Ivy/Re: New member, very very sad/ For and

[Guest guest]

I

know what you mean Ivy. I have been in bed for nearly two years. I think of the

special things he does – washing my clothes in the special soap, bringing

my dinner to my daybed every night, making my lunch and putting it in the

refrigerator before he leaves every morning, counting out all my pills and

putting them in little packets, skin rolling every evening when I know he just

wants to sit in his chair and watch TV, etc. etc. So many, many little things

that just say love over and over. And the pain gets to me and I get crabby and

snap at him. And I think every morning when he leaves for an hour in traffic

what if I never saw him again. I apologize every time I am nasty and say stuff

out of aggravation from this pudendal nerve pain and vestibulitis. I must be so

miserable to live with at times – I don’t know how he stands me,

but that is pure devotion and love. I am just going to keep trying and trying

to keep telling him how much he is appreciated. Take care of your husband also

Ivy, he sounds like a keeper too!

nne

From: VulvarDisorders

[mailto:VulvarDisorders ] On Behalf Of Ivy

Sent: Tuesday, February 12, 2008 8:40 PM

To: VulvarDisorders

Subject: RE: Re: New member, very very sad/ For and

Amen

nne. This isn't the only disease/disorder I have, I have many and

my husband has also carried the burden for us both through all of this. Good

men are few and far between. I don't think I let him know how much I

appreciate him though, or at least often enough. I need to change that.

Thanks for your comments....I'm going to work on that.

Hugs-

Ivy

-- RE: Re: New member, very very sad/ For

and

I hope that all

of you that are still married and are suffering with this dreadful disease(s)

remember what the meaning of marriage is and the vows you took when you got

married. We are sexual beings by nature and will be until we die. I got

married very young and there have always been ups and downs in our intimacy.

But it is the caring and commitment that keeps us together. If your mate

leaves you because you can no longer have sex, then it is better now than

later. And there are many, many men who will dearly love and care for you as

a person, not a sexual object – that is what makes you soul mates for

life. Intimacy is still very important to my husband and I, but we know what

our love means to both of us and sex is put on the back burner for now, but I

hope not forever. These last two years have been hell for my husband, but he

really showed me what the meaning of love and devotion is. He is working a

full time job, caring for me, cooking and doing all the laundry, housework,

etc. – he is exhausted. He has done things that I have never seen

him do before, and words cannot express all my feelings (there just are no

words that can express what I feel) for all that he has done for me. We have

been married 48 years.

nne

[Guest guest]

Thanks nne...

Your husband sounds like a real winner, and you're lucky to have each other.

We have our ups and downs here. Mine's not all roses and there are some issues there that aren't related to this at all, but I will say that if nothing else, he's been a very good friend to me in the respect that he takes care of me as much as he can and says he will always do so.

Hugs-

Ivy

-- RE: Re: New member, very very sad/ For and

I hope that all of you that are still married and are suffering with this dreadful disease(s) remember what the meaning of marriage is and the vows you took when you got married. We are sexual beings by nature and will be until we die. I got married very young and there have always been ups and downs in our intimacy. But it is the caring and commitment that keeps us together. If your mate leaves you because you can no longer have sex, then it is better now than later. And there are many, many men who will dearly love and care for you as a person, not a sexual object – that is what makes you soul mates for life. Intimacy is still very important to my husband and I, but we know what our love means to both of us and sex is put on the back burner for now, but I hope not forever. These last two years have been hell for my husband, but he really showed me what the meaning of love and devotion is. He is working a full time job, caring for me, cooking and doing all the laundry, housework, etc. – he is exhausted. He has done things that I have never seen him do before, and words cannot express all my feelings (there just are no words that can express what I feel) for all that he has done for me. We have been married 48 years.

nne