Guest guest Posted November 13, 2007 Report Share Posted November 13, 2007 Emma, I have not seen him but have also looked into him and he is very expensive because he does not take ANY insurance and his initial visits usually run around $1000. If you do see him, please let me know how it goes, as I am very curious and have always kept him in mind as another option. I live in CT though so I would go to his NY office. Thanks, --- Emma wrote: > Hello all, > > I am considering seeing Dr. Goldstein in DC. > Anyone here see > him, and what do you think? > > Thanks, > Emma > > ________________________________________________________________________________\ ____ Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. http://overview.mail.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 13, 2007 Report Share Posted November 13, 2007 Emma, The doctor that did my vestibulectomy didn't have anything else up his sleeve in terms of treatment (although the vestibulectomy helped considerably, I was still left with a ton of pain), but he was hesitant for me to go to Goldstein because he felt the surgeries he performed were too radical. Luckily, I stumbled upon Dr. Ken Levey, who does take MANY insurances. Recently I switched jobs, and he even takes the obscure insurance my new job offers. I've been seeing him for a year, and he's helped alot. --- euc1109 s wrote: > Emma, > > I have not seen him but have also looked into him > and > he is very expensive because he does not take ANY > insurance and his initial visits usually run around > $1000. If you do see him, please let me know how it > goes, as I am very curious and have always kept him > in > mind as another option. I live in CT though so I > would go to his NY office. > > Thanks, > > > --- Emma wrote: > > > Hello all, > > > > I am considering seeing Dr. Goldstein in > DC. > > Anyone here see > > him, and what do you think? > > > > Thanks, > > Emma > > > > > > > > > ________________________________________________________________________________\ ____ > Be a better pen pal. > Text or chat with friends inside Yahoo! Mail. See > how. http://overview.mail.yahoo.com/ > > ________________________________________________________________________________\ ____ Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. http://overview.mail.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2007 Report Share Posted November 14, 2007 Would you mind explaining what your symptoms are and what type of plan you guys came up with? Thanks --- mfwaskow wrote: > I had my first visit with Dr. Goldstein last week, > and I thought he was excellent. He spent a > lot of time with me taking a history, doing a > physical exam and coming up with a plan. He > was very professional. The visit, including > cultures and bloodwork, cost $1700.00. If you > want any further info, let me know. > > ________________________________________________________________________________\ ____ Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. http://overview.mail.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 2007 Report Share Posted November 15, 2007 , I have had VV since May of this year after a UTI which was followed by a crazy course of ABs and antifungals. I was diagnosed in September after a horrendous summer of having no idea what was wrong with me. I have been on Estrace since September and my skin improved but I was put on Seasonale by a well-meaning but unknowing gyn - absolutely terrible for me. So my symptoms worsened in Sept/Oct and I started having terrible pain in the back of my vulva, along my perineum and rectum. I started physical therapy two weeks ago. I went to Dr. G last week and was diagnosed with atrophic vestibulitis from my years on the pill and pelvic floor dysfunction. I may or may not have neuronal proliferation. My vestibulitis is generalized. I am not a surgical candidate - it did not even come up in conversation. Of course, all of my bloodwork and cultures are pending but if they are negative we are going to continue with the following plan: discontinue the pill continue physical therapy start an estradiol/testosterone topical valium, oral 2-6 mgs at night (I have been taking it every other night) Honestly within 2 hours of the first Valium dose, I was 90% better in my back of my vulva, along my perineum and rectum. I would not have believed it if it hadn't happened to me. That makes me hopeful that my problem is primarily musculoskeletal instead of neuronal. We'll see. I think it is a great way to augment my physical therapy which is moving along well. The estradiol/testosterone compound is a bit irritating to me, so it makes me a bit nervous using it. However, I understand that I need the hormones to improve my skin. I may end up switching back to Estrace which didn't bother me. I have a recheck in 3 months. If I am not much improved, then there is most likely a neuronal component to this that I may have to address with other medications. I am obviously hoping that is not the case. Please let me know if you have any other questions. Good luck with your health and your decision. Melinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Melinda, Thanks for the info and for sharing