ERIN/ jolts at night and having a really hard time

[Guest guest]

– I just found out today that my best friend who has the clitoral shocks, and

is a patient of Dr. Conway and Dr. Quesada will be getting Botox in hopes that

it will help her. She is in pretty bad shape, so they are trying everything

possible to help her. We don’t know yet if Botox will be covered for this

condition by her insurance company, but even if it isn’t she will have it done

anyway.

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of euc1109 s

Sent: Wednesday, February 06, 2008 8:53 AM

To: VulvarDisorders

Subject: RE: jolts at night and having a really hard time

Thanks for everyone's input. I am one of Dr. Conway's

patients and he does not think my nerve is entrapped (at least not severe

enough to require surgery). I haven't talked to him about these yet, as

they are relatively recent, but I am going to get another block in a couple of

weeks and will talk to him about them then. While I don't know why I am

having these, I hope that it means my nerve is starting to heal, since they're

not painful. But, who knows....i doubt it, but I try to look on the

positive side for some hope. I'm currently on medications but relatively

low ones and if a few more different blocks don't help then Dr. Quesada is

going to change my meds. I'm only 23 and pretty healthy- my nerves should

be able to fully heal!!!!! (that's me looking on the positive

side...usually I don't have any hope)

erin

millburytimes wrote:

If you do a search for electric

shocks or jolts on the pudendal.info site you will find a lot of information.

It is called hyper-arousal syndrome. A very good friend of mine has this very

severely. It was caused by the birth of her child – he should have been

delivered by C-section, but the doctor let him sit with his head pressing on

the pudendal nerve (near the clitoris) for too long. That was two years ago.

Her shocks are so bad, that she can no longer drive as she jerks so badly she

swerves off the road. She can have 30 or more shocks during a 24 hour period,

also while sleeping. They are extremely painful and can literally double her

over. She has no other PN or vaginal symptoms. She is a patient of Dr. Conway

and had pudendal decompression surgery five months ago, and still is not any

better. Dr. Conway feels that she will improve with time, but (as with all PN

surgeries) it can take up to two years.

From: VulvarDisorders [mailto:VulvarDisorders ]

On Behalf Of euc1109

Sent: Monday, February 04, 2008 2:35 AM

To: VulvarDisorders

Subject: jolts at night and having a really hard time

hi all,

i'm having a very difficult time going to sleep right now and am on the verge

of just losing

every single ounce of hope. i think i am getting worse because lately when i go

to bed

and my body relaxes, i get these jolts into the clitoris. they don't hurt and i

don't really

know how to describe them, but they wake me up and eventually my nerves just

end up

feeling aroused and very stimulated. i don't know why i only get this at night,

and it's not

when i'm laying in bed watching tv, it's as i'm falling asleep. i have no idea

what this

means and have a feeling it's not good. does anyone else ever experience this?

all in all i am just breaking down. i just keep thinking this is a horrible

dream and that i

just have to wake up, but it never happens. i'm only 23 and can't even fathom

living the

rest of my life like this. i feel like i've tried everything, and i don't even

know what my

problem is. at first i thought it was pudendal neuralgia but i'm questioning

that lately.

then i thought maybe it's lichen planus under the hood, but with these

jolts/arousal

feeling at night now, i'm not sure how that could be from lichen. i feel so

alone through

all of this. my friend and my mom knows about it, but i think they're tired of

dealing with

me and don't know what to say so i just don't talk to them about it anymore. i

don't have

a boyfriend to talk to about it, and don't see how i could ever start a

relationship with this

problem. i thought it was bad enough before, but now with these jolts/arousal

like feeling

at night it's getting hard for me to get any sleep, when sleep never used to

bother me

before, another reason that i think i'm getting worse. i know everyone on here

has gone

through times like this, but i just don't even know how to stay sane anymore.

imagine

trying to go to sleep and having jolts into your clitoris that end up making

you feel

extremely aroused that doesn't go away. sleep used to be my only time to escape

but now

i don't even have that anymore. i keep thinking that i don't understand how

something

that is used solely for pleasure is causing me so much pain and depression. i

just feel like

my life is over and for the next 50 years i'll be living in hell. i just keep

pondering over

why i get like this at night as i'm falling asleep and i've got nothing. i

really don't think i

can keep pushing along for much longer before i go into complete and utter

depression,

not to mention having a very difficult time sleeping.

today's going to be a wonderful day at work and school, since i'm pretty sure

i'll be in pain

and will be exhausted from only getting a couple of hours of sleep, if any at

all.

erin

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