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Re: Dr. Goldstein - anyone see him?

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Emma,

I have not seen him but have also looked into him and

he is very expensive because he does not take ANY

insurance and his initial visits usually run around

$1000. If you do see him, please let me know how it

goes, as I am very curious and have always kept him in

mind as another option. I live in CT though so I

would go to his NY office.

Thanks,

--- Emma wrote:

> Hello all,

>

> I am considering seeing Dr. Goldstein in DC.

> Anyone here see

> him, and what do you think?

>

> Thanks,

> Emma

>

>

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Emma,

The doctor that did my vestibulectomy didn't have

anything else up his sleeve in terms of treatment

(although the vestibulectomy helped considerably, I

was still left with a ton of pain), but he was

hesitant for me to go to Goldstein because he felt the

surgeries he performed were too radical. Luckily, I

stumbled upon Dr. Ken Levey, who does take MANY

insurances. Recently I switched jobs, and he even

takes the obscure insurance my new job offers. I've

been seeing him for a year, and he's helped alot.

--- euc1109 s wrote:

> Emma,

>

> I have not seen him but have also looked into him

> and

> he is very expensive because he does not take ANY

> insurance and his initial visits usually run around

> $1000. If you do see him, please let me know how it

> goes, as I am very curious and have always kept him

> in

> mind as another option. I live in CT though so I

> would go to his NY office.

>

> Thanks,

>

>

> --- Emma wrote:

>

> > Hello all,

> >

> > I am considering seeing Dr. Goldstein in

> DC.

> > Anyone here see

> > him, and what do you think?

> >

> > Thanks,

> > Emma

> >

> >

>

>

>

>

>

________________________________________________________________________________\

____

> Be a better pen pal.

> Text or chat with friends inside Yahoo! Mail. See

> how. http://overview.mail.yahoo.com/

>

>

________________________________________________________________________________\

____

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Would you mind explaining what your symptoms are and

what type of plan you guys came up with? Thanks :)

--- mfwaskow wrote:

> I had my first visit with Dr. Goldstein last week,

> and I thought he was excellent. He spent a

> lot of time with me taking a history, doing a

> physical exam and coming up with a plan. He

> was very professional. The visit, including

> cultures and bloodwork, cost $1700.00. If you

> want any further info, let me know.

>

>

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,

I have had VV since May of this year after a UTI which was followed by a crazy

course of

ABs and antifungals. I was diagnosed in September after a horrendous summer of

having

no idea what was wrong with me. I have been on Estrace since September and my

skin

improved but I was put on Seasonale by a well-meaning but unknowing gyn -

absolutely

terrible for me. So my symptoms worsened in Sept/Oct and I started having

terrible pain

in the back of my vulva, along my perineum and rectum. I started physical

therapy two

weeks ago. I went to Dr. G last week and was diagnosed with atrophic

vestibulitis from my

years on the pill and pelvic floor dysfunction. I may or may not have neuronal

proliferation. My vestibulitis is generalized. I am not a surgical candidate -

it did not even

come up in conversation. Of course, all of my bloodwork and cultures are

pending but if

they are negative we are going to continue with the following plan:

discontinue the pill

continue physical therapy

start an estradiol/testosterone topical

valium, oral 2-6 mgs at night (I have been taking it every other night)

Honestly within 2 hours of the first Valium dose, I was 90% better in my back of

my vulva,

along my perineum and rectum. I would not have believed it if it hadn't

happened to me.

That makes me hopeful that my problem is primarily musculoskeletal instead of

neuronal.

We'll see. I think it is a great way to augment my physical therapy which is

moving along

well.

The estradiol/testosterone compound is a bit irritating to me, so it makes me a

bit

nervous using it. However, I understand that I need the hormones to improve my

skin. I

may end up switching back to Estrace which didn't bother me.

I have a recheck in 3 months. If I am not much improved, then there is most

likely a

neuronal component to this that I may have to address with other medications. I

am

obviously hoping that is not the case.

