Re: - LP

[Guest guest]

,

Yes, my LP follows that pain pattern. As long as I am careful how I

move and don't wear tight pants, I don't notice it much. But

occasionally I will have a flare up (haven't been able to figure out

from what or why...) and then it feels like sharp little pains under

the hood. It usually lasts a few days and goes away again. Dr.

's office can probably tell you if that's what it is but most

treatments are similar to LS - steroids, oral nerve pain

meds...neither of those worked for me. Estrace helps alot and I use

tons of emu/coconut oils. Other people probably respond to the other

meds better than I do. LP is usually more serious in it's fusing and

atrophy than LS and some people end up on very heavy duty immuno

suppressant drugs, but some people are fine. One big difference is

that LP may require some vaginal treatment, like an antibiotic cream

insterted vaginally to control inflammation. I was doing that 2x/week

and hated using antibiotics so often, but I'm pregnant so I've

stopped that. It'll be interesting to see how the pregnancy affects

all this.

LP can also affect other areas, most commonly the mouth, nail beds,

and scalp. I saw Dr. Margesson for a consult at 's office and

she was helpful, although I know another girl on here had a bad

experience with her.

Melinda

[Guest guest]

thanks melinda. mine isn't sharp pains, it's more a dull ache. but i'm still going to try to get an appointment with her because it very well could be something like that under the hood. was it hard to get an appointment with her? i hope they don't deny me! thanks for your help! erinspanishmiss430 wrote: ,Yes, my LP follows that pain pattern. As long as I am careful how I move and don't wear tight pants, I don't notice it much. But

occasionally I will have a flare up (haven't been able to figure out from what or why...) and then it feels like sharp little pains under the hood. It usually lasts a few days and goes away again. Dr. 's office can probably tell you if that's what it is but most treatments are similar to LS - steroids, oral nerve pain meds...neither of those worked for me. Estrace helps alot and I use tons of emu/coconut oils. Other people probably respond to the other meds better than I do. LP is usually more serious in it's fusing and atrophy than LS and some people end up on very heavy duty immuno suppressant drugs, but some people are fine. One big difference is that LP may require some vaginal treatment, like an antibiotic cream insterted vaginally to control inflammation. I was doing that 2x/week and hated using antibiotics so often, but I'm pregnant so I've stopped that. It'll be interesting to see how the pregnancy

affects all this. LP can also affect other areas, most commonly the mouth, nail beds, and scalp. I saw Dr. Margesson for a consult at 's office and she was helpful, although I know another girl on here had a bad experience with her. Melinda

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[Guest guest]

,

I had to wait about a month for an appointment, which isn't bad, but I

hear from them when I go in now that they are very busy, so call as

soon as possible! I don't know if being able to go on a cancellation

list helps, but sometimes it does at other doctors I've been to. What

usually happens is that you see Dr. for a first visit and then

get assigned to one of her associates, and you see her once in a while

if the associate is stumped. If even is stumped, then they give

you a consult with Margesson. =)

Melinda

[Guest guest]

Thanks Melinda. They are supposed to be sending me

the paperwork to fill out, now I just need my doctor

to write a letter and send my records. I'm not sure

if you read my other post about the letter, but i'm

worried that dr. conway will write that my diagnosis

is pudendal neuralgia (they need him to write a

" letter of diagnosis " ) and then she'll be biased in

her exam. For example, I don't want them to read it

and think 'well she's seeing the specialist for

pudendal neuralgia so she doesn't need to see us', or

'well he diagnosed her with that so we don't need to

look for a skin problem, especially since he did the

emg test and my levels were higher than " normal " . But

I really want to see her since Dr. Conway told me that

almost everyone has some level of " entrapment " of the

nerve based on their activities, it's just a matter of

whether it causes pain or not- and i used to be super

active for my entire life and i am really beginning to

think about the fact that if i had pn i would most

likely have symptoms elsewhere and the nerve blocks

haven't helped me which he really thought would. I

know you can't say for sure, but do you think they'd

deny me for an appt. because of that?

On another note, does dr. stewart want you to keep

another gyn for normal gyn stuff? I don't like my

current gyn but don't know who else to go to because I

need someone knowledgeable with this condition.

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[Guest guest]

,

Unfortunately, Dr. 's practice is very compartamentalized. They

will not do OB/GYN stuff, and I guess for good reason...last month I

was having a lot of spotting and Dr. 's office told me they

couldn't help and I needed to see an OB/GYN - turns out I was pregnant.

And they are sooo busy with the V stuff that they don't want to spend

time on the pap smears and breast exams. I don't have an OB/GYN that I

like either...I hadn't seen one in several years and I am seeing a

midwife for pregnancy care.

Melinda

PS Not sure what to say about the diagnosis aspect - when I went I

didn't have a diagnosis yet and they diagnosed me. But I doubt they

would deny you an appointment based on that - it's called a second

opinion, people do it all the time!