Guest guest Posted December 10, 2007 Report Share Posted December 10, 2007 hi, i posted a very similar post on happypelvis so if you read it twice, i appologize. i went to my new pt today for the second time. she is supposedly very good (raquel perlis) and she did a lot of soft tissue massage and skin rolling all over and around the clitoral area, which is where i have pain. she never went directly on or near, but all the pressure from the massage on the tissues nearby seemed to really stir things up. now i have a very similar pain that i did when this all began, like a hypersensitive, arousal-like pain, which was the absolute worst and took forever to calm down. i am also getting nerve blocks up in new hampshire with dr. quesada because him and dr. conway believe i have pudendal neuralgia. basically they believe my nerves are inflammed and need to be calmed down and re- wired. but dr. quesada also thinks i should go to pt incase my muscles are playing a role in this. however, i am very scared that going to pt is just going to stir things up and prevent any progress since the nerves won't be able to have a chance to calm down. i truly believe that my pain is pudendal neuralgia and i am just very confused as to whether pt is going to help or hurt me. i feel the best when everything is avoided down there and there is no direct touch or anything and while pt obviously doesn't do anything right there, all the pressure from nearby tissues still irritates the clitoral nerve pain. i guess i'm just not sure what to do. i don't know if i should continue pt or if i should just do absolutely whatever i can to calm that nerve down which is avoiding it at all costs. i know they say that nerve pain is very difficult, if not impossible to get rid of...but i am determined that i am going to get better...i just am not sure right now what the best option for me is and was wondering if any of you have similar nerve pain and are going to pt or if you had any advice? thanks so much, erin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2007 Report Share Posted December 10, 2007 Hi there, I don't post often anymore, mostly because I am doing pretty well since surgery to the area but I do have a little experience with the whole PT thing. I had PT similar to what you are doing right now with the deep and soft tissue massage. I had mine done after surgery to relieve secondary vaginismus (from the surgery and years of vestibulitis). While I did find some relief from the vaginismus, it did stir up symptoms while it was being done. I would say that if your problems are primarily nerve related and your physicians are not thinking there is a muscular connection, you are in my unproffessional opinnion not going to see much benifit from the PT. Now if you were doing Biofeedback that may help with pudential nuralagia in combination with other treatments. I would talk to your PT and with your physician about the increase of symptoms during treatment and see what else they recomend. Bunny > > hi, > > i posted a very similar post on happypelvis so if you read it twice, > i appologize. > > i went to my new pt today for the second time. she is supposedly > very good (raquel perlis) and she did a lot of soft tissue massage > and skin rolling all over and around the clitoral area, which is > where i have pain. she never went directly on or near, but all the > pressure from the massage on the tissues nearby seemed to really > stir things up. now i have a very similar pain that i did when this > all began, like a hypersensitive, arousal-like pain, which was the > absolute worst and took forever to calm down. i am also getting > nerve blocks up in new hampshire with dr. quesada because him and > dr. conway believe i have pudendal neuralgia. basically they > believe my nerves are inflammed and need to be calmed down and re- > wired. but dr. quesada also thinks i should go to pt incase my > muscles are playing a role in this. however, i am very scared that > going to pt is just going to stir things up and prevent any progress > since the nerves won't be able to have a chance to calm down. i > truly believe that my pain is pudendal neuralgia and i am just very > confused as to whether pt is going to help or hurt me. i feel the > best when everything is avoided down there and there is no direct > touch or anything and while pt obviously doesn't do anything right > there, all the pressure from nearby tissues still irritates the > clitoral nerve pain. i guess i'm just not sure what to do. i don't > know if i should continue pt or if i should just do absolutely > whatever i can to calm that nerve down which is avoiding it at all > costs. > > i know they say that nerve pain is very difficult, if not impossible > to get rid of...but i am determined that i am going to get > better...i just am not sure right now what the best option for me is > and was wondering if any of you have similar nerve pain and are > going to pt or if you had any advice? > > thanks so much, > > erin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2007 Report Share Posted December 11, 2007 , I don't have pudendal neuralgia, but I know that often PT stirs things up and that we feel worse before we feel better. Of course just avoiding the area feels best - but unless you want to avoid it forever, you may have to go though some pain to see some gain. Again, just my thoughts. I don't have pudendal neuralgia so maybe it's totally different. But I would think Conway knows his stuff, so if he wants you to see a PT, I would do it. Melinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 Melinda, It wasn't Dr. Conway that suggested the PT. It was the other doctor: Dr. Quesada, the one who is doing the nerve blocks that recommended the PT as well. I