questions

[Guest guest]

Hi Aletta,

See my replies below.

questions

> Just some basics, if you can.

>

> does MSA always have a Parkinsonian component?

NO, it usually always has an autonomic component though and sometimes it has

a cerebellar ataxia component.

See: http://www.parkinson.org/atrophy.htm

> is there a specific pattern in which MSA progresses - slow at first etc?

NO, everyone is different in their pattern.

> I'm finding myself steadily losing ground and have not recovered any lost

> abilities - can I still think there may be improvements?

Depends on whether you have MSA or something else. There is no cure for MSA

but exercise and speech and physical therapy can help maintain current

function.

> with a new doctor and with no solid working diagnosis, what should I ask

for

> by way of treatment, tests, living aids?

It can take several years to diagnose MSA as doctors need to observe the

progression of symptoms over time. A tilt table test and other autonomic

function tests can point to MSA. Sometimes(but not always) an MRI scan can

detect cerebellar atrophy which is often part of MSA.

> thanks

>

> aletta mes, vancouver, bc canada

>

> website: http://aletta.0catch.com or http://www.aletta.0catch.com

Take care,

Pam

Halifax, NS Canada

[Guest guest]

Aletta

does MSA always have a Parkinsonian component? No, many

people do not have PD symptoms - even after 20 years.

is there a specific pattern in which MSA progresses - slow at first

etc? NO, but if you have the OPCA form, walking usually becomes

a problem by the 5th year.

I'm finding myself steadily losing ground and have not recovered

any lost

abilities - can I still think there may be improvements? Probably

with Exercise and therapy, Charlotte has had MSA for over 11 years

and is getting some movement back after her recent bout with infection.

Since you are not diagnosed as MSA, you may be able to gain back even more.

with a new doctor and with no solid working diagnosis, what should

I ask for

by way of treatment, tests, living aids?

I would only discuss my most pressing symptoms. If you don't volunteer

a lot, the doctor will usually ask questions which may lead them to the

best diagnoses. Tests and living aids should be brought forth by

the doctor until you have a good working relationship with the doctor.

Take care, Bill and Charlotte

====================

aletta mes wrote:

Just some basics, if you can.

does MSA always have a Parkinsonian component?

is there a specific pattern in which MSA progresses - slow at first

etc?

I'm finding myself steadily losing ground and have not recovered any

lost

abilities - can I still think there may be improvements?

with a new doctor and with no solid working diagnosis, what should I

ask for

by way of treatment, tests, living aids?

thanks

aletta mes, vancouver, bc canada

website: http://aletta.0catch.com

or http://www.aletta.0catch.com

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[Guest guest]

Being new, I'm trying to figure out what NADA stands for? Any other

abbreviations I should know?

Thanks!

[Guest guest]

Nada is Not-a as in not-a-mother. Fada would be not a father. I think there is

a list of terms somewhere on the site. Dishrag is a parent who doesn't stand up

to the bpd parent. KO is " kid of " as in child of a bpd parent. Flying monkeys

are people used by the bpd to attack someone indirectly--often by communicating

guilt messages. Fleas are bad habits you've picked up from a bpd parent.

I think those are the ones I see on here most commonly.

Welcome!

Ashana

[Guest guest]

At 09:46 PM 08/07/2012 kheod8 wrote:

>Being new, I'm trying to figure out what NADA stands for? Any

>other abbreviations I should know?

If you sign up to receive posts via e-mail, one of the messages

you get after signing up is a list of abbrievations. If you read

the posts via the yahoogroups web interface, I believe there's a

listing of abbrieviations there too. Here's a copy of the list I

got when I joined. (Some of these are abbrieviations I can't

ever remember seeing used but I think most of the ones we do use

are here.)

--------------------------------------------------------------------------------\

------

Section 8 of the WTO Guidelines: ABBREVIATIONS

Over the years the WTO groups have accumulated a list of

abbreviations and their own vernacular. Words commonly used

include the following. These are from the Guidelines which are

posted to all the WelcomeToOz lists at the beginning of each

month.

