Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 G'Morning I just wanted to drop a quick note to everyone and let you know how my latest appt went and if I happen to leave anything out or misunderstood anything Im hoping Ginny will correct it since she was there in the pain clinic with me. I saw the nurse practioner who took a look at my legs after I told her that I was having problems with swelling behind my knees, burning in my thighs and hips and in my lower legs...I lifted my pant legs and the mottling was incredible...she agreed that most likely it had spread to the lower extremities...how comforting. Anyway, I dont qualify for blocks for another 6 months so that was out of the question. My Dr is appealing the SCS since so much has changed in so little time. I am supposed to undergo a pysch eval and afterwards they will be switching me over to a duragesic patch since the percocet (a very low dose) isnt working. She kept my neurontin at its current level but mentioned something about switching to another one Topamax I think but I didnt quite follow her comments on that. All I know is that right now I dont even want to consider the impact this is having on my all over body at this point. I really dont want to have PT let alone have it for the lower legs too. I know I cant ignore it but a part of me really wants to. I am too sore all over at this point to want to deal but I am and no worries my spirits are up. I am working about 15-20hrs a week and as long as Im kept busy Im content, I certainly feel it but I know in my own mind I can leave anytime I want and that keeps me going. Well, the child will be up soon and I have a buch to do so I will talk to you all later! HUGS Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Donna - Sorry to hear things are spreading so quickly for you. At least it sounds as though your attitude is in the right place. Hang in there. TriciaDonna wrote: G'MorningI just wanted to drop a quick note to everyone and let you know how my latest appt went and if I happen to leave anything out or misunderstood anything Im hoping Ginny will correct it since she was there in the pain clinic with me. :)I saw the nurse practioner who took a look at my legs after I told her that I was having problems with swelling behind my knees, burning in my thighs and hips and in my lower legs...I lifted my pant legs and the mottling was incredible...she agreed that most likely it had spread to the lower extremities...how comforting. Anyway, I dont qualify for blocks for another 6 months so that was out of the question. My Dr is appealing the SCS since so much has changed in so little time.I am supposed to undergo a pysch eval and afterwards they will be switching me over to a duragesic patch since the percocet (a very low dose) isnt working. She kept my neurontin at its current level but mentioned something about switching to another one Topamax I think but I didnt quite follow her comments on that.All I know is that right now I dont even want to consider the impact this is having on my all over body at this point. I really dont want to have PT let alone have it for the lower legs too. I know I cant ignore it but a part of me really wants to. I am too sore all over at this point to want to deal but I am and no worries my spirits are up. I am working about 15-20hrs a week and as long as Im kept busy Im content, I certainly feel it but I know in my own mind I can leave anytime I want and that keeps me going.Well, the child will be up soon and I have a buch to do so I will talk to you all later!HUGSDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Realistically Tricia I have no choice but to keep my spirits up. If I wallow in it than it will destroy me. Ive been through so many emotions during this whole process that I feel like I live multiple lives. Any given day I could feel every emotion possible and it may very well drive a sane person insane..however you cant drive the insane sane can you? It just feels to me like Im starting all over again while Im still battling the first round. Oh well, its off to start the day. Talk to you soon! Donna > Donna - Sorry to hear things are spreading so quickly for you. At least it sounds as though your attitude is in the right place. Hang in there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Realistically Tricia I have no choice but to keep my spirits up. If I wallow in it than it will destroy me. Ive been through so many emotions during this whole process that I feel like I live multiple lives. Any given day I could feel every emotion possible and it may very well drive a sane person insane..however you cant drive the insane sane can you? It just feels to me like Im starting all over again while Im still battling the first round. Oh well, its off to start the day. Talk to you soon! Donna > Donna - Sorry to hear things are spreading so quickly for you. At least it sounds as though your attitude is in the right place. Hang in there. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Donna, you got it right..I didn't know what she meant when she mentioned topomax either..it sounded like they were going to either combine neurontin with it or something like that. She really didn't give much info on it..it was more like a passing comment or thought. I will call you when i get out of my drs apprt...Love ya ..Hugs..GinnyTricia Skiba wrote: Donna - Sorry to hear things are spreading so quickly for you. At least it sounds as though your attitude is in the right place. Hang in there. TriciaDonna wrote: G'MorningI just wanted to drop a quick note to everyone and let you know how my latest appt went and if I happen to leave anything out or misunderstood anything Im hoping Ginny will correct it since she was there in the pain clinic with me. :)I saw the nurse practioner who took a look at my legs after I told her that I was having problems with swelling behind my knees, burning in my thighs and hips and in my lower legs...I lifted my pant legs and the mottling was incredible...she agreed that most likely it had spread to the lower extremities...how comforting. Anyway, I dont qualify for blocks for another 6 months so that was out of the question. My Dr is appealing the SCS since so much has changed in so little time.I am supposed to undergo a pysch eval and afterwards they will be switching me over to a duragesic patch since the percocet (a very low dose) isnt working. She kept my neurontin at its current level but mentioned something about switching to another one Topamax I think but I didnt quite follow her comments on that.All I know is that right now I dont even want to consider the impact this is having on my all over body at this point. I really dont want to have PT let alone have it for the lower legs too. I know I cant ignore it but a part of me really wants to. I am too sore all over at this point to want to deal but I am and no worries my spirits are up. I am working about 15-20hrs a week and as long as Im kept busy Im content, I certainly feel it but I know in my own mind I can leave anytime I want and that keeps me going.Well, the child will be up soon and I have a buch to do so I will talk to you all later!HUGSDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Donna, you got it right..I didn't know what she meant when she mentioned topomax either..it sounded like they were going to either combine neurontin with it or something like that. She really didn't give much info on it..it was more like a passing comment or thought. I will call you when i get out of my drs apprt...Love ya ..Hugs..GinnyTricia Skiba wrote: Donna - Sorry to hear things are spreading so quickly for you. At least it sounds as though your attitude is in the right place. Hang in there. TriciaDonna wrote: G'MorningI just wanted to drop a quick note to everyone and let you know how my latest appt went and if I happen to leave anything out or misunderstood anything Im hoping Ginny will correct it since she was there in the pain clinic with me. :)I saw the nurse practioner who took a look at my legs after I told her that I was having problems with swelling behind my knees, burning in my thighs and hips and in my lower legs...I lifted my pant legs and the mottling was incredible...she agreed that most likely it had spread to the lower extremities...how comforting. Anyway, I dont qualify for blocks for another 6 months so that was out of the question. My Dr is appealing the SCS since so much has changed in so little time.I am supposed to undergo a pysch eval and afterwards they will be switching me over to a duragesic patch since the percocet (a very low dose) isnt working. She kept my neurontin at its current level but mentioned something about switching to another one Topamax I think but I didnt quite follow her comments on that.All I know is that right now I dont even want to consider the impact this is having on my all over body at this point. I really dont want to have PT let alone have it for the lower legs too. I know I cant ignore it but a part of me really wants to. I am too sore all over at this point to want to deal but I am and no worries my spirits are up. I am working about 15-20hrs a week and as long as Im kept busy Im content, I certainly feel it but I know in my own mind I can leave anytime I want and that keeps me going.Well, the child will be up soon and I have a buch to do so I will talk to you all later!HUGSDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Donna---Sorry that its spread to your legs, but I'm glad that your spirits are up. I hope that they will quickly work out a reasonable treatment plan for you soon. Take care......Donna wrote: G'MorningI just wanted to drop a quick note to everyone and let you know how my latest appt went and if I happen to leave anything out or misunderstood anything Im hoping Ginny will correct it since she was there in the pain clinic with me. :)I saw the nurse practioner who took a look at my legs after I told her that I was having problems with swelling behind my knees, burning in my thighs and hips and in my lower legs...I lifted my pant legs and the mottling was incredible...she agreed that most likely it had spread to the lower extremities...how comforting. Anyway, I dont qualify for blocks for another 6 months so that was out of the question. My Dr is appealing the SCS since so much has