your story. What did you think of Dr. Goldstein...I've heard good and bad and I am still debating about whether it's worth it to make a trip to see him. --- mfwaskow wrote: > , > > I have had VV since May of this year after a UTI > which was followed by a crazy course of > ABs and antifungals. I was diagnosed in September > after a horrendous summer of having > no idea what was wrong with me. I have been on > Estrace since September and my skin > improved but I was put on Seasonale by a > well-meaning but unknowing gyn - absolutely > terrible for me. So my symptoms worsened in > Sept/Oct and I started having terrible pain > in the back of my vulva, along my perineum and > rectum. I started physical therapy two > weeks ago. I went to Dr. G last week and was > diagnosed with atrophic vestibulitis from my > years on the pill and pelvic floor dysfunction. I > may or may not have neuronal > proliferation. My vestibulitis is generalized. I > am not a surgical candidate - it did not even > come up in conversation. Of course, all of my > bloodwork and cultures are pending but if > they are negative we are going to continue with the > following plan: > > discontinue the pill > continue physical therapy > start an estradiol/testosterone topical > valium, oral 2-6 mgs at night (I have been taking it > every other night) > > Honestly within 2 hours of the first Valium dose, I > was 90% better in my back of my vulva, > along my perineum and rectum. I would not have > believed it if it hadn't happened to me. > That makes me hopeful that my problem is primarily > musculoskeletal instead of neuronal. > We'll see. I think it is a great way to augment my > physical therapy which is moving along > well. > > The estradiol/testosterone compound is a bit > irritating to me, so it makes me a bit > nervous using it. However, I understand that I need > the hormones to improve my skin. I > may end up switching back to Estrace which didn't > bother me. > > I have a recheck in 3 months. If I am not much > improved, then there is most likely a > neuronal component to this that I may have to > address with other medications. I am > obviously hoping that is not the case. > > Please let me know if you have any other questions. > Good luck with your health and your > decision. > > Melinda > > > ________________________________________________________________________________\ ____ Get easy, one-click access to your favorites. Make Yahoo! your homepage. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2007 Report Share Posted November 17, 2007 Melinda, thanks for posting your experience with Dr. Goldstein...you all know how it is, one person will like a doc and one won't, but you won't know until you try... Glad to hear you are doing better, are you still going to PT? Hugs, Chelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2007 Report Share Posted November 17, 2007 I totally agree Chelle! I was a veterinarian before I was home with my kids, and I completely understand how choosing your doctor is a very subjective thing. Not every practitioner will be all things to all people. So you just have to weigh your decision and take your shot with the person you feel is most likely to be effective for you. I completely committed to PT, doing a lot of work at home and going once per week. It is already progressing well. I think I was lucky enough that I was diagnosed within 4 months of the onset of my symptoms and fully engaged in an appropriate treatment within 6 months. I am crossing my fingers that I will be a success story someday. Hope you do well with all your travels. xo Melinda > > Melinda, thanks for posting your experience with Dr. Goldstein...you all know how it is, one person will like a doc and one won't, but you won't know until you try... > > Glad to hear you are doing better, are you still going to PT? Hugs, Chelle > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 Melinda, I just saw Dr. G and I got an identical diagnosis, with an identical treatment plan. Just wondering, how are you doing now? Thanks, Emma > > , > > I have had VV since May of this year after a UTI which was followed by a crazy course of > ABs and antifungals. I was diagnosed in September after a horrendous summer of having > no idea what was wrong with me. I have been on Estrace since September and my skin > improved but I was put on Seasonale by a well-meaning but unknowing gyn - absolutely > terrible for me. So my symptoms worsened in Sept/Oct and I started having terrible pain > in the back of my vulva, along my perineum and rectum. I started physical therapy two > weeks ago. I went to Dr. G last week and was diagnosed with atrophic vestibulitis from my > years on the pill and pelvic floor dysfunction. I may or may not have neuronal > proliferation. My vestibulitis is generalized. I am not a surgical candidate - it did not even > come up in conversation. Of course, all of my bloodwork and cultures are pending but if > they are negative we are going to continue with the following plan: > > discontinue the pill > continue physical therapy > start an estradiol/testosterone topical > valium, oral 2-6 mgs at night (I have been taking it every other night) > > Honestly