Please let me know if you have any other questions. Good luck with your health

and your

decision.

Melinda

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Melinda,

Thanks for the info and for sharing your story. What

did you think of Dr. Goldstein...I've heard good and

bad and I am still debating about whether it's worth

it to make a trip to see him.

--- mfwaskow wrote:

> ,

>

> I have had VV since May of this year after a UTI

> which was followed by a crazy course of

> ABs and antifungals. I was diagnosed in September

> after a horrendous summer of having

> no idea what was wrong with me. I have been on

> Estrace since September and my skin

> improved but I was put on Seasonale by a

> well-meaning but unknowing gyn - absolutely

> terrible for me. So my symptoms worsened in

> Sept/Oct and I started having terrible pain

> in the back of my vulva, along my perineum and

> rectum. I started physical therapy two

> weeks ago. I went to Dr. G last week and was

> diagnosed with atrophic vestibulitis from my

> years on the pill and pelvic floor dysfunction. I

> may or may not have neuronal

> proliferation. My vestibulitis is generalized. I

> am not a surgical candidate - it did not even

> come up in conversation. Of course, all of my

> bloodwork and cultures are pending but if

> they are negative we are going to continue with the

> following plan:

>

> discontinue the pill

> continue physical therapy

> start an estradiol/testosterone topical

> valium, oral 2-6 mgs at night (I have been taking it

> every other night)

>

> Honestly within 2 hours of the first Valium dose, I

> was 90% better in my back of my vulva,

> along my perineum and rectum. I would not have

> believed it if it hadn't happened to me.

> That makes me hopeful that my problem is primarily

> musculoskeletal instead of neuronal.

> We'll see. I think it is a great way to augment my

> physical therapy which is moving along

> well.

>

> The estradiol/testosterone compound is a bit

> irritating to me, so it makes me a bit

> nervous using it. However, I understand that I need

> the hormones to improve my skin. I

> may end up switching back to Estrace which didn't

> bother me.

>

> I have a recheck in 3 months. If I am not much

> improved, then there is most likely a

> neuronal component to this that I may have to

> address with other medications. I am

> obviously hoping that is not the case.

>

> Please let me know if you have any other questions.

> Good luck with your health and your

> decision.

>

> Melinda

>

>

>

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____

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Melinda, thanks for posting your experience with Dr. Goldstein...you all know how it is, one person will like a doc and one won't, but you won't know until you try... Glad to hear you are doing better, are you still going to PT? Hugs, Chelle

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I totally agree Chelle! I was a veterinarian before I was home with my kids,

and I completely

understand how choosing your doctor is a very subjective thing. Not every

practitioner will

be all things to all people. So you just have to weigh your decision and take

your shot with

the person you feel is most likely to be effective for you.

I completely committed to PT, doing a lot of work at home and going once per

week. It is

already progressing well. I think I was lucky enough that I was diagnosed

within 4 months of

the onset of my symptoms and fully engaged in an appropriate treatment within 6

months. I

am crossing my fingers that I will be a success story someday.

Hope you do well with all your travels. xo Melinda

>

> Melinda, thanks for posting your experience with Dr. Goldstein...you all know

how it is, one

person will like a doc and one won't, but you won't know until you try...

>

> Glad to hear you are doing better, are you still going to PT? Hugs, Chelle

>

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  • 3 months later...
Guest guest

Melinda,

I just saw Dr. G and I got an identical diagnosis, with an identical

treatment plan.

Just wondering, how are you doing now?

