Lydia/ This may be what all women with vvs are looking for...

[Guest guest]

Hi Lydia,

Are you having the spinal stimulator (SPINAL DORSAL COLUMN

STIMULATOR) or the pain pump (INTRATHECAL SPINAL PUMP) installed?

Have you had your pre-testing done yet so that you will know it will work? Both

of these are quite common procedures done in the Boston area, but I don’t

know of anyone who has had it done for VVS. I know of several people who have

had either done for pelvic pain and spinal back pain, but not for the condition

you have. I find it interesting that this doctor has treated hundreds of women

with this procedure. I am assuming that you are having it permanently

implanted. I know the new ones last a lot longer than the old ones did. How

often will you have to have the battery recharged?

nne

From:

VulvarDisorders [mailto:VulvarDisorders ] On

Behalf Of lydiarudie

Sent: Tuesday, March 04, 2008 5:34 PM

To: VulvarDisorders

Subject: This may be what all women with vvs are looking for...

Hi,

I'm new to this group but I just had to join, let me explain my

situation...

My name is Lydia and I live in Wisconsin. I've had the severe

symptoms of VVS since I was twelve (10 years ago). A few years ago I

got fed up with doctors telling me that this horrible pain was all

in my head (who would believe a 12 year old, doing her own research)

anyways, I joined an online group similar to this one and a

wonderful woman directed me to Women's Care of Wisconsin, finally a

doctor who listened to me and my concerns. I went through physical

therapy (there is such a thing for vular pain) and other treatments

including pain meds. I'm getting married in July and knowing the

horrible pain that went with sex I didn't want a marriage to start

out on a bad note with no physical relationship (believe me there

wouldn't have been any physical relationship) that is until I met

with a WONDERFUL pain specialist in Appleton WI. He treats women

with this kind of pain (his wife is a obgyn at local hospital) they

specialize in this! Believe me when I say, women who think they have

no hope of ever being able to enjoy sex, THINK AGAIN!!!! I'm having

a proceedure which involves placing an implant into the spine to

block the pain senses from getting to the brain, so no pain. He has

treated hundreds of women wiht vvs with this proceedure. I really

couldn't wait to tell others about this proceedure! I feel this is a

simple breakthrough that could finally give us relief.