Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 - My children are 27, 23, and 16. I also have 3 grands, 9,5,3. My youngest child, a boy, and my oldest grand, a girl, live with me. They are both invaluable to me especially my son. He helps me with everything. Sometimes I forget my limitations, but he helps a lot. Jill -- In PLS-FRIENDS , " Sue Me " <momofboysonly@y...> wrote: > Jill, > > How old are your children? I have HSP and have raised my two boys > after I was diagnosed when they were 2 and 4 and they are now 15 and > 17 and they are great boys! > > This group will listen and help you find some things that might help > you--at least they will listen and give you support! > > Sue Me > > > Lean on this group and your clinic in Atlanta for help. > > > > Lynn > > > I am a single parent, with the only source of income, so I have to > work. > > I use a cane to help me walk. > > > Jill > oved] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2005 Report Share Posted August 7, 2005 Hi Jill Welcome. You are now a member of a very unique and wonderful group. I am 51 and started having symptoms 6 yrs ago. I was first told I had ALS with 6-12 months to live because onset was speech and swallowing. I am also a single Mom but recently as my baby took off for college, I took off solo with a move from WV to Fla. I'm on company disability and SSDI. I walk using a rolling walker which my engineer son-in-law calls the SUV of walkers. I also now use a scooter for shopping or museums. Get yourself signed up with an ALS Clinic. Besides having a neurological exam these clinics offer a pulmonologist, physical therapy, occupational therapy, social worker, speech therapy, nutritionist, and sometimes a neuropsyche. An added benefit is you are added to the registry for any studies or research you want to participate in. Plus this group can help with everything from dealing with people's stares to meds that work to mobility devices. Glad you found us. Sorry you were in the position to be one of us. Eva > > Hello All: > > My name is Jill, and I am new to this group. I am 47yrs old and was > only diagnosed about 6 mths ago. I have been having symptoms for the > last 3 years. I first noticed when I fell while bending over. I knew > something was wrong. I had balance difficulty, gait problems, > spasticity in both legs and arms. I get tired very easily, and I have > weakness in my arms. Most recently I have very slow speech, and some > choking incidences. At first my neurologist thought I had MS, but all > my tests were negative. They say that PLS does not affect the brain, > but I have difficulty being focussed, I do not remember anything, and > it takes a while to understand stuff. Sometimes I feel like I am > retarded, my brain is very slow. I am still employed and I drive to > and from work every day, but it is becoming increasingly difficult. I > am a single parent, with the only source of income, so I have to work. > I use a cane to help me walk. I have difficulty discussing my > condition with anyone, even my doctor. I get very emotional, and then > I am unable to speak. I thought it would help me if I could share > with others like myself. They wanted me to go to an ALS clinic, but I > just could not deal with it. Does anyone else out there have similar > problems, or feel the way I do? Looking forward to hearing from you guys. > > Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2006 Report Share Posted November 20, 2006 WELCOME to the group Donna!!!!! Hugs!! > > 1. Name: Donna Dees > > 2. City and state:Katy, TX > > 3. Are you a Southern California resident? No > > 4. Would you like to be added to our in person luncheon guest list? No > > 3. Email address:deesdonna@... > > 4. Obesity Help Profile name and/or OH URL: twinpletmom > > 5. Are you: Considering Surgery, Pre Op or Post Op: Post Op > > 6. Date of WLS: Thursday, November 16, 2006 > > 7. Surgeon's Name: Dr. Kodali > > 8. Type of Surgery: Gastric Bypass > > 9. Highest Pre Surgery Weight:278 > > 10. Insurance or self pay:Insurance > > 11. What is the name of your insurance company that covered your > WLS:Aetna > > 12.Birthdate:7/24/69 > > 13.Occupation:teacher > > 14.Hobbies:camping > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2007 Report Share Posted August 30, 2007 Hello, my name is , I've been married for almost 16 years to Chris. We have 3 children, 13, 10 and 7. I have FMS/CFS, IBS, IC, and I haven't been officially diagnosed with vulvodynia but I know I have it, my doctor and I have talked about it, but he doesn't feel he knows enough about it. I have an appt. with an IC specialist now. I look forward to meeting everyone. -- Visit me at http://www.homekeepermamaof3.blogspot.