Re: Newly Diagnosed with PSC

[Guest guest]

Welcome to our group. We will gladly be here to answer any questions we can and most of all to support you. I cannot tell you how great it was for me to find this group when I was diagnosed. Hang in there and we will all be there for you.

Bettyann (SC)

[Guest guest]

I sorry to here you are not doing well I to have fatigue due to the illness, some days are better than others. It often depends on how much sleep I get. I have confusion to in matter fact I been talking to those who have pbc for a few month thinking that was my dignous but the last time I had my stent replace in my bile duc I was told it was psc which I was dignous in 2001. I hope you have a doctor that can help you through this time.lanialanasmom wrote: My name is Eve, 31 years old, and I was recently

diagnosed with PSC. We are thinking I am one of the few who get it due to Ulceritive Colitis. Which in the past 2 years I've had an ileo and reversal.(J pouch) I am so frustrated and tires. There are days I can not even drive my 5 year old daughter to school. I go 4/20 for my biopsy to see how far the disease has progressed. I currently take 3 types of meds to prevent nausea and 3 med for itching(surely wished those ones were working).I came to find support because I often find myself in tears trying to cope and figure what is next. It was refreshing to see that there is such a warm loving group out there for me to communicate with. Thank You for just being here!!

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[Guest guest]

Thank you so much! I have good days as well just not as often as one

would like. I'm sure you can relate. I have a bilary drainage tube

now, from what I understand my bile ducts were scarred pretty close

to shutting off. Which is what had originally gave me my itching and

jaundice. For only being about 2 months it has been crazy. I am 31yrs

old and have 5 year old. I often am in tears, I just don't think this

is all very fair especially to my baby girl. She's my reason to live

and gives me every ounce of energy I do manage each day.

My name is Eve,

31 years old, and I was recently diagnosed with PSC. We

> are thinking I am one of the few who get it due to Ulceritive

Colitis.

> Which in the past 2 years I've had an ileo and reversal.(J pouch)

>

> I am so frustrated and tires. There are days I can not even drive

my 5

> year old daughter to school. I go 4/20 for my biopsy to see how far

the

> disease has progressed. I currently take 3 types of meds to prevent

> nausea and 3 med for itching(surely wished those ones were working).

>

> I came to find support because I often find myself in tears trying

to

> cope and figure what is next. It was refreshing to see that there

is

> such a warm loving group out there for me to communicate with.

Thank

> You for just being here!!

>

>

>

>

>

>

> ---------------------------------

> Ahhh...imagining that irresistible " new car " smell?

> Check outnew cars at Yahoo! Autos.

>