changed in so little time.I am supposed to undergo a pysch eval and afterwards they will be switching me over to a duragesic patch since the percocet (a very low dose) isnt working. She kept my neurontin at its current level but mentioned something about switching to another one Topamax I think but I didnt quite follow her comments on that.All I know is that right now I dont even want to consider the impact this is having on my all over body at this point. I really dont want to have PT let alone have it for the lower legs too. I know I cant ignore it but a part of me really wants to. I am too sore all over at this point to want to deal but I am and no worries my spirits are up. I am working about 15-20hrs a week and as long as Im kept busy Im content, I certainly feel it but I know in my own mind I can leave anytime I want and that keeps me going.Well, the child will be up soon and I have a buch to do so I will talk to you all later!HUGSDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Donna---Sorry that its spread to your legs, but I'm glad that your spirits are up. I hope that they will quickly work out a reasonable treatment plan for you soon. Take care......Donna wrote: G'MorningI just wanted to drop a quick note to everyone and let you know how my latest appt went and if I happen to leave anything out or misunderstood anything Im hoping Ginny will correct it since she was there in the pain clinic with me. :)I saw the nurse practioner who took a look at my legs after I told her that I was having problems with swelling behind my knees, burning in my thighs and hips and in my lower legs...I lifted my pant legs and the mottling was incredible...she agreed that most likely it had spread to the lower extremities...how comforting. Anyway, I dont qualify for blocks for another 6 months so that was out of the question. My Dr is appealing the SCS since so much has changed in so little time.I am supposed to undergo a pysch eval and afterwards they will be switching me over to a duragesic patch since the percocet (a very low dose) isnt working. She kept my neurontin at its current level but mentioned something about switching to another one Topamax I think but I didnt quite follow her comments on that.All I know is that right now I dont even want to consider the impact this is having on my all over body at this point. I really dont want to have PT let alone have it for the lower legs too. I know I cant ignore it but a part of me really wants to. I am too sore all over at this point to want to deal but I am and no worries my spirits are up. I am working about 15-20hrs a week and as long as Im kept busy Im content, I certainly feel it but I know in my own mind I can leave anytime I want and that keeps me going.Well, the child will be up soon and I have a buch to do so I will talk to you all later!HUGSDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Donna, So sorry that it's spreading so fast. Keep up the good fight. Luv Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Donna, Please know that I am thinking of you constantly and wish nothing but the best for you. Please do not over do it, because I do not want to see you get sick for the Holidays! I know that you do a lot with your family and want you to have a great time. I hope that something can be worked out with getting you an SCS! This would most likely help you a lot and it makes me crazy when they make you wait and your illness becomes more affected by there neglect! Well I am feeling it today, because of all the running around with my Mom and Holly! I hope to talk to you real soon and right now going to try and take a short nap. Emma and Holly are out like a light right now and before they want supper think its a good time to take one also! LOL and Best Wishes to you and your family! Hope to hear from you soon and glad to see that your spirits are up after all you are going through! Dawn Donna wrote: G'MorningI just wanted to drop a quick note to everyone and let you know how my latest appt went and if I happen to leave anything out or misunderstood anything Im hoping Ginny will correct it since she was there in the pain clinic with me. :)I saw the nurse practioner who took a look at my legs after I told her that I was having problems with swelling behind my knees, burning in my thighs and hips and in my lower legs...I lifted my pant legs and the mottling was incredible...she agreed that most likely it had spread to the lower extremities...how comforting. Anyway, I dont qualify for blocks for another 6 months so that was out of the question. My Dr is appealing the SCS since so much has changed in so little time.I am supposed to undergo a pysch eval and afterwards they will be switching me over to a duragesic patch since the percocet (a very low dose) isnt working. She kept my neurontin at its current level but mentioned something about switching to another one Topamax I think but I didnt quite follow her comments on that.All I know is that right now I dont even want to consider the impact this is having on my all over body at this point. I really dont want to have PT let alone have it for the lower legs too. I know I cant ignore