiotics to prevent infection which can make the

scarring

> worse. I know all of this can be really scary and the pressure to

go

> to another doctor is hard. When I was first diagnosed all I

wanted to

> do was get it fixed ASAP. I'm so happy that I found this group

and

> the list of doctors who will be able to give the most hope. Some

> people do have a tendency to scar easier than others but I think a

lot

> of the cases are caused by overly aggressive D&C's especially when

> done on a recently pregnant uterus. Infection can also cause AS.

> That is my own opinion and in the USA, it is very hard to prove

from a

> legal standpoint. You mentioned taking estrogen. Did your doctor

> prescribe that right after the D&C or is this because of not

getting

> your period? Hang in there and I'm sure you will get other

responses.

> You have found the right place and there are many members who have

> gone on to have a baby or are pregnant right now after having

their AS

> treated. Also I have an HMO and I was able to get out of network

> coverage for all of my surgeries so far.

> Roxie

Roxie, I was going to go to the same doctor, but I know of two other

doctors I could go to. This doctor first put me on progesterone and

then started me on estrogen 2 days ago to help me start. Do you

mean that the doctor should put me on an antibiotic after the test

or after the surgery? What kind of experience have you had with

your doctor and your surgeries? Hope

[Guest guest]

Dear Keri,

HAve they tried giving you a round of estrogen before giving you the Provera?

The two reasons for not having a period are that your estrogen is too low to

produce a lining to shed, or that you have mechanical abnormality(like sacr

tissue or an obstruction to flow).

WHen you said the ultrasound was normal, does that mean you had a triple pattern

or at least 5mm endometrial lining?? ANd what hormones have they measured??

WHy is he also doing a laparoscopy? WHy not just a hysteroscopy??

If the HSG is really normal.....

Perhaps another opinion with a different RE??

I must confess I am a little perplexed.

Once again, if your estrogen is too low, even with a normal uterus (without

Asherman's) you may not have withdrawal bleeding.

SO maybe they should do that before your surgery??

GOod Luck!

Hugs,

D.