know some feel that PT is good for a nerve problem like pudenal neuralgia but it actually makes the problem worse because the nerves don't work the same way the muscles do when it comes to how the pain occurs. PT works better for muscles such as if there's been a muscle tear that required surgical repair and then after a time the PT becomes necessary to make sure those muscles don't atrophy. Also, just because a doctor recommends something as far as treatment that doesn't mean they are always right. Here's an example of what I mean. There is a doctor here in my hometown (not the one I saw at Mayo Clinic ville) that is supposed to be an expert on vulvodynia and as of the last I heard the only treatment he felt necessary for treating all aspects of vulvodynia was Crisco or vegetable oil. Because there are so many variations to vulvodynia that kind of treatment would not be helpful to some ladies (how I know this about this doctor is I had talked to someone in this area that had gone to this doctor). Kristy ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 I will mention that with the PT I am having for my back and neck right now I will often feel really sore afterwards for a day or two but will feel much better after that. And long term there has definatly been loads of improvement. Bunny > > , > I don't have pudendal neuralgia, but I know that often PT stirs things > up and that we feel worse before we feel better. Of course just > avoiding the area feels best - but unless you want to avoid it forever, > you may have to go though some pain to see some gain. Again, just my > thoughts. I don't have pudendal neuralgia so maybe it's totally > different. But I would think Conway knows his stuff, so if he wants you > to see a PT, I would do it. > Melinda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 Thanks for your advice everyone. I'm not really sure what I'm going to do (continue PT or not while I'm getting the blocks). I just don't want to make the wrong choice- either do it in conjunction with the blocks and have the pt hurt the block's progress, or don't do it with the blocks, but end up having muscles be involved). I think I will go to my PT appt. next week and tell her that I think she went a little too close and then I will discuss it more with my pudendal neuralgia doctor when i see him on jan. 2. this whole thing just really sucks. sometimes i can be strong about it and believe that i'm going to get better, but other times (like now) i feel like this will be how the rest of my life will be. i just keep thinking that i will be single, alone, never able to have kids, depressed and in pain for the rest of my life. i wish my pain was muscle related because then i'd be sure i could get better...but in my heart i think my nerves are just messed up, not related to muscles...and god knows how i'll be able to fix that. maybe in 20 years the medicine will have found something. erinchristina_bunny wrote: I will mention that with the PT I am having for my back and neck right now I will often feel really sore afterwards for a day or two but will feel much better after that. And long term there has definatly been loads of improvement. Bunny>> ,> I don't have pudendal neuralgia, but I know that often PT stirs things > up and that we feel worse before we feel better. Of course just > avoiding the area feels best - but unless you want to avoid it forever, > you may have to go though some pain to see some gain. Again, just my > thoughts. I don't have pudendal neuralgia so maybe it's totally > different. But I would think Conway knows his stuff, so if he wants you > to see a PT, I would do it.> Melinda> Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 , Don't give up hope. It took me a long time (8 years) to find a doctor who had the answers. Sometimes I would come home crying and ready to give up after some insensitive doctor would send me to a psychologist or after round after round of antibiotic-antifungle- antibiotic merry-go-round chase. But I did finally get the help I need. It will take time and you may have to try many different things, but I really do believe the answers are out there for us. Bunny > > > > , > > I don't have pudendal neuralgia, but I know that often PT stirs > things > > up and that we feel worse before we feel better. Of course just > > avoiding the area feels best - but unless you want to avoid it > forever, > > you may have to go though some pain to see some gain. Again, just > my > > thoughts. I don't have pudendal neuralgia so maybe it's totally > > different. But I would think Conway knows his stuff, so if he wants > you > > to see a PT, I would do it. > > Melinda > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Yahoo! Search. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2007 Report Share Posted December 12, 2007 , Please discuss this with your pt asap. There's a lot of myths out there about nerve pain vs. other types of pain and what pt is good for. Your pt can give you some of the facts and the studies that support them so you can make a decision for yourself. PT was hugely important for my healing process...and yes, I had " nerve pain. " ALL PAIN is nerve pain as nerves are the way that we feel pain. However, when the term nerve pain is used usually it means that the nerve is inflamed or the initial insult/injury is gone yet the nerve is still transmitting pain signals. I know that pt can be helpful for that in some but not all cases, so talk to your pt about it. Lindsey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 Kristy, I know often doctors recommend things that may not be right - we've all experienced that. I only thought that Conway and Quesada are kind of at the forefront of pudendal neuralgia work and I would