it but a part of me really wants to. I am too sore all over at this point to want to deal but I am and no worries my spirits are up. I am working about 15-20hrs a week and as long as Im kept busy Im content, I certainly feel it but I know in my own mind I can leave anytime I want and that keeps me going.Well, the child will be up soon and I have a buch to do so I will talk to you all later!HUGSDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Donna, Please know that I am thinking of you constantly and wish nothing but the best for you. Please do not over do it, because I do not want to see you get sick for the Holidays! I know that you do a lot with your family and want you to have a great time. I hope that something can be worked out with getting you an SCS! This would most likely help you a lot and it makes me crazy when they make you wait and your illness becomes more affected by there neglect! Well I am feeling it today, because of all the running around with my Mom and Holly! I hope to talk to you real soon and right now going to try and take a short nap. Emma and Holly are out like a light right now and before they want supper think its a good time to take one also! LOL and Best Wishes to you and your family! Hope to hear from you soon and glad to see that your spirits are up after all you are going through! Dawn Donna wrote: G'MorningI just wanted to drop a quick note to everyone and let you know how my latest appt went and if I happen to leave anything out or misunderstood anything Im hoping Ginny will correct it since she was there in the pain clinic with me. :)I saw the nurse practioner who took a look at my legs after I told her that I was having problems with swelling behind my knees, burning in my thighs and hips and in my lower legs...I lifted my pant legs and the mottling was incredible...she agreed that most likely it had spread to the lower extremities...how comforting. Anyway, I dont qualify for blocks for another 6 months so that was out of the question. My Dr is appealing the SCS since so much has changed in so little time.I am supposed to undergo a pysch eval and afterwards they will be switching me over to a duragesic patch since the percocet (a very low dose) isnt working. She kept my neurontin at its current level but mentioned something about switching to another one Topamax I think but I didnt quite follow her comments on that.All I know is that right now I dont even want to consider the impact this is having on my all over body at this point. I really dont want to have PT let alone have it for the lower legs too. I know I cant ignore it but a part of me really wants to. I am too sore all over at this point to want to deal but I am and no worries my spirits are up. I am working about 15-20hrs a week and as long as Im kept busy Im content, I certainly feel it but I know in my own mind I can leave anytime I want and that keeps me going.Well, the child will be up soon and I have a buch to do so I will talk to you all later!HUGSDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2004 Report Share Posted December 16, 2004 Donna, Please know that I am thinking of you constantly and wish nothing but the best for you. Please do not over do it, because I do not want to see you get sick for the Holidays! I know that you do a lot with your family and want you to have a great time. I hope that something can be worked out with getting you an SCS! This would most likely help you a lot and it makes me crazy when they make you wait and your illness becomes more affected by there neglect! Well I am feeling it today, because of all the running around with my Mom and Holly! I hope to talk to you real soon and right now going to try and take a short nap. Emma and Holly are out like a light right now and before they want supper think its a good time to take one also! LOL and Best Wishes to you and your family! Hope to hear from you soon and glad to see that your spirits are up after all you are going through! Dawn Donna wrote: G'MorningI just wanted to drop a quick note to everyone and let you know how my latest appt went and if I happen to leave anything out or misunderstood anything Im hoping Ginny will correct it since she was there in the pain clinic with me. :)I saw the nurse practioner who took a look at my legs after I told her that I was having problems with swelling behind my knees, burning in my thighs and hips and in my lower legs...I lifted my pant legs and the mottling was incredible...she agreed that most likely it had spread to the lower extremities...how comforting. Anyway, I dont qualify for blocks for another 6 months so that was out of the question. My Dr is appealing the SCS since so much has changed in so little time.I am supposed to undergo a pysch eval and afterwards they will be switching me over to a duragesic patch since the percocet (a very low dose) isnt working. She kept my neurontin at its current level but mentioned something about switching to another one Topamax I think but I didnt quite follow her comments on that.All I know is that right now I dont even want to consider the impact this is having on my all over body at this point. I really dont