Thanks,

Emma

>

> ,

>

> I have had VV since May of this year after a UTI which was followed

by a crazy course of

> ABs and antifungals. I was diagnosed in September after a

horrendous summer of having

> no idea what was wrong with me. I have been on Estrace since

September and my skin

> improved but I was put on Seasonale by a well-meaning but unknowing

gyn - absolutely

> terrible for me. So my symptoms worsened in Sept/Oct and I started

having terrible pain

> in the back of my vulva, along my perineum and rectum. I started

physical therapy two

> weeks ago. I went to Dr. G last week and was diagnosed with

atrophic vestibulitis from my

> years on the pill and pelvic floor dysfunction. I may or may not

have neuronal

> proliferation. My vestibulitis is generalized. I am not a

surgical candidate - it did not even

> come up in conversation. Of course, all of my bloodwork and

cultures are pending but if

> they are negative we are going to continue with the following plan:

>

> discontinue the pill

> continue physical therapy

> start an estradiol/testosterone topical

> valium, oral 2-6 mgs at night (I have been taking it every other

night)

>

> Honestly within 2 hours of the first Valium dose, I was 90% better

in my back of my vulva,

> along my perineum and rectum. I would not have believed it if it

hadn't happened to me.

> That makes me hopeful that my problem is primarily musculoskeletal

instead of neuronal.

> We'll see. I think it is a great way to augment my physical

therapy which is moving along

> well.

>

> The estradiol/testosterone compound is a bit irritating to me, so

it makes me a bit

> nervous using it. However, I understand that I need the hormones

to improve my skin. I

> may end up switching back to Estrace which didn't bother me.

>

> I have a recheck in 3 months. If I am not much improved, then

there is most likely a

> neuronal component to this that I may have to address with other

medications. I am

> obviously hoping that is not the case.

>

> Please let me know if you have any other questions. Good luck with

your health and your

> decision.

>

> Melinda

>

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Guest guest

What did you think of Dr. G?

Sherri

-------------- Original message -------------- > Melinda, > > I just saw Dr. G and I got an identical diagnosis, with an identical > treatment plan. > > Just wondering, how are you doing now? > > Thanks, > Emma > > > > > > > > , > > > > I have had VV since May of this year after a UTI which was followed > by a crazy course of > > ABs and antifungals. I was diagnosed in September after a > horrendous summer of having > > no idea what was wrong with me. I have been on Estrace since > September and my skin > > improved but I was put on Seasonale by a well-meaning but unknowing > gyn

- absolutely > > terrible for me. So my symptoms worsened in Sept/Oct and I started > having terrible pain > > in the back of my vulva, along my perineum and rectum. I started > physical therapy two > > weeks ago. I went to Dr. G last week and was diagnosed with > atrophic vestibulitis from my > > years on the pill and pelvic floor dysfunction. I may or may not > have neuronal > > proliferation. My vestibulitis is generalized. I am not a > surgical candidate - it did not even > > come up in conversation. Of course, all of my bloodwork and > cultures are pending but if > > they are negative we are going to continue with the following plan: > > > > discontinue the pill > > continue physical therapy > > start an estradiol/testosterone topical > > valium, oral 2-6 mgs at night (I have been taking it every other > night

) > > > > Honestly within 2 hours of the first Valium dose, I was 90% better > in my back of my vulva, > > along my perineum and rectum. I would not have believed it if it > hadn't happened to me. > > That makes me hopeful that my problem is primarily musculoskeletal > instead of neuronal. > > We'll see. I think it is a great way to augment my physical > therapy which is moving along > > well. > > > > The estradiol/testosterone compound is a bit irritating to me, so > it makes me a bit > > nervous using it. However, I understand that I need the hormones > to improve my skin. I > > may end up switching back to Estrace which didn't bother me. > > > > I have a recheck in 3 months. If I am not much improved, then > there is most likely a > > neuronal component to this that I may have to address with other

> medications. I am > > obviously hoping that is not the case. > > > > Please let me know if you have any other questions. Good luck with > your health and your > > decision. > > > > Melinda > > > > > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, > Thanks for your cooperation! ** > > ***

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Guest guest

Dr Goldstein is very, very through, and makes a diagnosis by showing

you every reason why you could have your symptoms, and eliminates

them one by one until he comes up with your diagnosis. He really

considers all possibilities for your pain. He is very expensive,

but seems to really understand this disorder and it's many causes.

The proof of course will come when I start feeling better. I start

E and T gel tomorrow.

