Petitioning the AAP

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Why not? Instead of just talking about it, why don't we DO it? Does anyone know how to start an official petition? Candace, AZ mommy to Tiernan, 5.5 mos tort, plagiolara_glynn <laraglynn@...> wrote: I agree with you that it is a total shame and borderline reckless that parents aren't being educated to plagiocephaly. We are pounded from the time we first find out that we are pregnant that babies should now be put to sleep on their

backs, but no one bothers to mention about putting them on their backs AND making sure you change the position on their heads regularly or it can cause problems. We need to all band together and demand that the American Academy of Pediatrics mandate that all pediatricians and hospitals educate parents of this new trend. Lara> >> > As with tons of other parents here, my husband and I noticed our > > son's flattening at

around 2 months of age. We never noticed he > > wasn't turning his head to the left on his own since he was so > young > > anyway and that wasn't a milestone to look for. Looking back at > > photos now, we see that he was always facing towards the right. > He > > had mild torticollis (sp?) which caused plagiocephaly on his right > > side. He didn't have any facial assymetry, but one ear was 3mm > > forward to his lip and his top cranial picture was skewed 9mm. > With > > this sites help and encouragement and the referral from our > > pediatrician, we started aggressive repositioning at 3 months then > > took him at 4 1/2 months to an orthotist who does DocBands. At > that > > time, the orthotist said that the positioning appeared to be > working > > and to continue with our plan until 6-7 months of age and then >

bring > > him back in for remeasuring. He is only 5 1/2 months now and we > can > > see on our own that it is working! We are so blessed and > thankful. > > The aggressive repositioning is tough, but I say all the time, I > can > > do ANYTHING for 6 months so these 2 haven't been too bad. I did > > wake up every few hours through the night and reposition his head > if > > necessary and kept him upright off his head during the day. Tummy > > time was increased throughout the day and whenever I did have to > put > > him down on his back, I used a memory foam wedge including when he > > was put in any kind of seat (except his car seat for the obvious > > safety reasons). Let me say again, it wasn't anywhere close to > > easy, but IT CAN BE DONE. And one positive way to look at it is > my > > arms haven't

been this toned in 15 years and I lost 5 pounds > > carrying around the extra 15 pounds for the last 2 months trying > to > > keep him off his head! Our doc and the orthotist say that the > > reason it is working is because we caught it so early and began > > aggressive repositioning immediately. There are so many cases > that > > don't get caught as early or the parents are unable to be at home > to > > carry out the treatment so thank God we have the other treatments > > available for our little angels. I just wanted to let any one out > > there that has a really young one with a mild case know that there > > may be an option besides banding that does work. Thank you all > from > > my mommy heart and good luck to you all!> >>

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[Guest guest]

Add me to your list! I will def. join in a petition so that other

parents can be well informed unlike ourselves until after the fact!

Let me know as soon as anyone has any further info on this!!

> > >

> > > As with tons of other parents here, my husband and I noticed

our

> > > son's flattening at around 2 months of age. We never noticed he

> > > wasn't turning his head to the left on his own since he was so

> > young

> > > anyway and that wasn't a milestone to look for. Looking back at

> > > photos now, we see that he was always facing towards the right.

> > He

> > > had mild torticollis (sp?) which caused plagiocephaly on his

> right

> > > side. He didn't have any facial assymetry, but one ear was 3mm

> > > forward to his lip and his top cranial picture was skewed 9mm.

> > With

> > > this sites help and encouragement and the referral from our

> > > pediatrician, we started aggressive repositioning at 3 months

> then

> > > took him at 4 1/2 months to an orthotist who does DocBands. At

> > that

> > > time, the orthotist said that the positioning appeared to be

> > working

> > > and to continue with our plan until 6-7 months of age and then

> > bring

> > > him back in for remeasuring. He is only 5 1/2 months now and we

> > can

> > > see on our own that it is working! We are so blessed and

> > thankful.