want to have PT let alone have it for the lower legs too. I know I cant ignore it but a part of me really wants to. I am too sore all over at this point to want to deal but I am and no worries my spirits are up. I am working about 15-20hrs a week and as long as Im kept busy Im content, I certainly feel it but I know in my own mind I can leave anytime I want and that keeps me going.Well, the child will be up soon and I have a buch to do so I will talk to you all later!HUGSDonna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Thanks , Im in good spirits, it bothers me and my legs aches alot more but best I figure, I cant change the current issues so why get too worked up. Im at work and being kept busy a few hrs a day and still mainting activities afterwards, so til that changes Im not going to let it get to me too much. Hugs Donna > Donna---Sorry that its spread to your legs, but I'm glad that your spirits are up. I hope that they will quickly work out a reasonable treatment plan for you soon. Take care...... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Thanks , Im in good spirits, it bothers me and my legs aches alot more but best I figure, I cant change the current issues so why get too worked up. Im at work and being kept busy a few hrs a day and still mainting activities afterwards, so til that changes Im not going to let it get to me too much. Hugs Donna > Donna---Sorry that its spread to your legs, but I'm glad that your spirits are up. I hope that they will quickly work out a reasonable treatment plan for you soon. Take care...... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 > > G'Morning > I just wanted to drop a quick note to everyone and let you know how > my latest appt went and if I happen to leave anything out or > misunderstood anything Im hoping Ginny will correct it since she was > there in the pain clinic with me. > > I saw the nurse practioner who took a look at my legs after I told > her that I was having problems with swelling behind my knees, burning > in my thighs and hips and in my lower legs...I lifted my pant legs > and the mottling was incredible...she agreed that most likely it had > spread to the lower extremities...how comforting. Anyway, I dont > qualify for blocks for another 6 months so that was out of the > question. My Dr is appealing the SCS since so much has changed in so > little time. > I am supposed to undergo a pysch eval and afterwards they will be > switching me over to a duragesic patch since the percocet (a very low > dose) isnt working. She kept my neurontin at its current level but > mentioned something about switching to another one Topamax I think > but I didnt quite follow her comments on that. > All I know is that right now I dont even want to consider the impact > this is having on my all over body at this point. I really dont want > to have PT let alone have it for the lower legs too. I know I cant > ignore it but a part of me really wants to. I am too sore all over at > this point to want to deal but I am and no worries my spirits are up. > I am working about 15-20hrs a week and as long as Im kept busy Im > content, I certainly feel it but I know in my own mind I can leave > anytime I want and that keeps me going. > Well, the child will be up soon and I have a buch to do so I will > talk to you all later! > > HUGS > Donna > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 > > G'Morning > I just wanted to drop a quick note to everyone and let you know how > my latest appt went and if I happen to leave anything out or > misunderstood anything Im hoping Ginny will correct it since she was > there in the pain clinic with me. > > I saw the nurse practioner who took a look at my legs after I told > her that I was having problems with swelling behind my knees, burning > in my thighs and hips and in my lower legs...I lifted my pant legs > and the mottling was incredible...she agreed that most likely it had > spread to the lower extremities...how comforting. Anyway, I dont > qualify for blocks for another 6 months so that was out of the > question. My Dr is appealing the SCS since so much has changed in so > little time. > I am supposed to undergo a pysch eval and afterwards they will be > switching me over to a duragesic patch since the percocet (a very low > dose) isnt working. She kept my neurontin at its current level but > mentioned something about switching to another one Topamax I think > but I didnt quite follow her comments on that. > All I know is that right now I dont even want to consider the impact > this is having on my all over body at this point. I really dont want > to have PT let alone have it for the lower legs too. I know I cant > ignore it but a part of me really wants to. I am too sore all over at > this point to want to deal but I am and no worries my spirits are up. > I am working about 15-20hrs a week and as long as Im kept busy Im > content, I certainly feel it but I know in my own mind I can leave > anytime I want and that keeps me going. > Well, the child will be up soon and I have a buch to do so I will > talk to you all later! > > HUGS > Donna > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 > > G'Morning > I just wanted to drop a quick note to everyone and let you know how > my latest appt went and if I happen to leave anything out or > misunderstood anything Im hoping Ginny will correct it since she was > there in the pain clinic with me. > > I saw the nurse practioner who took a look at my legs after I told > her that I was having problems with swelling behind my knees, burning > in my thighs and hips and in my lower legs...I lifted my pant legs > and the mottling was incredible...she agreed that most likely it had > spread to the lower extremities...how comforting. Anyway, I dont > qualify for blocks for another 6 months so that was out of the > question. My Dr is appealing the SCS since so much has changed in so > little time. > I am supposed to undergo a pysch eval and afterwards they will be > switching me over to a duragesic patch since the percocet (a very low > dose) isnt working. She kept my neurontin at its current level but > mentioned something about switching to another one Topamax I think > but I didnt quite follow her comments on that. > All I know is that right now I dont even want to consider the impact > this is having on my all over body at this point. I really dont want > to have PT let alone have it for the lower legs too. I know I cant > ignore it but a part of me really wants to. I am too sore all over at > this point to want to deal but I am and no worries my spirits are up. > I am working about 15-20hrs a week and as long as Im kept busy Im > content, I certainly feel it but I know in my own mind I can leave > anytime I want and that keeps me going. > Well, the child will be up soon and I have a buch to do so I will > talk to you all later! > > HUGS > Donna > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 No worries Laurie. Im a tough little fighter LOL Hugs Donna > So sorry that it's spreading so fast. Keep up the good fight. > Luv Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 No worries Laurie. Im a tough little fighter LOL Hugs Donna > So sorry that it's spreading so fast. Keep up the good fight. > Luv Laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Donna, So thrilled that you are going to the concert tonight! Relax as much as you can today and hope that you have a great and enjoyable time tonight! Glad you and Ginny went to lunch yesterday! At least you were able to relax for a moment! Please continue to be careful at work and home and get some much needed rest! I worry about you and do not want to hear anymore bad news! LOL and Best Wishes Always!!! DawnDonna wrote: > > G'Morning> I just wanted to drop a quick note to everyone and let you know how > my latest appt went and if I happen to leave anything out or > misunderstood anything Im hoping Ginny will correct it since she was > there in the pain clinic with me. > > I saw the nurse practioner who took a look at my legs after I told > her that I was having problems with swelling behind my knees, burning > in my thighs and hips and in my lower legs...I lifted my pant legs > and the mottling was incredible...she agreed that most likely it had > spread to the lower extremities...how comforting. Anyway, I dont > qualify for blocks for another 6 months so that was out of the > question. My Dr is appealing the SCS since so much has changed in so > little time.> I am supposed to undergo a pysch eval and afterwards they will be > switching me over to a duragesic patch since the percocet (a very low > dose) isnt working. She kept my neurontin at its current level but > mentioned something about switching to another one Topamax I think > but I didnt quite follow her comments on that.> All I know is that right now I dont even want to consider the impact > this is having on my all over body at this point. I really dont want > to have PT let alone have it for the lower legs too. I know I cant > ignore it but a part of me really wants to. I am too sore all over at > this point to want to deal but I am and no worries my spirits are up. > I am working about 15-20hrs a week and as long as Im kept busy Im > content, I certainly feel it but I know in my own mind I can leave > anytime I want and that keeps me going.> Well, the child will be up soon and I have a buch to do so I will > talk to you all later!> > HUGS> Donna> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Donna, So thrilled that you are going to the concert tonight! Relax as much as you can today and hope that you have a great and enjoyable time tonight! Glad you and Ginny went to lunch yesterday! At least you were able to relax for a moment! Please continue to be careful at work and home and get some much needed rest! I worry about you and do not want to hear anymore bad news! LOL and Best Wishes Always!!! DawnDonna wrote: > > G'Morning> I just wanted to drop a quick note to everyone and let you know how > my latest appt went and if I happen to leave anything out or > misunderstood anything Im hoping Ginny will correct it since she was > there in the pain clinic with me. > > I saw the nurse practioner who took a look at my legs after I told > her that I was having problems with swelling behind my knees, burning > in my thighs and hips and in my lower legs...I lifted my pant legs > and the mottling was incredible...she agreed that most likely it had > spread to the lower extremities...how comforting. Anyway, I dont > qualify for blocks for another 6 months so that was out of the > question. My Dr is appealing the SCS since so much has changed in so > little time.