within 2 hours of the first Valium dose, I was 90% better in my back of my vulva, > along my perineum and rectum. I would not have believed it if it hadn't happened to me. > That makes me hopeful that my problem is primarily musculoskeletal instead of neuronal. > We'll see. I think it is a great way to augment my physical therapy which is moving along > well. > > The estradiol/testosterone compound is a bit irritating to me, so it makes me a bit > nervous using it. However, I understand that I need the hormones to improve my skin. I > may end up switching back to Estrace which didn't bother me. > > I have a recheck in 3 months. If I am not much improved, then there is most likely a > neuronal component to this that I may have to address with other medications. I am > obviously hoping that is not the case. > > Please let me know if you have any other questions. Good luck with your health and your > decision. > > Melinda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2008 Report Share Posted March 3, 2008 What did you think of Dr. G? Sherri -------------- Original message -------------- > Melinda, > > I just saw Dr. G and I got an identical diagnosis, with an identical > treatment plan. > > Just wondering, how are you doing now? > > Thanks, > Emma > > > > > > > > , > > > > I have had VV since May of this year after a UTI which was followed > by a crazy course of > > ABs and antifungals. I was diagnosed in September after a > horrendous summer of having > > no idea what was wrong with me. I have been on Estrace since > September and my skin > > improved but I was put on Seasonale by a well-meaning but unknowing > gyn - absolutely > > terrible for me. So my symptoms worsened in Sept/Oct and I started > having terrible pain > > in the back of my vulva, along my perineum and rectum. I started > physical therapy two > > weeks ago. I went to Dr. G last week and was diagnosed with > atrophic vestibulitis from my > > years on the pill and pelvic floor dysfunction. I may or may not > have neuronal > > proliferation. My vestibulitis is generalized. I am not a > surgical candidate - it did not even > > come up in conversation. Of course, all of my bloodwork and > cultures are pending but if > > they are negative we are going to continue with the following plan: > > > > discontinue the pill > > continue physical therapy > > start an estradiol/testosterone topical > > valium, oral 2-6 mgs at night (I have been taking it every other > night ) > > > > Honestly within 2 hours of the first Valium dose, I was 90% better > in my back of my vulva, > > along my perineum and rectum. I would not have believed it if it > hadn't happened to me. > > That makes me hopeful that my problem is primarily musculoskeletal > instead of neuronal. > > We'll see. I think it is a great way to augment my physical > therapy which is moving along > > well. > > > > The estradiol/testosterone compound is a bit irritating to me, so > it makes me a bit > > nervous using it. However, I understand that I need the hormones > to improve my skin. I > > may end up switching back to Estrace which didn't bother me. > > > > I have a recheck in 3 months. If I am not much improved, then > there is most likely a > > neuronal component to this that I may have to address with other > medications. I am > > obviously hoping that is not the case. > > > > Please let me know if you have any other questions. Good luck with > your health and your > > decision. > > > > Melinda > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, > Thanks for your cooperation! ** > > *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Dr Goldstein is very, very through, and makes a diagnosis by showing you every reason why you could have your symptoms, and eliminates them one by one until he comes up with your diagnosis. He really considers all possibilities for your pain. He is very expensive, but seems to really understand this disorder and it's many causes. The proof of course will come when I start feeling better. I start E and T gel tomorrow. Best, Emma > > > > > > , > > > > > > I have had VV since May of this year after a UTI which was followed > > by a crazy course of > > > ABs and antifungals. I was diagnosed in September after a > > horrendous summer of having > > > no idea what was wrong with me. I have been on Estrace since > > September and my skin > > > improved but I was put on Seasonale by a well-meaning but unknowing > > gyn - absolutely > > > terrible for me. So my symptoms worsened in Sept/Oct and I started > > having terrible pain > > > in the back of my vulva, along my perineum and rectum. I started > > physical therapy two > > > weeks ago. I went to Dr. G last week and was diagnosed with > > atrophic vestibulitis from my > > > years on the pill and pelvic floor dysfunction. I may or may not > > have neuronal > > > proliferation. My vestibulitis is generalized. I am not a > > surgical candidate - it did not even > > > come up in conversation. Of course, all of my bloodwork and > > cultures are pending but if > > > they are negative we are going to continue with the following plan: > > > > > > discontinue the pill > > > continue physical therapy > > > start an