Re: pelvic floor issues - Kristy

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Kristy, how long ago was your vulvar surgery that led to the vulvar nerve pain? Gotta a thought for you...something you might want to keep in mind. Even though your pain was initially due to the surgery...you have a lot of pelvic stuff going on...like so many of us. When you 'tense' against pain you develop trigger points 'anywhere' in the body. Tensing against pelvic pain is going to lead to muscle issues, no way around it. I drove a few weeks ago to see Rhonda Kotarinos in Chicago. She is the best pelvic floor dysfunction PT with 19 years experience. She told me that if you didn't have 'bladder' issues before a laparoscopy, then you probably will after surgery. Laps cut into the ligaments that support the bladder. I've had two for past Endo, plus uterine suspension, plus IC, Vulvodynia and structural issues....yada yada.... If you think you 'might' have

IC...please consider getting a PT evaluation. There is such a domino effect to all this pelvic pain. Glad to hear your Mom's surgery is behind her, I hope things look very well for her prognosis.... Hugs, Chelle

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Kristy, I never have any muscle spasms in the pelvic floor, but I do have incredible tightness! I really think it's almost impossible NOT to have short tight muscles with all this pain. I thought for sure years ago that I had Endo in my bladder...now I know for sure that the muscles around my bladder definitely play a huge part in my pain. If you don't want to try PT...that is up to you...and I'm not trying to push it on you...just wanted to let you know that it is SOOO worth getting an evaluation. The trip to see Rhonda was all out of pocket. I won't see a dime back on it...but in my opinion it was well worth it. I have walked around for YEARS 'tensing' my pelvic floor muscles without realizing that I was doing it. It becomes so 'normal' to you, that you can't even detect it until you begin getting treatment...it's wild!!!! Dr. Moldwin, a big-time Urologist and fellow ICer said that he

believes about 70% of ICer's have pelvic floor dysfunction. I was just letting you know that a Lap itself can indeed bring on bladder issues. Surgery leads to scar tissue in all of us and can tighten the ligaments that surround organs. I've seen so many doctors over the years...so many times the pelvic exams have caused a lot of pain. The only doctor who has ever palpated my pelvic floor muscles was recently when I saw Kim Kenton at Loyola University (Uro-Gyn)...as soon as she hit those muscles I wanted to jump on the ceiling...she is a SURGEON and told me that my problem is that I've had too many past surgeries...to stop allowing docs to cut on me....and then said Rhonda K. would help me with the pelvic floor issues. I like to think of a Physical Therapist as a 'doctor of the muscles'...the ones who are updated in pelvic floor dysfunction really know their stuff!!!!

Best wishes, ChelleKristy Sokoloski wrote: Chelle,If I have issues with my bladder as I think I do it's because ofmy endometriosis and or IC, not my laparoscopies. (Which is alsowhy Dr. Conway asked me about what's going on with my bladderand bowel when we talked when I called to ask him about thesurgeries he's done for endometriosis and if he's seen any endoon the nerves where I have the most problems: genitofemoral andilioinguinal nerves in addition to the nerve that is affectedfor so many other women: pudenal nerve.) The only way I will consider a PT evaluation is if it's done bya doctor (a physiatrist, not the same as a psychiatrist) a NursePracticioner like the one at the office of the urogyn my regulargyn would like me to see (which she knows I won't

do).I don't tense in that area unless I'm stressed about something.As I had mentioned to Molly before, I'm very in tune with mybody so if I were having muscle spasm in that area I would feelit. Finding out how damaged the nerves are in that area (and yesthis is indeed nerve related) is my top priority at this time. Thanks for the info though.Kristy __________________________________________________