Guest guest Posted November 4, 2001 Report Share Posted November 4, 2001 Jill My husband also has the cerebellar type of MSA(MSA -C) .The neurologist explained that mostly his balance would be affected. But his autonomic system is also affected , hence multi systems. I guess the autonomic atrophy affects his other problems that have developed like his speech being slurred,light headedness on standing or exertion, impotence, frequinte urination. He does not have tremors. Since there in no medication for balance problems, he only take salt and flurinef to control his blood pressure. Hope this helps Symptoms began in 99, still walks unaided. Dx in 2000 Gert Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 This is very nice, Laurie. Thanks for sending it and thanks for all your hard work along with and Christie. I can't fail to mention a thanks to all of you who contributed to this project. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 This is very nice, Laurie. Thanks for sending it and thanks for all your hard work along with and Christie. I can't fail to mention a thanks to all of you who contributed to this project. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 This is very nice, Laurie. Thanks for sending it and thanks for all your hard work along with and Christie. I can't fail to mention a thanks to all of you who contributed to this project. Alice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 -laurie, it was so nice that you were able to do this and contribute to the UMDF. You must feel proud, celia -- In , Laureta Fitzgerald wrote: > Hi all > > I received a letter from UMDF thanking the group for the money raised at the > silent auction. It says: > > Thank you for the generous contribution of $437.50 we received on August 31, > 2004 from your sales at the 2004 symposium. We are so very excited about > these results! > > We have gratefully acknowledged this contribution - in honor of all > affected. > > It then goes on and talks about using it for medical research. > > laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 -laurie, it was so nice that you were able to do this and contribute to the UMDF. You must feel proud, celia -- In , Laureta Fitzgerald wrote: > Hi all > > I received a letter from UMDF thanking the group for the money raised at the > silent auction. It says: > > Thank you for the generous contribution of $437.50 we received on August 31, > 2004 from your sales at the 2004 symposium. We are so very excited about > these results! > > We have gratefully acknowledged this contribution - in honor of all > affected. > > It then goes on and talks about using it for medical research. > > laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 -laurie, it was so nice that you were able to do this and contribute to the UMDF. You must feel proud, celia -- In , Laureta Fitzgerald wrote: > Hi all > > I received a letter from UMDF thanking the group for the money raised at the > silent auction. It says: > > Thank you for the generous contribution of $437.50 we received on August 31, > 2004 from your sales at the 2004 symposium. We are so very excited about > these results! > > We have gratefully acknowledged this contribution - in honor of all > affected. > > It then goes on and talks about using it for medical research. > > laurie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Celia I'm proud of the fact that is now getting the recognition of an important part of support for adults and care-givers with mito and suspected mito. I really see this as a special place for all of us and like the fact that we were able to contribute and get the recognition for the group. laurie > > Reply-To: > Date: Tue, 14 Sep 2004 22:04:11 -0000 > To: > Subject: Re: thank you > > -laurie, it was so nice that you were able to do this and contribute > to the UMDF. You must feel proud, celia > > -- In , Laureta Fitzgerald wrote: >> Hi all >> >> I received a letter from UMDF thanking the group for the money > raised at the >> silent auction. It says: >> >> Thank you for the generous contribution of $437.50 we received on > August 31, >> 2004 from your sales at the 2004 symposium. We are so very excited > about >> these results! >> >> We have gratefully acknowledged this contribution - in honor of all >> affected. >> >> It then goes on and talks about using it for medical research. >> >> laurie > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Celia I'm proud of the fact that is now getting the recognition of an important part of support for adults and care-givers with mito and suspected mito. I really see this as a special place for all of us and like the fact that we were able to contribute and get the recognition for the group. laurie > > Reply-To: > Date: Tue, 14 Sep 2004 22:04:11 -0000 > To: > Subject: Re: thank you > > -laurie, it was so nice that you were able to do this and contribute > to the UMDF. You must feel proud, celia > > -- In , Laureta Fitzgerald wrote: >> Hi all >> >> I received a letter from UMDF thanking the group for the money > raised at the >> silent auction. It says: >> >> Thank you for the generous contribution of $437.50 we received on > August 31, >> 2004 from your sales at the 2004 symposium. We are so very excited > about >> these results! >> >> We have gratefully acknowledged this contribution - in honor of all >> affected. >> >> It then goes on and talks about using it for medical research. >> >> laurie > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2004 Report Share Posted September 14, 2004 Celia I'm proud of the fact that is now getting the recognition of an important part of support for adults and care-givers with mito and suspected mito. I really see this as a special place for all of us and like the fact that we were able to contribute and get the recognition for the group. laurie > > Reply-To: > Date: Tue, 14 Sep 2004 22:04:11 -0000 > To: > Subject: Re: thank you > > -laurie, it was so nice that you were able to do this and contribute > to the UMDF. You must feel proud, celia > > -- In , Laureta Fitzgerald