Guest guest Posted June 4, 2007 Report Share Posted June 4, 2007 help! i recently had a ct scan. the nurse just called me to come in and i got the info out of her that i have portal vein thrombosis. any suggestions on what i should ask the doctor when i go in? how is this going to affect being listed? any info. help or suggestions would be greatly appreciated. i'm too early to list, but may croak before i get sick enough :-) had varices last year and was in intensive care for 5 days for that, then banding for 9 months along with an ercp every other month. damn. pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2007 Report Share Posted June 4, 2007 Pam: Sorry I can't be of help. But am sending you my best. dee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2007 Report Share Posted June 4, 2007 Portal vien thrombosis is not a good thing. I'm sorry to learn that it is one more thing that you have to deal with. You should visit with your doctor pronto. Port vein thrombosis is where the blood flowing in the portal vien clots and blocks the vein. Your doctor will want to investigate the CT and perhaps get a portal vien ultrasound to detirmine if this is recent or chronic and if it is partial or complete. Portal vein thrombosis causes cirrhosis on it's own even without PSC. It also can complicate liver transplantation as the new liver needs a working portal vein. If the clot is recent, it may respond to blood thinner which can save the portal vein must be carefully managed as cirrhosis has it's own bleeding problems. You will want to ask your doctor if there is a reason that your blood would clot. There are blood tests to find the reason: antiphosphlipids, Leiden factor V, polycythemia etc. Good luck and tell us what you find. > > help! i recently had a ct scan. the nurse just called me to come in > and i got the info out of her that i have portal vein thrombosis. any > suggestions on what i should ask the doctor when i go in? how is this > going to affect being listed? any info. help or suggestions would be > greatly appreciated. i'm too early to list, but may croak before i get > sick enough :-) had varices last year and was in intensive care for 5 > days for that, then banding for 9 months along with an ercp every other > month. damn. > > pam > Quote Link to comment Share on other sites More sharing options...
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