Best,

Emma

> > >

> > > ,

> > >

> > > I have had VV since May of this year after a UTI which was

followed

> > by a crazy course of

> > > ABs and antifungals. I was diagnosed in September after a

> > horrendous summer of having

> > > no idea what was wrong with me. I have been on Estrace since

> > September and my skin

> > > improved but I was put on Seasonale by a well-meaning but

unknowing

> > gyn - absolutely

> > > terrible for me. So my symptoms worsened in Sept/Oct and I

started

> > having terrible pain

> > > in the back of my vulva, along my perineum and rectum. I

started

> > physical therapy two

> > > weeks ago. I went to Dr. G last week and was diagnosed with

> > atrophic vestibulitis from my

> > > years on the pill and pelvic floor dysfunction. I may or may

not

> > have neuronal

> > > proliferation. My vestibulitis is generalized. I am not a

> > surgical candidate - it did not even

> > > come up in conversation. Of course, all of my bloodwork and

> > cultures are pending but if

> > > they are negative we are going to continue with the following

plan:

> > >

> > > discontinue the pill

> > > continue physical therapy

> > > start an estradiol/testosterone topical

> > > valium, oral 2-6 mgs at night (I have been taking it every

other

> > night)

> > >

> > > Honestly within 2 hours of the first Valium dose, I was 90%

better

> > in my back of my vulva,

> > > along my perineum and rectum. I would not have believed it if

it

> > hadn't happened to me.

> > > That makes me hopeful that my problem is primarily

musculoskeletal

> > instead of neuronal.

> > > We'll see. I think it is a great way to augment my physical

> > therapy which is moving along

> > > well.

> > >

> > > The estradiol/testosterone compound is a bit irritating to me,

so

> > it makes me a bit

> > > nervous using it. However, I understand that I need the

hormones

> > to improve my skin. I

> > > may end up switching back to Estrace which didn't bother me.

> > >

> > > I have a recheck in 3 months. If I am not much improved, then

> > there is most likely a

> > > neuronal component to this that I may have to address with

other

> > medications. I am

> > > obviously hoping that is not the case.

> > >

> > > Please let me know if you have any other questions. Good luck

with

> > your health and your

> > > decision.

> > >

> > > Melinda

> > >

> >

> >

> >

> >

> > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST,

> > Thanks for your cooperation! **

> >

> > ***

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Guest guest

Emma, where are you located Dr G is within driving distance to me. Also, what was your diagnosis and what did he say caused it?

thanks

CarolIt's Tax Time! Get tips, forms and advice on AOL Money Finance.

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Guest guest

I feel FANTASTIC. I have strung together about 10 days of little or no pain.

Between Dr.

G's medical plan, PT by Adrienne McAuley at Pamela on PT in NYC and tons

of at-

home self-PT, I feel that I will be back to 100% in a few more months. I am

hoping to

write my success story soon but don't want to jinx it prematurely :)

I hope you have the same success! Melinda

-- In VulvarDisorders , " Emma " wrote:

>

> Melinda,

>

> I just saw Dr. G and I got an identical diagnosis, with an identical

> treatment plan.

>

> Just wondering, how are you doing now?

>

> Thanks,

> Emma

>

>

>

>

> >

> > ,

> >

> > I have had VV since May of this year after a UTI which was followed

> by a crazy course of

> > ABs and antifungals. I was diagnosed in September after a

> horrendous summer of having

> > no idea what was wrong with me. I have been on Estrace since

> September and my skin

> > improved but I was put on Seasonale by a well-meaning but unknowing

> gyn - absolutely

> > terrible for me. So my symptoms worsened in Sept/Oct and I started

> having terrible pain

> > in the back of my vulva, along my perineum and rectum. I started

> physical therapy two

> > weeks ago. I went to Dr. G last week and was diagnosed with

> atrophic vestibulitis from my

> > years on the pill and pelvic floor dysfunction. I may or may not

> have neuronal

> > proliferation. My vestibulitis is generalized. I am not a

> surgical candidate - it did not even

> > come up in conversation. Of course, all of my bloodwork and

> cultures are pending but if

> > they are negative we are going to continue with the following plan:

> >

> > discontinue the pill

> > continue physical therapy

> > start an estradiol/testosterone topical

> > valium, oral 2-6 mgs at night (I have been taking it every other

> night)

> >

> > Honestly within 2 hours of the first Valium dose, I was 90% better

> in my back of my vulva,

> > along my perineum and rectum. I would not have believed it if it

> hadn't happened to me.