wrote: >> Hi all >> >> I received a letter from UMDF thanking the group for the money > raised at the >> silent auction. It says: >> >> Thank you for the generous contribution of $437.50 we received on > August 31, >> 2004 from your sales at the 2004 symposium. We are so very excited > about >> these results! >> >> We have gratefully acknowledged this contribution - in honor of all >> affected. >> >> It then goes on and talks about using it for medical research. >> >> laurie > > > > Medical advice, information, opinions, data and statements contained herein > are not necessarily those of the list moderators. The author of this e mail is > entirely responsible for its content. List members are reminded of their > responsibility to evaluate the content of the postings and consult with their > physicians regarding changes in their own treatment. > > Personal attacks are not permitted on the list and anyone who sends one is > automatically moderated or removed depending on the severity of the attack. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2012 Report Share Posted December 2, 2012 Hi Group and All Contributors, I have been out here a few weeks now and while I have not really posted before, I am reading so many of the posts. They are so helpful. So I am incredibly appreciative to all of you for both the questions and the answers coming up in this forum. It is so safe and so much of what I identify with making it incredibly validating on this sometimes scary journey. My nada recently chose NC with me (not for long I am sure) because I gave my Aunt (Dad's sister) too much attention after the sudden loss of her 41 year old son. I am grateful my nada chose NC. It is a blessing to me that it was her choice. And I find that I support her choice and will maintain it even when she chooses to try to mend fences for attention. I just realized she was BPD. I have known something was terribly wrong for sometime. But could not figure it out and never wanted to hurt her. But boy oh boy does she not mind hurting me. Her second ex-husband and I spoke because I needed to know if he knew what was wrong with her. He told me she absolutely has BPD. He told me to look it up and I did. It is an exact match. The list of bad things she has done to me is so long and there is no list of good things. So sad...for her. She has really missed out on raising her 3 beautiful children. Now, none of us speak with her. I was the last one. But I must protect myself, my spouse and my children. So I accept her NC and will maintain it even when she changes her mind. This group has given me the strength, clarity and good conscience to know what is right for my family without feeling guilt for the abusive nada. Hope everything I have posted is proper and correct. It is my first post. Thank you again to all of you! Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2012 Report Share Posted December 2, 2012 Agree with every point you make... I am fairly new to the group and feel the same as you. Having joined this group has made a great difference in a really short period of time. Hang tough! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2012 Report Share Posted December 2, 2012 Please hold firm to the NC. My nada has been mad at us plenty of times telling us not to come over, don't call, etc. Then in no time at all she would call us and want us to visit. One of the most recent times she was quite nasty about it. But the very next morning the water line to her toilet broke and was flooding the bathroom and hallway. She was frazzled and couldn't turn off the line. Hubby drove over there ASAP (still 1/2 hour drive) and took care of the mess. What did she do? She stood there watching him the whole time and just chain smoked. No offer of help or thank you. This final time she has done the whole kiss off routine and we're going to stick with it. Especially since she has called the police to report that we've been stealing from her (not even a hint of truth in that one). So we're done. It is easier when they go NC with us instead of us trying to cut the ties. Now the only trick is to make sure they don't try to draw us in again with some tale of woe. Be strong. > > Hi Group and All Contributors, > > I have been out here a few weeks now and while I have not really posted before, I am reading so many of the posts. They are so helpful. So I am incredibly appreciative to all of you for both the questions and the answers coming up in this forum. It is so safe and so much of what I identify with making it incredibly validating on this sometimes scary journey. > > My nada recently chose NC with me (not for long I am sure) because I gave my Aunt (Dad's sister) too much attention after the sudden loss of her 41 year old son. I am grateful my nada chose NC. It is a blessing to me that it was her choice. And I find that I support her choice and will maintain it even when she chooses to try to mend fences for attention. > > I just realized she was BPD. I have known something was terribly wrong for sometime. But could not figure it out and never wanted to hurt her. But boy oh boy does she not mind hurting me. Her second ex-husband and I spoke because I needed to know if he knew what was wrong with her. He told me she absolutely has BPD. He told me to look it up and I did. It is an exact match. The list of bad things she has done to me is so long and there is no list of good things. So sad...for her. She has really missed out on raising her 3 beautiful children. Now, none of us speak with her. I was the last one. > > But I must protect myself, my spouse and my children. So I accept her NC and will maintain it even when she changes her mind. This group has given me the strength, clarity and good conscience to know what is right for my family without feeling guilt for the abusive nada. Hope everything I have posted is proper and correct. It is my first post. > > Thank you again to all of you! > > Carolyn > Quote Link to comment Share on other sites More sharing options...
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