> I am supposed to undergo a pysch eval and afterwards they will be > switching me over to a duragesic patch since the percocet (a very low > dose) isnt working. She kept my neurontin at its current level but > mentioned something about switching to another one Topamax I think > but I didnt quite follow her comments on that.> All I know is that right now I dont even want to consider the impact > this is having on my all over body at this point. I really dont want > to have PT let alone have it for the lower legs too. I know I cant > ignore it but a part of me really wants to. I am too sore all over at > this point to want to deal but I am and no worries my spirits are up. > I am working about 15-20hrs a week and as long as Im kept busy Im > content, I certainly feel it but I know in my own mind I can leave > anytime I want and that keeps me going.> Well, the child will be up soon and I have a buch to do so I will > talk to you all later!> > HUGS> Donna> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Donna, I agree with Dawn. Don't try and do much at all at home the days you worked. When I was still working full time, I would of course not do much, mainly because I was in so much pain, a lot of times in tears, I would take my pain medication and try to rest. I really am amazed and proud of those that can still work after they get this monster. That is why I am concerned for you, because I didn't know what I had I kept pushing my left leg until the day it said NO when I was getting ready for work. I hope you have a restful weekend. Lin Donna, So thrilled that you are going to the concert tonight! Relax as much as you can today and hope that you have a great and enjoyable time tonight! Glad you and Ginny went to lunch yesterday! At least you were able to relax for a moment! Please continue to be careful at work and home and get some much needed rest! I worry about you and do not want to hear anymore bad news! LOL and Best Wishes Always!!! Dawn No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.296 / Virus Database: 265.5.4 - Release Date: 12/15/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Donna, I agree with Dawn. Don't try and do much at all at home the days you worked. When I was still working full time, I would of course not do much, mainly because I was in so much pain, a lot of times in tears, I would take my pain medication and try to rest. I really am amazed and proud of those that can still work after they get this monster. That is why I am concerned for you, because I didn't know what I had I kept pushing my left leg until the day it said NO when I was getting ready for work. I hope you have a restful weekend. Lin Donna, So thrilled that you are going to the concert tonight! Relax as much as you can today and hope that you have a great and enjoyable time tonight! Glad you and Ginny went to lunch yesterday! At least you were able to relax for a moment! Please continue to be careful at work and home and get some much needed rest! I worry about you and do not want to hear anymore bad news! LOL and Best Wishes Always!!! Dawn No virus found in this outgoing message. Checked by AVG Anti-Virus. Version: 7.0.296 / Virus Database: 265.5.4 - Release Date: 12/15/2004 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Donna, I just want to say ditto what Dawn says. I also want to emphasize the word rest. Believe me if you push your body, it will one day push back hard. After I got this no one knew what it was until I found my doctor.There were some days that I would be driving my 45 minute drive in tears, I would come home and take 2 of my vicoden and lay down with my feet elevated I worked full time for 6 months, only missing work for appointments. Then one day I was getting ready for work, my left leg was swollen and hurting so bad that I stayed home and here I am 13 months and waiting for SSDI, the problem with me going back to work other than the fact that if I have to do anything that requires a lot of focus, I can only do it for about 10 minutes before I get so sleepy and dizzy that I have to take my medication for dizziness it begins with a M I can't remember the name, oh now there is a shock. I really hope that this works out for you, my prayers are with you, I sometimes think if I had known earlier I could of gone down to part time and may have been able to work longer. Have a great weekend. Lin -- Re: Re: Quick update Donna, So thrilled that you are going to the concert tonight! Relax as much as you can today and hope that you have a great and enjoyable time tonight! Glad you and Ginny went to lunch yesterday! At least you were able to relax for a moment! Please continue to be careful at work and home and get some much needed rest! I worry about you and do not want to hear anymore bad news! LOL and Best Wishes Always!!! DawnDonna wrote: > > G'Morning> I just wanted to drop a quick note to everyone and let you know how > my latest appt went and if I happen to leave anything out or > misunderstood anything Im hoping Ginny will correct it since she was > there in the pain clinic with me. > > I saw the nurse practioner who took a look at my legs after I told > her that I was having problems with swelling behind my knees, burning > in my thighs and hips and in my lower legs...I lifted my pant legs > and the mottling was incredible...she agreed that most likely it had > spread to the lower extremities...how comforting. Anyway, I dont > qualify for blocks for another 6 months so that was out of the > question. My Dr is appealing the SCS since so much has changed in so > little time.