Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 The trouble with using SPECT scans or regular EEGs to detect seizure activity is that seizures are intermittent so will probably not get picked up. We were told by Dr Rossignol that it was 95.% likely that a 7 year old non verbal kid was experiencing seizures but the SPECT he sent us for showed nothing. My understanding is that only a 24 hour EEG can really reliably pick up seizures and of course most of our kids can't tolerate that testSome doctors put kids on anti seizure meds without knowing if they have seizures or not but that doesn't seem a great idea either But does anyone know any other method of checking for seizures ?Sent from my iPhone Don’t the scans also determine whether there is seizure activity? I’ve heard the seizure activity can lead to apraxia. Therefore, with that in mind, the apraxia would be a valid reason to have one completed. If this is accurate... From: eileendeoliveira Sent: Thursday, January 20, 2011 9:14 AM To: sList Subject: Re: Hyperbaric oxygen chamber Hi! I thought I would just add my two cents in about SPECT scans which we did do for Lucas prior to starting HBOT many years ago with Dr Neubauer. Lucas' spect scan showed such horrendous damage that Dr Neubauer was afraid to talk to me about it. In the end Lucas' SPECT scan does NOT represent who he is and therefore we decided on never doing another one again. The story the spect scan showed as opposed to the real child was not at all aligning.I understand why parents want to do it but i am just saying for us it was very disappointing, scary and not accurately depictive of who lucas was or is.eileen> > > > > > > > > From: Eileen de Oliveira - Therapies 4 Kids <eileen@>> > > Subject: Re: Hyperbaric oxygen chamber> > > To: mailto:_sList%40yahoogroups.com_ (mailto:mailto:sList%40yahoogroups.com) > > > Date: Tuesday, January 18, 2011, 11:36 AM> > > > > > > > >  > > > > > > > > > > > > We have a non profit that can do that. www.brightstepsforward.org> > > Sent via BlackBerrry> > > Therapies 4 Kids> > > www.therapies4kids.com> > > eileen@> > > begin_of_the_skype_highlighting > end_of_the_skype_highlighting> > > > > > > > > From: Darla <alfia37@> > > > Sender: mailto:_sList%40yahoogroups.com_ > (mailto:mailto:sList%40yahoogroups.com) > > > Date: Mon, 17 Jan 2011 23:17:12 -0500 (EST)> > > To: <mailto:_sList%40yahoogroups.com_ > (mailto:mailto:sList%40yahoogroups.com) >> > > ReplyTo: mailto:_sList%40yahoogroups.com_ > (mailto:mailto:sList%40yahoogroups.com) > > > Subject: Re: Hyperbaric oxygen chamber> > > > > >  > > > > > > I was thinking this as well...and if we donated to a non profit org > that would support our use it could be a tax write off as well??? > > > > > > > > > > > > Regards, > > > Darla Haskell> > > > > > > > > renting a chamber> > > > > >  > > > > > > How much does it cost to rent a chamber?Is it monthly charge?> > >> >> Quote Link to comment Share on other sites More sharing options...
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