estradiol/testosterone topical > > > valium, oral 2-6 mgs at night (I have been taking it every other > > night) > > > > > > Honestly within 2 hours of the first Valium dose, I was 90% better > > in my back of my vulva, > > > along my perineum and rectum. I would not have believed it if it > > hadn't happened to me. > > > That makes me hopeful that my problem is primarily musculoskeletal > > instead of neuronal. > > > We'll see. I think it is a great way to augment my physical > > therapy which is moving along > > > well. > > > > > > The estradiol/testosterone compound is a bit irritating to me, so > > it makes me a bit > > > nervous using it. However, I understand that I need the hormones > > to improve my skin. I > > > may end up switching back to Estrace which didn't bother me. > > > > > > I have a recheck in 3 months. If I am not much improved, then > > there is most likely a > > > neuronal component to this that I may have to address with other > > medications. I am > > > obviously hoping that is not the case. > > > > > > Please let me know if you have any other questions. Good luck with > > your health and your > > > decision. > > > > > > Melinda > > > > > > > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, > > Thanks for your cooperation! ** > > > > *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Emma, where are you located Dr G is within driving distance to me. Also, what was your diagnosis and what did he say caused it? thanks CarolIt's Tax Time! Get tips, forms and advice on AOL Money Finance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 I feel FANTASTIC. I have strung together about 10 days of little or no pain. Between Dr. G's medical plan, PT by Adrienne McAuley at Pamela on PT in NYC and tons of at- home self-PT, I feel that I will be back to 100% in a few more months. I am hoping to write my success story soon but don't want to jinx it prematurely I hope you have the same success! Melinda -- In VulvarDisorders , " Emma " wrote: > > Melinda, > > I just saw Dr. G and I got an identical diagnosis, with an identical > treatment plan. > > Just wondering, how are you doing now? > > Thanks, > Emma > > > > > > > > , > > > > I have had VV since May of this year after a UTI which was followed > by a crazy course of > > ABs and antifungals. I was diagnosed in September after a > horrendous summer of having > > no idea what was wrong with me. I have been on Estrace since > September and my skin > > improved but I was put on Seasonale by a well-meaning but unknowing > gyn - absolutely > > terrible for me. So my symptoms worsened in Sept/Oct and I started > having terrible pain > > in the back of my vulva, along my perineum and rectum. I started > physical therapy two > > weeks ago. I went to Dr. G last week and was diagnosed with > atrophic vestibulitis from my > > years on the pill and pelvic floor dysfunction. I may or may not > have neuronal > > proliferation. My vestibulitis is generalized. I am not a > surgical candidate - it did not even > > come up in conversation. Of course, all of my bloodwork and > cultures are pending but if > > they are negative we are going to continue with the following plan: > > > > discontinue the pill > > continue physical therapy > > start an estradiol/testosterone topical > > valium, oral 2-6 mgs at night (I have been taking it every other > night) > > > > Honestly within 2 hours of the first Valium dose, I was 90% better > in my back of my vulva, > > along my perineum and rectum. I would not have believed it if it > hadn't happened to me. > > That makes me hopeful that my problem is primarily musculoskeletal > instead of neuronal. > > We'll see. I think it is a great way to augment my physical > therapy which is moving along > > well. > > > > The estradiol/testosterone compound is a bit irritating to me, so > it makes me a bit > > nervous using it. However, I understand that I need the hormones > to improve my skin. I > > may end up switching back to Estrace which didn't bother me. > > > > I have a recheck in 3 months. If I am not much improved, then > there is most likely a > > neuronal component to this that I may have to address with other > medications. I am > > obviously hoping that is not the case. > > > > Please let me know if you have any other questions. Good luck with > your health and your > > decision. > > > > Melinda > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Atrophic Vestibulitis Emma Whats the difference between atrophic vestibulitis and vestibulitis? Did he do hormone testing? How bad are your pfm? CarolIt's Tax Time! Get tips, forms and advice on AOL Money Finance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Emma and Melinda, Who do you see for PT and where is it? Thanks, shannon > > > > > > > > , > > > > > > > > I have had VV since May of this year after a UTI which was > followed > > > by a crazy course of > > > > ABs and antifungals. I was diagnosed in September after a > > > horrendous summer of having > > > > no idea what was wrong with me. I have been on Estrace since > > > September and my skin > > > > improved but I was put on Seasonale by a well-meaning but > unknowing > > > gyn - absolutely > > > > terrible for me. So