Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 hi everyone-- well for about the first year i dealt with vulvar pain, i was convinced it was some sort of yeast infection. i wasn't aware that other things could cause this type of pain and suffered from chronic yeast problems in the past. at a certain point it occurred to me that my pain was totally localized to the back half of my vestibule, primarily on the left side. i don't have any pain internally or in my labia. i came to the conclusion that an infection would not cause localized symptoms. do others agree with this conclusion? i mean an infection generally takes over the entire area, at least when i've had yeast/bv in the past i have symptoms interally, in the hair, labia, everywhere. i guess i am also confused about my diagnosis....the diagnosis i have is dyesthetic vulvodynia, however, my pain like i said is only in certain parts of the vestibule, and from what i've read women with vulvodynia have more generalized pain. any thoughts? julie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 ,I think you might be on the right tract pursuing something other than yeast. Too many of us (I was one of these in the beginning) are convinced its yeast because it burns like yeast - it reddens like yeast , so it must be yeast and the docs just can't find it. More often than I'd care to count, I have heard women on this list find out that the pain isn't yeast (as I did) but something else entirely.Localised pain can be(and was in my case) a clear sign that there is nerve damage from the low back or in the pelvic area. I saw a pt who specialized in pelvic floor issues for 8 months and cleared up that localized pain. I had my hormones and thyroid checked and found there were imbalances and got medicated for these imbalances.I had testing done (including biopsy of vluva) to rule out sexually transmitted diseases.I also had the good advice to start an antihistamine nightly, which further helped me out, and I kept a food/drink/med and activity log daily, on which I also recorded my pain level. If my pain level rose on ,say, today then went back down and didn't rise again to that level for another two weeks, I compared those days in terms of what I ingested and what activity I engaged in and looked for similarity. I was able to nail down a number of things I needed to avoid by doing this.I also added the Danactive which has seemed to improve my general health as well as clear up the last of the nagging redness and vulvar irritation.I will look in my vast collection of info to see if I can find the website which shows the nerves/muscles of the pelvic floor and how they relate to the legs , low back and vulva. Interestingly, I accidently found one of the horribly painful spots for me quite by accident. I was having abdominal cramps (period) and was pushing down on the heating pad to try and get more heat to the pubic area. Much to my suprise I jumped in pain when pressing on the area just slightly above the hairline on the lower tummy. Turns out this area has a bunch of tendon/nerve/muscle tissue which hold some of our parts in place inside and this was rigid and very painful to the touch for me. Eventually the therapy relaxed that dramatically as well as a number of other spots too.femifesto wrote: hi everyone--well for about the first year i dealt with vulvar pain, i wasconvinced it was some sort of yeast infection. i wasn't aware thatother things could cause this type of pain and suffered from chronicyeast problems in the past. at a certain point it occurred to me that my pain was totallylocalized to the back half of my vestibule, primarily on the leftside. i don't have any pain internally or in my labia. i came to theconclusion that an infection would not cause localized symptoms. doothers agree with this conclusion? i mean an infection generally takesover the entire area, at least when i've had yeast/bv in the past ihave symptoms interally, in the hair, labia, everywhere. i guess i am also confused about my diagnosis....the diagnosis i haveis dyesthetic vulvodynia, however, my pain like i said is only incertain parts of the vestibule, and from what i've read women withvulvodynia have more generalized pain. any thoughts? julie**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, Thanks for your cooperation! ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Jule, I forgot to add to the bottom of this that I, too, am diagnosed with dys. vulvodyina and mild left side vestibulitis.Anonymous wrote: ,I think you might be on the right tract pursuing something other than yeast. Too many of us (I was one of these in the beginning) are convinced its yeast because it burns like yeast - it reddens like yeast , so it must be yeast and the docs just can't find it. More often than I'd care to count, I have heard women on this list find out that the pain isn't yeast (as I did) but something else entirely.Localised pain can be(and was in my case) a clear sign that there is nerve damage from the low back or in the pelvic area. I saw a pt who specialized in pelvic floor issues for 8 months and cleared up that localized pain. I had my hormones and thyroid checked and found there were imbalances and got medicated for these imbalances.I had testing done (including biopsy of vluva) to rule out sexually transmitted diseases.I also had the good advice to start an antihistamine nightly, which further helped me out, and I kept a food/drink/med and activity log daily, on which I also recorded my pain level. If my pain level rose on ,say, today then went back down and didn't rise again to that level for another two weeks, I compared those days in terms of what I ingested and what activity I engaged in and looked for similarity. I was able to nail down a number of things I needed to avoid by doing this.I also added the Danactive which has seemed to improve my general health as well as clear up the last of the nagging redness and vulvar irritation.I will look in my vast collection of info to see if I can find the website which shows the nerves/muscles of the pelvic floor and how they relate to the legs , low back and vulva. Interestingly, I accidently found one of the horribly painful spots for me quite by accident. I was having abdominal cramps (period) and