BP: person in your life who has BPD or whom YOU THINK has BPD

traits.

BPD: Borderline Personality Disorder.

BPSO: BP Significant Other. XBPSO=Ex BPSO (this has many

variations).

DBT: Dialectic Behavioral Therapy, a cognitive-behavioral

therapy

that has been successful in the treatment of BPD. Also see

'Therapies'

at www.BPDCentral.com website.

DEAR: Communication technique used to set limits and ask for

things.

See at www.BPDCentral.com (press 'Library').

Defense Mechanisms: projection, denial, splitting, and

rationalization.

Distortion campaign: a deliberate attempt by someone to smear

your

name because they have split you as all bad. They feel

justified and

may tell lies or truly believe their distortions. May or

may not

involve the law.

DSM-IV: Diagnostic and Statistical Manual, edition 4, published

by the

American Psychiatric Association. Used for diagnostic and

insurance

purposes.

Fada: Used by some of the NonBP adult children of BPDs on the

Oasis

lists to refer to their BP father who was not-a-father in

the true

sense of the word.

Fleas: Unhealthy behavioral reactions learned while living with

a BP.

FOG: Fear, Obligation and Guilt, which make you susceptible to

emotional blackmail.

FOO: Family Of Origin (includes one's original mother, father,

and

other children).

HF: High functioning.

Hoovered: after the vacuum cleaner, to be sucked back into the

relationship for another ride on the BPD rollercoaster.

Intermittent reinforcement: when good outcomes happen on an

unpredictable schedule, thereby reinforcing (ie, rewarding)

behavior.

Examples: when the BP sometimes acts 'normal', when you

sometimes

don't observe limits (this is rewarding to the BP).

KO: Kid Of [a BP].

L & L: The booklet titled " Love and Loathing " .

Lasagna therapy: A type of therapy whereby lasagna is dumped

over the

head of a BP who constantly criticizes the way one eats--so

much so

one won't eat with the family anymore. Salad dumping in the

lap is an

adjunct part of this therapy. Currently under double-blind

test trials

at several prestigious universities.

LF: Low functioning.

Light Bulb Effect: the realization that you're not crazy and BPD

may

explain the other person's behavior.

LOL: Laughing Out Loud.

Mirroring: Not absorbing the BP's projections and reflecting

them back

to the BP.

Nada: Used by some of the NonBP adult offspring of BPDs on the

'Oasis'

lists to refer to their BP mother who was not-a-mother in

the true

sense of the word.

NPD: Narcissistic Personality Disorder.

NonBP: Person who is affected by someone else's BPD -- eg, you

and

your family.

OCD: Obsessive Compulsive Disorder.

Oz: the " Twilight Zone " feeling of not knowing what is real

because of

the BP's distortions.

PAS: Parental Alienation Syndrome: When a parent deliberately

and

repeatedly makes the other parent the " bad guy " and the

child believes

the accusations (such as " Daddy doesn't love you. " ) A form

of child

abuse.

Projection: When a person denies certain feelings by attributing

them

to someone else.

PUVAS and DEAR: Communication techniques you can download at the

www.BPDCentral.com library. DEAR is about setting personal

limits and

PUVAS is about ONE of the communication techniques you can

use to

communicate with BPs. Other techniques in SWOE are defusing

and

walking away.

Rationalization: Good-sounding reasons but not necessarily

truthful.

ROFL: Rolling on the floor laughing.

SO: Significant Other.

Splitting: Black and white thinking, practiced by both Nons and

BPs.

Sponging: Absorbing the BP's projections and bad feelings. (See

" mirroring " )

STB-ex: Soon-to-be ex [husband, wife, or SO]

SWOE: The book " Stop Walking on Eggshells. "

SWOEW: The workbook to SWOE.

Trigger: not a horse, but something that takes a person back to

an

earlier trauma. They respond to the current situation and

also relive

the past one. For example, a BP's criticism about your

clothes

triggers you because your father did the same thing.

UBM: Book titled " Understanding The Borderline Mother " by

Ann

Lawson.

--

Katrina