> > That makes me hopeful that my problem is primarily musculoskeletal

> instead of neuronal.

> > We'll see. I think it is a great way to augment my physical

> therapy which is moving along

> > well.

> >

> > The estradiol/testosterone compound is a bit irritating to me, so

> it makes me a bit

> > nervous using it. However, I understand that I need the hormones

> to improve my skin. I

> > may end up switching back to Estrace which didn't bother me.

> >

> > I have a recheck in 3 months. If I am not much improved, then

> there is most likely a

> > neuronal component to this that I may have to address with other

> medications. I am

> > obviously hoping that is not the case.

> >

> > Please let me know if you have any other questions. Good luck with

> your health and your

> > decision.

> >

> > Melinda

> >

>

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Guest guest

Atrophic Vestibulitis

Emma

Whats the difference between atrophic vestibulitis and vestibulitis? Did he do hormone testing?

How bad are your pfm?

CarolIt's Tax Time! Get tips, forms and advice on AOL Money Finance.

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Guest guest

Emma and Melinda,

Who do you see for PT and where is it?

Thanks,

shannon

> > > >

> > > > ,

> > > >

> > > > I have had VV since May of this year after a UTI which was

> followed

> > > by a crazy course of

> > > > ABs and antifungals. I was diagnosed in September after a

> > > horrendous summer of having

> > > > no idea what was wrong with me. I have been on Estrace since

> > > September and my skin

> > > > improved but I was put on Seasonale by a well-meaning but

> unknowing

> > > gyn - absolutely

> > > > terrible for me. So my symptoms worsened in Sept/Oct and I

> started

> > > having terrible pain

> > > > in the back of my vulva, along my perineum and rectum. I

> started

> > > physical therapy two

> > > > weeks ago. I went to Dr. G last week and was diagnosed with

> > > atrophic vestibulitis from my

> > > > years on the pill and pelvic floor dysfunction. I may or may

> not

> > > have neuronal

> > > > proliferation. My vestibulitis is generalized. I am not a

> > > surgical candidate - it did not even

> > > > come up in conversation. Of course, all of my bloodwork and

> > > cultures are pending but if

> > > > they are negative we are going to continue with the

following

> plan:

> > > >

> > > > discontinue the pill

> > > > continue physical therapy

> > > > start an estradiol/testosterone topical

> > > > valium, oral 2-6 mgs at night (I have been taking it every

> other

> > > night)

> > > >

> > > > Honestly within 2 hours of the first Valium dose, I was 90%

> better

> > > in my back of my vulva,

> > > > along my perineum and rectum. I would not have believed it

if

> it

> > > hadn't happened to me.

> > > > That makes me hopeful that my problem is primarily

> musculoskeletal

> > > instead of neuronal.

> > > > We'll see. I think it is a great way to augment my physical

> > > therapy which is moving along

> > > > well.

> > > >

> > > > The estradiol/testosterone compound is a bit irritating to

me,

> so

> > > it makes me a bit

> > > > nervous using it. However, I understand that I need the

> hormones

> > > to improve my skin. I

> > > > may end up switching back to Estrace which didn't bother me.

> > > >

> > > > I have a recheck in 3 months. If I am not much improved,

then

> > > there is most likely a

> > > > neuronal component to this that I may have to address with

> other

> > > medications. I am

> > > > obviously hoping that is not the case.

> > > >

> > > > Please let me know if you have any other questions. Good

luck

> with

> > > your health and your

> > > > decision.

