Surgeons

[Guest guest]

I had a vestibulectomy in 2003. My pain was 24/7 but my diagnosis

was vv, not dv because the pain was confined to the vestibule and I

probably would have had no pain if I could have lain on my back all

the time! Sitting really killed me. And sex was just kind of

painful, but HELL afterwards... for days. I did great on tricyclic

meds... got rid of my 24/7 pain, but sex still hurt, so I had the

vestibulectomy. I had pt before my surgery, but now realize it

wasn't good pt. My surgeon referred me to a pt after my surgery and

I learned about pelvic floor stuff my other pt hadn't addressed. So,

in my case, I needed all 3: drug, surgery, pt. Feel free to ask me

about my surgery. I tried a million things before I did it, and my

only regret is that I didn't get a really expert pt evaluation

first. My gut is I still would have needed surgery, but... who knows?

As far as surgeons... I had mine with Dr. in Rochester,

NY and was very well taken care of. I know other women on the list

have spoken favorably of surgery with Dr. Goldstein (NY and

DC) and Dr. Nyerjesy (in Philly).

Lia

> >

> > >Hi there,

> > >I have had a successful Vulvar Vestibulectomy. Unfortunatly my

> surgeon, Dr. on is now retired. I have, however heard

> many good things about Dr. Stanley Marinoff. He is probably the DC

> surgeon you have heard of. I would say that to the best of my

> knowledge he is the best surgeon for VVS in the states at the

moment.

> >

>

[Guest guest]

Marinoff is retired from " clinical " practice. He is still listed on the

faculty of Washington University and was formerly Director of the Center

for Vulvovaginal Disorders in Washington, D.C. Dr. Goldstein took over

his practice.

I believe Marinoff is about 70 years old.

Ora

On Fri, 14 Sep 2007 10:32:55 -0500, Bunny

wrote:

>Thanks for the heads up on Dr. Marinoffs retirement. I will update that. I

see you have two different addresses listed for him though he is retired. Which

one is correct or were you just listing different addresses you saw through the

NVA?

>

>I have the NVA's list too, unfortunately they only list physicians that have

been recommended by patients and or participate in their program (that is what I

was told when I asked about it when I volunteered to be a support leader a few

years ago). So doctors that don't affiliate themselves in anyway with the NVA

are sometimes not listed. My surgeon, Dr. on was never on their list, and

I thought she was a phenomenal doctor but Dr. LaVallure was (a doctor who I

never saw personally but other women I spoke two did not have as much luck

with). " Without rabbits a rabbits foot would be nothing but a

disembodied hand full of unidentified toes. " -Pogo

[Guest guest]

I guess the women who feel

that surgery is barbaric are the same women who also want natural childbirth

with no episiotomy. To each his own, I guess. But I will choose “pain

free” any day. Women are faced with so many decisions on what to do with

bodies. I don’t have the years left to try the “natural or

homeopathic” methods. And I want to spend my later years enjoying the

time I have left in comfort. I postponed having my yearly mammogram, because I

have been lying on my side in bed all year. I could have something far worse

going on that I don’t even know about. When I go to PT, they put me in a

room right away, because they know I cannot sit. It is very humiliating and

embarrassing to continually explain that I cannot sit, much less why I can’t.

I chose to have surgery so that I can get on with my life. I have made some

great friends on this list who I hope to stay in touch with for a very long

time, but I am thrilled to say I no longer need to be part of the group, because

of need, just hoping to find a solution to a problem I now no longer have. I am

free. I found my doctor through a woman I found on this list, and I will be

forever grateful to her. Rosie O’Donnell wrote on her blog – “Don’t

b afraid 2 share your truth. It’s YOUR Truth. It may not b true 4 some

& that’s OK. Y r we so afraid 2 search 4 the truth & 2 share our

own? We need 2 Listen…then seek & speak the truth. Ours. ” That so says how I feel. For those who choose surgery, I will always be

available to support them in their decision.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of Bunny

Sent: Saturday, September 15, 2007 11:59 AM

To: vulvardisorders

Subject: [sPAM] Surgeons

Don't worry, I knew what you ment:) when

I first was diagnosed I too was concerned about the surgery because I had heard

so many negative things about it. And it did seem barbaric to me. I

would never have concidered it the first few years I suffered

until the reality of my diagnosis hit me and I saw that none of the

other treatments out there were working. This disease forces a whole lot

of education on us and its bound to change anyones way of thinking. And I

firmly believe that we all are entitled to our own beliefs on what is best for

us. There are women on this group who would never consider the surgery

who pursue treatments that I think are more barbaric, and others who take a

purely homeopathic aproach. We all come from different backgrounds and

not all of us are dealing with exactly the same pain disorder so I find no

offense in anyones differing opinion.

" Without rabbits a rabbits foot would be nothing but a disembodied hand full of unidentified toes. "

-Pogo