hate to see someone have invasive nerve blocks or even surgery if PT might have helped, that's all. =) Melinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 Melinda, I know just what you mean about trying to get help for a situation even if that meant PT for someone to consider if it's a muscle related issue. As for nerve blocks, there are different kinds and not all of them are that invasive. I tried what I thought were nerve blocks (turned out they were trigger point injections) for 3 years which helped for a time, but I've never had the kind of blocks like did. Both my gyn and Pain Management doctor agreed with me that trying blocks like the ones that did were not worth it. I chose not to because I am so prone to infections. As for surgery, surgery to my vulva (not like the one done for pudenal nerve surgery) caused my vulvodynia so I would be afraid of the pudenal nerve surgery if I thought the pudenal nerve was playing in to my problem so I understand the concern about the invasiveness of that. As for Dr. Conway, yes, he has a lot of experience with pudenal nerve surgery. From having talked to him after I saw his site I found he is also experienced with treating endometriosis (which is the reason I called to talk to him). And the discussion I had with him helped me get more questions together for my doctor. She agreed with the thoughts that he gave me when I told her about the conversation. So we are going to see if this injectable medication I sometimes need to use for my endo might also help these nerves calm down. I just hope that we all get the answers we need soon. Glad that PT does help some though. Hope you are doing well this week hon and I'm sorry if I came across the wrong way. The past couple weeks have been a mess for me but things are starting to settle down now. Kristy ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 , Lots of women get better. It's hard on these support groups because most of us here are still struggling...the ones who get better go on and live their lives. :-) You will get better, too! Nothing lasts forever. Keep searching until you find relief. Lindsey Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 Thanks Lindsey. I know what you mean about going on and living your life...that's what i try to do except on the bad days it's really hard. I can't imagine this lasting forever (for any of us) so i'm praying and really trying to believe that we'll get better. it would just be so much easier if i had someone to help me through this like a boyfriend...it would make me feel not so alone and not so messed up. i don't want to have to rely on someone to help me, but it would just be a little easier to not feel so alone. erin --- Lindsey wrote: > , > Lots of women get better. It's hard on these > support groups because most of us here are still > struggling...the ones who get better go on and live > their lives. :-) > You will get better, too! Nothing lasts forever. > Keep searching until you find relief. > Lindsey > > > --------------------------------- > Be a better friend, newshound, and know-it-all with > Yahoo! Mobile. Try it now. ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Yahoo! Search. http://tools.search.yahoo.com/newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 , I talked with my PT today at my appointment and she made the good point that PT is not just for muscles - it is also for connective tissue (especially skin rolling that we do) and our nerves are all intertwined in our connnective tissues and muscles - it's all connected! Melinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2007 Report Share Posted December 13, 2007 Kristy, No worries! =) I know you are going through a lot in this season of your life. Things never come across the way we intend them to online. =) Melinda > > I just hope that we all get the answers we need soon. Glad that > PT does help some though. Hope you are doing well this week hon > and I'm sorry if I came across the wrong way. The past couple > weeks have been a mess for me but things are starting to settle > down now. > > Kristy > > > > > > > > ______________________________________________________________________ ______________ > Never miss a thing. Make Yahoo your home page. > http://www.yahoo.com/r/hs > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 Melinda, Thank you. Unfortunately the last couple weeks has been about trying to straighten out an issue with getting a medication I'm going back on sent to my doctor's office so that we know it's going where it should. I saw what you said your PT said about the connective tissue and I find it interesting only because connective tissue disorders are diagnosed and treated by rheumatologists. Thanks for sharing that. Kristy ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 > > I saw what you said your PT said about the connective tissue and > I find it interesting only because connective tissue disorders > are diagnosed and treated by rheumatologists. Not true. This is in the scope of practice of pts and even acupuncturists. It's nice to know doctors aren't the only game in town. http://crisp.cit.nih.gov/Thesaurus/00018425.htm Lindsey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2007 Report Share Posted December 14, 2007 > > I saw what you said your PT said about the connective tissue and > I find it interesting only because connective tissue disorders > are diagnosed and treated by rheumatologists. Not true. This is in the scope of practice of pts and even acupuncturists. It's nice to know doctors aren't the only game in town. http://crisp.cit.nih.gov/Thesaurus/00018425.htm Lindsey Quote Link to comment Share on other sites More sharing options...
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