Guest guest Posted September 30, 2008 Report Share Posted September 30, 2008 thankyou so much bruce! i am seeing my specialist soon, actually my surgeon who did my recent biopsy tomorrow so will definately address that one.that sounds very logical after i had mine just 2 weeks ago! i will look into an oxygen measurer too, and i dont have tingling in my feet? what is a neuropathy? kind regards monique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2008 Report Share Posted September 30, 2008 , I also have tingling in my fingers from an autoimmune disease called Raynaud's Phenomenon. My toes tingle also. Look for information on this. I could also be a side effect of one of your medications also. The way I see it, that's the least of my problems! Thinking about you! Elisa Subject: Re: O2 levels and other questions?To: Breathe-Support Date: Tuesday, September 30, 2008, 6:47 AM Oxygen is the key. It should always be maintained so that the oxygensaturation in our blood is at least 90% as measured with an oximeter,which is the item you're referring to. There are units available for aslittle as $65. Normally the first measurement is done at the doctor'soffice through what is called a six minute walk. They determine to whatlevel you drop during that time. If its under 90% then you probably needoxygen (social security says 88%). How often do we measure. Well, everyunique activity requires it and most days. I am obsessive so I probablywill measure 15 times or so today. Loading my car and putting mypowerchair in it, once seated and relaxed, when I walk to the Modern ArtMuseum, at Lunch, when I walk around the museum, when I rest, when Iwalk more, when I walk to Kimbell Art Museum, when I walk around it,when I rest, when I walk more, as I walk back to my car, when settledback in my car, walking into the hotel, unloading the car, walking tothe room, walking back down, moving the car, walking back in and up,laying down to rest, walking down to go to dinner, driving to dinner,walking in the restaurant, eating dinner, walking back out, driving backto the hotel, walking back in, in the room, going to bed. Now some ofthose may not require it as I'm sure what I'm doing from experience.However, today is different and more challenging because our current airquality is so bad and allergies flaring so flow of oxygen a bit impeded.Tingling in hands can be caused by many things and is often a form ofneuropathy. You don't have it in your feet? Its something to definitelyask about.Soreness in the lungs. Can you press from the outside and replicate thesoreness. If so its not in the lungs but on the outside of them. Thatcan be inflammation or if you've had a biopsy its often from that. Aftera VATS that soreness can be there a year or even as long as 3. Mine isquite much still there a year later.If you can't replicate it through touch then its internal to the lungsand cause for immediately seeing the pulmonologist. Do you have anincentive spirometer (you normally get one after any surgery). If so useit and see what you can reach. If you can't exceed 1000 on inspirationthen you are at immediate risk on pneumonia. Pneumonia is quite commonafter a biopsy. Its also a common complication of any infection we mightget. Another cause of soreness can be blood clots. So, you shoulddefinitely address this soreness if its internal, or if its impedingwhat you can do on an incentive spirometer. The spirometer is a goodtool to use daily for breathing exercises, to measure any problem, tobuild back up after a problem. It's going to be my next crusade now thatmost here are using oximeters. Since you're not experienced atdetermining any of these pains, including the external ones, you shouldget to your pulmonologist. Then if he explains its external and thebiopsy you'll be familiar with that particular pain. Yawning stillbrings several of us pain.>> hi guys, just a couple of questions as so newly diagnosed!>> are we supposed to have a certain level of oxygen to feel ok? and is> this worked out by one of those things you slip on your finger whenyou> also get your blood pressure checked at the hospital? is that oxygen> saturation or something, and how often should we check this etc?>> is it normal to have slight tingling in both my hands too, sortof like> lack of blood circulation?>> and also, today my lungs have felt very sore, i feel like i have to> stretch my back out to almost stretch my lungs, does that sound weird?> and i sometimes get sharp pains and also hurts a bit to breath inlately>> thanks for any help!>> regards monique> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2008 Report Share Posted September 30, 2008 hmmm, have heard of that elisa! thanks will look into it. bruce...any particular brand you guys over there use for the oximeters? just did a quick search here in oz! couple of different brands, but no idea! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2008 Report Share Posted September 30, 2008 The most common oximeter in the US is the Nonin 9500 which runs about $240 online. However, any FDA approved oximeter has passed the same test. We actually found one that many members have purchased for $65. However, they don't ship international. But, if you find some in Oz and then check a US site you can tell if they are approved. The reason that is important is that there are some made for sports only and not meeting standards. If you want to point me to the Oz site I'll be glad to check the same if I can find them on a US site. > > hmmm, have heard of that elisa! > thanks will look into it. > > bruce...any particular brand you guys over there use for the oximeters? > just did a quick search here in oz! couple of different brands, but no > idea! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2008 Report Share Posted October 2, 2008 Yes, I do recall now Bruce. Hard for her to buy one from the states. Thanks. MamaSher, age 70. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! O2 levels and other questions?> To: Breathe-Support > Date: Tuesday, September 30, 2008, 4:23 AM>>> hi guys, just a couple of questions as so newly diagnosed!>> are we supposed to have a certain level of oxygen to feel ok? and is> this worked out by one of those things you slip on your finger whenyou> also get your blood pressure checked at the hospital? is that oxygen> saturation or something, and how often should we check this etc?>> is it normal to have slight tingling in both my hands too, sortof like> lack of blood circulation?>> and also, today my lungs have felt very sore, i feel like i have to> stretch my back out to almost stretch my lungs, does that sound weird?> and i sometimes get sharp pains and also hurts a bit to breath inlately>> thanks for any help!>> regards monique> Quote Link to comment Share on other sites More sharing options...
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