Re: what/who to believe?

[Guest guest]

He said that the thought is now that Pn is caused by a virus.

CSee what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Carol,

Even though every person's situation is different when it comes

to what causes vulvodynia and it's different subcategories it is

true that doing nerve blocks could do more harm than good. And

same thing with surgery to the area. With any kind of surgery

there are risks and for some the benefits outweigh the risks.

As for the nerve blocks, as I told in one of my other

posts I had decided not to do the nerve blocks by Interventional

Pain Management doctors because the risks outweigh the possible

benefits because of being so prone to infections.

I know that the general percentage of these kind of blocks like

the nerve root block (giving an example of the kind of nerve

blocks Interventional Pain Management doctors do) the risk of

infection is around 1% in the general population of those that

try it but the percentage of risk factor in my case is much

higher.

When I asked my gynecologist about the letter that she got from

them (she got a copy as did the neurologist I saw back in March)

she thought it was too risky. She also told me that she got the

feeling from the way that the letter was written that they felt

it was too risky as well although they would be glad to do the

procedure if my neurologist wanted them to do it.

But now with my conversation with Dr. Conway I now need to ask

my gynecologist some more questions not only about my vulvodynia

but the issues of further treatment of my endo to see if it

calms my vulvodynia down even further.

Will try to do that once we know what's going on with my mom who

is going to have to get some tests done tomorrow.

What else did this neurologist say about your situation Carol?

Kristy

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[Guest guest]

Have you been tested (with the electrodes which detect misfiring nerves or by some other means) FOR neuropathic pain? If you haven't and it hasn't been confirmed, perhaps you should start there - getting confirmation of neuropathic pain and then studying how it is most successfully treated (one thing that comes to mind is the drugs used for seizures, like Depakote, Neurontin, etc.).Who diagnosed you with neuropathic pain.... someone other than the guy you saw today? Were you actually tested to confirm?DustyCarolyn52192@... wrote: I went to a neurologist today who was very familiar with pudendal

nerve issues. He told me not to have the nerve blocks done or surgery. Im so confused and need answers, everyone seems to have a different opinions on everything. Also, he told me to that could be more harmful for someone with neuropathic pain- How do you know who to trust? I so weary right now. CSee what's new at AOL.com and Make AOL Your Homepage.

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[Guest guest]

I had two nerve blocks that were effective. They did not cure me, but allowed me to tolerate PT. I'm not sure this guy knows what he's talking about.

what/who to believe?

I went to a neurologist today who was very familiar with pudendal nerve issues. He told me not to have the nerve blocks done or surgery. Im so confused and need answers, everyone seems to have a different opinions on everything. Also, he told me to that could be more harmful for someone with neuropathic pain- How do you know who to trust? I so weary right now.

C

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