> > > The aggressive repositioning is tough, but I say all the time,

I

> > can

> > > do ANYTHING for 6 months so these 2 haven't been too bad. I did

> > > wake up every few hours through the night and reposition his

> head

> > if

> > > necessary and kept him upright off his head during the day.

> Tummy

> > > time was increased throughout the day and whenever I did have

to

> > put

> > > him down on his back, I used a memory foam wedge including when

> he

> > > was put in any kind of seat (except his car seat for the

obvious

> > > safety reasons). Let me say again, it wasn't anywhere close to

> > > easy, but IT CAN BE DONE. And one positive way to look at it is

> > my

> > > arms haven't been this toned in 15 years and I lost 5 pounds

> > > carrying around the extra 15 pounds for the last 2 months

trying

> > to

> > > keep him off his head! Our doc and the orthotist say that the

> > > reason it is working is because we caught it so early and began

> > > aggressive repositioning immediately. There are so many cases

> > that

> > > don't get caught as early or the parents are unable to be at

> home

> > to

> > > carry out the treatment so thank God we have the other

> treatments

> > > available for our little angels. I just wanted to let any one

> out

> > > there that has a really young one with a mild case know that

> there

> > > may be an option besides banding that does work. Thank you all

> > from

> > > my mommy heart and good luck to you all!

> > >

> >

>

>

>

>

>

>

> ---------------------------------

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Phone call rates.

>

[Guest guest]

There is a petition for this already:

http://www.petitiononline.com/0799/petition.html

Molly

California

Nicolas, 12.5 months, tort & plagio, STARband 4/25/06-9/12/06, Graduate!

, 3.5

, 7

-----Original Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of Candace MayerSent: 30 October 2006 6:05 AMPlagiocephaly Subject: Petitioning the AAP

Why not? Instead of just talking about it, why don't we DO it? Does anyone know how to start an official petition?

Candace, AZ

mommy to Tiernan, 5.5 mos

tort, plagiolara_glynn <laraglynn@...> wrote:

I agree with you that it is a total shame and borderline reckless that parents aren't being educated to plagiocephaly. We are pounded from the time we first find out that we are pregnant that babies should now be put to sleep on their backs, but no one bothers to mention about putting them on their backs AND making sure you change the position on their heads regularly or it can cause problems. We need to all band together and demand that the American Academy of Pediatrics mandate that all pediatricians and hospitals educate parents of this new trend. Lara> >> > As with tons of other parents here, my husband and I noticed our > > son's flattening at around 2 months of age. We never noticed he > > wasn't turning his head to the left on his own since he was so > young > > anyway and that wasn't a milestone to look for. Looking back at > > photos now, we see that he was always facing towards the right. > He > > had mild torticollis (sp?) which caused plagiocephaly on his right > > side. He didn't have any facial assymetry, but one ear was 3mm > > forward to his lip and his top cranial picture was skewed 9mm. > With > > this sites help and encouragement and the referral from our > > pediatrician, we started aggressive repositioning at 3 months then > > took him at 4 1/2 months to an orthotist who does DocBands. At > that > > time, the orthotist said that the positioning appeared to be > working > > and to continue with our plan until 6-7 months of age and then > bring > > him back in for remeasuring. He is only 5 1/2 months now and we > can > > see on our own that it is working! We are so blessed and > thankful. > > The aggressive repositioning is tough, but I say all the time, I > can > > do ANYTHING for 6 months so these 2 haven't been too bad. I did > > wake up every few hours through the night and reposition his head > if > > necessary and kept him upright off his head during the day. Tummy > > time was increased throughout the day and whenever I did have to > put > > him down on his back, I used a memory foam wedge including when he > > was put in any kind of seat (except his car seat for the obvious > > safety reasons). Let me say again, it wasn't anywhere close to > > easy, but IT CAN BE DONE. And one positive way to look at it is > my > > arms haven't been this toned in 15 years and I lost 5 pounds > > carrying around the extra 15 pounds for the last 2 months trying > to > > keep him off his head! Our doc and the orthotist say that the > > reason it is working is because we caught it so early and began > > aggressive repositioning immediately. There are so many cases > that > > don't get caught as early or the parents are unable to be at home > to > > carry out the treatment so thank God we have the other treatments > > available for our little angels. I just wanted to let any one out > > there that has a really young one with a mild case know that there > > may be an option besides banding that does work. Thank you all > from > > my mommy heart and good luck to you all!> >>