> > > >

> > > > Melinda

> > > >

> > >

> > >

> > >

> > >

> > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST,

> > > Thanks for your cooperation! **

> > >

> > > ***

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Guest guest

Hi ,

I see Nazneen Vasi at Beyond Basics in NYC.

Emma

> > > > >

> > > > > ,

> > > > >

> > > > > I have had VV since May of this year after a UTI which was

> > followed

> > > > by a crazy course of

> > > > > ABs and antifungals. I was diagnosed in September after a

> > > > horrendous summer of having

> > > > > no idea what was wrong with me. I have been on Estrace

since

> > > > September and my skin

> > > > > improved but I was put on Seasonale by a well-meaning but

> > unknowing

> > > > gyn - absolutely

> > > > > terrible for me. So my symptoms worsened in Sept/Oct and I

> > started

> > > > having terrible pain

> > > > > in the back of my vulva, along my perineum and rectum. I

> > started

> > > > physical therapy two

> > > > > weeks ago. I went to Dr. G last week and was diagnosed with

> > > > atrophic vestibulitis from my

> > > > > years on the pill and pelvic floor dysfunction. I may or

may

> > not

> > > > have neuronal

> > > > > proliferation. My vestibulitis is generalized. I am not a

> > > > surgical candidate - it did not even

> > > > > come up in conversation. Of course, all of my bloodwork and

> > > > cultures are pending but if

> > > > > they are negative we are going to continue with the

> following

> > plan:

> > > > >

> > > > > discontinue the pill

> > > > > continue physical therapy

> > > > > start an estradiol/testosterone topical

> > > > > valium, oral 2-6 mgs at night (I have been taking it every

> > other

> > > > night)

> > > > >

> > > > > Honestly within 2 hours of the first Valium dose, I was 90%

> > better

> > > > in my back of my vulva,

> > > > > along my perineum and rectum. I would not have believed it

> if

> > it

> > > > hadn't happened to me.

> > > > > That makes me hopeful that my problem is primarily

> > musculoskeletal

> > > > instead of neuronal.

> > > > > We'll see. I think it is a great way to augment my physical

> > > > therapy which is moving along

> > > > > well.

> > > > >

> > > > > The estradiol/testosterone compound is a bit irritating to

> me,

> > so

> > > > it makes me a bit

> > > > > nervous using it. However, I understand that I need the

> > hormones

> > > > to improve my skin. I

> > > > > may end up switching back to Estrace which didn't bother

me.

> > > > >

> > > > > I have a recheck in 3 months. If I am not much improved,

> then

> > > > there is most likely a

> > > > > neuronal component to this that I may have to address with

> > other

> > > > medications. I am

> > > > > obviously hoping that is not the case.

> > > > >

> > > > > Please let me know if you have any other questions. Good

> luck

> > with

> > > > your health and your

> > > > > decision.

> > > > >

> > > > > Melinda

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST,

> > > > Thanks for your cooperation! **

> > > >

> > > > ***

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Guest guest

Hi Carol,

I am in NYC and Dr. G has an office here that he comes to twice a

month.

He diagnosed me with Atrophic Vestibulitis due to low-dose hormonal

birth control use, and Pelvic Floor Dysfunction. He did not belive

the nerves had anything to do with my case.

His treatment plan is to use a topical gel with E and T, continue PT

and take a valium at night to help with the muscle spasms. Also take

warm baths, and to NOT avoid sex - as long as it is pain free, which

sometimes it is for me.

He did a very scientific diagnosis, by looking at all causes of the

pain, and elimated each of them until he came up with my root cause.

He examined me very well, with microscopes and such, and gave me a

mirror to point to the pain. That way he sees what you see. He

seems very committed to helping women.

I trust him, and look forward to getting started on the treatment

plan.

I will let everyone know how I progress.

Best health to you,

Emma

>

> Emma, where are you located Dr G is within driving distance to

me. Also,

> what was your diagnosis and what did he say caused it?

