Re: Success treating Firbo?

[Guest guest]

Hi There, I am wondering if anyone has been to a Fibromyalgia & Fatigue Center (any chance the one in Seattle?) If so, what tests did they run?Or if anyone has had any success treating Fibro in general?Thanks!

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[Guest guest]

asked, “So

what does your doctor treat your fibro with?” and Meg asked, “Can you send me the link

for the Fibro group? When I searched for it, a bunch of groups came up. Also, I

would love to know how your Dr. Bateman is treating you.”

So,

first up, to subscribe to the fibro email list, go to this link: http://www.listserv.net/scripts/wl.exe?SL1=FIBROM-L & H=COMMUNITY.LSOFT.COM

In

regards to my treatment plan with Dr. Bateman, I’ve been seeing Dr.

Bateman for 6 ½ years – which I can’t believe it’s

been 6 ½ years. Wow. Anyhoo, she is extremely thorough in her approach:

1)

Prior

to the first visit, you complete a ton of paperwork (the good kind) – a very

long and thorough questionnaire on your health and overall history. Timeline

included.

2)

Also

prior to the first visit – you get a pretty complete set of tests done –

nothing esoteric that insurance won’t cover. Just a complete baseline.

3)

The

first visit is between an hour and two hours. Dr. Bateman reviews in depth your

history, blood tests, etc. She takes copious notes. She also gives you a thorough

physical exam. She’s an internist, so she’s a real pro in this

area. When she checked my thyroid, she commented that it was irregularly shaped

which is not uncommon for those of us with Chronic Fatigue Syndrome.

4)

She

then works out a treatment plan with you based on history, your input, tests,

etc. It’s very very complete. And although they all have common aspects the

plans are all unique to the individual. For example, I have a profound immune non-function

component to my CFS. She put me on gamma globulin shots every ten days to two

weeks. I’ve been doing those shots for 6 ½ years and they’ve

made a huge difference in my life. I don’t get sick very often anymore

and certainly not sick with the very weird contagions that I was experiencing

prior to the shots.

5)

She

makes full use of the pharmaceutical arsenal available to her. But she is also

open to alternative treatments. She is also current on all the research. She

knows her stuff and is not afraid to push out on the leading edge.

6)

Her

staff is dedicated and her patients LOVE her.

7)

I’m

pretty pragmatic, but I really do think that the sun rises and sets over Dr.

Bateman. J

Steph