my symptoms worsened in Sept/Oct and I > started > > > having terrible pain > > > > in the back of my vulva, along my perineum and rectum. I > started > > > physical therapy two > > > > weeks ago. I went to Dr. G last week and was diagnosed with > > > atrophic vestibulitis from my > > > > years on the pill and pelvic floor dysfunction. I may or may > not > > > have neuronal > > > > proliferation. My vestibulitis is generalized. I am not a > > > surgical candidate - it did not even > > > > come up in conversation. Of course, all of my bloodwork and > > > cultures are pending but if > > > > they are negative we are going to continue with the following > plan: > > > > > > > > discontinue the pill > > > > continue physical therapy > > > > start an estradiol/testosterone topical > > > > valium, oral 2-6 mgs at night (I have been taking it every > other > > > night) > > > > > > > > Honestly within 2 hours of the first Valium dose, I was 90% > better > > > in my back of my vulva, > > > > along my perineum and rectum. I would not have believed it if > it > > > hadn't happened to me. > > > > That makes me hopeful that my problem is primarily > musculoskeletal > > > instead of neuronal. > > > > We'll see. I think it is a great way to augment my physical > > > therapy which is moving along > > > > well. > > > > > > > > The estradiol/testosterone compound is a bit irritating to me, > so > > > it makes me a bit > > > > nervous using it. However, I understand that I need the > hormones > > > to improve my skin. I > > > > may end up switching back to Estrace which didn't bother me. > > > > > > > > I have a recheck in 3 months. If I am not much improved, then > > > there is most likely a > > > > neuronal component to this that I may have to address with > other > > > medications. I am > > > > obviously hoping that is not the case. > > > > > > > > Please let me know if you have any other questions. Good luck > with > > > your health and your > > > > decision. > > > > > > > > Melinda > > > > > > > > > > > > > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, > > > Thanks for your cooperation! ** > > > > > > *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Hi , I see Nazneen Vasi at Beyond Basics in NYC. Emma > > > > > > > > > > , > > > > > > > > > > I have had VV since May of this year after a UTI which was > > followed > > > > by a crazy course of > > > > > ABs and antifungals. I was diagnosed in September after a > > > > horrendous summer of having > > > > > no idea what was wrong with me. I have been on Estrace since > > > > September and my skin > > > > > improved but I was put on Seasonale by a well-meaning but > > unknowing > > > > gyn - absolutely > > > > > terrible for me. So my symptoms worsened in Sept/Oct and I > > started > > > > having terrible pain > > > > > in the back of my vulva, along my perineum and rectum. I > > started > > > > physical therapy two > > > > > weeks ago. I went to Dr. G last week and was diagnosed with > > > > atrophic vestibulitis from my > > > > > years on the pill and pelvic floor dysfunction. I may or may > > not > > > > have neuronal > > > > > proliferation. My vestibulitis is generalized. I am not a > > > > surgical candidate - it did not even > > > > > come up in conversation. Of course, all of my bloodwork and > > > > cultures are pending but if > > > > > they are negative we are going to continue with the > following > > plan: > > > > > > > > > > discontinue the pill > > > > > continue physical therapy > > > > > start an estradiol/testosterone topical > > > > > valium, oral 2-6 mgs at night (I have been taking it every > > other > > > > night) > > > > > > > > > > Honestly within 2 hours of the first Valium dose, I was 90% > > better > > > > in my back of my vulva, > > > > > along my perineum and rectum. I would not have believed it > if > > it > > > > hadn't happened to me. > > > > > That makes me hopeful that my problem is primarily > > musculoskeletal > > > > instead of neuronal. > > > > > We'll see. I think it is a great way to augment my physical > > > > therapy which is moving along > > > > > well. > > > > > > > > > > The estradiol/testosterone compound is a bit irritating to > me, > > so > > > > it makes me a bit > > > > > nervous using it. However, I understand that I need the > > hormones > > > > to improve my skin. I > > > > > may end up switching back to Estrace which didn't bother me. > > > > > > > > > > I have a recheck in 3 months. If I am not much improved, > then > > > > there is most likely a > > > > > neuronal component to this that I may have to address with > > other > > > > medications. I am > > > > > obviously hoping that is not the case. > > > > > > > > > > Please let me know if you have any other questions. Good > luck > > with > > > > your health and your > > > > > decision. > > > > > > > > > > Melinda > > > > > > > > > > > > > > > > > > > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, > > > > Thanks for your cooperation! ** > > > > > > > > *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2008 Report Share Posted March 4, 2008 Hi Carol, I am in NYC and Dr. G has an office here that he comes to twice a month. He diagnosed me with Atrophic Vestibulitis