Carolynwhat/who to believe?

September 21, 2007

Carolyn –

I went to a two neurologists who were totally against me having anything to do

with nerve blocks or surgery. One of them I never saw again, but the other one

I went to for acupuncture for many months. Basically, he was a very nice doctor

after I got to know him. During the time he was sticking me with needles (which

did not work, either), I got to know him and he got to know me. By the end of

several months (I went once a week), during which time we had many discussions

- he was all for me having the surgery. Each appointment I had with him, I

brought literature on the pudendal nerve surgery, vulvodynia, and lot of other

female stuff he had never heard of. And I think after he saw the amount of pain

I was in, and realized that he couldn’t help me, nor did he know of

anyone who could, he realized that I had very limited options. One of his questions

was surgical complications, and once he felt the risk was low, he definitely

thought the surgery was probably my only chance of getting well. And even

though I no longer see him for acupuncture, we are still in communication

through email.

My PT was

another one who was totally against surgery, but she had never worked on anyone

who was truly entrapped as I was. After working on me for several months, she

also realized that surgery was my only chance of getting well.

Who do you

believe? How long do you keep going from doctor to doctor getting answers? I don’t

really know. You find a doctor you feel a connection with. A doctor you feel

you can trust. One doctor says yes, one says no. Did you like this doctor you

saw? Is he able to help you? The very worse statement and I heard it many times

before I found Dr. Conway – “I can’t help you, and I don’t

know anyone who can.”

nne

[mailto:VulvarDisorders ] On Behalf Of Carolyn52192@...

Sent: Thursday, September 20, 2007 6:21 PM

Subject: [sPAM] what/who to believe?

I went to a neurologist today who was very familiar with pudendal

nerve issues. He told me not to have the nerve blocks done or

surgery. Im so confused and need answers, everyone seems to have a

different opinions on everything. Also, he told me

to that could be more harmful for someone with neuropathic

pain- How do you know who to trust? I so weary right now.

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