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 Vicki/Lady Vader www.freewebs.com/romanticdreamscometrue www.freewebs.com/victoriadutton ----- Forwarded Message ---- To: Fibromyalgia_Support_Group-owner Sent: Thursday, March 13, 2008 10:05:24 AM Subject: New Member Hello, I joined the other day and I have read all the start up email of the rukes and regs. I am not sure if I am allowed to post or email. I am a bit confused. Or may I just step on board and read and reply to others? Please let me know, Thank You Stacie ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 Vicki/Lady Vader www.freewebs.com/romanticdreamscometrue www.freewebs.com/victoriadutton ----- Forwarded Message ---- To: Fibromyalgia_Support_Group-owner Sent: Thursday, March 13, 2008 10:05:24 AM Subject: New Member Hello, I joined the other day and I have read all the start up email of the rukes and regs. I am not sure if I am allowed to post or email. I am a bit confused. Or may I just step on board and read and reply to others? Please let me know, Thank You Stacie ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 Vicki/Lady Vader www.freewebs.com/romanticdreamscometrue www.freewebs.com/victoriadutton ----- Forwarded Message ---- To: Fibromyalgia_Support_Group-owner Sent: Thursday, March 13, 2008 10:05:24 AM Subject: New Member Hello, I joined the other day and I have read all the start up email of the rukes and regs. I am not sure if I am allowed to post or email. I am a bit confused. Or may I just step on board and read and reply to others? Please let me know, Thank You Stacie ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 Jump right on in hun. we don't bite, lol. welcome to the group. [image: T2Go-LilacBty-] On Sat, Mar 15, 2008 at 5:59 PM, LV Dutton/ McMahon < unicorn_vicki2@...> wrote: > > Vicki/Lady Vader > www.freewebs.com/romanticdreamscometrue > www.freewebs.com/victoriadutton > > ----- Forwarded Message ---- > From: Stacie Jutgren <jutgren.s@...<jutgren.s%40embarqmail.com> > > > To: Fibromyalgia_Support_Group-owner <Fibromyalgia_Support_Group-owne\ r%40yahoogroups.com> > Sent: Thursday, March 13, 2008 10:05:24 AM > Subject: New Member > > Hello, I joined the other day and I have read all the start up email of > the rukes and regs. I am not sure if I am allowed to post or email. I am a > bit confused. > Or may I just step on board and read and reply to others? > Please let me know, > Thank You > Stacie > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. > http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 Jump right on in hun. we don't bite, lol. welcome to the group. [image: T2Go-LilacBty-] On Sat, Mar 15, 2008 at 5:59 PM, LV Dutton/ McMahon < unicorn_vicki2@...> wrote: > > Vicki/Lady Vader > www.freewebs.com/romanticdreamscometrue > www.freewebs.com/victoriadutton > > ----- Forwarded Message ---- > From: Stacie Jutgren <jutgren.s@...<jutgren.s%40embarqmail.com> > > > To: Fibromyalgia_Support_Group-owner <Fibromyalgia_Support_Group-owne\ r%40yahoogroups.com> > Sent: Thursday, March 13, 2008 10:05:24 AM > Subject: New Member > > Hello, I joined the other day and I have read all the start up email of > the rukes and regs. I am not sure if I am allowed to post or email. I am a > bit confused. > Or may I just step on board and read and reply to others? > Please let me know, > Thank You > Stacie > > __________________________________________________________ > Be a better friend, newshound, and > know-it-all with Yahoo! Mobile. Try it now. > http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ > > Quote Link to comment Share on other sites More sharing options...
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