Guest guest Posted December 27, 2007 Report Share Posted December 27, 2007 I know this is slightly off-topic, but I was wondering how many women here have fibromyalgia? I'm concerned I may have it, but I keep reading different descriptions of the symptoms of this syndrome. All I know is I have frequent muscle aches and fatigue, neither of which go away no matter how much sleep I get or how much stretching/warm-up activities I do, on top of just generally feeling sick 24/7 (on top of other stuff, but I don't wanna go into my huge and lame medical history up-front, lol). But some sites say a symptom is constant excruciating pain, or that it can be on-again off-again pain...and I just don't know what to believe, and I don't want to be a hypochondriac and just assume I have something I don't, lol. Thanks, and I hope everyone had a great holiday! Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2007 Report Share Posted December 27, 2007 Hi Beth, I have fibromyalgia as my one of many health problems and it can create all kinds of symptoms. It has just as many atypical symptoms as it does typical ones. One of the more common symptoms that can occur is feeling like you have the flu every day but it isn't the flu. Some women also describe the feeling like as if they have been run over by a truck. If you have other questions for me please feel free to e-mail me off list any time. Kristy ________________________________________________________________________________\ ____ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2007 Report Share Posted December 27, 2007 I also have Fibro. I don't feel like I have the flu every day but once in awhile I do and man, it's horrible! I do have the pain of fibro every day though and the sensitivities etc. No fun. Hugs- Ivy -- Re: Fibromyalgia? Hi Beth, I have fibromyalgia as my one of many health problems and it can create all kinds of symptoms. It has just as many atypical symptoms as it does typical ones. One of the more common symptoms that can occur is feeling like you have the flu every day but it isn't the flu. Some women also describe the feeling like as if they have been run over by a truck. If you have other questions for me please feel free to e-mail me off list any time. Kristy ____________________________________________________________________________________ Never miss a thing. Make Yahoo your home page. http://www.yahoo.com/r/hs **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, Thanks for your cooperation! ** *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2007 Report Share Posted December 27, 2007 Hi Beth- I had it for years and didn't know. Finally I had 3 doctors diagnose it in the same week, lol. Anytime anyone touches me it's like "Ow!" Just about every muscle in my body hurts, that's constant for me. Sometimes I don't even know they hurt until someone touches me. I also get those flu like symptoms off and on and they go away pretty quickly in a day or so but for one day I feel like I have a full blown flu. Go to a rheumatologist or a doctor who can diagnose it for you Hun. Don't guess at it. Hugs- Ivy -- Fibromyalgia? I know this is slightly off-topic, but I was wondering how many women here have fibromyalgia? I'm concerned I may have it, but I keep reading different descriptions of the symptoms of this syndrome. All I know is I have frequent muscle aches and fatigue, neither of which go away no matter how much sleep I get or how much stretching/warm-up activities I do, on top of just generally feeling sick 24/7 (on top of other stuff, but I don't wanna go into my huge and lame medical history up-front, lol). But some sites say a symptom is constant excruciating pain, or that it can be on-again off-again pain...and I just don't know what to believe, and I don't want to be a hypochondriac and just assume I have something I don't, lol. Thanks, and I hope everyone had a great holiday! Beth **IF REPLYING TO THIS POST, PLEASE REMOVE ORIGINAL POST, Thanks for your cooperation! ** *** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2007 Report Share Posted December 27, 2007 in my understanding fibro can be either relapsing/remitting or constant pain, but there are 11 or so "tender spots" that are usually overtender to the touch. Many specialists see a link between fibro and vulvodynia. I can tell you I have had a lot of symptoms of fibro for many years, but have tried to stay away from that diagnosis because of all of the stigma (which is really unfair). I take a lot of the same vitamins that are recommended for fibro. I think lyrica is now being advertised for fibro and I think the jury's still out on that one. I hope it does help people, but I think that really great nutrition and lots of good quality sleep can help HEAL it. There's a great book called "Pain free 1-2-3" by Jakob Teitelbaum that talks about fibro. Lindsey Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2007 Report Share Posted December 27, 2007 I had one doctor tell me I had fibromyalgia so I went to a specialist--a rheumatologist-- and he told me I don't have it. As I understand it, the criteria for diagnosis is tender points in specific areas (the exam is called " mapping " ) and symptom profile. The second doc I saw said that fibro patients have lots of problems with sleep--can't sleep soundly because of pain. That's a prominent feature of fibro and I definitely don't have that! I sleep really soundly for 8-10 hours at a stretch. The drug lyrica just got approved for fibro (I saw on TV). It's all really confusing, though. I think I have more muscle pain than I should, but... Fibromyalgia isn't the only possible cause of that. Lia > > I know this is slightly off-topic, but I was wondering how many women > here have fibromyalgia? I'm concerned I may have it, but I keep > reading different descriptions of the symptoms of this syndrome. All > I know is I have frequent muscle aches and fatigue, neither of which > go away no matter how much sleep I get or how much stretching/warm-up > activities I do, on top of just generally feeling sick 24/7 (on top of > other stuff, but I don't wanna go into my huge and lame medical > history up-front, lol). But some sites say a symptom is constant > excruciating pain, or that it can be on-again off-again pain...and I > just don't know what to believe, and I don't want to be a > hypochondriac and just assume I have something I don't, lol. > > Thanks, and I hope everyone had a great holiday! > Beth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2007 Report Share Posted December 27, 2007 Lia, Whether someone sleeps not enough or too much is not something that factors in to the case for every patient with fibro. I have fibromyalgia and do not have a problem with sleeping. I get a very good sleep at night and the pain from my fibro does not affect my ability to sleep. If pain affects my ability to sleep (which hasn't happened in a while) it's because of one of my other medical problems such as my endo. Kristy ________________________________________________________________________________\ ____ Be a better friend, newshound, and know-it-all with Yahoo! Mobile. Try it now. http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2007 Report Share Posted December 28, 2007 Lia, I had a lot of general pain, especially with touch, in my legs and back...the skin rolling my PT does has almost completely eliminated this. Melinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2007 Report Share Posted December 29, 2007 I was dx with fibro about 11 years ago and I've had some good periods and some really bad periods. When I was working retail, the aching and fatigue and weakness were so severe, I needed a cane to get around. I'm much better now, although I still have muscle pain and tenderness on a daily basis. Not being able to sleep has never been an issue for me; I may not be getting the quality of sleep I need because I don't always wake up refreshed but I can sleep just about anywhere, anytime. Fibro seems to be connected with other auto-immune problems and many of these conditions we deal with tend to go together. In my case, it's the VVD, LP, depression, migraines and fibromyalgia. I wouldn't discount fibro just because of the sleep issue. I stopped seeing my rheumy because he told me not to come back until I was walking for 15 minutes every day. At the time, I was afraid to walk 5 minutes away from my house because I would be too tired to walk back. So I haven't been back. I see a wonderful chiropractor who respects my feelings and the condition and has me working on strengthening musles. He has excellent massage therapists who have helped me more than any other treatment has. I know how frustrating it is it battle these multiple conditions. Just don't expect more of yourself than you're able to do. http://www.fibrohugs.com/staticpages/index.php?page=20040209003840699 is a really good support site for fibromyalgia. Looking for last minute shopping deals? Find them fast with Yahoo! Search. Quote Link to comment Share on other sites More sharing options...
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