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Thanks!! I signed it, and encourage everyone else, too, as well. Candace"Foley, Molly" <mafoley@...> wrote: There is a petition for this already: http://www.petitiononline.com/0799/petition.html Molly California Nicolas, 12.5 months, tort & plagio, STARband 4/25/06-9/12/06, Graduate! , 3.5 , 7 -----Original

Message-----From: Plagiocephaly [mailto:Plagiocephaly ] On Behalf Of Candace MayerSent: 30 October 2006 6:05 AMPlagiocephaly Subject: Petitioning the AAP Why not? Instead of just talking about it, why don't we DO it? Does anyone know how to start an official petition? Candace, AZ mommy to Tiernan, 5.5 mos tort, plagiolara_glynn <laraglynnhotmail> wrote: I agree with you that it is a total shame and borderline reckless that parents aren't being educated to plagiocephaly. We are pounded from the time we first find out that we are pregnant that babies should now be put to sleep

on their backs, but no one bothers to mention about putting them on their backs AND making sure you change the position on their heads regularly or it can cause problems. We need to all band together and demand that the American Academy of Pediatrics mandate that all pediatricians and hospitals educate parents of this new trend. Lara> >> > As with tons of other parents here, my husband and I noticed our > > son's

flattening at around 2 months of age. We never noticed he > > wasn't turning his head to the left on his own since he was so > young > > anyway and that wasn't a milestone to look for. Looking back at > > photos now, we see that he was always facing towards the right. > He > > had mild torticollis (sp?) which caused plagiocephaly on his right > > side. He didn't have any facial assymetry, but one ear was 3mm > > forward to his lip and his top cranial picture was skewed 9mm. > With > > this sites help and encouragement and the referral from our > > pediatrician, we started aggressive repositioning at 3 months then > > took him at 4 1/2 months to an orthotist who does DocBands. At > that > > time, the orthotist said that the positioning appeared to be > working > > and to continue with our plan until 6-7 months of age and

then > bring > > him back in for remeasuring. He is only 5 1/2 months now and we > can > > see on our own that it is working! We are so blessed and > thankful. > > The aggressive repositioning is tough, but I say all the time, I > can > > do ANYTHING for 6 months so these 2 haven't been too bad. I did > > wake up every few hours through the night and reposition his head > if > > necessary and kept him upright off his head during the day. Tummy > > time was increased throughout the day and whenever I did have to > put > > him down on his back, I used a memory foam wedge including when he > > was put in any kind of seat (except his car seat for the obvious > > safety reasons). Let me say again, it wasn't anywhere close to > > easy, but IT CAN BE DONE. And one positive way to look at it is > my > >

arms haven't been this toned in 15 years and I lost 5 pounds > > carrying around the extra 15 pounds for the last 2 months trying > to > > keep him off his head! Our doc and the orthotist say that the > > reason it is working is because we caught it so early and began > > aggressive repositioning immediately. There are so many cases > that > > don't get caught as early or the parents are unable to be at home > to > > carry out the treatment so thank God we have the other treatments > > available for our little angels. I just wanted to let any one out > > there that has a really young one with a mild case know that there > > may be an option besides banding that does work. Thank you all > from > > my mommy heart and good luck to you all!> >> Low, Low, Low Rates! Check out Messenger's cheap PC-to-Phone call rates.

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