due to low-dose hormonal birth control use, and Pelvic Floor Dysfunction. He did not belive the nerves had anything to do with my case. His treatment plan is to use a topical gel with E and T, continue PT and take a valium at night to help with the muscle spasms. Also take warm baths, and to NOT avoid sex - as long as it is pain free, which sometimes it is for me. He did a very scientific diagnosis, by looking at all causes of the pain, and elimated each of them until he came up with my root cause. He examined me very well, with microscopes and such, and gave me a mirror to point to the pain. That way he sees what you see. He seems very committed to helping women. I trust him, and look forward to getting started on the treatment plan. I will let everyone know how I progress. Best health to you, Emma > > Emma, where are you located Dr G is within driving distance to me. Also, > what was your diagnosis and what did he say caused it? > > thanks > > Carol > > > > **************It's Tax Time! Get tips, forms, and advice on AOL Money & > Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 I see Adrienne McAuley at Pamela on PT in NYC. Here is a link to an article by Dr. Goldstein that describes the difference causes of vestibulitis and includes the definition of atrophic vestibulitis. You have to scroll down the page to get to the article. http://www.ourgyn.com/content/index.php option=com_content & task=view & id=81 & Itemid=1 Melinda W. -- In VulvarDisorders , " pletchsr " wrote: > > Emma and Melinda, > Who do you see for PT and where is it? > Thanks, > shannon > > > > > > > > > > > > , > > > > > > > > > > I have had VV since May of this year after a UTI which was > > followed > > > > by a crazy course of > > > > > ABs and antifungals. I was diagnosed in September after a > > > > horrendous summer of having > > > > > no idea what was wrong with me. I have been on Estrace since > > > > September and my skin > > > > > improved but I was put on Seasonale by a well-meaning but > > unknowing > > > > gyn - absolutely > > > > > terrible for me. So my symptoms worsened in Sept/Oct and I > > started > > > > having terrible pain > > > > > in the back of my vulva, along my perineum and rectum. I > > started > > > > physical therapy two > > > > > weeks ago. I went to Dr. G last week and was diagnosed with > > > > atrophic vestibulitis from my > > > > > years on the pill and pelvic floor dysfunction. I may or may > > not > > > > have neuronal > > > > > proliferation. My vestibulitis is generalized. I am not a > > > > surgical candidate - it did not even > > > > > come up in conversation. Of course, all of my bloodwork and > > > > cultures are pending but if > > > > > they are negative we are going to continue with the > following > > plan: > > > > > > > > > > discontinue the pill > > > > > continue physical therapy > > > > > start an estradiol/testosterone topical > > > > > valium, oral 2-6 mgs at night (I have been taking it every > > other > > > > night) > > > > > > > > > > Honestly within 2 hours of the first Valium dose, I was 90% > > better > > > > in my back of my vulva, > > > > > along my perineum and rectum. I would not have believed it > if > > it > > > > hadn't happened to me. > > > > > That makes me hopeful that my problem is primarily > > musculoskeletal > > > > instead of neuronal. > > > > > We'll see. I think it is a great way to augment my physical > > > > therapy which is moving along > > > > > well. > > > > > > > > > > The estradiol/testosterone compound is a bit irritating to > me, > > so > > > > it makes me a bit > > > > > nervous using it. However, I understand that I need the > > hormones > > > > to improve my skin. I > > > > > may end up switching back to Estrace which didn't bother me. > > > > > > > > > > I have a recheck in 3 months. If I am not much improved, > then > > > > there is most likely a > > > > > neuronal component to this that I may have to address with > > other > > > > medications. I am > > > > > obviously hoping that is not the case. > > > > > > > > > > Please let me know if you have any other questions. Good > luck > > with > > > > your health and your > > > > > decision. > > > > > > > > > > Melinda > > > > > > > > > > > > > > > > > > > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, > > > > Thanks for your cooperation! ** > > > > > > > > *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 mfwaskow wrote: >>>>>I feel that I will be back to 100% in a few more months. I am hoping to write my success story soon Melinda, it is so good to hear that you are doing so well...I look forward to reading your success story! Best wishes, Chelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 Thank you Chelle! If it weren't for you and the other women on these websites, I'd still be serious pain. Thank you all! I am SO grateful! Melinda >>>>>I feel that I will be back to 100% in a few more months. I am hoping to write my success story soon > > > Melinda, it is so good to hear that you are doing so well...I look forward to reading your success story! Best wishes, Chelle > Quote Link to comment Share on other sites More sharing options...
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