was pushing down on the heating pad to try and get more heat to the pubic area. Much to my suprise I jumped in pain when pressing on the area just slightly above the hairline on the lower tummy. Turns out this area has a bunch of tendon/nerve/muscle tissue which hold some of our parts in place inside and this was rigid and very painful to the touch for me. Eventually the therapy relaxed that dramatically as well as a number of other spots too.femifesto wrote: hi everyone--well for about the first year i dealt with vulvar pain, i wasconvinced it was some sort of yeast infection. i wasn't aware thatother things could cause this type of pain and suffered from chronicyeast problems in the past. at a certain point it occurred to me that my pain was totallylocalized to the back half of my vestibule, primarily on the leftside. i don't have any pain internally or in my labia. i came to theconclusion that an infection would not cause localized symptoms. doothers agree with this conclusion? i mean an infection generally takesover the entire area, at least when i've had yeast/bv in the past ihave symptoms interally, in the hair, labia, everywhere. i guess i am also confused about my diagnosis....the diagnosis i haveis dyesthetic vulvodynia, however, my pain like i said is only incertain parts of the vestibule, and from what i've read women withvulvodynia have more generalized pain. any thoughts? julie**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, Thanks for your cooperation! ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Hi Dusty-- Thank you for your response. It has been a while since we have talked! it does sound like your symptoms were remarkably similar to mine. can you tell me a little more specifically about the physical therapy you had? what kind of techniques she used and exercises she had you do? did it take a while before you felt improvement? i just recently found out that my hypothyroid was undertreated, so i raised my dose of T3. i am going to look further into my estrogen status...it was ok in the 3rd week of my cycle, but i want to have it checked on day 1. i am also addressing my anemia, and low folate and ferritin. i also have PCOS and i'm not really sure what to do about that other than watch my sugar intake. anyway, thanks again for your response. i do believe that one day my pain will be at least relieved, i am just trying to put all the pieces together. it is a very difficult journey. julie hi everyone-- > > well for about the first year i dealt with vulvar pain, i was > convinced it was some sort of yeast infection. i wasn't aware that > other things could cause this type of pain and suffered from chronic > yeast problems in the past. > > at a certain point it occurred to me that my pain was totally > localized to the back half of my vestibule, primarily on the left > side. i don't have any pain internally or in my labia. i came to the > conclusion that an infection would not cause localized symptoms. do > others agree with this conclusion? i mean an infection generally takes > over the entire area, at least when i've had yeast/bv in the past i > have symptoms interally, in the hair, labia, everywhere. > > i guess i am also confused about my diagnosis....the diagnosis i have > is dyesthetic vulvodynia, however, my pain like i said is only in > certain parts of the vestibule, and from what i've read women with > vulvodynia have more generalized pain. any thoughts? > > julie > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, > Thanks for your cooperation! ** > > *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 , When I get infections, especially during the period of 1999-2000, I have felt it all on the left side which is where my vulvar problems because of the nerve damage is. Even whenever my cervix would get infected it would radiate to the left side, not all over. But the biggest thing I noticed with my cervix during around 2003 is that when it would get infected I would feel like someone was scraping me because the kind of chair we had (which had material) would like rub that area raw even though the cervix was inside. But I knew it was affecting my cervix not my vulvar area because of the way the pain would hurt. Also, when I get infections I don't have textbook symptoms like most women would I have very unusual symptoms. Kristy ________________________________________________________________________________\ ____ Yahoo! oneSearch: Finally, mobile search that gives answers, not web links. http://mobile.yahoo.com/mobileweb/onesearch?refer=1ONXIC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 I saw a pt who specialized in pelvic floor issues for 8 months and cleared up that localized pain. Hi, Dusty. Nice to see you again! Whom did you see? I'm considering the possibility of working with a pelvic PT in the DC area and am wondering if yours was one that i don't already know about. Hollis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2007 Report Share Posted August 6, 2007 Hi Hollis,I saw a gal at s Hopkins Bayview Medical Center on Eastern Avenue in the City. Her first name was and last name was German I believe, and started with like an SCH sound, but since it was 3 years ago and I'm 59 and counting, I can't make my brain remember her name to save my soul. If you simply called this center and got the PT department and asked for the speciliast in pelvic floor therapy, you'd no doubt get her. At the time I started making calls, there was one gal who practiced a s Hopkins main hospital (on Wolfe street, I think) and the one who I saw who practiced at the Bayview center. SInce traffic and parking was easier for me at Bayview, I opted to go there, knowing if I didn't have succes there , I COULD go to main hospital person.DustyZdamask@... wrote: I saw a pt who specialized in pelvic floor issues for 8 months and cleared up that localized pain. Hi, Dusty. Nice to see you again! Whom did you see? I'm considering the possibility of working with a pelvic PT in the DC area and am wondering if yours was one that i don't already know about. Hollis Need a vacation? Get great deals to amazing places on Yahoo! Travel. Quote Link to comment Share on other sites More sharing options...
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