Guest guest Posted November 14, 2007 Report Share Posted November 14, 2007 Anonymous wrote: >>>>>>>>>>>>. the sufferers wait waaaaay too long to get help because of the sensitive nature of the problem. The disorder is usually firmly ensconced by then and when docs hear the things we've done to ourselves to try and fix it, they are usually looking at us like we are nuts. I think the main problem is still WAY too much ignorance on the part of the medical community. My main problems with getting treatment for vulvar pain have been: 1). Misdiagnosed with Infections that I did not have 2). Totally dismissed without even trying to help due to IGNORANCE. From the posts I read these days, a lot of gals on here have moved quickly looking for medical help. At times I am amazed at how many different kinds of treatments a lot of ladies have 'pushed' for in a relatively short amount of time (more power to you, ladies *grin*). Medical textbooks still have info in them referring to female sexual pain as being "psychosomatic"....there needs to be MORE updated info on women's health in general!!! Education is the key.... Hugs, Chelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2007 Report Share Posted November 14, 2007 Dusty, There are men who do talk about their problems but it's such a rarity. On the pain boards I'm on several of the members that I have interaction with are men. One of them having some very tough situations right now as far as a complicated history and so will be going to Mayo Clinic in Jan to see if they can help him. As for male breast cancers, there are doctors out there that laugh which of course they shouldn't and don't take them seriously. Men are not always taken seriously about their problems whether it's cancer or not because of a doctor thinking that it's in their head. I bring this up because of how many times I've heard on other lists that if men had the same problems that women had there would be an answer to this problem or that problem already. Once I started to talk to men who had similar problems or other types of problems and about how they were treated then I knew that the phrase " if men had these problems there would be an answer now " was not true. As for the other issues, most women I've met (even the newbies to the list) have gone to their doctors right away to ask for help because they know something isn't right and aren't believed as well. So it's not just about how long someone waits while suffering to get anything done about it. Kristy ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2007 Report Share Posted November 14, 2007 My own dad had to have a testicle removed and I had to take him to the hospital. Til the day he died, he didn't know that we knew. My mother, sick with lung cancer, had me take him and told me to tell him that I thought he was having a hernia repair. That's really absurd, isn't it. My sisters husband had Peyronie's and he put out the story that he too had an old hernia refixed. Men just put it off til its too late and then lie about it their womenfolks and to their docs. So many wait past the time when things can safely and easily be done - as my father and my brother in law.Again, I can only repeat - I know of not one of the cases where the male breast cancers were pooh poohed and I would suspect that its a rarity for such a thing to occur. Its malpractice.As far as your last paragraph, I was referring mainly to men waiting so long because of the taboo of not having working male parts. However, there are many women who are/were on this list (and in the literature we have available on disorders of this kind) who waited a long time to get help because of the situation of being put in the position of having to discuss their inability to "perform" sexually. Its just taboo.DustyKristy Sokoloski wrote: Dusty,There are men who do talk about their problems but it's such ararity. On the pain boards I'm on several of the members that Ihave interaction with are men. One of them having some verytough situations right now as far as a complicated history andso will be going to Mayo Clinic in Jan to see if they can helphim.As for male breast cancers, there are doctors out there thatlaugh which of course they shouldn't and don't take themseriously. Men are not always taken seriously about theirproblems whether it's cancer or not because of a doctor thinkingthat it's in their head. I bring this up because of how manytimes I've heard on other lists that if men had the sameproblems that women had there would be an answer to this problemor that problem already. Once I started to talk to men who hadsimilar problems or other types of problems and about how theywere treated then I knew that the phrase "if men had theseproblems there would be an answer now" was not true.As for the other issues, most women I've met (even the newbiesto the list) have gone to their doctors right away to ask forhelp because they know something isn't right and aren't believedas well. So it's not just about how long someone waits whilesuffering to get anything done about it.Kristy ____________________________________________________________________________________Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs**IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, Thanks for your cooperation! ***** Quote Link to comment Share on other sites More sharing options...
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