Re: Rx plans

[Guest guest]

My husband (we're newlyweds) was diagnosed with PSC in Oct. of '03, and has

been

on a 1000mg/day dose of Urso since then. I've done some research into the

archives and

it seems that anything over 750mg but up to 2500 mg of Urso a day dose is

considered

high dose. What is the dose that we should advocate for with his Hep?

I've been lurking on the board for the past couple of months without posting and

you guys

provide a wealth of information. Thank you so much for being here.

Thanks so much for providing so much support and information. Just reading

about

people having similar experiences - on of 's family members in the past

couple of

years called him a " wus " for not having a whiskey with him - and all of the

information you

have sought out and share feels so empowering when often I just feel

overwhelmed.

BTW - I've seen posts in the archives where people asked if anyone with UC had

been told

they were allergic to milk. was diagnosed with UC when he was about 8

years old

and was on aggressive steriods until his mid 20s. When he was 26, he was so

thin and ill

and the steroids weren't helping, and he began to see an MD/PhD who also is a

holistic

practicioner and pharmocologist. Dr. Zyblott did a run of allergy tests on

and

discovered that he had severe allergies to milk, beef, chicken and pork.

changed his

diet and has shown no signs of UC symptoms or on colonoscopies since he was

about 29

or 30. It didn't keep away the PSC, but at least he doesn't feel miserable from

UC as well.

(in Texas)

wife of PSC '03

>

> Has anyone else discovered that their Rx plan changed for 2007? I

> have Caremark, and was told today while refilling several that my

> insurance denied my Urso. My Hep office called to tell me they told

> her they would only cover 2 Urso Forte pills per day (1000mg). I was

> previously taking 6 250mg per day, and when my dosage was changed to

> 2500, my Hep wrote the Rx for the Forte so I would only have to take 5

> pills instead of 10. It seems that my old dose would not even be

> completely covered. My Hep is writing a letter to try and justify it,

> and appeal the denial, but his office didn't sound confident. She said

> if unsuccessful, my Doc would work on something else. Anyone else

> finding 2007 coverage changes? It's ironic my insurance premiums went

> up, but the coverage went down.

>

> Stuart (Va)

> PSC 2001

>