Re: Private Practice/Medical Publicity

[Guest guest]

Becky,I am glad you emailed your thoughts!I have been thinking of doing this for a looong time! It would be a great resource for so many people. I have started carrying around key articles and one picture I made to new practitioners I see, if they haven't heard for VVS.

Professionally, I am a curriculum designer. I recently quit a FT job to start contracting (this allows me to have more time for my care!). Right now I am working with National Jewish Medical Center. They showed me a survey that said the top 3 ways that physicians learn is 1) live meetings, 2) newsletters (print materials) and 3) online training.

Physicians also like to learn from case studies. I have been interested in gathering a few of these from people on this site who are success stories and still working on their treatment plans (like me).That is my more than 2 cents about the subject.

Sheila A.

<<We need the doctors to start talking more about it!>> Do you all think doctors would pay any attention at all to information packets or pamphlets if they were made by patients? I've been wondering about how to spread the word to the medical community. When I was first diagnosed in 2001, my gyn had just been sent a packet of info titled Vulvar Vestibulitis Syndrome, and that was ALL the info she had about it. She had never heard of it before then. Now I live in St. Louis, but I had just talked with a lady who had been diagnosed with this out in CA. She gave me that exact same packet that MY doctor got that very next week! So I figured that packet must have originated in CA and somehow moved its way to the Midwest. What I don't know is who typed it up and how they introduced it to the doctor's offices.

What if, with all the

knowledge here, we put together some sort of updated packet(s) and made combined efforts to get them out to the gyns/family doctors in mass??? Thoughts? Becky Take the Internet to Go: Yahoo!Go puts the

Internet in your pocket: mail, news, photos more.

[Guest guest]

Becky,I am glad you emailed your thoughts!I have been thinking of doing this for a looong time! It would be a great resource for so many people. I have started carrying around key articles and one picture I made to new practitioners I see, if they haven't heard for VVS.

Professionally, I am a curriculum designer. I recently quit a FT job to start contracting (this allows me to have more time for my care!). Right now I am working with National Jewish Medical Center. They showed me a survey that said the top 3 ways that physicians learn is 1) live meetings, 2) newsletters (print materials) and 3) online training.

Physicians also like to learn from case studies. I have been interested in gathering a few of these from people on this site who are success stories and still working on their treatment plans (like me).That is my more than 2 cents about the subject.

Sheila A.

<<We need the doctors to start talking more about it!>> Do you all think doctors would pay any attention at all to information packets or pamphlets if they were made by patients? I've been wondering about how to spread the word to the medical community. When I was first diagnosed in 2001, my gyn had just been sent a packet of info titled Vulvar Vestibulitis Syndrome, and that was ALL the info she had about it. She had never heard of it before then. Now I live in St. Louis, but I had just talked with a lady who had been diagnosed with this out in CA. She gave me that exact same packet that MY doctor got that very next week! So I figured that packet must have originated in CA and somehow moved its way to the Midwest. What I don't know is who typed it up and how they introduced it to the doctor's offices.

What if, with all the

knowledge here, we put together some sort of updated packet(s) and made combined efforts to get them out to the gyns/family doctors in mass??? Thoughts? Becky Take the Internet to Go: Yahoo!Go puts the

Internet in your pocket: mail, news, photos more.

[Guest guest]

I haven't been keeping up to date in a while since I've been pregnant.

So, vulvar vestibulitis is no longer called by that name? It has a new

name now? When did this happen?

>

> Some doctors are already aware of vulvodynia and its

> subcategories such as vestibulodynia formerly known as vulvar

> vestibulitis syndrome thanks to a brochure on the subject put

> out by the American College of Obstetricians and Gynecologists.

>

> I had written several years ago to the College to mention

> vulvodynia and they sent me the brochure that had come out.

> That was about 5 years ago or so.

>

> Kristy

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________________________________________________________________________________\

____

> Building a website is a piece of cake. Yahoo! Small Business gives

you all the tools to get online.

> http://smallbusiness.yahoo.com/webhosting

>

[Guest guest]

I hope you're having a happy, healthy pregnancy! Occasionally I see

the " vestibulodynia " diagnosis thrown around (in medical articles,

online, etc), but not often. It doesn't seem to have " caught on. "

The ICD-9 code book still lists both vestibulitis and

vestibulodynia.

Are you feeling well through your pregnancy? I hope you have a

wonderful delivery and healthy baby and postpartum!

Lindsey

> >

> > Some doctors are already aware of vulvodynia and its

> > subcategories such as vestibulodynia formerly known as vulvar

> > vestibulitis syndrome thanks to a brochure on the subject put

> > out by the American College of Obstetricians and Gynecologists.

> >

> > I had written several years ago to the College to mention

> > vulvodynia and they sent me the brochure that had come out.

> > That was about 5 years ago or so.

> >

> > Kristy

> >

> >

> >

> >

> >

> >

> >

>

______________________________________________________________________

______________

> > Building a website is a piece of cake. Yahoo! Small Business gives

> you all the tools to get online.

> > http://smallbusiness.yahoo.com/webhosting

> >

>

[Guest guest]

<<Some doctors are already aware of vulvodynia and itssubcategories such as vestibulodynia formerly known as vulvarvestibulitis syndrome thanks to a brochure on the subject putout by the American College of Obstetricians and Gynecologists.I had written several years ago to the College to mentionvulvodynia and they sent me the brochure that had come out. That was about 5 years ago or so.>> You're right. I know there is a pamphlet at my vulvar clinic sitting in the waiting room, so at least that's something! That's good for patients I think. I wonder, though, if we could put together something more substantial that contains case studies and results of other formal studies, and online links maybe. A few more details for the docs than what they hand out to the patients. Cause I don't know if most docs KNOW anymore about it than what's in that pamphlet! (Assuming we're

talking about the same one...) Becky

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