Re: Any help for a Kaiser Appeal in Colorado?

[Guest guest]

I would say, like I see on this site all the time: trust your

instinct.

I was in a slightly different position, as I did not have anyone

refer me to a local orthotist. I made contact with one person who

was flying to Phoenix for treatment, who had actually been told by

the orthotist at Children's (starband) that he would not band her

child. I adamantly did not want to be in the position of convincing

someone to treat my child. I felt if they didn't want to do it, I

didn't want them to do it. I did not research any local orthotists

at all...I just felt if the doctors weren't referring patients for

treatment, local offices couldn't possibly be as experienced as

other places. But that was a result of the direction doctors led

me. I kept getting the " it's no big deal, it's not worth it, etc. "

From this site, I hadn't seen any reports of anyone ever having any

problems with a DOC band, and I felt like, since I had no medical

resource locally, I'd better go with a place that I could trust

wihthout question.

Sounds like you've had some support and Hangar has stepped up and

shown they are willing to treat your child. So, if you're

comfortable with Hangar and your experience so far, I'd say don't

worry about too much. And be thrilled that you won't be on a first

name basis with the TSA people out at DIA!

Use the people on this site as a resource to help make sure your

band is designed and managed properly. If you're still not sure, I

believe I've seen lists on this site regarding questions to ask (and

answers to expect) in determining the skill of your orthotist.

The only other things to consider, I'd say, would be your child's

age and whether the band is active or passive. One of the

moderators would probably do a better job of explaining the pros and

cons of the types, and what ages they are appropriate for. The DOC

Band is active, and as I understand it you want an active band for

any baby over 6 months? My daughter's measurements originally were

22mm, 13mm, 13mm; she needed 2 bands and finished at 5mm, 3mm, 2mm -

amazing results.

Glad to be able to help a little! I was so disappointed with the

lack of support for treating in this area - I'm glad you've found

some support. It's so hard even deciding to get a band for your

baby. It seems crazy that you should have to worry about where to

get it done too!

Good luck!

Tammy

> > > >

> > > > Hi. I am new to this group and am facing an uphill climb in

> my

> > > appeal

> > > > to Kaiser in Colorado for a helmet for my 7 mo. old son. He

> has

> > > > plagiocephaly as a result of ideopathic scoliosis. We

> received

> > the

> > > > denial letter, and don't really know what to do next. Any

> ideas

> > or

> > > > advice would be appreciated. Thanks!

> > > >

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> > For more plagio info