Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 Kristy Sokoloski wrote>>>>>>>>So when I had this CT Scan in 2004 I got very concerned. I toldthe tech that I had a lot of pain in my vulvar area when theyinjected the contrast thru the IV that they gave. She said,"yes, it's normal to feel a warming sensation or like you haveto go potty" but I had to tell her that wasn't what I wasfeeling. I literally hurt and burned in the few minutes thatcontrast was in me. Kristy, that is exactly what happened to me. When the tech came back in to check on me I was freakin' out with the look on my face...I said, "it's not my bladder that I'm feeling, but my vulva is burning"....she 'quickly' unhooked the dye...and as you said, the rest of the test was uneventful. I did have the warm sensation, started at my head and worked it's way down...but my vulvar area felt like it was burning, not just warm...tripped me out!!! Thanks for sharing your experience... Hugs, Chelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 , Even though it was only for a few minutes it still felt like an eternity. It also gave me some further clues as to which nerves were bothering me. Kristy ________________________________________________________________________________\ ____ Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. http://overview.mail.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2007 Report Share Posted November 16, 2007 One of the men I knew who had breast cancer had to have a cat because his cancer had spread to lymph nodes. When they gave him the dye - he said his groin/private parts felt as it they had been scalded but when he tried to yell he couldn't because his throat had closed. The pain in his groin had so distracted him he didn't even feel (or just thought it was panic) the closing of his throat. He almost died from his reaction to the dye. My fathers heart stopped from the dye in a myelogram of his back in the 1970's. He had to be shocked back - the family was called and we were prepared to lose him, but after several days he awoke and lived on until the yr 2000. I will not permit any dyes for any of my tests - they are done "dry".DustyKristy Sokoloski wrote: ,I did when I had a CT Scan of my abdomen and pelvic areas backin 2004. I had had a CT Scan of the same general area 7 yearsbefore for other female problems (which later turned out to bemy endo) and never had even the warming sensation.So when I had this CT Scan in 2004 I got very concerned. I toldthe tech that I had a lot of pain in my vulvar area when theyinjected the contrast thru the IV that they gave. She said,"yes, it's normal to feel a warming sensation or like you haveto go potty" but I had to tell her that wasn't what I wasfeeling. I literally hurt and burned in the few minutes thatcontrast was in me.After that portion was done I was fine. My vulvodynia is causedby nerve damage.That article I sent yesterday talked about the two differenttypes of pain that we feel. I sent it because I thought itmight interest everyone. With my problems I fit a bit of both. The muscle part because of the fibro and the nerve part becauseof my vulvodynia and also to some extent my endo.Also, when my osteoarthritis acts up the nerves will come in toplay by causing burning in my thigh area at the same time thatthe thigh muscles were hurting. Many people with arthritis getall kinds of other symptoms that are more typical witharthritis. Not me. And as of late (meaning in the last severalyears) I've started to notice some changes in my arthritisindicating that it's getting worse.When I started to notice that my right leg was starting tobother me in the past year or two I started getting the symptomsthere that I have always gotten in my left leg when thearthritis acts up. So I knew then that the arthritis that hasalways been in my right leg but has never bothered me beforestarted to bother me. I'm also starting to notice problems inmy left arm and elbow. How I've noticed that is sometimes whenthe weather changes. This is regardless of whether I'm typing alot or not (and I make sure to take frequent breaks).I have learned since then that nerves as well as ligamentsacting up can be a symptom of arthritis.Kristy ____________________________________________________________________________________Get easy, one-click access to your favorites. Make Yahoo! your homepage.http://www.yahoo.com/r/hs **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, Thanks for your cooperation! ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2007 Report Share Posted November 17, 2007 You gotta wonder how much iodine they put into those tests. I mean iodine is part of our chemical make up... so it must be a freaking super load. Or maybe they actually (but that would be idiotic) put in known allergens such as highly allergic reaction chemicals or actual dyes and that causes the problem.DustyChelle wrote: Dusty, it was a hard decision, and I sure did not want to actually use the dye, but I felt like I needed to go for it...just wanted to KNOW what's going on. I probably won't do it anymore...but the tests I had that day were worth the risks of the contrast... Ghee whiz, how awful what happened to your dad. Hugs, Chelle Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2007 Report Share Posted November 17, 2007 Hi: I didn't read all the posts about the dye on the CT scans. But the iodine caught my eye. I've never had a CT scan partly because they told me due to my shellfish allergy which is supposedly iodine related. I would have to take Prednisone prior to having it. I didn't want to deal with it. I also couldn't have a facial with that was seaweed based for the same reason. Go figure. Sherri -------------- Original message -------------- You gotta wonder how much iodine they put into those tests. I mean iodine is part of our chemical make up... so it must be a freaking super load. Or maybe they actually (but that would be idiotic) put in known allergens such as highly allergic reaction chemicals or actual dyes and that causes the problem.DustyChelle wrote: Dusty, it was a hard decision, and I sure did not want to actually use the dye, but I felt like I needed to go for it...just wanted to KNOW what's going on. I probably won't do it anymore...but the tests I had that day were worth the risks of the contrast... Ghee whiz, how awful what happened to your dad. Hugs, Chelle Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 Dusty, This is something that comes up regularly on the iodine group -- people saying, oh, i'm allergic to contrast dyes and seafood, so how could i possibly tolerate iodine supplementation, even though i'd like to try it. . . In almost all cases, though, there's no problem, since the chemical composition of the contrast dyes versus the iodine/ iodide used in supplementation is different. I won't be at all surprised that there are lousy things added to the dye -- preservatives, perhaps? Adverse reactions to contrast dyes are, indeed, a really scary thing. Years ago i accompanied my sister, who was then epileptic (no longer, after very successful brain surgery)and was having a scan involving iodine dye at a hotsy-totsy Park Avenue office. I waited and waited and when it seemed as if way too much time had passed, asked a nurse what was going on. She took me back to see my sister, who had had a VIOLENT reaction and, even 1/2 hour later had eyelids so puffed up she could hardly see. The idiots didn't even have a line in her in case of just such a contingency -- and refused to stop the scan even though she thought she was dying, her heart was pounding so hard. Hollis ==================== Date: 2007/11/17 Sat PM 12:59:49 CST To: VulvarDisorders Subject: Re: CT scan ? You gotta wonder how much iodine they put into those tests. I mean iodine is part of our chemical make up... so it must be a freaking super load. Or maybe they actually (but that would be idiotic) put in known allergens such as highly allergic reaction chemicals or actual dyes and that causes the problem. Dusty Chelle wrote: Dusty, it was a hard decision, and I sure did not want to actually use the dye, but I felt like I needed to go for it...just wanted to KNOW what's going on. I probably won't do it anymore...but the tests I had that day were worth the risks of the contrast...  Ghee whiz, how awful what happened to your dad. Hugs, Chelle Be a better pen pal. Text or chat with friends inside Yahoo! Mail. See how. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 18, 2007 Report Share Posted November 18, 2007 hgz wrote: >>>>>>>>>>>>>>>>Shetook me back to see my sister, who had had a VIOLENT reactionand, even 1/2 hour later had eyelids so puffed up she could hardly see. The idiots didn't even have a line in her in case of justsuch a contingency -- and refused to stop the scan even thoughshe thought she was dying, her heart was pounding so hard. Hollis, your poor sister...I cannot imagine how scared she was... I have to admit, when I learned about the dye, I almost said no...but I was desperate to find out what's going on in there...so reluctantly I said, yes. I laid there and prayed... That tech wasted no time in 'unhooking' me when I told her I had vulvar burning...she had already let me know that she would be checking on me and I could let them know if I needed anything. They assured me that they have two docs on staff and meds for reactions...I hated using the contrast and dye...and hopefully I won't ever do it again...but it was indeed worth it. Hugs, Chelle Quote Link to comment Share on other sites More sharing options...
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