>

> thanks

>

> Carol

>

>

>

> **************It's Tax Time! Get tips, forms, and advice on AOL

Money &

> Finance. (http://money.aol.com/tax?NCID=aolprf00030000000001)

>

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I see Adrienne McAuley at Pamela on PT in NYC.

Here is a link to an article by Dr. Goldstein that describes the difference

causes of

vestibulitis and includes the definition of atrophic vestibulitis. You have to

scroll down the

page to get to the article.

http://www.ourgyn.com/content/index.php

option=com_content & task=view & id=81 & Itemid=1

Melinda W.

-- In VulvarDisorders , " pletchsr " wrote:

>

> Emma and Melinda,

> Who do you see for PT and where is it?

> Thanks,

> shannon

>

>

> > > > >

> > > > > ,

> > > > >

> > > > > I have had VV since May of this year after a UTI which was

> > followed

> > > > by a crazy course of

> > > > > ABs and antifungals. I was diagnosed in September after a

> > > > horrendous summer of having

> > > > > no idea what was wrong with me. I have been on Estrace since

> > > > September and my skin

> > > > > improved but I was put on Seasonale by a well-meaning but

> > unknowing

> > > > gyn - absolutely

> > > > > terrible for me. So my symptoms worsened in Sept/Oct and I

> > started

> > > > having terrible pain

> > > > > in the back of my vulva, along my perineum and rectum. I

> > started

> > > > physical therapy two

> > > > > weeks ago. I went to Dr. G last week and was diagnosed with

> > > > atrophic vestibulitis from my

> > > > > years on the pill and pelvic floor dysfunction. I may or may

> > not

> > > > have neuronal

> > > > > proliferation. My vestibulitis is generalized. I am not a

> > > > surgical candidate - it did not even

> > > > > come up in conversation. Of course, all of my bloodwork and

> > > > cultures are pending but if

> > > > > they are negative we are going to continue with the

> following

> > plan:

> > > > >

> > > > > discontinue the pill

> > > > > continue physical therapy

> > > > > start an estradiol/testosterone topical

> > > > > valium, oral 2-6 mgs at night (I have been taking it every

> > other

> > > > night)

> > > > >

> > > > > Honestly within 2 hours of the first Valium dose, I was 90%

> > better

> > > > in my back of my vulva,

> > > > > along my perineum and rectum. I would not have believed it

> if

> > it

> > > > hadn't happened to me.

> > > > > That makes me hopeful that my problem is primarily

> > musculoskeletal

> > > > instead of neuronal.

> > > > > We'll see. I think it is a great way to augment my physical

> > > > therapy which is moving along

> > > > > well.

> > > > >

> > > > > The estradiol/testosterone compound is a bit irritating to

> me,

> > so

> > > > it makes me a bit

> > > > > nervous using it. However, I understand that I need the

> > hormones

> > > > to improve my skin. I

> > > > > may end up switching back to Estrace which didn't bother me.

> > > > >

> > > > > I have a recheck in 3 months. If I am not much improved,

> then

> > > > there is most likely a

> > > > > neuronal component to this that I may have to address with

> > other

> > > > medications. I am

> > > > > obviously hoping that is not the case.

> > > > >

> > > > > Please let me know if you have any other questions. Good

> luck

> > with

> > > > your health and your

> > > > > decision.

> > > > >

> > > > > Melinda

> > > > >

> > > >

> > > >

> > > >

> > > >

> > > > **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST,

> > > > Thanks for your cooperation! **

> > > >

> > > > ***

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mfwaskow wrote: >>>>>I feel that I will be back to 100% in a few more months. I am hoping to write my success story soon Melinda, it is so good to hear that you are doing so well...I look forward to reading your success story! Best wishes, Chelle

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Thank you Chelle! If it weren't for you and the other women on these websites,

I'd still be

serious pain. Thank you all! I am SO grateful!

Melinda

>>>>>I feel that I will be back to 100% in

a few

more months. I am hoping to write my success story soon

>

>

> Melinda, it is so good to hear that you are doing so well...I look forward

to reading your

success story! Best wishes, Chelle

>

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