> I am supposed to undergo a pysch eval and afterwards they will be > switching me over to a duragesic patch since the percocet (a very low > dose) isnt working. She kept my neurontin at its current level but > mentioned something about switching to another one Topamax I think > but I didnt quite follow her comments on that.> All I know is that right now I dont even want to consider the impact > this is having on my all over body at this point. I really dont want > to have PT let alone have it for the lower legs too. I know I cant > ignore it but a part of me really wants to. I am too sore all over at > this point to want to deal but I am and no worries my spirits are up. > I am working about 15-20hrs a week and as long as Im kept busy Im > content, I certainly feel it but I know in my own mind I can leave > anytime I want and that keeps me going.> Well, the child will be up soon and I have a buch to do so I will > talk to you all later!> > HUGS> Donna> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Donna, I just want to say ditto what Dawn says. I also want to emphasize the word rest. Believe me if you push your body, it will one day push back hard. After I got this no one knew what it was until I found my doctor.There were some days that I would be driving my 45 minute drive in tears, I would come home and take 2 of my vicoden and lay down with my feet elevated I worked full time for 6 months, only missing work for appointments. Then one day I was getting ready for work, my left leg was swollen and hurting so bad that I stayed home and here I am 13 months and waiting for SSDI, the problem with me going back to work other than the fact that if I have to do anything that requires a lot of focus, I can only do it for about 10 minutes before I get so sleepy and dizzy that I have to take my medication for dizziness it begins with a M I can't remember the name, oh now there is a shock. I really hope that this works out for you, my prayers are with you, I sometimes think if I had known earlier I could of gone down to part time and may have been able to work longer. Have a great weekend. Lin -- Re: Re: Quick update Donna, So thrilled that you are going to the concert tonight! Relax as much as you can today and hope that you have a great and enjoyable time tonight! Glad you and Ginny went to lunch yesterday! At least you were able to relax for a moment! Please continue to be careful at work and home and get some much needed rest! I worry about you and do not want to hear anymore bad news! LOL and Best Wishes Always!!! DawnDonna wrote: > > G'Morning> I just wanted to drop a quick note to everyone and let you know how > my latest appt went and if I happen to leave anything out or > misunderstood anything Im hoping Ginny will correct it since she was > there in the pain clinic with me. > > I saw the nurse practioner who took a look at my legs after I told > her that I was having problems with swelling behind my knees, burning > in my thighs and hips and in my lower legs...I lifted my pant legs > and the mottling was incredible...she agreed that most likely it had > spread to the lower extremities...how comforting. Anyway, I dont > qualify for blocks for another 6 months so that was out of the > question. My Dr is appealing the SCS since so much has changed in so > little time.> I am supposed to undergo a pysch eval and afterwards they will be > switching me over to a duragesic patch since the percocet (a very low > dose) isnt working. She kept my neurontin at its current level but > mentioned something about switching to another one Topamax I think > but I didnt quite follow her comments on that.> All I know is that right now I dont even want to consider the impact > this is having on my all over body at this point. I really dont want > to have PT let alone have it for the lower legs too. I know I cant > ignore it but a part of me really wants to. I am too sore all over at > this point to want to deal but I am and no worries my spirits are up. > I am working about 15-20hrs a week and as long as Im kept busy Im > content, I certainly feel it but I know in my own mind I can leave > anytime I want and that keeps me going.> Well, the child will be up soon and I have a buch to do so I will > talk to you all later!> > HUGS> Donna> > > > > > Quote Link to comment Share on other sites More sharing options...
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