New Member - Introduction & Question

[Guest guest]

Good Morning everybody,

My name is Kathy and I joined this group today and wanted to briefly

introduce me.

I've been suffering from Vulvodynia Vestibulitis since about 2 yrs.

Like many of us I tried several treatments including physical

therapy, biofeedback therapy, low oxelate diet, antidepressants etc.

I now found a physician I think will hopefully be able to help me

get a vestibulectomy. I have an appointment with him this Friday to

discuss this option and am hoping he will know about it and able to

do this.

I wanted to see if anybody had a vestibulectomy done and what you're

experience with that was? And if there is a specific physician out

there you would recommend in case mine won't be able to help?

Thank you so much!

Kathy

[Guest guest]

Hi Kathy, there are some ladies on here that have had a successful vestibulectomy...keep posting because you never know who is on the group from day to day and it might take a little time for someone to get back with you. When you say you tried Physical Therapy, did you go to someone who is updated in Pelvic Floor PT? I know 'some' women are getting well with from IC and Vulvar pain with good PT...we just all have to keep trying until we find something that works for us individually. Hugs, Chelle

[Guest guest]

My surgery was a success when nothing else worked. I had only contact

pain though so I think this surgery works better when that is the

primary symptom.

>

> Hi Kathy, there are some ladies on here that have had a successful

vestibulectomy...keep posting because you never know who is on the

group from day to day and it might take a little time for someone to

get back with you. When you say you tried Physical Therapy, did you

go to someone who is updated in Pelvic Floor PT? I know 'some' women

are getting well with from IC and Vulvar pain with good PT...we just

all have to keep trying until we find something that works for us

individually. Hugs, Chelle

>

[Guest guest]

Good Morning ladies,

Thank you for your responses first of all!

I have had physical therapy along with biofeedback therapy with a PT

who was specialized in pelvic pain.

I also have the problem of contact pain, which is why I'm hoping to

find relief through a vestibulectomy!

Any help is greatly appreciated!

Thank you!

Kathy

[Guest guest]

Hi Chelle, Yes, my physical therapy was with a pelvic floor PT and not successful. The pain was a little less in the beginning but then went back to being very painful again. I have contact pain so intercourse is still not possible. That's why I will talk to my doc about the vestibulectomy tomorrow. Hopefully I will be able to have that surgery... KathyChelle wrote: Hi Kathy, there are some ladies on here that have had a successful vestibulectomy...keep posting because you never

know who is on the group from day to day and it might take a little time for someone to get back with you. When you say you tried Physical Therapy, did you go to someone who is updated in Pelvic Floor PT? I know 'some' women are getting well with from IC and Vulvar pain with good PT...we just all have to keep trying until we find something that works for us individually. Hugs, Chelle __________________________________________________

[Guest guest]

That's good to hear! I have contact pain as well which is why I really want this surgery - I don't want to try more pills or medication...Kathy Cerreta wrote: My surgery was a success when nothing else worked. I had only contactpain though so I think this surgery works better when that is theprimary symptom. >> Hi Kathy, there are some ladies on here

that have had a successfulvestibulectomy...keep posting because you never know who is on thegroup from day to day and it might take a little time for someone toget back with you. When you say you tried Physical Therapy, did yougo to someone who is updated in Pelvic Floor PT? I know 'some' womenare getting well with from IC and Vulvar pain with good PT...we justall have to keep trying until we find something that works for usindividually. Hugs, Chelle> __________________________________________________

[Guest guest]

All PTs are not alike. I went to five pelvic floor PTs before finding a good one (no comparison, but how was I to know? They all SAID they were experienced and successful). I am now well. I just thought I'd mention that so no one gets turned off PT. love, MOllylovemybabyk wrote: Good Morning ladies,Thank you for your responses first of all!I have had physical therapy along with biofeedback therapy with a PT who was

specialized in pelvic pain.I also have the problem of contact pain, which is why I'm hoping to find relief through a vestibulectomy!Any help is greatly appreciated!Thank you!Kathy __________________________________________________

[Guest guest]

I didn't mean for it to come across that way at all. It's something very individual what works and doesn't work and unfortunately PT didn't work for me - but that doesn't mean it doesn't work for other people at all!!! I'm sure for some women the vestibulectomy worked and for some it didn't. I just feel like it's time for me to have the surgery and I am hopeful it will help me! Kathymolly ring wrote: All PTs are not alike. I went to five pelvic floor PTs before finding a good one (no comparison, but how was I to

know? They all SAID they were experienced and successful). I am now well. I just thought I'd mention that so no one gets turned off PT. love, MOllylovemybabyk <lovemybabyk (AT) yahoo (DOT) com> wrote: Good Morning ladies,Thank you for your responses first of all!I have had physical therapy along with biofeedback therapy with a PT who was specialized in pelvic pain.I also have the problem of contact pain, which is why I'm hoping to find relief through a vestibulectomy!Any help is greatly appreciated!Thank you!Kathy __________________________________________________